Hi my name is Diana Martinez with spine bifida

I drank cranberry juice on a daily as a organic antibiotic.

I was born with Spina Bifida I’m in Texas how do I join?

FIRST See Everyone There in Georgia (The State

Love this!! ❤

100% agree, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!

What are the risks of a natural vaginal delivery vs a c-section? For a tethered cord lypomyelomenongocile Surgery for tethered cord ar3 months and 16 yrs

Excellent talk. However, where are the slides? I was born in 1958 L4 to missing part of sacram. Spinal fusion at age 10 to correct sco.iosis due to L5 being a hemivertebra had disasterous consquences as it wiped out a few nerves so that I develop foot and bladder problems. A big game changer as Intermittent self cath was introduced. And yes at at age 66 I am experiencing the upperlimb problems. Biggest frustration however is faecal incontinence and decreased gut motility. Overall, I think I had a good life but back pain is reducing quality of life and causing depression.

This was a great presentation.

FIRST I HAVE CHAIT CATHETER THAT I USE N PUT IN MY STOMA N WARM WATER INJECTED A SYRING IN THE WORM WATER N PUT THE SYRINGE OF THE WARM WATER ON THE SIDE OF MY STOMACH N VOID (GO NUMBER 2) ON THE TOILET N I CATH THROUGH MY NAVEL (I HAVE A MATROPINOFF) A 14 FRENCH CATHETER N A BAG IS ATTACHED TO IT N THAT HOW I GO NUMBER 1 BOTH OF THESE SURGERIES I HAD AT THE AGE OF 9 IN 1999

Classic spina bifida tee- shirts 😂

A bit confused there’s two different titles

FIRST I’M A SB 34 YEAR OLD ADULT I HAVE HAD TWO UTI’S THIS SUMMER (ONE IN APRIL N ONE IN MAY) N IN APRIL I ALSO HAD A SHUT REPAIR IN MY NECK PART OF MY SHUT IT HAD WAS DISCONNECTED SOMEHOW BUT MY FAMILY N/OR I NEVER KNEW WHY IT WAS N/OR WHEN IT WAS UNTIL APRIL I WAS SENT HOME/DISCHARGED WITH 3 DAYS WORTH OF ANTIBIOTICS (IT WE SUPPOSED TO BE 10 DAYS WORTH BUT THEY DIDN’T FILL THE OTHER 7 DAYS WORTH BUT THEY RAN OUT (THE HOSPITAL PHARMACY) b DUE TO THE LACK OF THE AMOUNT OF MEDS THAT I WAS SUPPOSED TO GO HOME WITH I WAS AT HOME FROM APRIL 16-20SOMETHING N THEN ENDED UP RIGHT BACK IN THE HOSPITAL FOR A 2ND UTI IN MAY

FIRST I HAVE HAD TWO UTI’S THIS SUMMER (ONE IN APRIL N ONE IN MAY) N IN APRIL I ALSO HAD A SHUT REPAIR IN MY NECK PART OF MY SHUT IT HAD WAS DISCONNECTED SOMEHOW BUT MY FAMILY N/OR I NEVER KNEW WHY IT WAS N/OR WHEN IT WAS UNTIL APRIL I WAS SENT HOME/DISCHARGED WITH 3 DAYS WORTH OF ANTIBIOTICS (IT WE SUPPOSED TO BE 10 DAYS WORTH BUT THEY DIDN’T FILL THE OTHER 7 DAYS WORTH BUT THEY RAN OUT (THE HOSPITAL PHARMACY) b DUE TO THE LACK OF THE AMOUNT OF MEDS THAT I WAS SUPPOSED TO GO HOME WITH I WAS AT HOME FROM APRIL 16-20SOMETHING N THEN ENDED UP RIGHT BACK IN THE HOSPITAL FOR A 2ND UTI IN MAY

I wonder if this video is sponsored by hospice. 😡😡😡

I have spina bifida I wasn’t supposed to live past the age of 10 but guess what I’m 45 now and living strong

Wow nice..👏👍

I have a question, my daughter have spina bifida occulta she is one month old , MRI showing tethered cord , neurosurgeon saying she need surgery I want to ask is it 100% safe to do this surgery. Or is there any risk ? Can she overcome this tethered cord without surgery?

FIRST WATCH INSIDE OUT N INSIDE OUT 2 INSIDE OUT (IS FOR ALL AGES KIDS N ADULTS) N INSIDE OUT 2 (IS NOT FOR KIDS IT’S FOR PRETEENS/TEENS/YOUNG ADULTS N ADULTS (THESE MOVIES R AWSOME FOR PEOPLE THAT HAVE MENTAL N/OR PHYSICAL DISABILITIES/N/OR EMOTIONAL DISABILITES TOO N THIS MOVIE IS ALSO AWSOME FOR NON DISABILITY PEOPLE TOO N I ALSO HAD REPAIR SHUNT (THE PART THAT’S ON MY NECK) BACK IN JULY

My new born daughter have spina bifida occulta we did MRI now we are going to consult with neurosurgeon, she had a hole in her back when she was born...

