Panel: Coping with Cancer and CF
40:13
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@merzaalimerza6730
@merzaalimerza6730 2 жыл бұрын
Ali Akbar I hope God's anger falls on you and your family,amen.
@shahidsuhailkhan5818
@shahidsuhailkhan5818 2 жыл бұрын
Ya Allah.let ali akbar suffer and his family in this life and after death,amen .
@shahidsuhailkhan5818
@shahidsuhailkhan5818 2 жыл бұрын
Ali Akbar All my family pray against you and your family. Oh Allah let him suffer and his family,Ameen
@sajdakhalid8633
@sajdakhalid8633 2 жыл бұрын
Articulate and very well spoken! Wishing you health and happiness always .
@chayasorah815
@chayasorah815 2 жыл бұрын
Cf in the Middle East , go to hadassah hospital in Jerusalem to get first world care from dr kerem . Easy. Too bad politics forces them to refuse to be cared for by an Israeli lol
@anikabaddeleyrollingbackwa7341
@anikabaddeleyrollingbackwa7341 2 жыл бұрын
Raheema you would be able to do really good medical sociology based research.
@aliakbar5401
@aliakbar5401 2 жыл бұрын
Thank you Raheema and CFRI,.for helping to raise the awareness of CF in Pakistan. You are all real warriers and I Wish you and all people with CF all the very best.
@jaweedkhan1613
@jaweedkhan1613 2 жыл бұрын
Ali Akbar خدا ہمارے لئے کافی ہے اور وہ بہترین ایجنٹ ہے خدا نے تم سے اور تمہارے خاندان کا بدلہ لیا ہے۔
@jaweedkhan1613
@jaweedkhan1613 2 жыл бұрын
اطلّت عليك وعلي أهلك غُمّةٌ لا تفرجُ
@merzaalimerza6730
@merzaalimerza6730 2 жыл бұрын
Oh God, make him want to die and not find it
@merzaalimerza6730
@merzaalimerza6730 2 жыл бұрын
‏I ask Allah for you to be punished in the life of [this] world, and of the Hereafter is more severe.
@talasblueocean
@talasblueocean 2 жыл бұрын
I found ans watched your daughter's documentary and it really made an impact on me. Mallory had a warriors heart and a graceful soul. Thank you for sharing Mallory's story, I am better person for it.
@cfri.cureCF
@cfri.cureCF 2 жыл бұрын
Thank you for watching! We are so happy that you found inspiration in Mallory and Diane's story. May we ask how you found out about the documentary?
@hemmupatel
@hemmupatel 2 жыл бұрын
Thank you so much for the contributors to this video! My son was diagnosed at Birmingham Childrens Hospital back in 2004 and I remember there was so little known about CF amongst Asian communities at the time. We live in the US and feel lucky to have the best care and resources available to us. I hope to share this video with many communities in the hopes of raising more and more awareness to help those less fortunate with CF. thank you CFRI
@cfri.cureCF
@cfri.cureCF 2 жыл бұрын
Thank you for sharing this video! We agree, spreading more awareness among underdiagnosed communities is critical. If you check out our "Diversity and Inclusion" playlist, we have several awareness videos available to various underdiagnosed CF communities available to share as well.
@sajdakhalid8633
@sajdakhalid8633 2 жыл бұрын
Thankyou CFRI.
@cfri.cureCF
@cfri.cureCF 2 жыл бұрын
Thank you for speaking with us and sharing your story with the CF community across the world. Your experience and your voice are invaluable, and we appreciate your courage.
@zubairthebo
@zubairthebo 2 жыл бұрын
Hello Sajda, I have a son with suspected CF. Can you please share the WhatsApp group details with me. Also I have few questions about things you told in the video firstly what's bronchial lavage? also at 6.40 you mentioned something about trying "cafta" which changed your life, can you please share details about this also. Thanks
@aliakbar5401
@aliakbar5401 2 жыл бұрын
Thank you CFRI, for your keen interest and help in raising the awareness of cystic fibrosis in Pakistan, and difficulties faced by people with CF. Greatly appreciated, and hope that this would lead to improvement in the care of CF in Pakistan.
