Hi Lindsey,,, thank you for this update. I am seeing a vestibular therapist next Thursday. I have 2 questions. Did you see an ENT before therapy? What type of Doctor do you recommend for diagnoses? My last MRI was 7 months ago after yet another concussion, before my vertigo started. I can’t find a therapist that uses the goggle glasses in this town. What are your thoughts on that? I’ve had some off balanced issues for years and vertigo started 8 weeks ago when I look to the right in a horizontal position. When walking I sometimes hit corners when turning left. I stopped driving years ago due to movement and light issues. I use to drive to work in big cities without issue. Thank you.

I wish I had found and trusted more comments of good recovery in the first few weeks when having Vestibular Neuritis myself. I didn’t have a cold before the dizziness hit me, making me doubt what is was. And while not being sick, I had some attacks of extreme vertigo closely after one another within an hour, which I had only ever had before once every few months. And from the first attack that day, a constant sensation of vertigo remained, while it usually went away after the attack of a few seconds. While many say online it improves after the first few days, and so did my GP, I only saw minor improvement the first 4/5 weeks, despite doing stability exercises for it which I found on KZbin like crazy everyday. Those were some very scary, anxious weeks, while doubting if it was VN or an even more severe disease, making my patience and mind go crazy, and feeling very down and insecure while it affected my social relationships and studies, as any moment or position awake felt like an uncontrollable hell. Reading experiences of people who suffered of this for years, my hopes were very low. But believe me, it does get better. Once you see some improvement in the first few weeks, even the smallest, trust the recovery, and don’t expect a full recovery in a week, as hard as this may sound in the beginning. But there will come a point where it does not affect your daily life each day anymore. For me this took around 6/7 weeks, while trying to get back to my normal everyday activities, like studying, doing groceries, cycling to school, and other things after the first 2/3 weeks. Currently, about 2,5 months later, it only affects me after a very busy day or busy environments like Christmas markets where your head and eyes move a lot. Keep calm, try exercises online and find out what works best for you, change them up after a few days for variation and more improvement, talk about it with others, and trust your body ❤

I’m only a few days in and I really needed to hear your story. Thank you. I’m scared but am going to work hard at me. 💓

Reading a lot of these comments terrifies me. People having it for years. I'm at day 6 and need it gone now. I feel like I'll never be able to drive and pick up my kids or lose my telecommunications job as I need to drive and climb telegraph poles daily. This is horrendous.

Lindsey did you ever get a relapse after this video?

I hope you are still answering questions, because I know it has been a awhile from when you posted this video. I know we are all different and have different issue with V.N. I have a backpacking question: do you have any dizziness when you do a creek crossing on an elevated log, 8' - 10' over the creek. I don't have anywhere around here to test / push myself for these types of creek crossing. Keep pushing yourself, believing in yourself.

I am 8 weeks in and your videos are a comfort thank you so much for posting and don’t take them down 😂 so helpful during upsetting days

How are you doing now lovely? ♥️

You're awesome. And cool. I wish we could talk. So, you went to an ENT for this?

Did you fly in an aircraft during your recovery time , if so what advise would you give .

I understand. Glad you are better. Me too. The symptoms were crazy.

I saw this video on my 3rd day of vestibular neuritis, I was crying and miserable, and the comment section and recovery stories made me feel worse as it seemed the recovery time was months and even years, despite the doctor saying to me 4-6 weeks. I just came back to say I’m on my 12th day since the onset and I’m pretty much walking normal again! It was the longest 12 days of my life, my heart goes out to those who are still suffering, it’s truly horrible, but wanted to give some hope that there are quicker recoveries.

I was just diagnosed yesterday. Thank you for your video. It's helpful to hear your story and see that you are pretty much back to normal. I hope to be back to normal in a similar timeframe. Hope you are living well and enjoying your life.

Thank you thank you thank you.

Thank you so much for posting.

Thank you very much for this. Not sure what you do for a living, but your skills at describing concisely what was/is going on and your honesty is really wonderful. This recently started for me and it has helped a lot finding this video.

You helped me Thanks from Algeria

Thank you so much

How long did you wait to fly? Did you notice any issues with your first time flying since you were diagnosed?

I’m so sorry for the ones dealing with this. I’ve gotten so many things tested and everything checks out “normal”. What’s helped me the most if following the advice of “The Steady Coach” here on KZbin. She has many success stories as well that have given me so much hope and I’ve seen improvements within just one week!! I wish everyone a recovery. ❤

I heard person say that it doesn't completely goes away,i heard it comes and go ,is this true

I have the noise in my ear to but its causing me vertigo now,not sure on how to get better

Hi, I'm from Costa Rica. I would like to thank you for sharing. Your video gave the strength I needed to know I'll recover. It's been 2 months now, but in the first month, I had all of the symptoms you mentioned. I started with short episodes of vertigo once or three times a month since november 2023 until July 2024. I visited an ENT doctor who couldn't find what was goimg on. Previous to the first vertigo, I had had a bad sinus and throat infection in september 2023. But after the last short vertigo, everything got worse. On July 25 2024, I started felling dizzy, and after a while, I started with vertigo again. I was taken to ER 4 times, and doctors couldn't find anything wrong in my ears. But they continued prescribing me Gravol to stop the dizziness and tried to keep me hydrated. I didn't improve for 2 weeks where I lost 20 pounds from puking due to the vertigo and dizziness. I decided to go to a neurologist and he came out with the diagnosis: VN. But the medication by itself didn't make me feel better. Then, I went to a clinic that specializes in vertigo and dizziness. This ENT doctor who did lots of tests including the VHIT provided me with vestibular therapy and Betaserc (Betahistina). Finally, after a month, I have improved and I have also gained 10 pounds. Eventhough, I just have the unbalance I can walk by myself. Now, I'm sure, I'm not the only one. And I hope I'll improve even more after I heard your videos.

