Thanks. I had no choice in the matter. I had all the treatments available. All worked well for almost a year. Then I stopped responding meaning my lambda serum level would start to go up. The range was 26 to 40?? Can't remember. But as it headed toward 100 I needed a change. That was 8 years ago. I was successful with the teclistimab. My number dropped to less than 1. No M proteins. My doc was thrilled. There are new patients showing up where I get the stomach shot with the same results. No side effects. I don't know how long it will work but so far it has been the best for me. So, if your meds are working, you're good and I pray they will. I didn't qualify for a bone marrow transplant and I'm glad i didn't. Not so good I've heard. So you can relax knowing that this drug is available should you ever need it. 9 years and doing great, just some fatigue or maybe I'm lazy. Good luck. Keep in touch. Cal

Dear Mr Cal, Thank you for giving me details on your journey. You have Right, lambda serum is the one that they monitor daily in our blood.. this value is important. So glad that teclistamab works for you so well and with minor side effects!! I'm 42 years old, first diagnosed on Nov 2022. July 2023 they took my own cells/ cleaned and transplanted back to me. Doctors said: your body reacted so well, we will keep it in sleep, for about 10 years, but a month ago it came back very aggressively, I'm in a hospital for 24 days straight, 5 liters of chemotherapy, injections, Pomalidomide and just told me the news about Teclistamab. Special order from abroad. Waiting to be received! Dear sir, I'm really glad you're doing ok and thank you for responding to my message. Have a wonderful day !

Great. Stay in touch.

I'm still ok with the drug. No M proteins for over a year. I hope you were able to get on it. I pray alot. It helps me.

@@calskyler1091 dear mr Cal how glad you're well !! Here things got really bad. On September 9th I reached so close to end due to extreme aggressiveness and immediately got hospitalised. Doctors started with the strongest chemotherapies, then talquetamab and selinexor pills. Stayed in hospital for 2 months and we believe a miracle happened. Thanks to God and the doctors! The medications are so strong that you can't control your body but I'm fighting with everything I have ! I'm so happy you're well and I'll pray for you sir too ! Pls send me back and tell me how you feel ..

Hello... thanks again for following up with me, I truly appreciate it. I did read your original reply but now I can't see it anymore either...youtube at it again 🤦

Hi Emanuel, yes been on it a year now. Still working great. No M proteins at all. I get a shot in the stomach fat twice a month, don't hurt. My immunoglobulins are low so I do get an iv for that once a month when I go in for the shot. I'm either fatigued, lazy, or bored. Otherwise it's great. I've had this 9 years now so not bad. I wish you luck. Let me know how you make out. Cal

@@calskyler1091 Thank you very much for responding and for the information, I appreciate it. Glad you are still doing well 🙏

I hope you've been getting my replies. I don't see them here. I have written twice. Cal

Hi, did you get on the drug? It's still working for me. I do a lot of praying. It helps.

You're so right. Thanks for commenting. Cal

Hi Oliver, I understand what it is like. Thousands of us have been right where you are now and recovered from the miserable place your in. As you know, I have found that AA is MY choice over rehab because those people are all just like you and me. I have a few questions. If you want to call me at 440 420 1799. Do you even know what step one is? Well you have completed that already. You must move to step 2. You also need someone to help you. You MUST come to believe in a higher power greater than yourself that can restore you to sanity. You're fighting that and loosing the battle. Don't give up and die. I know you just can't stop. Watch the video again. Keep in touch. Cal

@@calskyler1091 I live in England, originally from York but currently reside in Sheffield, people know I struggle but not to the extent that I do, I keep it to myself, to not let people know, I’m not looking for sympathy as I’ve dealt with it for so long.. I just keep thinking… how long can my body take?? It just seems to keep going like a fright train.. I don’t know it’s because of my job as I’m constantly running around running up and down 10 789. However many flights of stairs. If you know I mean with no Lyft delivering it kicks my ass every day but yeah I’ll get up and do it, like I said before I refuse to give up, even though every single day, I have to find a reason to sometimes I can’t and yet I still do.. I’m so fed up.. I need to find a little stitch of happiness, just for a smile. Just once a day.. but I can’t.. I hate everything around me.. selfish people, materialistic people, happy people… and so on.. are use the term hate very lightly as it’s not them that I hate it myself.. because I can’t be like them people.. Unfortunately that’s why I can never have children because I would never want to pass on this horrible gene. Unfortunately that runs through my family so basically everything is shit but what do you do do you give up would you carry on me personally I just have to keep pushing as hard as I can until it’s finished.

