Heyo, literally just discharged from an episode of this n I'm 40 now. No doubts YOU WILL THRIVE LIL ONE AND IN A BETTER EXHISTANCE💕🥠🍀🌟 my lifes been a wild ride and i wish you a long long happy life! Family, i dont produce potassium and faced the same 15 pills routine , please ask about KLOR-CON 20 30 45 even they can match the exact potassium but TWO PILLS <3 they are big but in half they arent gross so no worries and good luck <3 much love from the USA 💕🥠

Aldi is only for last resort and laughing at all the off brand items

Those aren't the only options....

The Red is not bad especially as I like Yorkshire Tea

Stanley

my live ant working

tall boy haha from his freind stanley

yes yes lucas

haha

yep that true

hello lucas im from school :)

from school lucas

so excited

hello lucas i sore your comment im here

Mdm top 50 And existing 100

Dad

Both lol x

Lewrninge early lol too cute xx

😂

New subscriber Thank you for sharing 😊

Hi😅😅

So cute ❤❤❤❤❤❤❤❤❤ 🥰🥰🥰🥰🎉🎉🎉🎉🎉 and congratulations

Does it leach plastic?

Yes

Cuit😍😍😍😍🎀🎀

She is beautiful 😮😮 gorgeous really 😊😊

Literally my mum 😂

Cute

shes so cutee

ADORABLE BABYYYYY ❤❤❤

MY BABY FEAVER IS GOING CRAZY

are baby is so cute and adorable ❤

Aww this is brilliant that he doesn’t feel unwell with it! 🎉 I would say with a higher dosage etc it will really depend on your body etc… sometimes when I feel really low on my levels my consultant will ask me to take more supplements etc but that’s when I’m lower with potassium magnesium. I always knew from a young age there was something not right with my body as when I was ill with flu, cold, stomach bug etc my hands used to cramp up and my face. I remember asking my mum if she can un-cramp my hands etc. I also used to get UTIs all the time and I mean like monthly… I think this is a condition where not one shoe fits all it’s very different for everyone some people need more supplements than others etc. I would recommend salty foods and even salt in water etc if he starts to feel ill when he gets a bit older, I know that helps me and hydration pouches you can add to water they always have extra mag and potassium in. I also used to eat peperamis as a child loved them! I remember also sitting in my room pouring salt into my hands and hiding it under my bed 😂 and when my mum used to walk in I used to hide it really fast (as we didn’t know I had the condition then) just speak to your consultant when possible and make sure he is getting levels checked at GP/ Hospital regular so they can keep an eye on levels and if any patterns occur etc. I’m on the Facebook group too 😊

I been taken the same supplements sinces ages of 15 years there nothing else just like I see orange juice mix remember my levels is constantly between 2.1 and 2.5 yes

No I don't drink and now at this age 50 years very tired and lots of body aches especially in bones in south Africa not many people know about it it is difficult road really but you learn too take day by day what is his levels normally

Do you not have slow mag frizzy you put one in water like juice South Africa

My specialist said I must take 1 pottasium chloride pot in one liter orange juice because my veins is finished

Hii, I am a GS warrior aswell, and to answer your question, I think we all experience raises in our medicin along the way, however its very individual how much and how often. As long as he's stable, thats ofc the most important🌸 There is small things to ensure he gets more potassium in his food, like not boiling food with much potassium in it as it gets wasted in the water and such, and letting him eat salty food is so good🙏 It def can be a journey to learn about and accept, but there is so much support to find in the fb group you mentioned, it was really my lifesaver 8 years ago when I found it🌸

Alcohol is a big no no with this condition. Even a glass can cause heart palpitations and weakness with potassium in the mix he will risk ulceration. Lots of us just can't tolerate alcohol at all. Redbull or energy drinks are very dangerous. He is a boy so won't suffer with the hormonal changes women do. Once he reaches his later teen years his medication will be stable from then he won't or should not see much changes in his life.

The NHS used to give a months supply. I started to source my own potassium because as you say there are lots of different brands. I tend to switch between kalium plain powdered potassium. I buy a bunch when i go to Romania and it is what they use there. I also use some '; over the counter'' one from the states which is a liquid called KETO IV. Some over the counter potassium does not work though and i found that out myself when i was forced to stop the pink liquid and i was looking. When he gets older he will have a choice of holding tablets and no doubt there will be different forms or more advancements.

The liquid destroyed my intestines. If he can't take it that is a sign. It burning my tonuge. i had ulceration in my intestines and lost a lot of weight from the pink solution.

I am also very short my sister also diagnosed my brothers is perfect mum and dad also been difficult road for us

I was diagnosed at age of 15 years now 51 my levels is always low around 2.1 and 2.5 now I suffer for last 6 years with terrible body pains Barrtise syndrome / Giltmans my body just rejects whether is tablets or food banana eat nothing changes it been very difficult especially people can't see pain in my body very tired always

Just a fellow GS person here. I was diagnosed as a kid like him! Sending all the love! ❤

Bless you! I have this condition. I am so pleased he was diagnosed young! I didn’t get diagnosed until I was 31 and I am now 34. X

Yh just letting everyone know before getting one i got one yesterday and today 2nd of August the button to turn it on doesn't work

yes but you didn't buy any proper food lol

Dont buy its 3 pound in lidl and its on amazon also shipping

Dont buy