God bless you for life and beyond for making this video. Yours was the first video I found on YT when I wanted to find people who have the same disorder. You explained every single thing so distinctly , I never could do it before watching your video. I keep on coming back here on the days I feel not my best. Helps every time. This makes you anxious, lonely like no other. Its depressing to know that someone who doesnt have it will never understand. Whatever it is, to everyone who's going through the same thing, better days will definitely be knocking on your door.

This brings me hope . Thank you so much

Thank you for the encouragement.

1:22 - Isn't that your *left* ear?

Hi Lindsay do you still have muscle twitching ?

Hi Lindsay do you still have muscle twitching ?

Hi Lindsay do you still have muscle twitching ?

Hi Lindsay do you still have muscle twitching ?

Hi Lindsey, Do you currently experience any brain fog, eye tracking issues, or a woozy/slight wobbly feeling when walking? Also did the doctors prescribe you any medicine for your vestibular neuritis?

Thank you for sharing your experience. I got vestibular neuritis a week ago and am so scared to read all the bad experiences from the internet.

I'm on 6 months .ENT can't see me until Feb 2025. I also was diagnosed with a brain tumour and herniated cervical discs at the same time so it was hard for me to know what was coming from where but been told its definitely not from tumour and definitely not from neck so this has got to be this . I feel absolutely the same symptom as you and my god the anxiety. I go for very long walks, I do all the exercises and keep on pushing . Absolutely correct.. do not believe the bad stories ..I have slightly started to feel better in the last week especially since I've come off of diazepam. I hope my doctor will be able to push ENT for a quicker appointment. This video really really helped cheer me u0 today . ❤

Hey there thanks so much for this video, I have just been diagnosed, I was wondering if you might be able to share some info about what physical therapy you did?

Thank you for posting this. Im having some dark days with this illness and you've given me hope. Hope you're still doing well.

Hi what about muscle twitching ?? Thanks

Hi, what about the muscle twitching ?? Do you still have it thanks!

So glad I found your channel! Thanks for your complete explanation and provide a hope.❤

This video was so encouraging! Thank you! I was just diagnosed with this and it’s really scary but your videos have brought me hope.

Hi， Linsey， rather than taking exercises and having good mood, have you been taking any medicine like betahistine as your daily routine?

Can we have another update please?! How are you doing now? Hope you are absolutely thriving. Thank you for giving so much hope x

Thank you for your videos. I really needed some hope ❤ you are wonderful!

I have just found this video and will watch Lindsey's progress journey. For me in the UK where healthcare is free, it has taken two years to get a full diagnosis. I am 41, and having started with episodes of dizziness about four years ago from which I would go back to normal it had become persistent since August 2022. I also have tinnitus and hearing loss in my right ear, but my diagnosis of vestibular hypofunction has been found to be in both ears. After struggling at work for over a year, and before having a full diagnosis, at the beginning of this year, I decided the best thing was to take unpaid leave from work for a year to address my health, which has included because of the dizziness and hearing loss, social isolation, anxiety, depression and insomnia (I am writing this at 3am because I can't sleep). At that point I don't think there would have been any way my work could recognise this as illness that made me unfit for work, so I would not have been eligible for sick pay, I am now starting to wonder if I can pursue that. Anyway, on top of that, and the reason I am here, is that although I now have a diagnosis, I am now on the waiting list to start physical therapy, so I am on the internet to try to find resources from which I can help myself, I've found a treasure trove of Physio exercises I can start at home (although a personalised plan would be best for me as I also have left side weakness from cerebral palsy). Finding this has given me hope that I can eventually return to normal. Thank you for sharing your journey!

Hi,Linsay, I'm glad you recover this well. Besides your rehab exercises practices you take, may I ask if you have been taking any supplements daily to help with it?

What did you eat at the time of your first attack?

Thanks for this. Mine started 6 weeks ago. I thought I had seriously stripped a gear. Doctors couldn’t help. This morning I wanted to ask my wife to check me into the hospital. Nice not to feel alone.

Thank you so much for your story, I admire you and appreciate you sharing I needed to hear this today! ❤️🙏🥹

As someone who is struggling daily with vestibular nerve damage. I really needed to hear this. Thank you.

I’ve been dealing with this for 9 months my only symptom is a swaying motion or up and down motion. Only just got it looked at last week doctor said it’s probably vestibular neuritis. Pls tell me a physiotherapist can help fix it.