Пікірлер
@LuisLopez-om8zr
@LuisLopez-om8zr 7 ай бұрын
How are you now?
@dyskinesia6822
@dyskinesia6822 7 ай бұрын
My symptoms are the same. Failed at finishing college -- I suspect I have BPD and/or ADHD which runs in my family. I'm just working to get by now. I don't think about HPPD much but it greatly effects my functioning especially when I am depressed. I'm trying to get help now but it's hard to afford it so my family is helping me. I mainly feel like I'm living behind my own eyes and am not myself a lot. Still trying my best though.
@jnntiz7925
@jnntiz7925 Жыл бұрын
Have your symptoms lessened in severity at least over time??
@dyskinesia6822
@dyskinesia6822 Жыл бұрын
Nope. Just a constant baseline for years. Doesn’t bother me though.
@jnntiz7925
@jnntiz7925 Жыл бұрын
My hppd seems to flare up bad particularly when I get fevers. And my visuals are intense at the moment. I feel like I am just suffering everyday so I understand how you have felt. I have had several flare ups over the years and at this point I’m not sure if I just get used to the increase in symptoms or they lessen but I usually do get somewhat better over time. Visuals still stay but the severity is what differs. However, I’m currently suffering from a flare up and feel like a complete mess at the moment and I’m terrified the visuals are just getting worse. I guess everyone experiences this a bit differently.
@dyskinesia6822
@dyskinesia6822 Жыл бұрын
@@jnntiz7925 I get flare ups too but meditation has greatly helped me with dealing with them. By deeply meditating for a couple of minutes I can sometimes even temporarily reduce symptoms down completely and my vision is clear. However, it took me a while to get to that point with it. Also getting extra sleep helps. The problem for you doesn’t seem to be that it is physically disabling you but that it is particularly distressing. Addressing that itself might help you. Why do you feel it’s distressing? Asking myself that helped me get over it mentally. Now it does it’s own thing but I don’t let it get in the way.
@kongrizzly5984
@kongrizzly5984 Жыл бұрын
I kinda know that eye... I think after few days I ghost myself on social 😮 media... I ve known since saw you ... And there was no pizza delivery coming at all that evening 😅
@OdioGliHippie
@OdioGliHippie Жыл бұрын
After 150ug lsd bad trip my life is not the same, i loose the sennse of my self and the world seems different... I totally emotional numb and i see all the peole like aliens, i have not empathy... I have also no sex drive
@dyskinesia6822
@dyskinesia6822 Жыл бұрын
Even 150 ug can have intense after effects… definitely my emotional highs and lows have been dulled since doing psychedelics. Coming back from space is difficult on the human mind. But don’t worry, this too is a unique experience that makes you different in a good way. Show people!
@dubbadubdub82
@dubbadubdub82 Жыл бұрын
Would also love to hear what you think HPPD comes from
@dyskinesia6822
@dyskinesia6822 Жыл бұрын
Sorry for the late reply... I wrote on my blog about a week ago what I truly believe HPPD comes from. It's a bit lacanian and theoretical, but is based on supported claims that HPPD has a connection to anxiety and trauma. I believe that HPPD comes from a mind forced to alter the flow of it's mental energy from the trauma that has been cathected (in the terminology of freud). The only true forcing comes from an invasion of the mind directly through a substance -- we can always refuse ideas of change if we are stubborn enough. Essentially my theory is that HPPD is acquired by stubborn and intelligent people that do not know how to change... and are perhaps too reliant on the preconceived notions of their essence of being to face reality. As for recovery, I'm not sure. Maybe this is why self-discipline seems to aid recovery. Honestly, I have personally not found that yet even though I try, but have found happiness and unhappiness and life despite so. It goes in cycles for me -- stability and destruction. However, I don't think about my HPPD ever anymore, and it doesn't cause me to be depressed. Admittedly, the heavy effects sometimes do make it hard to see but I have no alternative than to keep going. I don't believe in dogmatic thinking and realize that most change comes from belief; a recent study found that antidepressants are mostly placebos -- seratonin has no direct correlation with the condition. More Mark Fishery. So until I find my peace, I will continue searching for it.
