They should've started making this cure way back in the 1980's and doing some long testing and trying and then years later, like the early 2000's, brought it out for the public. They should've also started making a cure for not just epalepsy, but also focal seizures, and skitso frenia. I have seizures, but they're focal seizures. I would like to stop taking Kepra and topamax, but I can't until this cure comes out! I say they've done us a great harm by not making this cure for us in the 80's. Had they done that, and then later in the 2000's, came out with it and given it to us, We wouldn't have seizures anymore, seizures would be rare! Totally rare, because once someone has a seizure, people in the hospitals will give them the cure and hopefully it'll be a drug that you only take just once and then, Shazam! Seizures are gone forever!

A question I have is, if you haven’t had a seizure for ten years, how would it affect the brain if you had a seizure out of the blue? My husband has epilepsy and had not had a seizure for 10 or so years he had his first seizure on Sunday is in the hospital and is still having seizures.

I believe medications can worsen seizures

Is it recommended for cerebral palsy people with epilepsy?

Save and effective...thatswhy AstraZeneca took the covid vaccines from the market and Pfizer was forced to show all the side effects....don't lie lady

2018 Farm bill and USDA licensed hemp plus 2022 Medical Marijuana and Cannabidiol Research Expansion Act should lead to more FDA approved products on the market.

My younger brother suffers from epilepsy. He is 34 years. It has long been since he's a child. It's always terrifying for my whole family to watch him have the seizure 5-6 times or even more in a month. It's not just for my brother going through life and death struggle but the fear itself takes a toll on our mental and physical well being and i think that's one of the reasons why our mom is getting weak and old sooner than expected. We lost our dad a couple of years back. Please pray for my family!

Yall are doing a wonderful thing for her. I had 3 seizures in my teen years. It was diagnosed as epilepsy. But it ended up as a hormone imbalance. They made me exhausted. I had trouble in school.

This was very informative and useful, thank you. My child may have this condition without absence. I was wondering if you're aware of anyone in the United Kingdom that specializes in this area?

I have a theory that may just benefit for those of us with epilepsy and that’s earthing it increases your quality of sleep and provides a calming sensation giving it hopefully potential as a holistic approach to reducing the amount of seizures we have.

Thank you. I'm now 73. When I was almost 8 I was in a car wreck (before seat belts and air bags). I had a lump on my head and began having frequent headaches that would last 2 or 3 days at a time. About a year later I found myself lying face down behind the swing set on the school playground when the bell rang. I had no idea how I got there. I wasn't hurt so I dusted myself off and scrambled into the classroom before my strict teacher got there. A year after that I had a grand mal seizure in the family car near a hospital. They put me on a medication for a while, but took me off of it a few months later after my father lost his job. After that I had occasional "absences" until after my first year in college. I also stopped having the headaches. I thought I was through with it, but about 20 years ago I started having odd feelings and felt the need for more rest. However I didn't think about seizures. Then 7 years ago I seizured while driving on a city street, causing an accident. When I regained consciousness, I couldn't talk. An ambulance crew took me to a hospital. I wasn't aware of what was going on for 2 days. I found out that I was seizuring for several hours. They took the cell phone out of my pocket and called people on the contact list who had no idea of my medical history, so the hospital began treating me for a possible stroke. They finally were able to contact my sister who lived in a distant city, and she told them about one grand mal seizure from my childhood. She didn't know about the absence seizures through high school. The hospital gave me stroke drugs and ran me through a CT scan and an MRI. They determined that I didn't have a stroke, but recommended seizure medications. They gave me a generic Keppra prescription. Then I got connected with a neurologist who told me it was common to grow out of childhood seizures, and it wasn't unusual to begin having seizures as an older adult. It wasn't so common to have a "quietus" period in between like I had, and start having them again.

My child has sturge weber syndrome and glaucoma,he is 1yrs and 7 months

My child has sturge weber syndrome and glaucoma,he is 1yrs and 7 months

I live in Texas. And have Medicaid through United Healthcare and they just randomly switch my manufacturer. There is a difference between the previous manufacturer of my seizure medication, lamictal. Had many more side effects that the previous manufacturer did. This never occurred to me until the dizziness (which I just figured was from my hearing issues and allergies, I’ve had an increase in seizures since then also. it was brought to my attention that these may be because of a difference in manufacturing of the medicine. Didn’t even know that was a thing, but it’s well now my to be one from doctors and such. Fun stuff.

