Good and useful

I (and other people I know) have found better luck with providers in functional medicine and integrative health specialties for mold testing and treatment. As of writing this comment, if you go to Realtime Labs' website (realtimelab.com/), you can also buy the test kits yourself (urine tests) and there's a "Find a Provider" section for patients in the patient section. You can also call them with questions and they are very knowledgeable.

I wanted to ask how did you get diagnosed with RA if your anti-ccp was negative? Confusing!

What kind of doctor would you recommend ? A Rheumatologist? Which doctor is a mold\micro toxins specialist ?

Thanks for the info! Problem is getting a provider to actually listen and do tests.

i call bs

Way to go. So glad you made this video ❤💜💛

Share your thoughts, experiences, and feedback in the comments! This is a different format than I've done for older videos. It was personally eye opening for me to learn about the neurological symptoms.

Can you buy it as a an empty cartridge and put the syringe inside? I need to take NAD shots every day-31-and I’m needle phobic!!!

Thank you for the information. I should have my PA look at your video. He does not seem to look at things like you. I'm a Desert storm veteran and have advised him. Seems like he doesn't care. Wants to give me stronger pills, Not change diagnosis to Fybromiolgia.

I’ve got both RA & fibromyalgia 😏😩😭😤🤬.

I have been treating my RA with CBD oil from viteamea and it gave me back my life. Without side-effects. Nothing else helped me as much.

Thank you so much for all of your videos. I just found you and I've been so frustrated over everything going on with me medically. Thank you for all of your information and advocacy 🙏🏼

My rheumatologist diagnosed me with RA, Lupus, Hashimoto's in Oct. This is after having sjogren's/fibro/cfs since 2021. He told me he has several patients that develop more AI conditions as time passes.... He also said sometimes some of the conditions go into remission while others flare up. I have hope, infusion of benlysta and seeing an endocrinologist to treat my hashimoto's is coming up soon... Once i figure out how to pay tor the damn infusion costs 😭 My meat suit sucks right now. Im on 40mg of Prednisone daily at the moment.

Yes! I love this metaphor! Ive been trying to explain to my husband how i feel. I have sjogren's, lupus, hashimoto's, rheumatoid arthritis, fibromyalgia, AND CFS/ME. The sjogren's makes sure i stay super hydrated (i drink a gal to a gal and a half of water a day). Take a helluva lot of meds and vitamins.. and ill try to explain how i just can't go do something fun with him like he'd like, he'll be like, but you took all of your meds etc, etc. And I'm like, yeah, i did this and that today though, I just can't. I'll be cutting into my energy for days if I go. I wish i was normal, but i have no normalcy rn. I only had sjogren's up until 2 1/2 months ago and am waiting on seeing an endocrinologist, figuring out insurance stuff to pay for expensive infusion Benlysta. I'm working on getting better! I have hope, but its so difficult to understand to folks that don't have AI conditions. So grateful for my best friend who also has a long list of AI conditions, she gets it and i don't feel crazy or misunderstood!

This was really helpful, thanks! I'm getting my first infusion in a few days (Simponi, for psoriatic arthritis), and I've been looking for videos like this.

I am having my first BIologic infusion tomorrow for my Crohn's. I found this searching for what to expect during stelara infusion. Thank you. You are appreciated.

I have both, so confused on how to be treated

First of all. I like to thank you for your videos and its a blessing with knowing more of Ra and what to expect on your first visit. I, truly, understand the multiple autoimmune interfering with other disease or disorders. I been going thru this for years, never knew what was happening with all the er visits and other diagnosed medical problems. I finally seen a ipc doctor in august. Found out I had positive RA and Hashimoto along with fatty liver, gallbladder polyps, etc. If you can probably help with the combination of the two immune RA and Hash, not only to help myself. But for others like me. I having a struggle because with JP, Ra and Hash pain, stiffness, flares and neuropathy(electric shock in hands and feet's) is stressing. JP joint pain. I am 49yr. Its kind of my fault not caring for myself as I thought, plus had alot of trauma in past life with doctors and experience with some rn's. Kind of neglected my health. Anyway don't wanna tell my complete life health struggle. Love to know more about these autoimmunes. My 1st RA appointment is 11.7.2024. Thanks!!!

Please go and study everything…. you will have a better understanding as well. They you teach everything….

Thank you so much for this information very very informative. I have my list to go to the doctor in the morning. Bless you ❤

Wow! I am 24 and just got diagnosed with RA. I have it very bad in my knees, feet, ankles, hands, fingers, shoulders…. Severe. Cannot move. I can’t open a water bottle, can’t grip anything. I been getting fevers every night. I also cannot sleep at all. I have been in the middle of a bad flare for almost 6 months….. pray for me that my new meds and lifestyle changes help❤ Ty for sharing your story.