@@calskyler1091 can I use that number in WhatsApp?

Yes

@@calskyler1091 I’ll send you my number. But by message if possible.. don’t really want to put my number out there.. my. Email if possible? I only sleep about 1/2 hours a night

Thanks Curtis, it's got big pockets! Probably carry 7-8 beers in it.

I replied to you mistakenly under walkers comment.

My reply was: I'm happy for you. Maybe you're not an alcoholic. We can't go back to being a social drinker. Hang in there. Cal

How ya doing. I just bumped into your reply. Of course I don't know you but, had you said that at an AA meeting, most people would say you're in denial. Not judging cause I can't. But I hope your not an alcoholic and your handling yourself ok. Cal

Hi, I'm glad you are doing better. Maybe you're not an alcoholic. An alcoholic can't go back to being a social drinker. It always gets worse. I'm glad you are able to control it now. Once you're pickled, you cannot go back to being a cucumber. Hang in there. Cal

Oops, that reply was for adameo...

That's great. So many people don't realize that it's very doable if you want it, or need it. Thanks, Cal

Thanks. I'm glad you made it. So many don't. Let's hope and pray for the other alcoholics that they wake up and get sober. It can kill you. We are lucky and smart. We're all alike. Cal

Hope you're ok. 8 years is a tough time for a lot of people. A good sponsor would tell you to get to a meeting and or, get down on your knees and pray. Good luck, for some reason there are times through sobriety that things get weird. I think it is just a demon trying to get you back using stress or all kinds of shit thrown at you. Cal

Just wondering how you're doing in this crazy world. I'm praying more and it helps me.

@@calskyler1091 thanks for following up! I’m going well despite a long rough year of personal and family issues. I’ll be 9 years sober on December 1. Hope all is well on your end.

Hi Miguel, yeah it's crazy what we have done to ourselves. Thank God you found the strength to make it. You're smart. So many just keep suffering. It can be rough and you went through it. Congratulations. We never forget what it was like. I pray everyday as the demon always wants us back. Stay strong. It was so good to hear from you. I have lots of things wrong with me now but consider myself blessed. Cal

Thanks, will do!

Bloody hell! I'm getting across the pond. Thanks bloke. (Don't know what a bloke is. Hope it's good.)

I replied thru email let me know if you got it.

I replied to you and hope you got it. You'll make it.

Hi, hope you get this email reply. You've already started you journey to sobriety by taking this 1st step. Admitting we are powerless over alcohol and it's screwing up your life some is a sign your concerned about yourself. How long it will take you to hit a bottom and get help is another story. Denial is a roadblock. You gotta get those tools and learn from others how to get and stay sober. I hope you make it. Keep in touch, Cal On Fri, Aug 4, 2023, 1:20 AM KZbin <[email protected]> wrote:  Navigating through the beast system commented on your video

I’ve been struggling too, don’t know where you are in the world.. but maybe we could build something together and help each other as a unit, sometimes it’s hard to ask for help.. but as I got a really nice reply from this page, it could work.. I truly, hope that you’re okay

How are you doing?

Thank you Sammy. Plant a seed and hope it sprouts. Some people will hit bottom somewhere in the timeline. Let's hope he hits his soon. Let's hope and pray.

How's he doing?

@@calskyler1091 , I appreciate you asking. I can say Justin is actually doing much better..He still drinks beer daily but has greatly reduced his intake. Greatly. Something happened to him....No clue what it is......we pray everyday constantly for him

@sammydeezcustoms7113 that's good news. Hope he does well. Cal

Hi Doug, I don't think I replied, so thanks, Cal

Thank you very much!

Thanks Daniel, I don't think I replied back to you. Still learning this youtube. I just wanted to say thank you for commenting. Stay healthy and safe, Cal

Thanks. it's an honor to hear from you. Cal