Mughe bhi 2sal phle ye bimari hui thi or Maine elaj kraya ab mai bilkul theek hu pr medicine chal rhi h so don’t worry
@thesesamestreetplushshow5222 ай бұрын
6:33
@FlorenceB124 ай бұрын
Thank you for sharing. I have vasculitis diseases, but I do not know what kind. Doing my best to work with doctors to figure it out.
@sonitaberoog52339 ай бұрын
02:30
@sonitaberoog52339 ай бұрын
2009-10
@tiffanyperkins1055 Жыл бұрын
Beauty and the beast Cinderella frozen princess of frog tangled mermaid Peter Pan brave Pinocchio Alice in wonderland snow while duck goofy Mickey Minnie
@davepearson69452 жыл бұрын
Thank you for sharing this I'm sorry for your loss I know this is 12 years ago but I thought I was gonna lose my life I did everything I could to put drugs and alcohol into my body to feel better I didn't know I had a rare disease that hospitalized me that hospitalized me I'm doing great today there is hope everybody. One love.
@chicfromthesticks89002 жыл бұрын
I tested positive to this today. 😔
@zozansinde96102 жыл бұрын
What kind of tast I have do do can u tell me god bless you
@chicfromthesticks89002 жыл бұрын
@@zozansinde9610 it's an ANCA blood test Get your General Practitioner/ Dr to have you tested for it. Mine also showed up on as multiple lesions on the brain in an MRI.
@HapaHome Жыл бұрын
Plasmapheresis (lowers the antibodies in the blood from the autoimmune self attack) combined with Rituximab treatments saved my husbands life. Cytoxin has a 80% bladder cancer rate so we refused this treatment for him. He was diagnosed 2018 and has been in remission since.
@rhondawhited67422 жыл бұрын
I was diagnoses about a year ago. My WG affects my sinuses and upper and lower respiratory symptoms. I cant breathe well due to thick mucous lodging in my vocal cords. I have been on methotrexate and prednisone and recently started rituxan infusions. I just want to feel better. Thank you for your story and so sorry for your loss...
@kylaaune12332 жыл бұрын
Cg. B
@jackyvelazquez63233 жыл бұрын
0:00 Heffalumps and Woozles (The Many Adventures of Winnie the Pooh) 0:16 Pink Elephants on Parade (Dumbo) 0:37 Big Bad Wolf (The Three Little Pigs)
@jackyvelazquez63233 жыл бұрын
4:26 Poor unfortunate soul (The Little Mermaid) 5:22 Cruella de vil (101 Dalmatians) 5:47 Never smile at a crocodile (Peter Pan)
@phillipmorales88863 жыл бұрын
That's a awesome promo, "Northern Arizona's News Source" that use too be the slogan for KNAZ-TV Channel 2 when then they did news. I use to work at KNAZ as a production assistant for 18 years there, NAZ Today "kind of" took over KNAZ's News when KNAZ ended operations in August 2008. It's too bad I couldn't get job there at NAU-TV services I tried for several years AND nothing. It's NAU students that do the production work! I miss KNAZ!😥
@jeremyle98693 жыл бұрын
TNT ier ieoopyirnat ahh nogorishhy
@ko57373 жыл бұрын
My dad is also suffering from wegeners and gosh it took nearly 2 years for the diagnosis. Gosh I can totally relate to this person.
@philipgivler40033 жыл бұрын
Where did you get that soundtrack with character voices?
@sleepy-darling4 жыл бұрын
anyone here in 2020?
@dianaowen21414 жыл бұрын
diagnosed 8 months ago and treatments not working. I am so confused about where I am at and what to do !
@FreeSpiritPaulette4 жыл бұрын
Lmao first 3 years later
@cancelled1484 жыл бұрын
Was this the new firework show in 2009?
@jackyvelazquez63232 жыл бұрын
Villainess laughs.
@cancelled1484 жыл бұрын
Sad how the modern version of this show barely throw large shells like the ones here. I know they’re trying to fix the mood with the soundtrack but they barely through fireworks anymore that go BOOM and echo off down the park. I miss old Disney.
@natpriest70334 жыл бұрын
Wear a bouts on park was this filmed
@erinapple1565 жыл бұрын
Almost 10 years into this and I have good days and a lot of bad days, my Heart is now affected with high blood pressure that I am going to say came from the prednisone. This is awful to live with and on top of it not being able to work. Disability insurance is something to be thankful for But it's horrible to live without money most of the time.