Does it mean that Laceys healing now ...being able to walk etc will not be permanent

I’m 42 and living with MMC. I’m still going strong with very few, if any, issues.

Does spinabifida effect the growth of the penis

FIRST I’VE HEARD OF A GAIT WAIST TRAINER OR A GAIT BELT N BTW WHAT MANUAL WHEELCHAIR BACK SHOULD U BE USING IF U R AN ADULT?

FIRST OMG 😳 ENGLISH PLEASE? I THOUGHT THAT U COULDN’T SPEAK SPANISH?

Can you tell me who the speaker in this video is?

HERE IN USA 🇺🇸 WE CALL THEM HOIER LIFTS ALSO IN USA THERE IS ANOTHER WHEELCHAIR COMPANY CALLED NU MOTION FOR ME NU MOTION TOLD ME THAT I SHOULD BE IN A MANUAL WHEELCHAIR CAUSE THEY WANT ME TO ROLL N GET EXERCISE N DAILY LIVING WHEN I WAS A CHILD N NOW AS AN ADULT) THERE’S A FAMOUS HERE IN USA SAYING IF U DON’T USE IT U LOSE IT

FIRST FOR THE LAST QUESTION THE ANSWER IS YES THE DOCTOR'S WANTED ME TO HAVE BOTH SURGERIE'S AT AGE 3 BUT MY MOM THOUGHT THAT THAT WAS TOO YOUNG N BY AGE 3 I HAD ALREADY HAD SOOOOO..... MANY SERGERIES ALREADY N SO I HAD THEM BOTH TIME AT AGE 9 I AM NOW 34 YEARS OLD

Way to go, Maranda!

FIRST WHEN IS THE WALK ~N~ ROLL IN GEORIA? (THE STATE)

I'm 72 years old I aged out of spina bifida clinics more than 50 years ago where is the help for adults with spina bifida

FIRST THE EXECUTIVE DYSFUNCTIONING IS NOT ONLY IN CHILDREN WITH SB THE EXECUTIVE FUNCTIONING IS IN SPINA BIFIDA ADULT'S LIKE ME ALSO I AM A 34 YEAR OLD ADULT

FIRST HAVE ANY OF U SB AWORRIERS HEARD OF A CHAT CATHATER N HAVE A STOMA IN YOUR APENDIX TO N PUMP WORM WATER INTO THE CHAT CATHETER USEING A SYRINGE?

I feel the a.d.a doesn't exist

Salom bu kasallikda bõy õsmay qolishi mumkinmi meni qizimga SBO VS1 vaVS4 tashxisi qõyilgan oyoģi oģrib ôzi 5 dan oshsa ham 3 yoshga õxshab qolgan

Hi do people with SBO normally have severe weight problems later on In life or does It depend on how active you are?

j' avais, mon enfant qui avait la spina bifîda melongosel sacé majeur

Sir Can the hairs on the lower lumber region be removed parmanently for lifetime?

Thank you for this <3

disappointed that the conferences are gone, first conference I attended was in 2011? in Washington DC (Alexandria, VA) and I loved it because it was the only place I found people with Spina Bifida close to my age (40s), I attended the conferences several times. I went to different chapters and all I found were babies and teens, too young to make friends. I made lots of friends from all over the USA and Canada at the conference but over the years we lost touch. Currently I don't know any adults with Spina Bifida close to my age (58).

U all will see me in November of this year 2024 HAPPY 50th BIRTHDAY 🎂 🥳 🎉 🎈 🎁 🎊 TO ALL OF MY SB WORRIOR'S N FAMILIES WORLDWIDE

I think this was wonderful !

Any information for men?

THIS IS MY FAVORITE (OUT OF 2) SPINA BIFIDA TALKS SO FAR CAUSE A FRIEND OF MINE (WHO ALSO HAS SPINA BIFIDA (THAT WAS NOT A FRIEND WITH AFTER BEING FRIEND'S ALL THROUGHOUT HIGH SCHOOL CAUSE OF THIS VERY THING (TOPIC) WERE BACK TO BE FRIEND'S AGAIN CAUSE SHE FINALLY UNDERSTANDS

Hello dear doctor I am a patient of myelomeningocele spina bifida and have undergone surgery twice for lumbar abscess but I have erectile problem plz tell me what to do

My challenge with having spina bifida as well as a shunt and diabetes AND a kidney transplant is that even though I'm only 54 years old, my memory is failing. Just when writing this question I had to check the date to remember how old I am. (It's December 25, 2023, by the way.)

Hi Juanita

Hello my daughter is Spina bifida my daughter both legs no moment please help me

I’m so thankful for this information as an adult w/ SB. I find it increasingly difficult to find resources and medical experts that deal with us as adults. It has always seemed like once you turn 18 w/ SB you are on your own. It’s good to know that’s getting better.