@dubbadubdub82
@dubbadubdub82 Жыл бұрын
I've had HPPD for 10 years, I'd say I've learned to live with it. I've found exercise and just really staying on top of your healthy habits is key
@jnntiz7925
@jnntiz7925 Жыл бұрын
Hi, I have also have had hppd for around 12 yrs. Do your symptoms decrease and increase at times or “flare up” from time to time? Seems like mine has does this over the years.
@cartermaclellan6129
@cartermaclellan6129 Жыл бұрын
Thankyou I am 16 I am scared. Savu tudor I will take your advice.
@dyskinesia6822
@dyskinesia6822 Жыл бұрын
I think you definitely should. It's sound advice -- although I still drink and smoke I did go sober for over a year to clear my head about things. 16 is very young to handle something like this. Please don't hesitate to reach out to me if you need any help. Also open up (if you haven't already) to your family and friends about this because they should be there for you to help you through this. I, for one, wished there was more education about the harmful effects of psychedelics because it is beginning to plague young people (like myself) that have just begun their journey through life. I always advocate for this sort of thing and it makes me feel much better about my predicament. And just because you developed it now doesn't mean you won't recover. This video was really meant to reassure people who have been suffering from it for a long time that it is not their fault and they should not feel guilty for it. Hope you find health and happiness.
@gabriana3724
@gabriana3724 Жыл бұрын
thankYou🥺
@dyskinesia6822
@dyskinesia6822 Жыл бұрын
no problem 🤘
@gabriana3724
@gabriana3724 Жыл бұрын
🤟
@TheBuzzati
@TheBuzzati 2 жыл бұрын
Are you doing any better? I like the way you speak and your demeanor. You seem like a nice dude. I hope you're okay.
@dyskinesia6822
@dyskinesia6822 2 жыл бұрын
Hi! My condition symptom-wise hasn't improved but I am doing well. Still going to college and still me. Thanks for the kind words.
@TheBuzzati
@TheBuzzati 2 жыл бұрын
@@dyskinesia6822 Glad to hear it.
@Dudu98
@Dudu98 2 жыл бұрын
hey! I can understand how you feel and have had my bouts with HPPD. For me dropping all drugs (by all drugs, I mean everything from alcohol, weed to shrooms, also being more careful with my diet) and also adopting a healthy daily routine really helped. Also having friends or family who you can talk openly to really helps. And another thing that I think helped me a lot with anxiety and sleep was CBD oil, but all the above mentioned stuff is really important. Also give yourself time, you will need a lot of it =) (a few months for sure), don't be hard on yourself, give yourself time to cry/grieve/worry but try to be consistent with your routine. I recommend you integrate sport, meditating, breathing exercises like wim hof, cold showers, saunas/hot baths in your routine. And as a final note, I think there is no need to rush for ego deaths and god experiences all that crazy hippie shit, we will get that for sure when we die =). But if you still intend on taking psychs like shrooms/lsd, etc. ever again, I recommend you use very low doses and maybe wait until your brain is fully mature at around the age of 25 ;)
@noahachrem
@noahachrem 2 жыл бұрын
“The psychotic is drowning in the same waters in which the mystic swims with delight” Joseph Campbell Maybe what would help would be to look at your symptoms from a different perspective
@dyskinesia6822
@dyskinesia6822 2 жыл бұрын
wouldn't describe myself as psychotic or drowning... just because i swim doesn't mean i always have to do it with delight. everything is a dichotomy: some things mean something and some things just fucking suck. there's beauty in the completeness of that loop... and i wouldn't have it any other way.
