Hi Molly I just came across your channel, glad to have found it, as I just recently started having full body convulsive seizures, yet to be determined whether they're PNES or epilepsy, and from what I've heard about both I'm starting to question whether the 'medical community' isn't just making an artificial distinction between them. I'd had non-convulsive, conscious "absence" seizures all growing up (34 now), along with fairly severe childhood depression. Looking into service animals now. Anyway, just wanted to reach out and tell you I appreciate you're putting this information and experience out here like this for people like me. Peace and blessings

Being that this video is 9 years old, you have been such an inspiration to me. I'm 15 years old, and have been suffering by it since I was 12. -- Nobody believed me, not even my parents, that they were happening to me until I had one at a friends house. They still didn't believe it until my pulse started to spike and my oxygen had gone down to under 50%. The doctors tested me for Epilepsy multiple times and when they found out it was not Epilpesy they practically gave up on me and told me they had no idea to what it was. I was the one doing all my research and suggested to the neurologists PNES. It's so lonely having it, as no one takes it seriously like they do for Epilepsy. They tell me it's from PTSD and trauma, and although that may play a part I completely agree on how it has to be something physical too. I get so angry because being told you're practically crazy day in-day out makes a person really go crazy. It's great to see that you have summoned a community of people who have PNES too and have similar stories to mine. Bless you and your lifesaver of a dog. I hope one day I can find my SD to help me out and help me get my independence both back, and for the future ahead of me.

PNES is caused by too much stress. The type of stress is usually emotional. Patients with pnes usually have ptsd (whether it's been diagnosed or not). When you get so stressed out that your adrenaline is through the roof (hyperarousal), you have an episode. If you can lower the adrenaline, you might be able to prevent the episode. If the adrenaline gets too high (think of fight or flight response), you could temporarily black out. Ptsd isn't only in veterans. It can also be linked to emotional/mental/physical trauma or childhood neglect).

Thank you Molly, i have the same conditin and im in the process of trying to get a service dog! Thank you for inspiring me

My puppy Jake. A German Rottweiler mix, he can sense me having a seizure in the basement. Love that puppy so much, he loves a good belly rub as well. Hope you find wellness and quote hanging out with can throwing idiots because head traumas have me seizing along with drinking them cans. Don't go seizing out no more on everybody.

I don't even bother telling anybody nor go to the hospital when I have mine,they treat you like crap at the hospitals,mines brought on by lights,sound,smells and just anything,I could be reading a book and have them.

It sucks because nothing has changed. PNES or brain conversion diagnosis lead to such terrible treatment to patients as if they are self provoking it. It's so real and things have to change for the better.

Thank you for your video. I was diagnosed with non epileptic sezisures in 2017. I had to change 2 doctors before. I finally found a neurologist that I could trust. How did you get your sezisure dog.? Your friend Nancy Moule from Connecticut

Hi 👋🏻 From me and my service dog Darcy Athena 😊 I was diagnosed with PNES 9/29/2023. It’s extremely validating to hear someone with PNES say it’s real, terrifying, not fake, and it’s truly part of the seizure spectrum. My Neurologist said I don’t have epilepsy & yet diagnosed me with PNES. It’s confusing when a Neurologist says that. My PNES comes from PTSD as a result of Childhood Sexual assault & Sexual abuse. It’s very real & terrifying. Doing the hospital stay for EMU Seizure testing was a relief to get questions answered, but also terrifying going thru seizures it was mostly aware of what as happening. It’s incredibly painful & terrifying because of intense muscle contractions, thrashing your body around, & all this happening without your consent or control. It was traumatizing just experiencing the worst seizures multiple times per day for 3 days, getting seizure rescue medication via IV(strong stuff 😅), and not having any family or friends nearby to visit. Plus my service dog could not be there because nobody was available to care for her basic needs while I was unable to leave the hospital room & when I was having episodes. Idk if this is relatable to anyone, or if you would want to share your EMU Seizure testing experience or anything from your story…. But I would greatly appreciate hearing from others that understand what it’s like to live with PNES.