@cfri.cureCF
@cfri.cureCF 2 жыл бұрын
Thank you, Dr. Akbar, for your dedication to treating those in need, and raising awareness to help improve the lives of those living with CF in Pakistan!
@sonyahaggett2770
@sonyahaggett2770 2 жыл бұрын
Could not be more proud of my friends and the example they set of living a balanced, health, and meaningful life after transplant!💜
@nazguljonathan2280
@nazguljonathan2280 2 жыл бұрын
Dr Khiria kzbin.infok7YrQKT1JIM?feature=share herbal medicine cure my colorectal cancer.
@markruzz9542
@markruzz9542 2 жыл бұрын
Dr Khiria herbal remedies cure my brain cancer,, I found Dr Khiria through his KZbin channel kzbin.infonmC3eabwDgg?feature=share
@2listening1
@2listening1 2 жыл бұрын
I’m looking forward to hearing about this. Thank you.
@deniseruiz1840
@deniseruiz1840 2 жыл бұрын
My daughter has CF she was diagnosed at 11mos but suffered all 11 doctors and ER didn't know or weren't familiar with CF, she was always in the hospital in 2 weeks out 2 weeks went on for 10mos what they thought was always pneumonia or respiratory. The day she came home she went through pampers like crazy by 3 Mos I couldn't keep up I needed help so our local church helped and still no one knew why. She stop growing at 6mos her head was the only part growing, FINALLY pediatrician referred her to children's hospital at 10 mos. and 1mo of testing comes to find out she was born with CF an didn't know how she survived without medication we were very blessed no..2 she was also diagnosed with hypo thyroid. As soon as I got her situated with medicine and treatments she finally got strength to stand up and take steps 3 Mos later. This is my daughter Destiny story. We (brother, 3 sisters and myself) have a purple ribbon with the saying JUST BREATHE and the the heartbeat line. She is 27 1/2 💜💜💜💜💜💜~💜💜💜💜💜 6 5
@cfri.cureCF
@cfri.cureCF 2 жыл бұрын
Thank you for sharing Destiny's story with us, and we are so grateful to hear that you were able to find her the care she needed. If you post a picture of your family's tattoos on social media and tag us, we'd be happy to share them! We're on TikTok, Instagram, and Facebook @cfri.curecf and Twitter @cfri_curecf.
@abbyhk3766
@abbyhk3766 2 жыл бұрын
Anna, I cannot express how much respect and gratitude I have for you--your honesty about your experiences with CF and now also colon cancer Stage IV, and your mission to inform others--especially those with CF. Your message is vitally important: that colon cancer doesn't have to be others' story, that people in the CF community have to advocate for earlier testing. I so wish it weren't your story. Thank you for using a rotten situation to help others. Sending hope--you already have strength and so much courage!
@haidenmorgan
@haidenmorgan 3 жыл бұрын
When you have CF and are a scientist, Ben is like one of those A list idol celebs you only dream of meeting one day.
@aundrayafontaine3063
@aundrayafontaine3063 3 жыл бұрын
Can I have more wristbands please?
@cfri.cureCF
@cfri.cureCF 3 жыл бұрын
Hi Aundraya! Please check your Facebook inbox, as we have sent a private message there to arrange a shipment :)
@aundrayafontaine3063
@aundrayafontaine3063 2 жыл бұрын
@@cfri.cureCF I have received the wristbands recently. Thank You very much.
@cfri.cureCF
@cfri.cureCF 2 жыл бұрын
@@aundrayafontaine3063 You are very welcome!
@aundrayafontaine3063
@aundrayafontaine3063 2 жыл бұрын
@@cfri.cureCF I,ve received the wristbands recently.