I’m going on to these and honestly I’ve been nervous but you have put me at such ease!! You have such a lovely mannerism, friendly face and tone as well as explaining everything so clearly. Thank you 😊

Hello Dee. I just found your channel. I've been veiwing your back videos as well as new. Your videos are a godsend! ❤ You answer and educate many concerns of a RA paient that doctors breeze over. I was diagnosed with RA in 2014 and since then it has become more aggressive. I've been prescribed Enbrel, Humira and Orencia. There effects at managing the RA have been limited. Next recommended is infusion. I hope that will be the answer😪 I appreciate also your informative videos on testing, foods to reduce inflammation, how to get better sleep and practicing Yoga Nidra. You get that it's the holistic approach that works best. So glad I found your channel❤ Be well.

Just found your page today

Hi I hope you doing well. I am wondering how you tolerated Simponi and if it working for you ? Thanks.

I have a ultrasound tomorrow I'm hoping it will show up as I have no visible swelling but I'm in a lot of pain my bloods came bk positive for ra but rheumatologist wasn't interested as I have no visible swelling x

Ps. Did anyone else get these symptoms after covid? Because I strongly feel that covid caused this. So many people have auto immune disorders since covid.

I don't know the answers. But I feel that our environment is the biggest cause. Something is contaminating the body. Food, pollution, stress. If I eat shit food I have worse pain. If I stay away from sugar and wheat and do my morning stretches and an evening workout then I wake up a little bit stiff but have hardly any pain. Obviously I still hurt if I start trying to do things like heavy lifting first thing, but if I take it easy for a few hours after waking up I can even start working almost as normal and I'm a carpenter. And trust me being a carpenter is often heavy work. I've not taken any meds and I now stay away from ibuprofen because that actually ruins the gut which is apparently a big cause of inflammation. Co codamol is my better option but even then I stay away from that. I can say the biggest reason I sometimes have bad patches is if I try and eat treats and pretend I can live like everyone else. Remember folks, you are not alone and we can live a long healthy life still. So stop stressing and getting depressed and do not go on google it will only scare you. The best thing is the doctors still don't know what RA is, which in my opinion means there's still the chance that you can really lower the flare ups naturally.

I have RA and SLE. And my name is Dee! 💜

Mine is 81.1

Thank you!! I start my tomorrow. I'm not as nervous now.

Thank you for the information.

Which is worse

It has really helped me with SLE but it took 6 months before i really felt a big difference.

Thank you.

I tested negative. However, I have flares. I have deformities. My fingers don't point the right way anymore and my toes are trying to do weird crossy things they shouldn't do. My hips, back, shoulders, elbows, wrists, fingers, ankles, and toes are affected. Sounds awfully similar to RA to me.

I've had RA since 2017. Thank you for sharing your story. I hope I will hear more info from you soon.

Thank you for your positivity I have MS Lupus RA & Sjorgens & it gets kinda loopy trying to differentiate which one is actively causing me drama so videos like your helps to sort it out easier to seperate. Keep it up. “Anxiety in a man’s heart weighs it down, But a good word cheers it up “ Proverbs 12:25 your video can help cheer up someone who is having anxiety differentiating their autoimmune diseases with simple explanations

You are an absolute angel in this world for making such a great and helpful video ❤

I’m starting this soon stupid question but how do you empty the sharps containers what do you do when it’s full 😅

Ty

That’s interesting! I got inflammatory poly-arthritis as a diagnosis, my RF was near high but not close enough to be positive. I noticed the fatigue, I had memory problems, my eyelashes grew and I was able to break my nails easier.

Fibromyalgia is an autoimmune disease! Patients have a defect in the mitochondria!

I found your video because I was contacted about clinic position. I have never looked into rheumatology but your videos has me intrigued. I have a year of experience (skilled nursing facilities mainly). Excited for a new change. Enjoy your weekend.

You are supposed to do it on the outside of the thigh

So I was at a 14, PCP referred me to rheumatologist. Was having random pains on one side but turns out it’s a pinched nerve. Was fighting to get referral to be told over phone by rheumatologist that my levels are normal and my anti-ccp is negative so now I’m confused. Cuz homie said I don’t meet the criteria to be a patient. Don’t get me wrong I’m grateful but confused. Grateful for the breakdowns. Yes it was helpful

Great video Thank you.❤

Thank you for this video ❤️🥺

I received my first “looks like rheumatoid “ at the age of 16. By that point, I lost my ring finger knuckle… 13 years old. I was given the seronegative RA in my early twenties. So, 45 years later and it has slowed tremendously. However, I am so accustomed to pain that I miss mini flares. I now get diagnosed via X-ray or ultrasound during a flare. What made it much less damaging- I quit smoking.