Thankyou so much for all the lupus posts, I have learnt so much about Lupus diagnosed last year with 3 other Auto Immunes and idiopathic fibrostic COPD. No support in SA. So I follow the American Lupus Association. Thankyou

Really lupus ?🤭🤔 Are you sure that water retention is due to lupus? I think there's something else going on - have yourself checked for another ailment😏.

Me pueden ayudar mi nieto lupos y está afectado su salud somos del ecuador y necesito si allá hay especialistas q lo puedan ayudar

Pueden traducir en español

Be thankful your kidneys are not failing. The kidney transplant waitlist is 10-12 years in California. We need more Latinos to sign up as organ donors . Lupus is devastating and funded well. Selena did no favors to raise money or awareness for SLE Research

Be thankful your kidneys are not failing. The kidney transplant waitlist is 10-12 years in California. We need more Latinos to sign up as organ donors . Lupus is devastating and funded well. Selena did no favors to raise money or awareness for SLE Research

Thank you for sharing..fatigue in lupus..years before I realized my disease..life goes on❤

I lovvved this Thank youuu!!! Well Done ❤ Wish he was my Dr lol

I have tle

Is there nothing like this in South Africa, so many people have Lupus....help

I have had both fibro for many years and now lupus and crohns with colitis and sever joint swelling

All autoimmune disease

I understand your pain sister, I had lupus for many years, I had sores in my mouth, on my hands and my face was completely red, I even had disability due to the disease, I lost my job, but I didn't give up, in 2022 I underwent traditional and ritualistic treatment African and thank God I was cured, I no longerI haven't had any symptoms of this disease for two years, I know God cured me. Don't give up, always look for other alternatives, there are diseases that no doctor can cure, only your faith and God

Also what about a patient increasing their Vit D3 intake along with Magnesium and Zinc to improve inflammation rather than taking a harsh medication like Lyrica?

What if one test positive for Lupus with positive ANA on some tests and then negative on others? I have horrible joint pain, rash on face, mouth sores sometimes and ANA is never always positive. I also have a Fibromyalgia diagnosis.

My uncle was suffering from Systemic Lupus Erythematosus for years, but after using the natural solutions from IAFA Ayurveda, he experienced complete relief within just 3 months. The treatments not only alleviated his symptoms but also improved his overall well-being.

Great intro but I’d like to edit that a bit: it’s somebody walking through life in deep pain and appearing normal so that they can get to the next step. THEN when a FLARE hits, you’re absolutely crippled from it with no time limit. It’s an unknown. It’s turned living every single day, into Fight or Flight, every fkng day.

I was required to have a full neuropsychologic evaluation after a nondominant basal ganglia hemorrhage (sucessfullyRx with EVD and tPA) at the same time my erosive RA and SLE (1"1280 dsANA) was diagnosed. This testing confirmed my prior suspicion of ADD-Inattentive but the neuropsychologist (director of the Unoversity lab) noted that these changes (executive function primarily) are also documented with SLE. I use atomoxetine - a norepinephrine reuptake inhibitor rather than a stimulant (NE and DA reuptake inhibitor) with pretty good response, although low dose prednisone was more efficacious IMHO until the SLE seemed to quiet to remission. Has anyone trialed atomoxetine - a NE reuptake inhibitor- for "SLE Brain Fog"? There is a "screening paper/pencil test for Executive Function but I really dont know how sensitive it is. novopsych.com.au/assessments/formulation/executive-skills-questionnaire-revised-esq-r/

Thanks! Suffering with both. Great pain. 🥲🥲

Really great information.

Im sorry you had to experience this , and I hope and pray you improve in your recovery. Thank you for sharing.

I'm a Lupus warior too❤❤❤️

My lupus nearly took my kidneys and lungs out in 2019, at least I was so sick and out of it that I skipped out the entire pandemic

Strangely, both ample and adequate oral hygiene, as well as prebiotic protocols have shown to alleviate auto-inflammatory conditions.