@chayasorah815
@chayasorah815 3 жыл бұрын
Omg this is me
@staciereveles669
@staciereveles669 3 жыл бұрын
Anna ~ Thank you so much for all you bring, your words, and the work you always do for others! This podcast is a life saver and a game changer. This world loves you, The Rock loves you :), and it's all just mirroring your incredible energy, love, and light that you share with the world. We are thinking of you and sending love from our home to yours now and always!
@MarioRodriguez-gr8wc
@MarioRodriguez-gr8wc 3 жыл бұрын
Don’t call us Latinx.
@cfri.cureCF
@cfri.cureCF 3 жыл бұрын
Hi Mario! We selected the word "Latinx" after a long and thoughtful decision-making process. However, we do value your feedback and would like to know, what terminology do you prefer? Thank you for reaching out.
@MarioRodriguez-gr8wc
@MarioRodriguez-gr8wc 3 жыл бұрын
@@cfri.cureCF if you want to speak Spanish say Hispano or Latino. If you want to speak English say Latin American or Hispanic. Gallup and Pew have conducted research on this topic. The vast majority rather be called either Hispanic or Latino. Only 3% of the community identifies as Latinx. We find the term Latinx to be a form of cultural and linguistic imperialism.
@cfri.cureCF
@cfri.cureCF 3 жыл бұрын
@@MarioRodriguez-gr8wc Thank you Mario, for your insights, information and concerns regarding your preferred terminology. Please know that we have a highly invested, engaged, dynamic Diversity and Inclusion Committee which has several Latino members, and the use of Hispanic/Latinx was made after a great deal of research and discussion. As an organization committed to serving and engaging with our wonderfully diverse CF community with the utmost respect, we are constantly evolving and will continue to seek a better understanding of the communities we serve.
@ballBozeman
@ballBozeman 3 жыл бұрын
Good advice and exercises. Thanks!
@cfri.cureCF
@cfri.cureCF 3 жыл бұрын
Glad you like them!
@maryconvento770
@maryconvento770 3 жыл бұрын
Love, love, love...
@mezzofeldenkrais6131
@mezzofeldenkrais6131 3 жыл бұрын
Wonderful.
@shahnazmalekniazi448
@shahnazmalekniazi448 3 жыл бұрын
i am a mother of c f. patient , and would like to contact with Dr Quinton , to make some question about my son c.f..please guide me😍🤗
@cfri.cureCF
@cfri.cureCF 3 жыл бұрын
Hi Shahnaz! We are not able to provide Dr. Quinton's contact information directly. However, you may wish to search for him on Facebook or Instagram :)
@johnlewis4307
@johnlewis4307 3 жыл бұрын
Nice video, I have Freestyle Libre sensor and Ambrosia NightRider for manage my glucose values. Both products are very helpful for me.
@BlackDaemon09
@BlackDaemon09 3 жыл бұрын
Thanks for this talk. Great tips. I appreciate the thought process and helpful ways to guide planning.
@manash18m
@manash18m 3 жыл бұрын
Wonderful presentation. Prof. Brigitte, you are a great scientist. Wish that you solve the problems and help people breating well
@Izaachou
@Izaachou 3 жыл бұрын
thank you luanne. as a 27 year old with CF, this made me cry, and fill up with hope.
@kathygeiger4899
@kathygeiger4899 4 жыл бұрын
Thank you so much for all this information
@sonyahaggett2770
@sonyahaggett2770 4 жыл бұрын
💜
@gracejveasey1428
@gracejveasey1428 4 жыл бұрын
Hello everyone i want to use this opportunity to thanks Dr ukabuo KZbin who cured me of my herpes virus with his herbal medicine
@marybuche9495
@marybuche9495 4 жыл бұрын
Congratulations Alan!
