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Пікірлер
@AnnaaMaertinez 26 күн бұрын
HEY LYXBAGS!! I have been watching you for years and im so proud of where you have made it! I love you so much! Also thanks for making my day <3
@DeddehOstertag Ай бұрын
No matter if it's the LYXBAGS or any other, my steadfast belief stands that only practitioners can perceive dissimilarities in the sack looks or the metal constituents
@NayeskaBunbury 2 ай бұрын
En el momento en que vi el bolso LYXBAG , supe que tenía que tenerlo.
@jasonrice4064 Жыл бұрын
i have all the symptoms of eds i have not been to the doctor in quit some time. i was six yrs old when my shoulder slipped out of socket for the first time. after that it happen often during my teenage yrs.ive had 2 surgeries on my shoulder. my family dr. knew there was something but he never could put it together. he sent me to memphis,tn.to a specialist to test for hemophilia. he was afraid i was a free bleeder since i bruised very very easy. it turns out negative. this puzzeleid my doc. on to more symptoms my hand look like old man hands. my fingers lock at the joint .and got to pull on it to get it back staight. my skin is realy stretchy. my ankles twist and dislocate on damn near a Daily basis. ill be 47 yrs old tomarrow. the last 2or 3yrs elbows, knees,feet have gotten bad. i got a hole in my left knee that has been there for around 25yrs if it tries to close .my knee will fill with fluid and swelling and fever sets it my knee. i looked up my symptoms online. and eds came up .i read about studied on it.. and common since tells me i have it. what do you guys think the symptoms i just text are please respond im tired of living like im alone in this. like im in this alone.
@shannongreenwell1278 2 жыл бұрын
I have EDS but mine is a mild form, mine is Classical EDS type two. I twirled a baton when I was a young child. I also have Epilepsy.
@rya4974 2 жыл бұрын
I love Noah and he’s an amazing actor I loved this song so much and I still love it to this day the video when it first came out caught me off guard lol
@guptajii7495 3 жыл бұрын
You're so cute🤠
@LifeWithLeighh 3 жыл бұрын
*14 years old* 😳
@guptajii7495 3 жыл бұрын
@@LifeWithLeighh really 🙄😂
@nicholaschristie8699 3 жыл бұрын
It basically is about how Hollywood brainwashes people, especially kids, so that they "follow their dreams" and become famous so they can exploit them. Like how a cult does with its "followers."
@LifeWithLeighh 3 жыл бұрын
Yeah thanks I managed to figure that one out in the last 3 years
@estelanavalenzuela311 4 жыл бұрын
Can you do a what’s on my phone tag
@sarahbrassard3285 4 жыл бұрын
For the harribos in the through...happens all the time to me😅
@silverheartart 4 жыл бұрын
'this is beautiful' girl he's literally killing a child. One of my favorite bands and the song is good but the video's messed up
@LifeWithLeighh 4 жыл бұрын
you can appreciate the artistic value and imagery without worshipping satan..
@marcellorounds9539 4 жыл бұрын
You need to turn your god damn sound up I can barely hear that shit
@jenniferperry1964 4 жыл бұрын
Another zebra here 🦓 I live in California! Love your bag! You gave me some great ideas!
@LifeWithLeighh 4 жыл бұрын
Yay! Thank you!
@edreaakosu8032 4 жыл бұрын
I absolutely loved in 27 days can someone recommend some really good stories similar to it??
@unknown-ys5ny 4 жыл бұрын
Yessss
@matthewnewton8812 4 жыл бұрын
You look just absolutely lovely and beautiful and gorgeous in these clothes and in any clothes I’m sure.
@bloxygigi7736 4 жыл бұрын
If you guys have watched the vampire diaries, I HIGHLY recommend Consumed. It's so well written and thought over
@beautifulenigma1724 4 жыл бұрын
I downloaded the app after watching your video. I look forward to being able to send my records for ALL my disorders at once. I have hEDS, POTS, and many other things. I currently have a bujo that I keep track in, but I think this would be a great addition to that
@leiwilson6720 4 жыл бұрын
Fellow EDSer 🦓here!!!! You’re my freaking spirit animal. Haha thanks for sharing!