@chuckporter19885 жыл бұрын
This is so true my father had the same thing and went through hell and today July 30. 2019 at 8:45 am my dad went to heaven and I can't wait to see him again it is the worst thing that I have ever scene 2 months ago my dad 230 lbs very fit went in the hospital for an ear infection a week later moved to Winston Salem NC and today left us with the weight 175lbs please pray for my family and please help the family and friends who had lost a love one with this terrible disease and research this and find a cure no one should go through what your son and my dad went through
@justforfunm.7355 жыл бұрын
Dont worry my dad is going through this too. I just hope it doesn't end into death and I hope no one ever has to go through this.😓
@WillowX55 жыл бұрын
My daughter was diagnosed with Wegeners (GPA) 2 years ago when she was 16. She went in just very sick, was life flighted to a children's hospital. Her lungs began hemorrhaging before a diagnosis was made. In the 3 hospitals she was in, she too was the most critical patient. After a month of being in an induced coma, under a paralytic, she finally was able to breathe on her own and come off the life support. 3 weeks later she was home - just after Christmas 2016. Shes had a battle since then...spent Christmas 2017 in hospital again. But she is now off all meds except bi-yearly infusions if Rituximab - got to spend this last Christmas at home! Shes working full time and doing wonderfully. We just hope and pray that a flare up never happens.
@abeersheikhabeersheikh80674 жыл бұрын
Is your daughter has period cycle after taking steroids
@khairiscarborough25105 жыл бұрын
Khairi Scarborough
@Neocg016 жыл бұрын
I was diagnosed with Wegener's disease 5 years ago. At that time I had been experiencing severe pain on my joints, loss of appetite, pain on my lower back, and fatigue. I thought the pain on my back was due to an old football injury, but it was actually my white blood cells attacking my kidneys. I ended up on dialysis and am currently waiting for a kidney transplant. During that time at the hospital the white blood cells also started attacking my lungs. On the 3rd day of being admitted I began to cough up blood. Fortunately the doctors already knew what it was, they were able to save my lungs but not my kidneys. 5 years later, I feel well thank God. But still have this disease as it has no cure. It could come back at any moment. I pray to God it stays in remission. Doctors don't know what causes it, but I believe it is caused by a deep sorrow, severe stress, by being very afraid or feeling of uncertainty or worriness. I had always been a sports person. Dont drink, dont smoke, no drugs. I enjoyed my work. So it was none of that. It was at home where I had my problems. Lots of arguing with the wife. I remember wishing I was dead. I was truly very depressed. I believe that triggered a self-destruct sequence on my mind and my body. I believe that's why my white blood cells, the soldiers in my blood in charge of protecting me, turned against me. I hope this information may help someone, somewhere, sometime. God bless us all.
@chicfromthesticks89002 жыл бұрын
Thank you, yes. I have turned to my friends to help make me laugh again, bring some joy to my life. Thank you for sharing your story ❤️
@romowasbetterthanaikman3932 Жыл бұрын
I was diagnosed a few months ago after I had severe fatigue and my blood work showed my kidneys weren’t functioning. Went directly to the ER. Finished Rutuxin a month ago, continual prednisone, and dialysis 3X a week since. The doctors aren’t optimistic that I’ll regain independent kidney function. Any advice you can give me through your experience?
@ileacrawford93626 жыл бұрын
I just found out a week ago that my 10 year old daughter has Wegener it has been a tough 2 weeks, the doctors told us this is the youngest they saw, it’s very scary,she has good days and she have bad days. She just got her first treatment yesterday. No side effects so far but her blood level has drop to 7. They are going to start her blood transfusion today. I just pray everyday that she fight this Terrible disease.. I wish everyone the best who is going through this tough time. God bless
@kytown6 жыл бұрын
Ilea Crawford Hi, my mother was diagnosed last week with this disease. We had never heard of this disease and we know nothing about it, and the more I read and watch videos, I'm starting to realize the doctors she's been seeing are clueless also. If you don't mind me asking, what was her symptoms or symptoms that made the your Dr suspect Wegeners.... and how is she doing? God bless your daughter and your family.