@wavxy7454
@wavxy7454 2 жыл бұрын
Yo
@dyskinesia6822
@dyskinesia6822 2 жыл бұрын
yo :)
@wavxy7454
@wavxy7454 2 жыл бұрын
Your very smart bro don’t give up u potential in you. I believe in you man
@dyskinesia6822
@dyskinesia6822 2 жыл бұрын
Thank you I appreciate it. Haven't recovered from HPPD but I am doing very well in life almost 3 years later!
@wavxy7454
@wavxy7454 2 жыл бұрын
@@dyskinesia6822 glad to hear that bro! Thanks again for the motivation. I’m really struggling at the moment still smoking pot and nicotine and just not ready to move on yet gives me a little hope that it gets better though
@patricklapinski1526
@patricklapinski1526 2 жыл бұрын
27, have had hppd for about 8 years now. Hope everyone with this learns to cope and heal the best they can
@memesly3153
@memesly3153 2 жыл бұрын
The psych meds made me infinitely worse. These meds do not allow you to see just how bad they make it because they make you so apathetic. I was on almost every antidepressant antipsychotic and stimulant and Gabapentin. They fucked me up so much more then they psychedelics. I wish I never walked into a psychiatrists office.
@memesly3153
@memesly3153 2 жыл бұрын
I rly love ur channel lol. I have hppd tarkative dyskinesia from psych meds and PWS from benzos. I also love ur keyboard vid. This shit is definatley weird I’ve had this for like 4 years and I think I just am going to have to learn to deal with it. I did HRT (estrogen) and even though it was only for like 18 days it did somthing with my brain and since then I’ve been a lot more visually disturbed especially at night that’s when it bothers me the most.
@Limpe
@Limpe 2 жыл бұрын
@Limpe
@Limpe 2 жыл бұрын
Yo sir! Took a lot of psychedelicsI had HPPD back in the days, few years ago at your age. (24 now) *It went away* I don't know how, I *was desperate* , went to md who had no idea what to do. Then life happened the symptoms left the picture whitout my noticing. I even forgot about HPPDs. Just like that. What it took bellow>> Life has been rough and sweet and everything in between in the meantime. I am now diagnosed shizo-affectif disorder. Which is another thing to deal with. Also Lion's mane and all of those , need time to help. Even if you don't see benefits it might act, whitout you perceiving it. I felt that SSri seroto related med made my hppd much worse at the time! 🗡 *What may aid in your quest* : 🗡 Lion's mane with patience, Multivitamines, (don't neglect those) Taking some Sun at the park, i know.. Rest and rest and rest Sleep, ;)3 ( when you can) // might help : antipsychotic medications dopamine antagonist Solian at low dose 50mg stay away from SSRIs or seroto related meds Dark Chocolate ⚫ Brocolis🟩(anti inflamatory ) Sport if you can have an indoor bike or something : just hop(e) on and watch whatever content you like while pedaling for 30 minutes 3 times a week or whenever you feel like it, go intense at times it help rewiring your cells to function differently + takes your mind off you HPPD And Patience Something you don't have when you have flashing trees in front of your eyes or fucking visual noise I empathise very much so and your symptoms might disappear. What you want is to do *everything* that take your mind off the HPPD itself. Which doesn't mean it's not there, but at some point it become like something your not bothering about even if its there. Then at some point you might realize it is not present anymore. And also Learn to relax your body by remembering to do so! Take slow deep breaths occasionally OR just One every so often. Go for a run if you can. Take rests just laying down eyes closed whenever you can for few minutes. Listen to music and dance with *eyes closed*. It might seem stupid but added up if you really do follow through it help greatly. I hope you are not feeling like being patronized. because it's simple stuff but it's worth remembering. All of those things helped my brain get off the hppd fixation for sure. What are your thoughts about that? Also how are you?🦙
@park8445
@park8445 2 жыл бұрын
how were you able to fit the o-rings? my screws were very short and i wasnt able to screw it in :c
@dyskinesia6822
@dyskinesia6822 2 жыл бұрын
Yeah my screws were super short as well. For me it helped putting the o rings on the other side of the screw before placing the pcb down to screw it in. If the o ring is threaded onto the screw then it just has to compress a little bit when it's screwed in. Did take me a couple of tries to get it right though, first time the pcb straight up came unscrewed on one side.