@TheShape. 4 жыл бұрын
Weird it barely has any views 😲
@victoriablack422 4 жыл бұрын
I'm a spoonie to (I have fibro) the struggle is real!!!
@lolliepop5734 5 жыл бұрын
The doctor recently told me she thinks i have hypermobility but she cant give me a diagnosis yet so i cant do physiotheropy so im going to hospital for a proper diagnosis soon. Any tips?
@LifeWithLeighh 5 жыл бұрын
That's a hard one... I guess just try to do some light appropriate exercises (the Hypermobility Without Tears book is really good for this! and its only £10 on amazon). Also it might be worth asking you gp for some general advice on staying active by pacing yourself. Hope you get some answers soon! Warm hugs x
@kayren230 5 жыл бұрын
Great video! I’m a fellow spoonie with arthritis, crohns, ibs/d & TMJ Love seeing spoonie KZbinrs! 💜😛
@Corndogsparent 5 жыл бұрын
I’ve been using a camelback backpack for hydration. Helpful for not having to carry a drink when your thumbs are dislocating.
@LifeWithLeighh 5 жыл бұрын
I used to have one but my shoulders dislocate pretty frequently. I tend to drink out of cups/mugs with handles when I can nowadays to avoid dropping things.
@Corndogsparent 5 жыл бұрын
LifeWithLeigh ah, gotcha. That makes sense!
@SnowySpiritRuby 4 жыл бұрын
I use mine when I go logging or riding (I only wear it on horses that won't spook from the noise, though) - I put hydration mixes in it (straight water does nothing for me), so it keeps me hydrated and cooled off. Mine has a waist belt and sternum strap in addition to the shoulder straps, so it's pretty secure and takes the load off my shoulders, but it also has another pocket that I use to securely hold my emergency meds.
@tejaswinipatil2690 5 жыл бұрын
Celeste knight series are best
@Glittergirlz4eva1 5 жыл бұрын
Hey Leigh! If you pay for a yearly NHS pass you get all your prescriptions free for that year. Really useful for us spoonies :)
@LifeWithLeighh 5 жыл бұрын
It costs more than my meds would since I don't get a prescription every month, but thanks for letting me know x
@bexwolfe2003 5 жыл бұрын
How old are you if you don’t mind me asking
@LifeWithLeighh 5 жыл бұрын
20
@gerryquintella8635 5 жыл бұрын
Long video this one! Only got through 10 minutes.
@LifeWithLeighh 5 жыл бұрын
not really.. most of my videos are this length
@katkaplan3 5 жыл бұрын
It was. Helpful. Even though my life is just as shitty/painful. Ty fir taking time to make it!
@katkaplan3 5 жыл бұрын
I’m no you’re not weird- causing pain to distract us from other pain- I think we all? Do that? I mean I have, since forever. You’re notes are truly awesome. I neeeed to do that. Oh and I didn’t know an hour prior bed for opiates 🤷♀️ sorry for all the disjointed comments.
@katkaplan3 5 жыл бұрын
I get soooooo many comments when I where my all out of spoons 🥄 shirt.
@katkaplan3 5 жыл бұрын
That pain app looks cool- is it worth the $5? I need to get those eds cards too. I have the LV Walter in hot pink. Good blog 👍🦓
@LifeWithLeighh 5 жыл бұрын
kat kaplan i think it’s definitely worth it. I’ve been using it for about a year and a half now and I’ve found it to be really helpful, especially the report function
@mopatopz 5 жыл бұрын
Where did you get that wrist/thumb brace from? I’ve been look for one like that to support my thumbs on bad day
@LifeWithLeighh 5 жыл бұрын
I got the wrist brace from the hospital when I chipped my wrist and the thumb brace is from amazon, my pt recommended it
@katkaplan3 5 жыл бұрын
Ok that does look like freaking hell. I hope your physio/PT has had you stop? Wait you got high on your pain meds??!! What?! Lol I haven’t felt that in 2 million years They don’t even take away the pain. Just the edge of it.