@ileacrawford93626 жыл бұрын
kytown 4444 I’m sorry sorry I’m just now replying. She was always sleepy, didn’t really eat her left ankle was swollen. It was like the body was just shutting down. I took her to the doctor they had her to Pee in a cup and when she did it was all blood. So thenThey rushed her to the hospital and she was there for about four weeks before they even knew what was wrong with her. Even now today she’s constantly in and out of the hospital she’s seeing six different specialists and each especially tells us something different this has been a very tough battle.
@annatran42685 жыл бұрын
Hello, I was diagnosed with wegeners at 17 & I can relate with what your daughter is going through. It’s frustrating to hear every doctor say something different & i didn’t know what to believe. I tried my best have faith, but it’s difficult to when new symptoms kept on creating themselves. Deep down I was so scared if I would ever be ok & that if I did surpassed this, whether my life would be normal again. My mom was so scared when doctors said I was really young to be having wegeners. Not a moment went by where she wasn’t worried about me, so much that she stopped working. She was with me every step of the way & I am sooooo grateful for her, but I also feel a sense of guilt because of the toll it took on her own life. There may be times when u feel hopeless thinking you’re not being of help, but know she needs u. You’re daughter is 10, so she might not overthink so much like i did, but I suggest you to also put attention on her mental health. There may come a point when she feels like she’s being punished, that no one understands her. She may want to give up & stop fighting. I suggest u be there for her & let her know she is loved b/c she will need that more than she ever had before. I hope this makes u feel less alone.
@prabinaregmi77562 жыл бұрын
How's ur daughter?? God bless her..
@redtheprimehedgehog51246 жыл бұрын
OK NO
@redtheprimehedgehog51246 жыл бұрын
Thanks for put mcqueen and mater in the first part of the video
@matthewdaniels42716 жыл бұрын
My grandfather passed from this about 15 years ago so I can understand exactly what you are saying about don't let the doctor dismiss something if you think you have something more then what they are saying
@Jackalat046 жыл бұрын
Happy Halloween everybody
@alejandroquezada98946 жыл бұрын
Sorry for you're loss. I'm fighting this disease my self.
@phat-n-sweatyslowasseddie93506 жыл бұрын
ive been hospitalized numerous times in the last 10 years in 2013 was the last time for a pericardial disease issue... i had been diagones with crohns and ra durring the prior years. it wasnt till i spent about a month and half fighting for my life in 2013 i was diagnosed by a specialist at the lahey clinic in boston Dr AXELROD very know for his special disease work in mass... he put me on a 6 hour rituxan drip every couple of months prednisone/some other shit and methotrexate... to me this disease is defined by the pain it causes me.. its crippling i started getting sick a 28 i turn 38 in 3 days but i have very fragile joints and constant muscle pain that keeps me house bound and needing family assistance constantly... it hit me like a mac truck or train... i was a bulldog, military, than a hard working civilian in the concrete construction field.... it is hard not to get depressed when this disease seems to define your life...... bless all of you fighting the hard fight o/....
@jeaniemeeks49247 жыл бұрын
Thank you for sharing Mark's story. My daughter was diagnosed with Wegener's about 12 years ago. She has been in remission for 11 years now. Still experiences frequent sinus problems, lung congestion, joint pain. She was treated with high doses of steroids and Cytoxin which saved her life but in the long term will shorten it. She experienced a year of symptoms before ending up in the hospital. Dr.Shah, a local rheumatologist, was called in for a consult and diagnosed her with Wegener's within a couple of hours. This was confirmed through lab tests sent to a special lab in New York. God bless him for such a quick diagnosis - without it I don't know if she would have made it. She continues to check in with him every 6 months. Anna was in her early 20's when she was diagnosed. She had recently finished college, married, had a baby and started a new job. Her whole life was ahead of her when Wegener's hit. God bless her, she did not let this nasty disease slow her down. She was lucky - she survived. I am sorry Mark did not. Losing a child is devastating and a lifelong hurt. Thank you again for sharing Mark's story. God bless you.
@repairandmaintenance91095 жыл бұрын
Jeanie Meeks hi
@lullabygoodbye253 жыл бұрын
Hi, I hope she's still doing good. Is there any way I can connect to her? I'm 23 and doctors are still trying to make a diagnosis. :(
@mariabarales92428 жыл бұрын
it fun but why at night
@kevinkennedy50618 жыл бұрын
just found out my Mom has this....
