Just let him talk, stopping every couple minutes isn’t helpful especially when you’re just restating his points

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Thanks for this post, confirmed what I'm dealing with myself.. I've been natural all my life minus younger childhood when perms started being forced on me because my hair was too thick and too much work to deal with. originally I thought I had a demodex infestation when my eyebrows fell out back in November and never grew back in, actually still falling out.. then fast forward July 29th I'm taking my hair down, natural two strand twists.. and as I'm doing so all of my hair was just coming out in my hands.. talk about a fucking breakdown, now finding out it's more serious than I thought brought the tears back all over again. Huh, this is extremely rough. Thanks again for sharing your story.

Your beautiful

I was just diagnosed with LPP. I'm asian and 29 years old. I had been struggling with very noticeable hair loss for 2+ years now. I am just now starting to see what my future will look like with this disease, and I am starting to come to terms with it. The hardest part is accepting that the standard long hair that is expected for women to have is something I will never have anymore. I always had thick and long hair as a kid, but my hair is super thin, breaking, and falling out all the time. I am glad I found this video. There is really nothing out there for those affected by LPP and this video makes all the difference.

Did you say hunters and stalkers Deadpool was worth $900?

Good point. Many people arent getting biopsies to confirm

Have you looked into salicylate intolerance? Also, please consider emu oil or rice bran oil, especially if you have salicylate intolerance. Not magic cures but might help to lower the inflammation. A lot of oils and foods are high in salicylates. Best of luck and God bless!

I was 50 when I found out.

Try and use natural (anti inflammatory supplements) like , Zinc , magnesium , Vitamin D3 etc

If you are taking essential oils make sure you dilute them first so you don't burn your scalp

Try using (ALOE VERA Gel) , it may help cool down the inflammation on your scalp.

Ladies thank you. I feel you both, I have all three, lichen planus, planopilaris, sclerosus and days I cry and wonder why me, but seems we are so many of us. When I shaved my hair off my step daughter we get weekends said a looked like an alien.. the saying goes "out of the mouth of babies....." but that little innocent comment just threw me off and now when she is here, little older I always have a wig on. My hair although 4c has always been my crowning glory but that's thing of past. Thank you for your words of wisdom. ❤

you are beautiful regardless of the hair

I love this video!!! 💚💚💚

You have some great cards. I sell my card on eBay. You know your X-Men comics too.

First biopsy on back of my head was taken by p.c. Dr. and showed non-scaring alopecia but I was having burning, bruise feeling and itching. I went for a second biopsy at a dermatologist and it was done on the top of my head and showed LPP. Doxycycline, Clobetasol and Tacromilas has not worked. I've had a baseline eye test to start taking hydroxychloroquine. I believe Menopause triggered it. Dr. said possible remission once I'm post menopause.

Thank you for sharing your story. I was diagnosed many years ago, but was able to retard the hair loss with oral medication, topicals and injections. I recently had a major life change and the hair loss has been very aggressive -- presumably from the stress. I am hopeful that one day there will be a cure, but for now I hope that we can all find peace and love for ourselves.

Thanks for sharing. It stress me out to know I have lichen planopilaris. I found out 2 years ago after my mom passed. My burning and itching scalp and thinning hair was concerning me. I stress out everyday about something and my hair falls out tremendously. I still dislike my hair so I hide it with braids even though the braids are heavy it's easy. I also hide my hair with wigs and when I do decide to do my hair I'm ripping it because I can't seem to like my hair no matter what. After this video, I know I love myself, but it hurts to see my hair. From this day forward I am going to try my hardest to take care of my hair and accept that I do have scarring alopecia. You are beautiful and again that's for sharing your story. 💙

Get your thyroid checked. 1/3 people w this have hypothyroidism. Go gluten free, check if you have IBS or systemic lupus because these are related autoimmune illnesses. If you still don’t get better take Plaquenil

I was diagnosed with it in 2010 I wanna say. I noticed the symptoms in 2006. My hair was growing longer but thinning in my crown area. I started steroid shots & the scarring, itching and all left. I used aloe, and vinegar on it from time to time. I think it helped with scarring. My dermy said no more injections cause it could reverse the results. After doing the injections all of my length broke off. I just grew the length back & I did that with onions. I started seeing a Trichologist for about 2 years, she put this device on my scalp and I saw the inflammation in my scalp. Let’s go back! I started seeing symptoms after I got a Jerry curl perm & it burned my scalp so bad, like weeks later I was peeling dead skin off of my scalp. I know that’s what did it because I started to only perm my hair in certain areas. And sure enough those areas started to break and thin out, I stopped perming completely! I wish I would’ve caught the cause at the beginning! It seems most people with LPP experienced some type of chemical and it caused inflammation on the body. Let’s keep praying for a cure. Also, there are hair vitamins that I took called infinity hair vitamins, I started taking those & my thin spot started to regrow but I would experience headaches and it scared me. Maybe it may help someone else if you try.

I was diagnosed 2017 with LPP, and I have worked to keep my hair at 54 or 55yrs. The hair journey is a fight.

man these cards are even older than pokemon cards. 😁

Thank you so much for your video. I truly appreciated it. I'm 60 and just had confirmed diagnosis after dermatologist did biopsy of scalp. He said the scarring was very advanced and indicated I've had for decades. He said steriod injections wouldn't work because more than 10 percent hair loss on scalp. He also said plaquenil and methotrexate were my only options and hair loss would be permanent. Needless to say I was quite devastated. I couldn't see him in person due to having Covid and the dermatologist wants to hand me back to the rheumatologist for treatment. I'm in Australia and not much is known about due to it being so rare. My gp treated it as psoriasis for 20 years and never referred to a dermatologist till this year after my scalp went bright red. It took 5 months to get an appointment and I had been triaged as urgent. Lastly, my eyebrows are affected too.