@LifeWithLeighh 5 жыл бұрын
kat kaplan this footage is 2 years old. I had to do this programme twice. These were new meds so they did have some kind of effect on me. I’m still on them just in a different combination now and they don’t do a thing.. it’s all part of the process I guess
@katkaplan3 5 жыл бұрын
LifeWithLeigh ah, but u just posted it yes? It came up on my notifications... yes, indeed that’s the way of the meds. If been on the one opiate 20 some years, the other 10 years. And here in the us they’ve cut back and put such restrictions on opiates it’s insane. They don’t understand us chronic pain people truly need them.
@milourb9380 5 жыл бұрын
So this is what happenend to Will in the upside down..
@LifeWithLeighh 5 жыл бұрын
apparently so..
@estelaillan3388 5 жыл бұрын
Nice video😊👍
@katkaplan3 5 жыл бұрын
Sleep schedule?! What’s that?!!
@littleflame9535 5 жыл бұрын
Hi! I have a referral for a diagnosis of hEDS coming up in November, which is something I'm looking forward to as I had to explain to my original doctor what EDS actually is. I'm a figure skater who had a severe ankle dislocation/sprain last December, where I may need surgery to assist a torn tendon. The original doctor also told me that as my hand palm skin is not "stretchy enough", that I'm just "flexible" 😂 Thank you for the video gal! X
@LifeWithLeighh 5 жыл бұрын
I have been told since i was diagnosed that my skin wasn't stretchy enough (by doctors with little to no knowledge of EDS). I recently saw a PT who did her masters in hypermobility and is a 9/9 on the beighton scale herself and she said I'm more than stretchy enough. I think it's all about finding a doctor with knowledge or at least enough knowledge on it. Wishing you all the best x
@littleflame9535 5 жыл бұрын
@@LifeWithLeighh Thank you very much for your reply, it made my day! X
@iseultlaw7702 5 жыл бұрын
To be honest, this type of video really scares me. After a little less than 6 months of suspecting something like h-eds or jhs or something in the hypermoblility spectrum and like 4-5 appointments with nothing but a recommendation for yoga and swimming, (let's get the hypermobal girl to do stretching...) I changed GP and in the first appointment left with a referral to a rheumatologist specialising in connective tissue. He even mentioned ehlers-dahlos. I really don't want to go the the rheumatologist only to be told it's nothing, in Ireland we don't have a specialist and I'm heading in to a huge exam year with no diagnosis and therefore no support. They're so careful to make sure you don't get an advantage that it so hard to get exam supports like if my wrist comes out while writing an essay.
@LifeWithLeighh 5 жыл бұрын
I've been through a similar thing. IT's been over 2 years since I was diagnosed and I'm only just being referred to rheumatology. Also my college wouldn't believe I needed concessions in my exam until I dislocated my wrist 10mins into a 2h30m exam. I'm not recommending it but I've found people tend to only believe what they see. Regardless, I wish you all the best x
@gerryquintella8635 5 жыл бұрын
Are you really from wales? Poor pronunciation ( I am welsh myself )
@LifeWithLeighh 5 жыл бұрын
Gerry Quintella yes born and raised in North Wales. My pronounciation is fine thank you.. got As in all my welsh exams
@gerryquintella8635 5 жыл бұрын
Sorry didn’t mean to be rude. But I didn’t ask for your exam results, not interested.
@gerryquintella8635 5 жыл бұрын
Only a bit of light hearted criticism!