🫂🫂🫂

Hi my name is Gladys. lost my 19yrsold daughter to lupus last year . Lupus attack her due to Dr s negligence and fake medication. I will like to spread the awareness of lupus I my country but financially incapacitated. Pls how can I be funded to raise awareness in my country

Looks more like congestive heart failure! I have systemic lupus andy flares have always been red hot patches on my face,arms and chest as well as a low grade fever and very severe fatigue. The edema part is usually due to a heart issue. This is strange to see someone with lupus that their flare was pretty much just fluid retention so you take some Lasix and pee a gallon a day and it goes away. Hmm🧐

You’re not alone sis❤ my hair is falling out as well. Love from Oklahoma.

In my experiance as a healthcare professional and someone with lupus of the CNS. In my worse flares i have had symptoms of lupus psychosis but it isnt true psychosis...you know it isnt real but it is still happening. It's not a brain chemical dysfunction but an inflammatory issue. So any typical medications in an attempt to regulate chemistry are not going to to work. The inflammation needs to be put into control

@everyone what have you found helpful to regrow your hair?

Anyone else have to work full time and can barely live outside of that? 😢

Does having lupus make you eligible for disability? How do you rest so often?

I hope we have happy new year ❤❤

Happy and Healthy New Year🎉😊

I am scared about this disease for me I am scared to get cancer To suffer To die...😢😢😢😢😢

Thankyou i have lupus in 2018.

I have been dealing with SLE for the past 8 years, never an easy journey but I thank God for his Mercy.

This is what my feet and legs look like right now. How did you get rid of the inflammation?

Going carnivore!!!

My mom has Lupus and when she was 14 it got so bad that she couldn’t even open her hand and was in bed all day. My grandparents were worried and took her to every doctor but they said she didnt have lupus and just transferred her and gave her the wrong meds. She was almost on the verge of death until a doctor from the army came and diagnosed and helped her get better slowly. She's 52 now and is living her life in peace. Stay strong you can do it!

My mom has Lupus and when she was younger it was rlly bad that she couldn’t even open her hand. She was almost on the verge of death until a doctor from the army came and helped her get better slowly. Shes 52 now and is living her life in peace. Stay strong guys!

I don't personally bullet journal, but I love putting your videos on in the background while i do schoolwork or draw or whatever im up to - you have such a calming and nice voice to listen to :) i hope you a good rest of 2024 and a lovely 2025!

Thank you so much for everything LFA !!!

You're absolutely beautiful and wonderfully made....stay strong and prayers for you ❤️

Yes. It's so terrible. I'm dealing with my new manager and packing to move and not understanding even thought I have rights as hud and disabled person to slowly pack to move. They said to get rid of it all by Dec 30th or ill get kicked out jan 30th. It's all bins packed for my move next yr. Still work in progress. But she calls it hoarding when nothing are in closets and drawers. So pathetic. I have no help and been doing my apartment all alone on top of 8 losses this whole yr. And then injured my chest from packing alone and all the work and getting rid of tons of stuff. She sees one Pic and calls it hoarding. I run to get groceries I'm out. Do dishes or cook or simply put a bath and I'm out rest of the day

I get it for sure. My big accomplishment was getting a bath today.

Thank you for sharing

Im so sorry :(

YOU DON'T HAVE ANY DISEASES YOU HAVE PARASITES.

I have had Lupus since I was 30. I am 78 no. All those years I would say I feel like I have the flu, terrible aches, chills, allergies to all fruits and fatigue. I remember not even the strength to change my baby who's almost 50 now. I was in bed with the "flu" at 3 times a month where I could not walk. After heart tests I had it! No answers! I am a very prayerful person and I pray my rosary daily. I begged for an answer. I gave up all fruits 39 years ago, hardly any grains, sugar, dairy etc. I read about CO Q 10 how it builds up ones heart health and is anti cancer. It rebuilds nourishes every cell in your body. Well in about 3 days I could walk. It was wonderful. Now that was in the early 1990's. I still struggle but at least I am active for my age, tho in pain from osteoarthritis the terrible fatigue is not too bad. I had to resign my self to make many adjustments for the sake of my loved ones. Fight the depression by having a deep Faith in Gods love for you. When we die life never ends as its just the beginning of eternity.