@xavifdz7095
@xavifdz7095 2 жыл бұрын
I have HPPD so bad that there’s a point where I want to go blind, but I don’t. I just get stuck in a pixelated world with shitty contrast and waves of colors, it’s so fucking frustrating sometimes, and sadly not even one person gives a single flying fuck about this condition, not to sound pessimistic but just realistic. We are never going to recover, and we are never going to found out a cure.
@dyskinesia6822
@dyskinesia6822 2 жыл бұрын
Yep. Everyone will tell us that we’re normal. They look at us with wide eyes and expect intelligence and thoughtfulness. Once we open up they’ll try to relate: “that doesn’t seem *that* bad”. They minimize and skip along merrily, and there’s nothing I can say or do to show that my suffering is real and valid. Truth is, I can barely make out faces and I seem to live in hell.
@wavxy7454
@wavxy7454 2 жыл бұрын
I mean I have it the reason they will not find a cure is because we fucked up yo we should’ve never touched lsd shrooms dmt nothing like that we have to face the consequences ig man
2 жыл бұрын
I’m so sorry to hear this. I believe I have Type 1 HPPD after several 1P-LSD trips. For me it’s not too distressing at all but I’ll immediately discontinue the use of that in hopes that it gets better. I feel like a long break will help me. I hope we both heal.
@wavxy7454
@wavxy7454 2 жыл бұрын
Yo do u have like this static overlay on your vision?
@wavxy7454
@wavxy7454 2 жыл бұрын
How tf I get this from 1 mushroom trip and just 1 gram like wtf 😭
@hjvjccc
@hjvjccc 2 жыл бұрын
I honestly don't understand this " HPPD" phenomenon. It seems to me much more a situation of lack of understanding about what this world really is. People want to go back to being " normal". Normal is a complete fallacy. You've been given a gift not a handicap. The gift of starting to be able to see behind the curtain of daily reality. This is not a negative condition to run away from.. This is the tiniest little beginning of the process of awakening to the true reality of the nature of being. Once you begin to educate yourself you can change your perspective. Youre very young and have very little understanding about who you are at the moment. You said you woke up and can't remember who you are..thats not a problem .. That's.. Fucking awesome. That is an integral step in shedding the false narratives society has placed you in and which you can now start to awaken out of. Youre not who you think you are. That's what enlightenment is all about. The truth about WHAT you really are is so fantastic and crazy that it takes years a lifetime to fully understand. Thats what your life is for! Theres so much to learn and if you seriously want to make your life better you have to follow that path and learn to embrace this gift you've been given.
@dyskinesia6822
@dyskinesia6822 2 жыл бұрын
This isn’t a phenomenon. I’m not going to argue with you over this hippie bullshit. Just don’t go around spreading this narrative about enlightenment because this shit ruins lives. I’m not enlightened, I’m scared and hurting. All of this bullshit about this veil of reality. If this isn’t a handicap why can’t I think straight or see 5 feet in front of my face. Fuck normality this makes you less than human and I’m sick of people like you that get to prance around on some third eye bullshit. Wake the fuck up and smell the coffee.