@godsgift97498 жыл бұрын
+Kevin Kennedy My father has it also, but with the right medicine and by taking care of himself through eating healthy and exercising, he is doing good actually i wish the best for you and your mom
@sidney29008 жыл бұрын
I just found out my grandma has this. she looks terrible, and she's young and healthy :/ don't know how this could happen
@godsgift97498 жыл бұрын
The doctors dont know what causes the disease but when my father got it he was very healthy also, but i think stress can be a big factor. it doesn't have anything to do with genetics so dont worry, but your grandma needs to start eating healthier than before and if you live in a country like Sweden the doctors will help her a lot with medicine and consistent checkup! Hope your grandma gets better!
@sidney29008 жыл бұрын
+Lord Baelish thank you,,, I live in ohio
@disneylover52998 жыл бұрын
squishy hatter omg i love him
@frankf.marcus77689 жыл бұрын
My wife got Wegeners about 3 years ago. The doctors completely missed it despite having doctor appointments with all kinds of doctors, and blood tests practically every week for years. She was diabetic so they treated her like her diabetes was the main problem. She had every symptom of Wegeners for almost 3 DAMN YEARS but never at the same time. They called it R.A., they thought it was cancer, they called it a bacterial infection, they called it pneumonia, they called it out of control diabetes, they called it a mystery illness, they called it everything but what it was which was Wegeners. FOR YEARS SHE HAD TEST AFTER TEST. By the time they figured it out and started to treat her for it, she was in a coma for over a week, and another week later....she died... despite 7 weeks in the hospital. The doctors never admitted they screwed up. For her final hospitalization it took 5 weeks for the word "Wegeners" and the word "vasculitis" to even be mentioned. All they said in the end was that they were treating her "AS IF SHE HAD WEGENERS" but it was too late. I lost my wife after 26 years of being together. She was the sweetest kindest most trusting woman you will ever meet. She trusted all her doctors too much, never going for second opinions and now she is dead. SHE HAD EVERY SYMPTOM but they missed it until it was too late.
@jeaniemeeks49247 жыл бұрын
I am so sorry.
@davejss9 жыл бұрын
I've had it for about five years. Was treated with Prednisone and Methotrexate. Then I had a few rounds of Rituxan at the chemo clinic. That seemed to work until the third dose almost killed me. Now awaiting approval for a clinical trial of some new med. mean while I feel like a wrung out rag. Weird disease. Wouldn't wish it on a skunk.
@jeaniemeeks49247 жыл бұрын
My daughter has Wegener's but is in remission. They treated her with high doses of steroids and Cytoxin which worked. God bless you.
@mrsmoose59536 жыл бұрын
My mom just started Rituxan, do you mind explaining your experience?
@michaelpearson41529 жыл бұрын
my wife died with this disease wegener's granulomatosis she had kidney problems from birth one kidney was the size of a golf ball and was sending poison to the other kidney. the disease was discovered through cruel science by DR.vagner's a german doctor who has lots of disease's named after him my wife was diagnosed at the age of 40 and sadly i lost her at the age of 52 as the disease caused other problems and she died with meningitis in the brain. in hospital its hard talking about it i live in Scotland and there where only two woman in Scotland with the disease. i'm not sure ither what caused her disease but i read that most of the people that have wegener's have a kidney problem although that does not say that is the cause.
@adventuresmore8139 жыл бұрын
Just found out 3 days ago that my mother has wegners disease. It's really hard to see your loved one, laying in bed with a mechanical ventilator on her throat hoping for the best. May God be with those who are experiencing this terrible disease. I'm on a hospital room next to my mother while trying to find out more about this disease on line all night long.
@dolour9 жыл бұрын
lol
@parulthakur43059 жыл бұрын
Thanks for sharing your story .... my mom was also diagnosed of Wagner's disease and we lost her after fighting for 1 year .... its a life threatening disease and very difficult to diagnose with the early symptoms .... but now the survival rate is increasing ... May God bless all the people who are suffering from Wagner's disease !!
@macroisieredisney9 жыл бұрын
That is such a cool vid. We loved it.
@snippeelisa9 жыл бұрын
Very cool video guys! We were on the Dream in early November and loved it!