I got pnes

This is why I don't want to seek medical help

I just started having seizures and I haven't been diagnosed as yet but I'm afraid I may have epilepsy with nead.did you have an eeg

7:26 - 12:36

Hi, thank you for this video! I've had Dissociative Siezures for nearly 3 years and just decided to look into getting a service dog, as I'm considering going to college soon and need to be more independent. This was super informative and your SD is so cute! Have a nice day :D

Hey molly i love your videos. Ty so please do more And instead of a beer cav i was running and sliped on mud joy my head on a metal sign lol so i feel NJ took jn

it at low defence not helping much,the dog to help if other surround or call other,, orange or try not think of him,it a curse never able to fight.no think of him ok. the head is a secret, ok

use orange for you will be normal again,.normal people always do it and they are save cause it only repeating soo lack of thrust of it and not punish lock tounge,hand,and leg

Thank you so much I’m currently looking into get Service dog for my non-epileptic seizures and your videos are really helping me in my Journey!!

I have PNES and PTSD, but the episodes are not fun at all.

Did your Nero give up a rescue Med

I hear you about having a real life I was diagnosis seizures almost 14 years ago I had a seizure.but as a baby just one from an inner ear infection. till this day I'm still having them but more since last two years even doing test I forgot what it's called but the one where you go in the tube nothing ever comes up until I stay in the hospital and they do the video study and they take you off your meds

Did u try video study at a epilepsy specialist

See

I had a video EEG and they found nothing so I was diagnosed with PNES. They admitted that it could be both epileptic seizures and pnes and they would never know cause epileptic events don't always happen in the hospital. So I'm thinking that the doctors really don't know anything.

The ER doctor I spoke with the last time I went in for seizures used the term "psudoseizure" I asked her what exactly that meant and she flat out told me "I don't know. Thats just a term thats thrown around." So I would say some of them are definately idiots.

I need service dog pseud seizures it’s start 2017

Do you ever get anxious?

The good news is...You're really pretty lol

Do you have videos of your seizure?

Hi! I just came across this video. I’ve had PNES for about 5 years and it’s been awful. I’ve tried different treatments (as much as you can for PNES) and while there’s some improvements, it can make life so hard. I’ve been doing deep research into getting a PNES service dog bc usually I’m not alone but yesterday I was and I injured myself. I feel getting a service dog will at least help prevent injury for when I am alone. I also agree that there has to be something physical there. I’m so tired of being written off by doctors because it’s purely a psychological thing. There has to be something, and I know exactly what you mean. This has helped me so much, so thank you again. I know this was posted 5 years ago so I totally get it if this doesn’t get seen but if it does, how was your process as far as getting your service dog? Anything I need to know? By the way, your dog is adorable!

I have PNES and I am looking into getting a service dog but I dont know how?

I get these type of seizures, I've had more than one trauma and have complex PTSD. I was tested for epilepsy and I don't have it, but I'm getting seizures. My counselor diagnosed me with PNES, but how do I get diagnosed by a doctor? I am planning on getting a service dog in the future, I am going to owner train with some help on the side. How do you train him to alert to your seizures? I know it's a natural thing for dogs, but how do you train him to alert, I really need a service dog, I have PTSD, Fibromyalgia, migraines, seizures, Schizophrenia, I dissociate, and I have autism. According to my research, a service dog can help with all of these. I am going to be 18 this month. I need a bigger breed, and I've already decided on a Rottweiler. I am doing a lot of research on service dogs, training them, and I am also doing a lot of research on the breed.

New subscriber... I’m curious how dogs detect PNES seizures... I think it’s because dogs get to know their owners very well and can detect something is wrong, and react accordingly, trained or untrained. I have Epilepsy... I have 3 dogs, an 11yr old JRxChi, and 2 recent Romanian Rescues... both the rescues I’ve had for over a year now and they get very worried when I become unwell. The older one will push her head under mine to cushion it, and the younger one will sit with me and both will lick my hands until I recover...

I have pnes for the past 2 years as well and ptsd.

Any advice on breed for sd? I’m looking at labradoodle and Goldendoodles.

Bless you going through this. I remember them calling this 'psuedo ' when my familly member got it and it made me so angry!!!

