I have a stoma I had a problem in the public toilets said I was emptying my bag when I came out this woman gave me a look as though I was doing drugs or something.

I watch this video when I am having a bad time with my stoma .I am so lucky to be alive ,God bless you.

Thanks for this video. The PR for stomas is amazing...but there's a whole conversation missing about those who can't accept it, don't like it and its traumatized them. Only hearing "oh thats such a positive step" when you're fresh out of surgery is well-meaning but leaves no space to grieve. I'm going to be making a video soon about this subject ❤️

Great to have more awareness out there but disappointed BBC using incorrect terminology. Not sure where “fitted with a stoma bag” has come from. You don’t get a bag “fitted”. You have a stoma formed or created from a bringing a small piece of bowel through your abdomen (from the small bowel for an ileostomy or the large bowel for a colostomy). The operation involves removing some or all of your bowel (again amount of small bowel/large bowel removed depending on disease/reason the stoma is being created and the type of stoma required) and completely diverting your body’s waste removal system. You wear a stoma bag over the stoma exit to catch the waste products and the bag needs to be emptied/changed regularly. The bag is not permanently fitted. This language matters as it causes a lot of confusion when people are faced with this situation and potentially further distress or anxiety when realising what is really involved.

I completely agree with Matt. I have a permanent ileostomy and I find it really good once you get settled in with it. Every individual is different though - and I respect that we are each on our own journey in life. The toilets in this country are TERRIBLE often. I’ve done bag changes at the back of the car somewhere discreet as it’s cleaner and just easier. I also joke with people to say that they can’t call me an ‘ars*hole’ any time - because I’ve literally not got one (in my backside) lol.

So true about the problems about public toilets. Too many have been closed it makes people with stoma reluctant to go to places sometimes me included which it is handy having our caravette facilities.

Really pleased for Matt that he had such a positive experience and is making a brilliant recovery. I, however, do think that Matt’s choice of words of “it’s not that troublesome and “it’s easy” are actually quite alarming to hear. It’s a significant lifestyle change and not everyone has such a positive experience. If you’re preparing yourself for surgery it is important to understand that it may not be easy (particularly at the start) and if you are struggling your not weak and there is always support available👍

Matt Forde is a top man.

Fab interview

Hi. Is anyone here now? 2024

Lovely video

God she's talking fast can just about make out what she's saying !

Want an incredible story of courage and determination. Thank you for sharing. ❤

I’ve have one now two years no help from the start threw me in the water sink or swim I’ve struggled the last two years 😔

What an inspiration you are. Lovely video to watch. Makes us newbie ileostomy mates feel very fortunate as to what is available today for stoma patients, Thank-you for posting this video, I feel very humbled.

I get pain if I eat garlic,onions,cabbage but everything else seems to digest fine.

talks to fast

Your a warrior

Me too ❤️

Thanks for sharing your story. Congrats for taking over your life and "animal"

God bless you.

I love this lady. Smart, funny, STRONG and living life to the fullest.

I cant imagine being a child and teenager how difficult it would be to have a Stoma!

This lady is truly AMAZING‼️

You are really a hero 🌹 And your husband is a great man 👍

Are you at increased risk for colon cancer I get free text after fifty then every ten years after that if nit free ages lay twenty five dollsr subspecislist gi copsy

💕💕💕💕💕💕💐💐💐💐💐💐💐💐

Fabulous brave lady - you are amazing to tell your story and may I add, what a fabulous family you have - bless you all. xxxx

What an inspiring story. I was born with Spina Bifida, was given 7 years to live. I have a Urostomy bag (for bladder) for the past 56 years. Was married for 6 years ( husband died unexpectedly of a heart attack). I worked as a receptionist at the Association for the Physically Disabled Greater Johannesburg for 31 years until I no longer could walk. I live in my own batchelors apartment for almost 22 years. Am involved with an amazing English guy 6 years younger than me for 20 years I am Afrkaans). He takes care of me because I became bedridden 4 years ago, although I have the support of my family. I make use of home based care and it is very humiliating as I was very independent apart from the fact that I can't drive. This situation I am in now is very depressing and I can't accept what has happened to me. I don't have children but am the proud mother of 2 beautiful Calico cats (mother and daughter). Some of my family members didn't think I would be productive in live and thought I would land up in a home for people with disabilities but because I was very determined I had to proof them wrong. I'll be celebrating my 59th birthday May 18th next year. From South Africa

It's so refreshing hearing someone talk so openly & honestly about their experience w having a stoma. He is the first person I have heard talk about the mess it made, the embarrassment he felt & how it made him cry. My heart goes out to him & anyone that has had or is having this same experience. May God be w you & give you the strength you need to get through this & for better days.

Thank you for sharing your story. I had my ileostomy for 30 years now. What an experience. Lots of love.

God bless you

Had my ileostomy for over forty years, from the start I ate what I liked and used it as a excuse for what I didn’t like. I was told at the start that chocolate was bad for you so I stoped eating it, now I don’t like the taste of it, also lettuce was supposed to be bad for you it sticks to your intestines I do eat it now. Don’t let it change your life live life to the full I have.

My experience from talking with organisations such as these are that they like to be falsely positive.

Sharing your story with others can help them to see there not alone. Blessings to you.

I'm glad I came upon this video. You're an inspiration. Thanks

Thanks for sharing your journey.

She is lovely!

Poor Beryl. Life can be horrible.

Informative video but bad production as the music coming in and out is too loud and distracting.

You are a legend xx

My wife has a colostomy. Compared to Beryl, we do have it MUCH better. We all say that the physical toil is nothing as bad as the emotional toil! God please bless all the colostomates.

Thank you for sharing

Strict 9mm diet for me

You're very brave. Thank you for your inspiration.

Baked potatoes, cottage cheese, peanut butter sandwich, green beans , chew them real good. I eat steak, cut in it’s bitty pieces. Scrambled eggs and toast. Don’t eat popcorn, raw cabbage, celery, and other crudités ...I have done this six weeks and about to get my ilestomy reversal. I am definitely wanting to get back to some form of normalcy. Thank you for reading.

💜💜💜

Thank you.

What a lovely woman.

Thank u for sharing Chris, I'm heading that way and everyone who shares helps give me hope I will be okay best wishes 😊😊