So now what after steroids? How do you now treatment with eczema flares? Living on the edge and not knowing when it will Come back

Queria tanto que tivesse legenda 😢

25 year TS user, 8 years of TSW flares, and TS free since June 2023. I am looking for a TSW health practitioner in Michigan. If anyone knows of one, I would really appreciate the info! Thank you!

How’s Nina doing now? Im super curious…

It was thru ITSAN that I realized what was wrong with my child’s condition. My husband & I feel heartbroken when we see our 8 yr old struggle so much. But we are hopeful that one day her life will be back to normal again. My prayers to all TSW warriors.

hello i need Dr Olivia number seriously i have a severe skin condition and am sure she can be of great help.

Thank you to ITSAN and the community you have created to educate and support the families and patients in TSW.

Only on my third week and although I feel horrible, this gives me so much hope! THANK YOU for spreading awareness and info

I am currently going through this with my daughter who is only 11 yrs old. It has been so hard for us both. And still is. It made me so angry when I found out what has happened. The fact that NO doctors had warned us of possible side affects from either the topical steroids OR Redipred (oral) just makes me mad!! Isn't it THEIR responsiblility and especially *big pharmas* to warn us of these things before we use them??? Big pharma the multi trillion dollar giant is really responsible for this in my opinion. Docs just follow what they allow them to say. My doc gave me a full run down about how he could loose his lisence if he didn't play by their rules. <--- (This was in regards to another illness awhile ago where he 'suggested' alternative medicines such as marijuana. But he wasn't allowed to say the word :-) Bloody big pharma). I am a single parent of three young children. This condition has made it near impossible for me to work. And we live on the edge of the lower bracket now. It has been a steady spiral downwards unfortunately. There is VERY little support where we are. :-( This condition is just crushing. Though we ARE coping. Just. Well,... I am just coping. :-) My daughter is struggling mentally with this too. We are alone in this fight and I feel for others who have been through this or are just entering into this nightmare. We just hold on each day....... :-( Its been two months so far.... From what I have heard on this video...our ordeal has just started. :-(((( I do not know HOW we are going to get through this. Financially.....we are at the mercy of our landlord. This is just so sad that it should never even have been allowed to happen in the fist place. You see, scientists and big pharma dont know everything as many people today believe. It's just profits. And yes, I am angry about it.

I’m going through the same thing and I only used topical steroid cream for 3 months 😩

Thank you for advocating on behalf of all the RSS sufferers around the world. You guys rock! --An amazing group of individuals -- thank you for all you do for ITSAN and furthering the cause.

I found out yesterday that the steroid cream has caused me more problems than it has solved, I'm off it now and going through the journey to good skin

This video gave me so much comfort during the worst of it. 6.5 months in TSW, and I'm finally seeing the light! Thanks ITSAN!!!

stay strong warriors! healing happens

Thanks ITSAN! I'm one of those people in the video too ... 6,5 months TSW and finally seeing some improvement. Thanks for spreading the word. <3

Thanks to everyone who made this video possible to help raise more TSW awareness!

Thanks to everyone who helped make this video possible!