@hjvjccc
@hjvjccc 2 жыл бұрын
@@dyskinesia6822 hey man. Youre hurting. Alot of hurt and scared and anger. Thats understandable. I'm in no way diminishing that. What im saying is has that anger gotten you anywhere? Has it resolved any issues or made you feel better? You can be angry and accuse me and call me names but has that made your situation any better? What im saying to you is there's another way. The way to feel less scared and take back control is to change your perspective. To realize that life is alot stranger and more unpredictable than you realize and trying to have it go the way you want is only going to make you more lonely more scared feel more helpless and less happy. The way to get your life back is to change your perspective. ITS THE ONLY WAY. Leave the anger and resentment behind and find the positive in your life. I was hoping my earlier comment would open the door to more fruitful conversations. Maybe it has. 😁 P.S. Just wondering. You think my life has been easy? That's quite an assumption to make. Maybe I'm trying to help you from my own very difficult experiences and my own path to healing. Just throwin that out there. No hippie prancing around here lol
@beige1831
@beige1831 2 жыл бұрын
Wow you truly must be lost and delusional to believe that hppd is awakening, it’s not, it makes you less connected to yourself and the world around you, it makes you see less and be less available to live your life because your constantly stuck in this loop. You clearly either don’t have hppd or are in toxic denial if you call this living hell a gift or blessing, it impairs imagination if anything.
@blue-ck9ns
@blue-ck9ns 2 жыл бұрын
I have mild HPPD. I used Shrooms 7 times over 6 weeks, 5 of those times i took enough to cause hallucinations. I’ve read the articles about how reality is really always moving, but by “default”, our brains are wired in a way to make everything appear still. Psychedelics change this perception. I was just fine after the first 6 trips, but I actually fell asleep at the end of the 7th one, and when I woke up, I noticed that I could still see my ceiling moving/breathing, when the trip should have been over. It’s been a week, and now anytime I look at my ceiling, I still see it moving/breathing slightly. When I’m reading text, the text will move around a little and breath. It is very annoying and is not a gift by any means. Shrooms did help me see what we really are as human beings, and that is a gift. But, constantly seeing stuff moving around when I’m trying to focus on it is very annoying, and I really hope it goes away. Again, mine isn’t severe by any means, and I mainly only notice it if I stare at my ceiling and not much else. But, I would like to be able to look at my ceiling and see it be still again one day.
@OdioGliHippie
@OdioGliHippie Жыл бұрын
Man, truman show and matrix are a fucking movies, they are not the reality
@OwenEdgar13
@OwenEdgar13 2 жыл бұрын
4 me organic things don’t aura just concrete or man made structures
@chromajoma
@chromajoma 2 жыл бұрын
I really relate to the sentiment about enjoying solitude more now. I'm not totally aware of your symptoms, and i have non-pathological VSS (the symptoms are often strangely similar to HPPD; I have the colors and afterimages and strange artifacting ) but since the onset of my symptoms, my cognitive functioning is totally different than it used to be and the current way my brain automatically functions is NOT conducive to improvisational social interaction. Really grateful for people in my own life who truly understand and empathize with my struggle. Thanks for sharing, the more thats out there and on the table for others the more awareness and progress we can stir up
@dyskinesia6822
@dyskinesia6822 2 жыл бұрын
Of course, thanks for watching and sharing. I’m also grateful for people in my life who make it easier for me. It is really tough for me socially but we will make it through for sure!
@scrambledeggs6437
@scrambledeggs6437 3 жыл бұрын
Hi thanks you so much for a video! How long did the keycaps take to arrive?
@dyskinesia6822
@dyskinesia6822 3 жыл бұрын
Hey ty for comment! Cannonkeys was really fast in processing my order. Took about 3 days to get here, I live on east coast.
@scrambledeggs6437
@scrambledeggs6437 3 жыл бұрын
@@dyskinesia6822 oh really I thought it would take a long time because people weren’t making a review about it. Ty so much for replying and making this video!