You’re amazing for posting this. I’m just now getting tested for my seizures. I didn’t even know about this syndrome until recently. From what I’ve seen, PNES is not highly researched. But it’s so ridiculous the stigma that surrounds the condition. The seizures feel the same as epileptic seizures, they have many of the same triggers (stress, fatigue, pain, etc...) and it effects more of the brain than epileptic seizures. What I don’t understand is that, regardless of the fact that these seizures are NOT in the person’s control, medical professionals are cold and judgemental. If it’s true that these seizures are triggered by trauma and psychological overload, doesn’t it make more sense for medical professions to be trained to in how to speak with respect and care? Everything physical is connected to our mental health. I have chronic pain that is due to something “medical”; however, when I’m stressed or fatigued, my pain increases. It took 27 years of mistreatment by Drs to find out what was causing all of my symptoms. I guarantee that I’m time, when this condition is more fully understood, they will be able to determine the true cause of this condition. Why do some bodies respond to pain in a different way than others? This is a diagnosis of exclusion - which means that Drs know nothing about it really. Fibromyalgia was thought to be a mental disorder for years and now they’ve found markers that are responsible for the condition.... you are awesome for bringing awareness to this medical condition. I really hope that as awareness spreads more research will be done. The shame that is put upon others for this condition serves no purpose, but it does cause a lot of damage. Thank you for your bravery.❤️

Hi molly just wondering what kind of dog is Reid

I am currently in the process of being diagnosed with pnes. Even when I went to go see a Neuro doctor (neurologist), when I was explaining my symptoms and story to them, they made me feel like what I was saying and experiencing wasn’t real. Your videos have educated me and helped me to realize I’m not alone. Thank you for showing me I’m not alone. #pnesIsReal

I think I might have them. I have flashbacks from my past and I start going into one

I am 17 years old and was just diagnosed with pseudo seizures and it is hard I have a whole life ahead of me but since these seizures have occurred it has made foster care hard.

What is it with EMT’s and ER doctors being horrible about this! I have never had a positive experience with either and it’s created massive mental confusion and issues honestly.

I have have both types and with the type of seizure that you’re talking about it doesn’t happen when I’m stressed it doesn’t matter whether I’m stressed or not thay Happen and my parents keep forcing me to tell them why but I never know why my parents have been brainwashed by the medical staffing And now they don’t care

You are correct that there’s also something physiologically real

Same but I have both types but The epileptic ones are of mixed variety I get myoclonis More frequently than any others

Two weeks ago I had a mild seizure, Today I've just come home from ER after having a more serious one. They did my bloods the first time I went and there was no epilepsy markers, I'm also aware of what's happening when it occurs. Two years ago I had a suspected TIA stroke, after which I've been left with regular speech problems. I sound like a baby learning to talk. It's really frustrating as the neurologist had diagnosed me with functional speech disorder. I've seen a speech therapist, who said my speech is fine. I just wish they could finally give me a diagnosis, I'm waiting to see the neurologist again.

I have PTSD, hallucinations, autism, and dissociative disorder. I've been getting seizures but my eeg and mri came back normal and the neurologist said it's not neurologically related it's stress-related. So I think I have PNES, but who diagnoses you? I've been wanting a service dog. I want to owner train my dog but don't know where to start.

I'm so grateful that you shared your experience and with such honesty. I have really struggled with this diagnosis after many years of being treated for epilepsy it was a shock. I found it hard to accept and had an element of shame, wondering if it was all my own doing. Regardless of the diagnosis it still affects my life in so many ways. Lost my independence, my career, my job, family and friends, became reclusive and isolated and of course depressed. Life has changed so much. I'm a different person. I don't recognise myself at times. Thank you so much for sharing and may I ask it has been a while since you have uploaded but it would be fantastic if you could upload another as to how things are for you now?

Hey, I'm katrina and I have PNES and Fetal Alcohol Spectrum disorder. I was woundering how you cope with PNES? Your awesome!

I have NEAD/PNES (I live in the UK and we call it non epileptic attack disorder). I do not have a service dog, as i have many other conditions and getting a dog trained would be difficult. BUT, my two pet dogs seem to be able to notice when I’m about to have an episode, and if they are in the same room as me, nudge me or jump up a few minutes before. It’s really cool how dogs can notice beforehand even when it isn’t epileptic.