Was taking out the catheter and drain tube painful?
@renegadeace173511 ай бұрын
Just finished my 2nd weed of recovery.
@Herkeseacikkullanci2 жыл бұрын
Are you alive?
@jiiiigsaw2 жыл бұрын
Seriously that sneezing pain last a year!?? im on week 5 after surgery i sneezed once and it felt like someone stabbed me in the chest.
@lemonaid21473 жыл бұрын
Thank you so much!!!! this is so helpful
@kimberg25393 жыл бұрын
hi mandi. i just had this surgery and you have been confirming every struggle i've had so far, making me trust that everything is going the right path when it comes to recovery. You are very pretty aswell 😄 greetings from Norway and hope you are enjoying your new life.
@maryfoster78134 жыл бұрын
Hi! My son will be having Nuss procedure very soon and we were looking to use a surgeon that's in Orlando. Is there a reason u chose to go to Arizona for the procedure instead of using a surgeon in Orlando?
@Aposki4 жыл бұрын
Because Dr. J is one of the most experienced and best surgeons at working with pectus
@beckiphilpott4 жыл бұрын
Thank you for posting these. I only found out I have PE last spring. Aestheticslly, mine isn't super noticeable but the haller is 8.9. Growing up, I was always told I had exercise induced asthma--even though I experienced syncope from exertion. Finding out has made everything click into place and make do much more sense. I will undergo Nuss procedure next month and have been searching to get an inkling of what to expect. Love the tip on button shirts. I love to throw on sundresses in the summer so spent all day trying to search the web for button up sundresses that don't look like the housecoats my granny wore. I'm most nervous now that because of COVID, I don't believe I will be allowed to have any visitors in the hospital. 👎
@rumbajunior69914 жыл бұрын
Pectus up is way better ..
@amandawallace1055 жыл бұрын
Omg, i have so many questions. Just found out my son need to have this same surgery 😢
@mandisorg92735 жыл бұрын
My experience with the surgery was very positive; I hope your son can experience the same! Let me know if you have any questions!
@amandawallace1055 жыл бұрын
@@mandisorg9273 Thank You . My son is 14 years old 5'4 and 84 pounds. He is scared the bar will move or he will be able to feel the bar poking out the sides ( because he is so skinny). And he wanted to know did your ribs poke out before surgery ( if so did it help improve the look of the ribs too)? He is very scared about the pain and so am i.
@mandisorg92735 жыл бұрын
@@amandawallace105 From my experience, sometimes I could feel the bars move inside but it did not hurt, and it was not uncomfortable - more just an awareness. Know, though, that this was not a usual occurrence. I am also skinny, and you could see the bars on the side every now and then, depending on if I was stretching, etc. This also didn't bother me. The look of my ribs did improve! Yes, I had some flare on the lower ribs. I still have some flare now that the bars are out, but it's not like it was before. The surgery is painful, you can't sugar coat that one. But good news is it doesn't last long, you have great resources for medication to help alleviate pain, and once the pain is over your body forgets it!
@makaylastein17395 жыл бұрын
Hi Mandi! I was just researching about the Nuss procedure and recovery, because I am getting it done in a couple months, and I started watching your videos. I’m curious to know if you got the bars removed back in November?
@fatidicusaeternus64985 жыл бұрын
Did you get the bars out by now?
@mandisorg92735 жыл бұрын
Not yet... but this month! Will post a new video soon :)
@joshuasmith35455 жыл бұрын
I’m 18 and just had my bar removed. Does your bar have to stay in longer due to not getting the bar as a teenager?
@joshuasmith35455 жыл бұрын
I just recently had my bar removed after 2 and 1/2 years and I don’t know anyone else that’s had the procedure done. If you see this could you message back I’d like to see if your experience some of the same issues I did. Thanks!
@mandisorg92735 жыл бұрын
Hi Joshua! What were the issues you had?
@deanmcgee87785 жыл бұрын
Thank you for posting this. I have the same surgery scheduled at Mayo next month. If you don't mind, how old were you at the time?
@mandisorg92735 жыл бұрын
Hi Dean! I'm happy these videos can help. I was 26 at the time of my surgery (and should be getting these out very soon!). I wish you all the best with your upcoming surgery!
@deanmcgee87785 жыл бұрын
Mandi Sorg did you get your bars out? Would love an update as to how that went.
@amandawallace1054 жыл бұрын
Son just had nuss surgery 2 weeks ago . he is mainly having pain on his right side where they put the bar in at. He would like to know how long until that pain gets better?
