Recall waking up from the first endoscopic ultrasound and being asked how much I drank. “I don’t,” I replied. (Started having hypoglycemia symptoms in childhood, which was the *big* symptom twenty-five years ago. Got so bad it could no longer be ignored by the doctors. Fasting insulin levels were high enough that an *insulinoma* had to be ruled out. 5 months of Proglycem turned me into an insulin-dependent diabetic…)

I have Chronic Pancreatits. Gone through Frey's Procedure. Recently I was diagnosed with diabetes. My c-peptide is normal. But my hba1c is 9 . My fasting blood sugar is 179 and pp is 230. Which diabetes I have

Chronic calcific pancreatitis diabetes islets cel transport possible please send me address 🙏

God bless you bro

What a story. I'm so impressed with this amazing mother and advocate!

I'm the only one who carries the disease of pancretitis in the families

Have you ever have e.r.c.p.s done it hurts alot just like cancer memicks pancretitis

Don't feel so bad I have terminal diseases like pancretitis and esophageal stricture and plus more

My son in law was diagnose pancreatic cancer,andwas undergo a surgery last two wks ago and now he is still at hospital in ontario canada.

I was diagnosed by a former family doctor with having pancreatitis.

Hello my name is Jennifer and I have cystic fibrosis and just got diagnosed with chronic pancreatitis and I need a new liver so I’m not sure how much longer I can keep doing this I’m 33 and have so many other problems with it so who can I talk to about this?

I have pancreatitis of course I’ve been accused of having an eating disorder, being a drug seeker and an alcoholic. Just found out at 37 years old I was born with a rare condition called congenital dorsal pancreatic agenesis. I feel this!

I am 37yo and I just found out I was born with congenital dorsal pancreatic agenesis. I had a contrast MRI that made a cool 3D model of my pancreas. I can relate to most of these symptoms my whole life and was misdiagnosed. Only difference is my pain did not radiate to my back, because I don’t have most of a pancreas.

Thank you for talking positively about cannabis use for this condition.

Am exactly same am literally dieing slowly the uk health care is a joke I never drank or smoked I've always worked i got this pancreatitis from a 415v electric shock what ruined my body shock was 2016 since then my body's been fighting alsorts but this is the thing what is going worse an worse nobody cares its as you say frustrating 41 an going worse an worse

My friend Dr. Chanchal Roy is currently admitted in a reputed Kolkata hospital (unknown). If it is Genesis, can anyone help me locate him? Thanks. Dipta Bandyopadhyay, Houston, USA.

Can a TPIAT patient have a pancrease transplant 'after' this surgery?

Cannabis... G'day Mate

Thank you so much for this great discussion. I have all of these symptoms and have been in and out of the hospital for the last two months and have lost a little over 20 pounds. If I drink/eat anything other than plain water I will have horrific pain. Because I am not an alcoholic and because my Lipase levels are normal no ER doctor or Hospitalist would consider pancreatitis. I feel very helpless! Does anyone have any recommendations? I live in Florida btw. Thank you 🙏🏽

I dont get the pain as bad as most of you here, but i do get Nausea after eating for a while. Feel sick after food. Strange WTF?

I have pancreatitis of course I suffer with depression

Is type 3c diabetes a precursor to pancreatic cancer?

Is a new diagnosis of diabetes in someone who has chronic pancreatitis for 4 years with extensive calcification, be an early indicator of pancreatic cancer? And is the diabetes considered 3c diabetes?

Thank you for highlighting this area! There are few doctors that really understand the impact of EPI. Dr. Freedman also has an in depth article on Exocrine Pancreatic Insufficiency written with Dr. Struyvenberg that anyone with EPI should read. Another really helpful resource was the book Primal Pancreas.

Thank you for highlighting this area. There are few doctors that really understand the impact of EPI. Dr. Freedman is another good one to check for those suffering. He has an in depth article on Exocrine Pancreatic Insufficiency written with Dr. Struyvenberg that anyone with EPI should read. Another really helpful resource was the book Primal Pancreas.

I don't know how I will fight with this disease...cp...I am 31..need someone help.. I don't wana die

0:52 0:53

I have a 14cm mass none cancerous...going through procedures waiting to see specialist for out come & treatment...🤔

slides would've been helpful...

Exactly what happened to me. It's awful

Its 2024 any update about treatment

Saturated fat is not bad. And we should not be recommending vegetable oil. This advice is opposite of what is healthy. There’s better information out there. This is harmful advice.

Should a ipmn be removed from the main duct

It’s mind blowing that 56k watched this video and I hade to still occasionally inform Drs. what is wrong with me. 😞 Please keep spreading the word!! Thank you. 🫶🏻

I don’t have any islets left. 😣

Dr what can lead of loss of pancreas normal lobulations , and what makes tail looks bulky in a CT SCAN, though there is no tumour

I came across this video by accident and I couldn’t believe I wasn’t alone. I’ve struggled with pancreatitis for 30 years. My story is very similar to the people who have shared. The information was very helpful. When one person said they wish someone could feel this pain for a second so they could understand. I know have cysts in my pancreas. I have been diagnosed with IPMN when I was 31. I shared this video with all my family members. With hopes they could better understand this condition. I feel that hearing other people’s stories they could better understanding what I go through and not “ here we go again “ I thank all of you for sharing your stories and how you all have found ways to cope with a devastating condition.

My,14 year old nephew is suffering with Pancreatitis.

yes this is great information

I’m so grateful to hear from others who share the same experience as my self, it really motivates me to keep fighting. Because I have been through a lot over the past 8 years. This is only time I am hearing from people with chronic pancreatitis.

My heart goes out to all of us who have this awful disease. It took so long for me to get a proper diagnosis. I've lived with this for 17 years now. It is a journey. Thank you.

Happy Heavenly Birthday Leesha. You are loved and missed.

Homeopathy medicine is useful for pancreas disease

Damn they couldn't make a smaller incision?? Jeez!

WOW, I know Leesha and had not ever seen this video, I am ashamed to say. My love and prayers are with you, Leesha!

One thing that Everyone needs to know Pancreatitis is Exactly Painful!! If you haven’t ever experienced it, please don’t doubt everyone else.

I don’t think it’s humane to leave patients who are suffering with this to go through it without pain management.

🙏🏻🙏🏻🙏🏻🙏🏻💜

I am not a health professional, but I do have a Pancreatic Cyst. With the sample taken from the cyst. Why can’t the cyst just be drained as it sits on the Pancreas?? If drained, will the cyst return once drained??

Claremont new Hampshire