@dyskinesia6822
@dyskinesia6822 3 жыл бұрын
full lyrics WARNING: LONG Many Ghosts (Annihilation) I want to dance But you don’t wanna I’m Madonna Eat piranha I eat the fauna I dress in Prada Hit the sauna But I don’t wanna yeah Gonna need some change To keep it rolling Been shot my brain But I ain’t sold it yet Got the fangs But ain’t immortal yet So many questions So many days Never any answers Anyway So many questions So many days How many times You lied to my fucking face If I could relive the past I might not need a future Internecion (New Year’s Eve) If I up and leave Will you cry for me Cuz everybody leaves Eventually Everybody leaves So we’re making memories You can count of me yeah You can cry on me Make you look at clouds Then I cut you down I don’t like the sound Don’t want you around If I smile at you Will you smile at me if I shed my leaves Will you make me bleed she said she loved me do you think she lied look me in my eyes I’ve got lots of time (yesterday boy, yesterday boy) because I did Supernova (Modern Individualism) I see pictures on my wall Motorola I can’t call Lot of voicemails on my phone I like hearing dial tones I got want you want Don’t know what you need only see what I can see only breathe when I can breathe All my friends long gone being fly y’all wrong now I write a swan song fake nice get along It’s summertime in my mind Butterflies flying by She probably found another guy Stars exploding in my sky Lots of people asking me questions in my mind I don’t got time I got people to fight they’re all my friends They want to be dead Sometimes I do too but i don’t take it out on you But I don’t take it out on you Stop lying to me you should lie to yourself Fuck being human I’m Orion’s Belt the stars in your sky do they shine like mine That’s what I thought you’re not my kind Stop lying to me you should lie to yourself Fuck being human Fuck the cards I’m dealt the stars in your sky do they shine like mine That’s what I thought you’re not my kind You’re not my kind Extreme Violence (Xanadu) don’t care what you want don’t care what you’re going through Hopping on a plane What you gonna do yeah I’m onto you I live in xanadu Living on a noose Find it hard to lose drinking red wine Looking for a sign like I’m a different guy you know that’s a lie Wonder how you’re doing But I don’t really care It’s too cold out there Too cold out there it’s snowing real hard Real heard Where am I going it’s getting dark Getting dark Wanted you to be happy but you’re not But you’re not but you’re Wanted you to be happy but you’re not But you’re not but you’re I don’t want to talk to you ever again I want to be a happy story that you tell to your kids Deer (Wildflowers) do you really want to know got so many sides of me show nothing left here where you wanna go I would kill you but it’s not a movie see right through me driving cars to move me I got lotta lotta lotta fears imma disappear like Sears you know how that feels walking through the streets like deer You had a lot of thoughts today But I’m really far away The sky cries snow back on my face I’ve never seen better days do I look like a machine to you? are my parts painted blue hope you forget about me I only think of me when I see you I Want To Inflict Pain and Be Happy (Glitter At the Onset of Sound) I see pictures I hear sounds Don’t like words how clear they sound I woke up it’s still raining outside blood and time speaking with my eyes brown white and gold I talk to ghosts brown white and gold I talk to ghosts Are you ok with that Do I need to spell it out But there’s so much blood to bleed But there’s so much blood to bleed But there’s so much blood to bleed There’s so much all around me It’s almost quiet now Need noise so loud brain makes no sound Anthropophobia (Popular Music) I’m about to kill you but it ain’t meditated always enjoy talking to you you make me aggravated so many lies to see through so many ways to kill you so many ways to make blue so many things to show you you tell me that you’re bleeding but all I see is feeling that’s why I don’t like breathing i just can’t find a reason (why can’t I sleep at night so many thoughts stick to my mind I want you here by my side now get the fuck out my life I hate everything in sight I get why wrong can feel so right But I don’t get why right’s always wrong Doesn’t stop people from moving on) and I don’t care that you’re bleeding it’s too loud to hear you screaming and I don’t care that you’re bleeding it’s too loud to hear you screaming there’s blood on the dancefloor tonight (why can’t I sleep at night) we’re just doing what’s right (so many thoughts stick to my mind) loving and killing all night (I want you here by my side) I want to show you my life (now get the fuck out of my life) there’s blood on the dancefloor tonight (why can’t I sleep at night) we’re holding on so tight (so many thoughts stick to my mind) loving and killing all night (I want you here by my side) I want to show you my life (now get the fuck out of my life) (My life, my life)
@FpsGerald
@FpsGerald 4 жыл бұрын
:O