@LifeWithLeighh 5 жыл бұрын
Malory230 na Mal it’s fine. That’s the way I was taught and I’ve been speaking the way I do since I was a Babi. My English accent might have changed but my Welsh stays true to my roots and I’m not going to change it because of a KZbin comment.
@gerryquintella8635 5 жыл бұрын
LifeWithLeigh I am concerned about who taught you Welsh as parts of the song are in English. For example you use “me” instead of “fi” and you use “late” instead of “yn hwyr.” I am unaware if this is intentional or not so I am just informing you incase you believe this is the proper Welsh dialect.
@bexwolfe2003 5 жыл бұрын
Would you do another Wattpad book
@LifeWithLeighh 5 жыл бұрын
I'd love to! Maybe after finals
@bexwolfe2003 5 жыл бұрын
LifeWithLeigh also monster of a man by ace_of_harts, idk if you like horror novels or not but like it’s high key good
@MedClarified 5 жыл бұрын
I'd like to recommend a new romance book, "The Eternity - Pure Soul". It's on Amazon but u can read it for free here - my.w.tt/TD6LYdXLaX
@beisamustafa7654 5 жыл бұрын
We have the same taste!!
@Glittergirlz4eva1 5 жыл бұрын
Love this video! Let's remember that when a parent takes a child into the disabled toilet it might be that one or both of them are disabled and it's invisible 😊
@LifeWithLeighh 5 жыл бұрын
That’s wasn’t the point I was trying to make. If you have an invisible disability (or visible) then obviously you can use a disabled toilet but I’m fed up of every other parent thinking they have the right to use it and then judging me when I have every right.
@zara5493 5 жыл бұрын
its so weird but i like it i got scared xd
@Aeshir2 5 жыл бұрын
so stretchy bladder IS a thing??? i always wondered why people say they're going to piss themelves when for me the opposite is true, when i have to pee real real bad it's actually HARDER to pee, to the point where at the absolute fullest times it hurts really bad to try to pee/generally doesn't want to happen and i have to sloooowly relax the muscles to make it happen
@LifeWithLeighh 5 жыл бұрын
aeshir yes! Okay I’m the same
@Aeshir2 5 жыл бұрын
@@LifeWithLeighh you're not crazy tho, having an invisible disability is the most fucking frustrating thing in the world and there's really nothing we can do about it aside for hope for a world that accommodates us better and where people are more understanding. my EDS isn't near as bad as yours but having to sit down all the time at work makes me feel like such an asshole when everyone else can apparently just stand all day, it's even worse when my anxiety gets to me and i assume they all think i'm a lazy bastard cause i can't go around all day making sure everyone know i'm DISABLED AS SHIT, THANKS!!! also i think i have the being able to pee any time thing too?? i swear to god EDS is like a magic eight ball of symptoms
@Lin-rr6pp 5 жыл бұрын
Im gonna be a hater and say i HATE Storm and Silence.
@levis_dust_cloth530 4 жыл бұрын
👁👄👁tell me you're joking
@Lin-rr6pp 4 жыл бұрын
@@levis_dust_cloth530 lmao I take that back, I LOVE it now lol🤣 I had poor taste smh... Probably bc the first few chapters were kinda boring
@medusa861 5 жыл бұрын
I’m not sure if you’re gonna see this comment but if you do then I’ll drop link for my new story since I’m really new to this writing platform, I won’t ask you to read it just click on the link and look through the summary and if interests you then you can decide if you’d like it or not. Link - my.w.tt/qmQItCg4ST
@bexwolfe2003 5 жыл бұрын
Last of humanity is really good
@rhea4507 5 жыл бұрын
You HAVE to read scars!!! Its sooooo good!
@ninifrmdao 5 жыл бұрын
Completed?
@rhea4507 5 жыл бұрын
@@ninifrmdao yes
@ciarashantell 5 жыл бұрын
By who?
@g_malaaycora7140 5 жыл бұрын
It's a fucking bo---