@Asmrnerd106 жыл бұрын
you are adorable :3
@lonislenard51146 жыл бұрын
Hello I had the same problem and had to get the surgery and just wanted to ask does your chest look symmetrical it's just that mine looks different from one side to the other but I think that would be fixed by the removal surgery.
@mandisorg92735 жыл бұрын
Hi Lonis. Yes, my chest looks symmetrical after the surgery. I would talk with your doctor about this one, as I would understand that it should look symmetrical. And perhaps it is something that can be fixed post as well. Wishing you the best!
@vlekjesxx6 жыл бұрын
omg I just got my operation last week and i can’t sleep in bed! I always sleep in the sofa like in a chair 😂 do you have any tips for laying in bed I try every night to lay down but i just can’t it hurts sooo bad 🙄
@hurricanecoop12576 жыл бұрын
I am currently going through what a lot of people have described as symptoms. My next steps are testing towards a possible surgery, this video is really calming for me and I appreciate it. I am originally from the Orlando/UCF area, What made you decide to go to Arizona?
@mandisorg92736 жыл бұрын
I decided to go to Arizona after learning about Dr. J. She had such wonderful reviews, and is an absolute master in the field - I wanted her to be the one to this specialized surgery. I wish you the best with everything!!
@mctowery6 жыл бұрын
Thank you for posting this :)
@benimarusasaka91276 жыл бұрын
Thank you for considering this 2yr video.
@marisaserrenho29976 жыл бұрын
Hi! Have you removed the bars yet?Thank you.
@mandisorg92736 жыл бұрын
Hi Marisa! No, I have not had the bars removed yet. Initially I was going to have the bars out 4 years after my surgery; however, the surgeon moved it to 3 years post-surgery. That means September 2018 will mark my 3 year anniversary! Coming soon!
@ShesVarious6 жыл бұрын
How's your scoliosis after the surgery? Did it stay the same or get worse?
@mandisorg92736 жыл бұрын
To be honest, I'm not sure how the scoliosis looks now. For me, since it was very minor, it was never an issue for me. Due to this, it's not really something I had been keeping my eye on. From my own research on the Nuss Procedure, however, I've learned that it did help correct scoliosis in others. I can tell you, though, that my scoliosis most certainly did NOT get worse.
@zechariahborja48936 жыл бұрын
I have pectus eccavatum but I can get a sugary to fix it it's a blessing tho I look at it that way now and it's alright
@AliA-tv8ph7 жыл бұрын
So how much time took you to recover? Thanks.
@mandisorg92736 жыл бұрын
From surgery itself, it took about 4 weeks to feel recovered. After about 2 months I felt back to normal - even better!
@AliA-tv8ph5 жыл бұрын
@@mandisorg9273 Thank you! I had my surgery about 2 months ago! Your videos help a lot!
@MoiiGamingHD2 жыл бұрын
@@AliA-tv8ph where did you get surgery !
@AliA-tv8ph2 жыл бұрын
@@MoiiGamingHD Mayo Clinic, Arizona.
@MoiiGamingHD2 жыл бұрын
@@AliA-tv8ph what age did you get the procedure? I’m from Canada and sadly no one is as experienced as Mayo Clinic in Arizona I’m almost 21 and I’m looking to get the surgery in my late twenties
@rotisam7 жыл бұрын
What was your Haller Index before surgery?
@Catherine33857 жыл бұрын
The button up shirt thing is a great tip! My son is having the operation in August, I will buy some button ups
@torrescop17 жыл бұрын
Catherine3385 taking my son 3 aug..
@Catherine33857 жыл бұрын
torrescop1 I wish you and your son well. My son is the 8th
@Catherine33857 жыл бұрын
Thank you for your videos My 17 year old son will be having the Nuss Procedure this summer and watching videos like yours are very helpful
@mandisorg92737 жыл бұрын
I'm so glad you are finding them helpful! Best of luck to your son.
@mandisorg92736 жыл бұрын
I'm glad they helped :)
@cristianfernandez52727 жыл бұрын
how long you fell the pain in your chest after the surgery??
@mandisorg92737 жыл бұрын
As far as pain that was 100% from surgery, about 2 weeks of real pain, and then it quickly started to get better after that. But the pain medicine really helped. After having healed from the surgery, I still feel some pain and soreness, but it's not bad enough to even take Ibuprofen.
@tinytoasties7 жыл бұрын
Going on 5 years this year since my 2 bars were removed. :) The most satisfying moment when they were out was the first time I sneezed...and then suddenly realized it didn't hurt at all.
@mandisorg92737 жыл бұрын
Once you had your bars removed, how did you feel right afterwards and a few months later? One of the things I'm concerned about is still feeling sore well after I've healed.