Our 24 year old daughter died in Feb 2024 from what we suspect is SUDEP, but we'll never know for sure because in their infinite wisdom, the coroner did not order an autopsy....probably due to underfunding. Their report is still not final. SUPED must be better understood!

Why do infants get these spasms that often then end up disappearing? I have treated & completely controlled epilepsy but I have two sisters each had a child that developed infantile spasms but the children’s symptoms disappeared. I suppose my being open about my own epilepsy made them more aware. My own epilepsy may be genetic.

I'm here for help concerning my 18 yr old non verbal autistic grandson with epilepsy. He currently has a awful cold and cough and I've been told no cough suppressants any thing that says DM lowers seizure threshold. What should I give him?

Wonderful Kelly, thank you for doing this!

I actually tried this diet and it triggered back my seizures after being seizure free for 3 years!

I forgot to mention that my family believes he’s some kind of god and I’m totally wrong so they’ve left me bc I won’t do as he says. So I’ve lost my family bc of him too. Bottom line … neurologists don’t know it all. And just bc ppl are older we can’t all be put in a dementia basket like doctors love to do ! It’s all very heartbreaking how doctors can ruin families when they can pull the family aside and tell them what they think is best when they should talk to the patient

Thanks for addressing this. I’ve been misdiagnosed and have nowhere to go. He’s the top neurologist in this town and my insurance won’t allow me to go outside my plan for a second opinion. I even have a VNS implant with a magnet . I’m a 71 yo fe without dementia. He’s done no MRI , scans etc but at least 20 eegs and says I have ictal epilepsy. Which is wrong. He now wants another one! Cameras , inpatient, outpatient, cameras etc. it’s silly. On zonisamide lamictal and it’s been a financial hardship! It’s heartbreaking and he’s wrong Personally I think I have a slow growing tumor but he laughs at me. My family just believes him. I’m perfectly normal. And I’m afraid. Bc I do not dementia and I would never go to an assisted living as he suggested

Th

I wanted to ask even though this webinar is over. I had 2 absence seizures before the age 10. After the second one I was put on dilantin for a few years and was taking off of it. The doctor said I would grow out of the seizures. The medicine made me so slow that I got to the point in school where I couldn't read at all . A doctor reduced the amount of medicine and it helped some from what I remember. I don't think it helped enough. I had a really hard time reading and doing other things with using my brain. I don't remember before hand having that much of an issue before taking that medication. I am doing some better now but still I feel like the after effects still linger to this day. I think it has to do with this medication but I'm not so sure whether or not the 2 seizure I had as a child or even if it is the brain malformation small spot that was found on my right frontal lobe from an MRI I had in 2021 from a bilateral tonic clonic seizure I had. I wasn't on any medicine for 40+years and no seizures ether. The seizure I had in 2021 was the first seizure I had ever as an adult in my early 50"s. I did fall and hit the left side of my head and had a big goose egg that eventually went away. Then I was told I had to be on medication again and because of the issue with Dilantin I didn't want to be on any medicine again. Now after so many years I was diagnosed with focal epilepsy. Can dilantin still have lingering effects of cognitive disfunction though out the rest of your live even only being on it for 2 to maybe 3 years then stop taking it? I'm was put on Keppra for a little while and I couldn't handle the side effects on the moodiness I had. I have always been a moody person with bad anxiety and some low depression. For things I can't do because of means of doing what want and need and making bad choices.

Thank you guys for this platform

Medicine name plese

Thank you so much for the education on the VNS stimulator. It was a very informative and educational experience that I needed.

I had a tonic clonic seizure in college during the midterm studying of all-nighters. A neurologist analyzed that I had epilepsy and that throughout childhood was also having undiagnosed absence mals. I found that I could discover if I was about to have a seizure because I would first sense that an neurological aura was occurring. It was encouraging to have this warning sign but now I no longer have to worry because within a year my seizures are now fully controlled with just a tiny dose of meds. I have no side effects. I worked at the airport for the government before I was fully controlled but was told to not divulge any details of my malady on my personnel file. I was instructed to not check the epilepsy box. I never fully gave details of what the result of my trips to the hospital entailed but it was obvious that they were aware of my epilepsy though it was never spoken of. I had a great working relationship with my employer and coworkers though I was assigned one additional job to do. They would request my help to comfort an upset child who had developed one of his epileptic seizures before boarding a plane. I could comfort the child by telling him to not be embarrassed because I too have epilepsy. I assured him that I understand and that things would get better. I am now retired from work but I still appreciate how well my employer and coworkers handled my issue that in truth was anything but a secret. I’m still fully controlled.