@gracezoe1188
@gracezoe1188 4 жыл бұрын
Just do something that will make you money whilst you sleep, no matter how little. This pandemic has been a perfect eye opener for us all to really see how life can be without your usual income stream. It's recommendable for you to have a side hustle. The best thing you can do for yourself is to find a way to make money even while sleeping especially now we have to work and earn from home, Having different streams of making money is the solution to survive. And I've been doing that by investing in the stocks, bitcoin and dividends, even real estate. I've earned impressive profits I can't mention here working with Mr. Austin Grey through his registered investment company. Kindly reach out to him via austingrey64@gmail He will guide you. The rich see an economic crisis as the perfect time to invest, they're a step above others because they see an opportunity where others don’t
@Lassoducky
@Lassoducky 4 жыл бұрын
I am doing a project to learn how to write a grant application convincing the university to fund a person doing research in any form of human physiology (the current class I'm in) to come and speak at an extra curricular seminar and I hope that maybe one day I can submit a real version. Your work is incredible.
@justbreathe123-u4h
@justbreathe123-u4h 4 жыл бұрын
Volume is very low - can you re-do the volume to make it easier to hear?
@johnnyseawright4639
@johnnyseawright4639 4 жыл бұрын
Nice content! Keep up the great work. I think you'll like my videos also 😁 ✌️
@nicolematthews5930
@nicolematthews5930 4 жыл бұрын
Any idea when trails utilizing phages will begin?
@cameronretason5073
@cameronretason5073 4 жыл бұрын
Trails are already underway, the largest as of yet started in Europe in 2016. The first intravenous human trails in the US were approved in 2019 and are due to be conducted by the University of California San Diego School of Medicine in collaboration with AmpliPhi Biosciences Corporation.
@gordo4044
@gordo4044 4 жыл бұрын
We can’t get it at all here in Canada, how long have you had it in the US now?
@2listening1
@2listening1 4 жыл бұрын
gord O I think it was October of 2019.
@ThatGuy-sd3zl
@ThatGuy-sd3zl 4 жыл бұрын
So far it’s not available for us in Canada. But hopefully it will be in the near future. I’d be so excited.
@2listening1
@2listening1 4 жыл бұрын
I can’t agree with you more about pet therapy! 🐶🦮🐕‍🦺
@2listening1
@2listening1 4 жыл бұрын
I wish we could have had Trikafta earlier.
@2listening1
@2listening1 4 жыл бұрын
You’re amazing, Malloy’s Mom. I wish everyone knew about her book and your earlier one. Thank you for all your work. I’m so sorry for your loss.
@2listening1
@2listening1 4 жыл бұрын
Thank you for your service Dr.
@gordo4044
@gordo4044 4 жыл бұрын
Very good information thank you Dr
@everettesfit
@everettesfit 4 жыл бұрын
New to ABPA, thanks for the informative discussion
@frankwillis1036
@frankwillis1036 4 жыл бұрын
HOW I WAS BE ABLE TO CONCEIVE AND WITHOUT NO MISCARRIAGE AND DELIVER A BABY SUCCESSFULLY AFTER USING DOCTOR OYAMA HERBS Greetings to everyone who is reading this testimony of mine am so happy to see my self having a child i have been marry for 8 years without no child i was facing Infertility Journey all hope was lost after trying some methods to be able to conceive but i want you to know there is nothing God cannot do i was going through search about fertility matters i saw a woman who was sharing her experience on how she was cured from fertility after using Dr Oyama natural Herbs i said to my self God should also grant me this opportunity to also testify so i contact the dr and he enviously guarantee me not to worry anymore i explaining to him he said i will smile again if only i have in God and believe in his herbs i agree with him after some process within 4 days i receive his herbs after using it the way he instructed me to after some weeks i find my self was pregnant and i successfully give birth to a child i pray God should bless him for me i know there are many woman out there i want you to know that there is still hope for you he also have herbs to cure all kinds of disease like (HERPES) (HPV) (CANCER) (HSV 2) HIV/AIDS kindly contact him now [email protected] or call/WhatSapp +2348108264684
@thebillykeith
@thebillykeith 4 жыл бұрын
Thank you.
@janicehankins9419
@janicehankins9419 4 жыл бұрын
Can some one contact me