@tinytoasties7 жыл бұрын
Hm, I was pretty out of it for a day or two but I don't remember being sore for an extended period. I did have some swelling on my one side that persisted for months though. I didn't see a change in it until I took a natural supplement my mom was using for inflammation in her hands.
@hannahhawley86547 жыл бұрын
Hey! Thanks for the video :) I am a female adult with PE and I am having it corrected at the beginning of the summer. I'm in the process of having all of my testing done. Similar to you, I am going to another state to have my surgery done. I've been looking for someone to ask a few questions who had done something similar!! My big questions revolve around traveling. How did you feel flying back home after the surgery? Did you get extra leg room, how many days after the surgery did you fly back, and did you wait at all from being discharged until flying home?? Thanks is again for your video. I can't wait to hear from you :)
@mandisorg92736 жыл бұрын
I missed this comment! So sorry I never got back to you. How did your surgery go?? Did you end up having any issues with traveling afterwords? Had I seen this comment, I would have told you that I had no issues traveling back. I flew, as opposed to driving, and I didn't feel any discomfort. Everyone in the airport and plane was very accommodating as well. On the plane, I was given the front seats and had all the leg room I wanted! I was discharged from the hospital, but stayed around the area for about 4 days. Once the surgeon gave me the okay to go home, I think I left the very next day. I hope everything went well for you! I would love to hear how your experience went.
@donna3857 жыл бұрын
what was your haller index?
@mandisorg92737 жыл бұрын
My haller index was a 4.74.
@donna3857 жыл бұрын
I had a CT done a few weeks ago and they did not indicate what mine was. I guess I will need to have my cardiologist or pulmonologist request they add it on. I am 31 and have had shortness of breath/fatigue/rapid heart rate (I am on meds for this)/echo showed tricuspid regurgitation and pulmonary hypertension. My PE looks similar to yours from your picture. Hoping to get some answers and resolution to this soon- happy to see how positive your results are.
@donna3857 жыл бұрын
Can I send you a picture of my CT to see what you think? My pulm said he doesnt deal with pectus- so, now I need to go though the same thing with cardio. Hopefully they call back and can get me in soon. I am just so frustrated and would love some answers/feedback
@mandisorg92737 жыл бұрын
Yeah, find me on facebook and message me a picture. I'll be happy to take a look and let you know what I think.
@subarianEra7 жыл бұрын
Also have you find that the custom brace helped your rib flare?
@mandisorg92737 жыл бұрын
To be honest, I'm not sure. And I only mean that because I don't know what would have happened if I didn't wear it. I wish I would have ended up wearing it like I was told to, though. I was so sore and swollen for the first few weeks that it was SO uncomfortable to wear it. I still have rib flare now, but it's not as bad as it was before. And I'm not sure if this was due to not wearing the brace properly or not. When I get the bars taken out I'm going to tough it out and wear the brace as directed and hopefully all rib flare will be gone. If not, rib flare is not the end of the world. :)
@subarianEra7 жыл бұрын
How much did you have to pay coming from a different state?
@mandisorg92737 жыл бұрын
I was lucky enough to have the insurance I had at the time cover for quite a bit of me. Overall, I ended up spending a little over $5,000. Getting the bars out will be a different story unfortunately due to having to get different health insurance.
@ItalionStallion1x7 жыл бұрын
Could you do sports etc with the bar in or have it prevented you from doing something? Great videos!
@mandisorg92737 жыл бұрын
So far so good. I'm back to doing yoga and I've gone canoeing/kayaking/paddle boarding with no issues. I'm back to working out, and I have no issues there. I'm doing a marathon with obstacle courses in two months, I was going to post a video about how that goes since I know that will be a real physical exertion. The only thing is I do feel the bars say when I'm doing crunches, or if I do a deep twist in yoga. It doesn't hurt, but it does feel weird and foreign. I still stay somewhat cautious about my movements, but it doesn't hinder me.
@ItalionStallion1x7 жыл бұрын
Mandi Sorg wow thank you so much for the detailed reply! Great to hear that you can exercise without any problems! That is a great video ide and I'm looking forward to watching it!
@mrtheslupperman4187 жыл бұрын
How long did it take you to resume normal activities, like working out, and playing sports?
@mandisorg92737 жыл бұрын
It took me about 6 months until I really felt comfortable enough to get more physical with my body as far as working out and sports go; I was just wanting to be really cautious. Normal activities though, I was back to a normal life at about a month and half.
@kellylauro36217 жыл бұрын
I was just done by Dr. J in Aug. 2016, Thanks for the video. Are you in any of the facebook groups for Pectus?
