My stomach quit working and I had gastroparesis issues, my nerves were dying though I didn't understand that at the time, but it turned out something was off with my vitamin D, even though blood tests and doctors told me it was normal. I had always got sun over the years and it made me feel good, but in those recent years I was noticing sun exposure no longer seemed to do anything for me like before. I was also having vertigo problems. When I deciphered something about vitamin D and tested it out, I instantly started getting relief from vertigo and gastroparesis by taking vitamin D gummies allowing me to start trying to eat again. I had to take more than was generally recommended and took on average 6000iu a day. Vitamin D and my "autoimmunity"/mystery disease had a connection, but beyond that my bodily reactions seemed to be triggering from certain foods I ate and I would have never even realized if I wasn't so focused on figuring out what was wrong and trying elimination diets. Grains were fueling my autoimmunity for whatever reason and I could easily miss it because it was usually like 3 days after I would eat them that I would feel autoimmune symptoms, and likewise when I quit eating, it would take time for it to subside. That can be so misleading if you're not paying close attention. Doctors mostly are blind to such food problems, to them a grain reaction is Celiac, and they over think it can only be from wheat, and their usual belief is you'd know you are reacting to wheat gluten because you'd have their classic symptoms of indigestion and gas and diarrhea and all that stuff after eating it, when that doesn't reflect reality and for many the reaction shows up in the nervous system for some reason, and shows up delayed after eating. I cringe thinking about how many people are getting diagnosed with mental health problems and giving pharmaceuticals when they're just being poisoned by foods. I almost died because doctors were so terrible, but I trusted in our heavenly Father the whole time and is why I did not allow them to treat me like a lab mouse. I was having paralysis and my legs were becoming paralyzed to the point it looked like I'd need a wheel chair at the rate of decay if I didn't pass away before then. I didn't know such suffering existed from all of the nerves throughout my body being inflamed and destroyed. My eyes and ears messing up from it was sickening to me and driving me crazy, and my brain fog was so bad I felt useless. My skin burnt like I had sunburn and I lost good feeling. My teeth were decaying. I couldn't eat any longer and started to shrivel up and die and people couldn't stand to see me and talked about what was wrong with me. Doctors wouldn't help me and 1 day I had an episode where I started going paralyzed from about the neck down, but my arms were still moving by themselves like shaking back and forth, and I had to make it to the ER in an ambulance, my 1st trip in one. When I got into the ER they just left me freezing alone, and when I called out to a nurse walking by that I felt too cold she just quickly grabbed a sheet from somewhere and plopped it down on my chest and walked away, while I was having paralysis and could barely move.. The ER doctor laughed at me from the start before even knowing anything for certain, and said nothing was wrong with me, and everyone treated me like I was just some drug addict, partly because I looked so bad from my failing health. I have never been a drug user, don't even take Tylenol. It was so degrading and disheartening. I suffered a lot for a year, I didn't know how I could keep going on, but I kept trusting in our heavenly Father and waiting and trying to hold on and repent of anything I could think of, realizing all of the things I had done and been doing and feeling shame over them, so much becomes normal to us and we stop even realizing we're doing it. I was hoping he would have mercy and allow me to continue on with my family at least because I was heart broken at leaving them behind. In Dec I thought it was the end though, I was in town at night after the sabbath so my family could get some food and it was so hard for me to even make it to town from being in torment and unwell, I couldn't go in with them because my body was so messed up and I was so sick and suffering, I couldn't walk good, so I stayed in the car and I prayed what I thought was my last prayer. I asked him to please have mercy and to save me from the torment and the shame people were putting me through. I prayed along the lines for him to send someone to help me and guide me to get free from that misery. I put all of my heart into the prayer because it felt like the end of my journey. Maybe around 5-10 minutes later a man from the dark parking lot started yelling and waving at me trying to get my attention and get me to come to him. I didn't know what was going on and didn't want to go over but I went over to see what the commotion was about. He told me the Father had given him word about me and he started prophesying to me and then sent me on my way. I still don't know who that man was. Some days after that I went to sleep and I appeared in an all white place and I was standing before the Messiah who talked to me briefly. Since then I have recovered greatly and returned to being able to function and appear normal. I still have whatever it is going on in my body but it's like my body is now able to fight it and keep it at bay, I gained weight back and am able to eat again and even do hard labor. It's a miracle, it's not normal for people to come back from these things, yet no one seems to pay any mind to this great mercy from the Father and display of love. So from speaking from my experiences I wanted to mention some things that you may try out to see if they did anything towards your recovery and well being. I'm sorry if it offends, I know so many people have something to say and it can be exhausting and also misleading, and offensive. Though I share out of love, and again I say I don't know things for sure, I've just been through a lot and this is where my personal judgment is at for such as us; Strict elimination diet, especially grain/gluten free. I mainly lived on plain potatoes, salt, and garlic, and bananas, for a period and then introduced different foods 1 at a time to see what my body would do. You have to use whole foods because almost all foods from factories are contaminated, spices for example usually contain so much wheat flour somehow that they should legally be required to list it on an ingredient list when it's just supposed to be pure spices. Cut out fat from your diet and in time strive for a low fat diet, avoiding oil and fatty foods. People think carbs are evil and giving them high blood sugar, but aside from the root causes which is metabolic dysfunction, fat actually causes high blood sugar and clogs the cells up where insulin can't put sugar into the cells, so it pools in the blood making the blood thicker and toxic where it then overworks the kidneys, which are also needed to be in good health along with the liver to use vitamin D from the sun in the body correctly. Try taking vitamin D gummies, above the claimed RDA though not at extreme levels. Walmart sells organic vegan vitamin D gummies. And keep getting real sunlight daily as we actually perform photosynthesis releasing a major restorative thing, hydrogen gas. Make sure you're hydrated though, the hydrogen comes from water splitting apart in our cells. There is also a benefit to earthing(grounding yourself to the earth). I know I sound like a mad man to most people but I wanted to share some with you in-case it would be a blessing to you. Keep hoping and trusting in him, we don't always understand but he knows what he is doing and what will result and we are all in his hand. May His kingdom come and release the creation from their suffering

Thank you so much for your kindness and all the information! I am very grateful and not in the least offended. Even though it’s sad to see others suffering, it is comforting when there is someone else who knows your pain. I can completely and fully understand the hurt, fear, and frustration of being accused of self harm, or seeking attention, seeking drugs, or just flat out lying. I struggled for 5 1/2 years without a diagnosis. Before I had blood tests come back positive for Mast Cell Activation Syndrome, I had countless doctors calling me crazy and saying things weren’t possible that were happening right before their eyes. But the Lord has been my strength through it all and has brought people into my life (including you) to help me along this journey. I will be praying for you - that you will find the answers you need, wisdom to know what to do, and ultimately healing. Thank you again for your kindness!

@@ZeebieFightinEDSMCAS hope your doing better. Your story is very inspiring. I just recently had to switch over to Hkafo’s from kafo’s. How long did it take you to fully adjust to the Hkafo’s? Are you still using the Hkafo’s?

I think it's this? wilds.org/store/product/all-i-ever-want-to-be/ God bless! :-)

Cassandra Mast. Cell does to you, not walking

Yes, I have 1 sister diagnosed with EDS and 2 sisters diagnosed with MCAS so thankfully I have understanding (immediate) family members!

Rodney Hoffman yes