My hair started falling out at age 20 and I had a bright red scalp. Dermatologist told me I could try rogaine but it probably wouldn’t work and then he left the office. I finally went back to a dermatologist again last month 26 years later and she said it was Lichen Planopilaris. So I agree with you, if people have diffuse hair loss the doctors assume it’s androgenetic alopecia when they are younger. I believe this is missed a lot. I have a history of thyroid (hashimotos thyroid disease).

In 20 s

I started losing hair after my pregnancy at age 38. I went to an Endocrinologist who laughed at me because I still had a lot of hair. I started to have burning in different parts of my body which my doctor told me it was just normal hormonal fluctuations. In my mid 50’s I started with burning on my arms, mouth, scalp and face. I saw several doctors that told me that I had hypothyroidism, and the pain was due to nerve pain. Then my hair started to fall out again starting at my temples, and now at the back of my head. I have long hair and I am devastated. I finally got a diagnosis over 18 months ago by a dermatologist but my GP’s fellow Dr. told me only a few days ago. I am so upset that nothing has been done to help me for years. The dermatologist prescribed me doxycycline which helped to put me in remission for close to 5 months. I tried taking it again but it was made me really sick with fevers, chills, stomach pain, headaches and weight loss so I had to stop taking it. Can I please ask everyone what are you taking, and is it helping you?

✋

Thanks for sharing, I was just official diagnosed yesterday. This had been so informative and helpful. I've been struggling for years, I'd love to chat and hear more about LPP

I am 64, newly diagnosed FFA. Have Hashimoto's and Lichen Planus since 2014.

I had a lot of these cards when I was younger

I’m 54 and I just got it last year.

When i started birth control my hair fell out at 19. At 23 or 24 i was told I it.. i stopped taking birth control 2022 at 26. I think birth control caused it. My hair was fine before starting birth control. And may woman on birth control loss their hair.

I was just diagnosed and I’m 22😢

I was just diagnosed yesterday with this condition and when I was told it was a bit of relief because I no longer was being made to feel like I was just over reacting about what was going on and that I wasn't being dismissed and just being told oh it's just your thyroid and once I was properly medicated my hair loss would stop and regrow again ,but it never did and just kept falling out !! My head would itch real bad to where it would feel like something was crawling in my head and then I would experience burning .I have been dealing with this since I was about 18 and now I'm 41 !! I got so discouraged with this and yesterday I got so upset because I just thought had I have been listened to years ago maybe I wouldn't have lost most my hair by now ! They did injections and those hurt so bad and made my head hurt for hours after I had it done and stung so bad that I had to miss work ,and it's not even a guarantee that it will even do anything for what hair I do have left ..It's depressing.

I started hair loss in my 20s, then during back to back pregnancies it got better and after having kids hair loss started. I tried rogaine which somewhat helped. Then at 39 I saw a dermatologist and biopsy showed LP. Steroid treatment caused severe folliculitis, I had inflamed pimples in my scalp. Right now they are treating me with rogaine, steroid lotion, shots and 3 months of antibiotics to treat folliculutis. I was also offered a pill, plaquenil, which side effects include blindness! I’m at a loss. Right now I still have a lot of hair left(my hair was thick before) but at this point I am willing to just give up and get a wig in the future

I was just diagnosed this month, I had radiation treatment on the crown of my head because of cancer a year and a half ago, and Dr. said they are seeing it in people who have had radiation treatments. Very scary, I’m starting to see some inflammation and thinning in the front of my head. Dr prescribed topical steroids, any other treatments anyone has found useful?

I have just been diagnosed with LPP and I am 50. Henna and indigo hair dye caused it. I do not have any itchiness, burning or pain. At first, I was diagnosed with alopecia areata, but another doctor says I have LPP. I have no other health issues. What can I do?

I have just been diagnosed with LPP and I am 50. Henna and indigo hair dye caused it. I do not have any itchiness, burning or pain. At first, I was diagnosed with alopecia areata, but another doctor says I have LPP. I have no other health issues. What can I do?

Hi mam I'm sanju reddy My wife is suffering lichen planopilaris So is there any cure for that or is there any alternative source Please suggest she is feeling very sad Kindly help us to resolve the issue

Diagnosed with diabetes 2 years ago, at 41 after getting hep b vaccine, as suggested by my doctor due to diabetes, had issues with my hair. DERM said the hep b probably brought it from being dormant. It's overwhelming. Also suffer from gluten sensitivity for over 10 years

It can be so frustrating, particurly when you have the burning in your scalp/

Love the video. The 1995 marvel metal set is by far my favorite. I have it complete with the marvel metal binder, base set and all metal blasters :)

Hey who buys 1996 marvel masterpiece packs?

Hi there! I found out I got LPP 3 yrs ago & now I’m 55. I watched his video before seeing your video & felt like he spoke too fast, glossed over a lot. It was annoying as he so is clinical and cold. Therefore I really appreciate you dissecting what he was talking about! You provided the emotion I was looking for and you made his video more tolerable. it’s a devastating problem! I’m always looking for a solution. I’ll keep watching you!

LPP doesn’t affect enough people to generate a lot of research. It is pretty sad to think that the reason why there isn’t enough research because there isn’t enough money in it.

I just found out about lot less.I love it 😊

Simply, Thank you. So informative.

Got diagnosed I am 69 😥 thank you for you video I have lost over 50% of my hair I do have a thyroid issues