@mandisorg92737 жыл бұрын
Oh great! I hope you are recovering well and feeling even better! I don't think I am in any Facebook pectus groups; are you?
@kellylauro36217 жыл бұрын
Are you in the Pectus facebook groups? There are lots of them...Female Pectus Excavatum, Pectus Awareness, Pectus Private Support-a closed group, Pectus Strong.
@mandisorg92737 жыл бұрын
Just joined the Female Pectus Excavatum group and the Pectus Awareness and Support Foundation group :)
@mattmccarthy98398 жыл бұрын
You look great hun. Glad it all worked out well for you
@emokilla518 жыл бұрын
Where should I go to have a diagnosis of PE? You're looking a lot healthier btw
@mandisorg92738 жыл бұрын
I would start out by going to your primary doctor If they are not able to help you, they will be able to refer you to a specialist that can diagnose it. If for what ever reason you hit a dead end with your primary doctor, I would recommend searching for a thoracic surgeon, if only for receiving a diagnosis. / Thank you for saying I look healthier: being healed up, off the pain medicine, and a little mascara can go a long way! Haha
@emokilla518 жыл бұрын
Thank you for taking the time to respond!
@benimarusasaka91278 жыл бұрын
i was thinking about suicide at one point in my life because of the mockery of people on my PE but your story brought me joy and i will keep living by that joy.
@mandisorg92738 жыл бұрын
Hey John, thank you for sharing! Not only for sharing your experience with your PE, but also for sharing your thoughts of suicide. I'm big in to mental health and the stigma surrounding many mental health issues, including suicide; so I find it brave for you to say that. I'm glad to hear you did not give in to the thoughts; ending your life due to the ignorance of others would have been a sad loss. It's unfortunate that others can be so misguided and misunderstanding. I hope you know and realize that you are not alone in your thoughts or your PE, and that you have the power to spread awareness and love your body for what it is. I'm glad you were able to find some joy in my video, and hope you continue to find joy in your own life's endeavors. I wish you all the best!
@benimarusasaka91278 жыл бұрын
Mandi Sorg Thank you Mandi, i've went past the point of depression by now and i find that video on my way to recovery and i can't thank you enough for that. Best regards, John.
@hariskhan30048 жыл бұрын
what is the maximum age for the operation
@mandisorg92738 жыл бұрын
I'm not positive of the maximum age. I do know that there have been several patients over 50 years old and they have recovered well.
@hariskhan30048 жыл бұрын
Thank you very much... this Chanel is a very motivational for all those who are suffering from this chest deformity... keep it up
@mandisorg92738 жыл бұрын
Thank you for the encouragement and kind words! I will most certainly keep posting :)
@ItsJordanPeople8 жыл бұрын
I'm getting a nuss procedure on Friday and I really would like someone to talk about it to so if you could email me or something for advice that would be amazing, [email protected] thank you
@juliaborcoman53888 жыл бұрын
How'd it go? And how are you now?
@ItsJordanPeople8 жыл бұрын
+Julia Abi it went really well! it's been almost 2 months now, & i feel great. i haven't been able to lay on my stomach or on my sides yet but relatively no pain!
@mandisorg92738 жыл бұрын
Jordan! I never saw your comment! :( I'm so glad to hear your surgery went well! I wasn't able to sleep on my sides until about the 3rd month. The pain gets better! Still doing well?
@ItsJordanPeople8 жыл бұрын
Mandi Sorg yeah pretty well ! sleeping on my sides has gotten easier , still a lot of pain in the morning like soreness ? but other than that good. how about you ?
@mandisorg92738 жыл бұрын
I'm glad to hear you're doing well! I can relate to the morning soreness. That soreness/stiffness gets a lot better of time, so don't worry! I think it was around my 6 month mark when I was really able to sleep freely with no worries. I'm doing great, thank you for asking! I feel better than ever; still a little sore at times, but worth it. I made a 1 year video if you want to check it out. I wish you the best in your recovery :)
@mcj1ggl3568 жыл бұрын
Also have you noticed a difference in lung capacity?
@mandisorg92738 жыл бұрын
+Richard Simmons This is a tough one to explain. Breathing has definitely changed for me (and for the better) but I don't know if it's that I have MORE lung capacity. It's more that every breath I take now feels "fulfilled". I'm no longer having routine shallow meaningless-feeling breaths. The biggest change I see is when I exercise; I would get winded SO easily, and now I've been doing great!
@mcj1ggl3568 жыл бұрын
How old are you? Would you say you have a high pain tolerance?
@mandisorg92738 жыл бұрын
+Richard Simmons I'm in my late twenties, and I would say I'm good with pain