What will happen to someone who has absence seizure who stops his medicine without doctor's permission? But he still have frquent attacks. Instead he is taking herbal medicine

What will happen when someone who has absence seizure abruptly stop his medication and replace it with herbal medicine? Is it all possible that someone who has absence seizure has selective memory?or it is a choice?

Thank you for this as I’ve been recently diagnosed

Such a moving video. My daughter was diagnosed with myoclonic Astatic epilepsy syndrome when she was 2 and our lives have never been the same since. It is completely heartbreaking seeing your child suffering with multiple seizures daily and we have not found any medication or treatment to stop it. Trying to find support and access services from our local authority and medical agencies has been difficult as we have been met with barriers. All you can do is keep battling. We will never give up on finding treatment and support for our daughter. I think it’s really important to share your own experiences to build awareness to epilepsy as a lot of people are quite ignorant about it and believe that you just take medication and that’s essentially the end of the issue. Thank you for sharing your family’s experiences and I am so sorry for your loss, I cannot imagine how difficult that must have been for you all. ❤

Exercise in epilepsy!! It will decrease seizures, therefore, it will decrease SUDEP!!

Partial seizure epilepsy is often, and unfortunately commonly misdiagnosed. I had them for several months, and they were happening 1 time/month. None of my doctors could not figure out what was happening, and because I was in medical school I started trying to figure it out myself. (the only disease I ever even tried to diagnose on me). It turned out that I was correct, and I started seeing Dr. Michael Smith (from Rush) and he and Dr. Frank Morrell (Dr. Smiths professor). Surgery was done, and I was helped, but not completely free. I was able to practice medicine for 20 years after the surgery!! Now I'm on disability Insurance (running out fast) but I have saved up enough to live the same. I still see Dr. Smith, and he is THE BEST!!!

This is the Doctor that led the researched treatment of CBD for epilepsy anyone in the Virginia area they should reach out to him if he is accepting new patients 💜

Why everyone have yo take the same meds when each of us has a different one.

Great information and thanks for posting. My son (13) has EEM and only led to General tonic clinic seizures entering puberty. We've tried Keppra, Zonegran, and now on Briviact. Struggling to find a drug that helps. Seems only to have GTC's when the eye fluttering becomes excessive. I've had limited success (2 times in a row now) of gently holding my thumb and finger on the inner eyes by the nose to calm the fluttering. This was coupled with getting him to lay down in a dark and quiet place. Really appreciate this info so please keep them coming because there's not much out there. ❤

Thank you for sharing this interview. Anyone considering keto, I recommend it after seeking assistance from a dietitian. You don't want to do it alone. My son is on modified Atkins for epilepsy. Thank you, sir, for fighting for your son and countless other patients like my son! God bless you.

NOTHING TO BE WORRIED IS A DEVINE SYSTEM IN EARTH. IT WOULD BE DARKNESS FOR FEW HOURS . ENJOY IT DONT WIRRY ABOUT. FROM BANGLADESH.

I’m having grand mals. What really else do you need to know.

I hope holographic med beds will be here soon.

Is Kurt still watching tentacle porn with his wife and kids?

Read my sons story Google Alan Davies Sudep

Read Alan Davies Sudep

I was told that I have refractory epilepsy had seizures since birth

Thank you for this informative presentation.

I"views dis video here my phone...d2 sa bahay namin kasi my problem po ako sa self ko mam' sir kasi dalaga papo ako ehh... untell now wala po ako ng work ...

Laura I admire your optimism. I feel like you and I have followed the same path. We are the same age. I had an attempt at having a mass removed also right temporal lobe. I have cortical dysplasia. They discovered in surgery that they could not remove the mass because I was becoming paralyzed on my left side. The recovery took a couple of years. It has been 17 years since that surgery. They want to do another but I hesitate. It is not an easy recovery at all. I lost my math skills and also my job as a scientist. It is such a long journey. You have to be grateful for every good day and just accept that you will have a few bad ones. Thank you for sharing your story and your optimism.

How do I get on this podcast?

thansk you