Thanks for sharing this video with us. My son was diagnosed with PSH. Hi is not the same person 😢
@iaret2203 ай бұрын
YAY NOLAN!! 🎉🎉🎉
@Scrappydee2348 ай бұрын
My child has a VUS GRIA1 mutation. My child had the symptoms of GRIN1, are these linked?
@AliciaGuitar4 ай бұрын
They very well could be since both affect brain glutamate. I have ATP1A2 gene mutation, a subtype never seen before, and i have many symptoms like GRIN. We are going to trial memantine to see if that will help with pain and seizures.
@BrunoG-hi8mg9 ай бұрын
You're right, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
@ArnoldT-qp6lz9 ай бұрын
Totally unexpected, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
@ArnoldT-qp6lz9 ай бұрын
Pretty good stuff, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
@DarylC-iq7qz9 ай бұрын
LOL, until recently I hadn't realized that Mario updated his favorite way to tackle ED and it's a relief! Although what he previously suggested was pretty good, it was a real pain to follow... I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
@alane8039 Жыл бұрын
😴 Promo>SM
@suebanks4427 Жыл бұрын
Loved the clarity of all these presentations. Just amazing to know all this powerful research is happening.🎉🎉❤❤
@sheilavardaman4871 Жыл бұрын
This was one of the best experiences as a parent of a child born with a very rare genetic disorder. Casey has a diagnosis of GRIN1. There is not a cure at this time, but there is hope.
@FrançoiseetLéa Жыл бұрын
super les sous ttres en français MERCI
@suebanks4427 Жыл бұрын
Such interesting and informative sessions and so very moving.
@minemine32032 жыл бұрын
Do adults have this? Will you look into adult episodes to see if an adult has this?
@楊德蘭-k6l2 жыл бұрын
I work with people with special needs in Taiwan, and one of our service-users has GRIN1. Really happy to find this film. 😊
@ClaudiaMartinez-xi6du2 жыл бұрын
Hola me interesa saber más mi hijo fue dianosticado con grin 1 y quiero saber más de esto xq es el primer niño en Chile gracias
@suebanks44272 жыл бұрын
Well worth watching as there are some really good ideas for assisting CVI children. Very encouraging. Thank you Cindy.
@valerieh.37572 жыл бұрын
Is there a clean copy of the presentation/script from Dr Benke available? Perhaps one that does not have the technical difficulties and background noise from the presenter's location?
@CureGRINFoundation2 жыл бұрын
Yes. Here is the link on our channel to his presentation. kzbin.info/www/bejne/nZjYhWxrg6mnaMk
@tweisskopf81702 жыл бұрын
Thanks for sharing this information.
@SEBA.C.2 жыл бұрын
Gracias por subir el video traducido!
@dayaepm63802 жыл бұрын
Hello, he's beautiful. What game do I want for my baby? He also has grin 1 is called Estefano.
@CureGRINFoundation2 жыл бұрын
Hello! This app is called Infant Zoo. Here is the link: geo.itunes.apple.com/us/app/infant-zoo-visual-stimulation/id676487207?mt=8&at=11l8DE
@suebanks44272 жыл бұрын
Well done Cecelia. Keep it up! Love Sue CureGRIN grandma xxx
@tamib40182 жыл бұрын
Thank you so much for this!
@tatsiananasevich62522 жыл бұрын
Great job Kaelin
@zachary84332 жыл бұрын
promosm 😭
@christopherperkins45382 жыл бұрын
Good job Kat, captured it very well
@kylerussell89722 жыл бұрын
Awesome, congrats!!
@suebanks44272 жыл бұрын
So interesting and exciting to listen too. A MUST watch for everyone. Thank you Meagan and Dr Amy Ramsey. Fab work CUREGRIN.
@suebanks44272 жыл бұрын
Such an interesting interview. I am taking so much from all the talks I have heard so far this week. It is brilliant to have a focus like this for the GRI parents and families. Thank to all who organised it and are participating. Sue x
@suebanks44272 жыл бұрын
As always you and your team are inspirational. Your results cannot come fast enough! Thank you so much. A GRIN1 grandma x
@brunotomassetti543 жыл бұрын
♥️
@Frank2tek3 жыл бұрын
Thank you for your invaluable work. My nephew was diagnosed with grin2b.
@Frank2tek3 жыл бұрын
Thanks for your precious job. My nephew was diagnosed with grni2b
@nacidadenuevo3 жыл бұрын
MARANATA !!! 🎺🎺🎺 WHAT DOES MARANATA MEAN? MATTHEW 4:17 / ROMANS 10: 9 / JOHN 8:58 / JOHN 1:11 Matthew 24:39 ^ And they had no care till the waters came and took them all away; so will be the coming of the Son of man. COME INTO THE ARK, YOU ARE ON TIME MY FRIEND: THERE IS STILL PLACE. MARANATA
@nacidadenuevo3 жыл бұрын
MARANATA !!! 🎺🎺🎺 WHAT DOES MARANATA MEAN? MATTHEW 4:17 / ROMANS 10: 9 / JOHN 8:58 / JOHN 1:11 Matthew 24:39 ^ And they had no care till the waters came and took them all away; so will be the coming of the Son of man. COME INTO THE ARK, YOU ARE ON TIME MY FRIEND: THERE IS STILL PLACE. MARANATA
@elizabethbetty49593 жыл бұрын
All thanks to God🙏 and Dr Oziengbe on KZbin. He was able to cure my only child that was suffering from Autism with the herbal medicine I order from Dr Oziengbe,
@bertanimation74363 жыл бұрын
that's some seriously good design. Love it. Brilliant work!
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@carolwilliams62883 жыл бұрын
Hello everyone I want to thank Dr. Ekpen for helping me with his herbal medicine that cure me from epilepsy and acne completely. I have been living with epilepsy for the past 11years. I was so happy when I found Dr Ekpen blogs. the great herbalist doctor who cure me from epilepsy and acne recently.,
@prostofedya79844 жыл бұрын
Круто
@ronaldbaker43164 жыл бұрын
0:36 myhotmom.online
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@johnnyseawright46394 жыл бұрын
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@ЛарисаГузеева-е2щ4 жыл бұрын
0:34 I will setup your blog and setup it to earn money w h a t s a p p +7 9 6 7 1 5 7 0 5 8 1
@colorizedenhanced-silentmo83714 жыл бұрын
Good day, CureGRIN Foundation. it's particularly enlightening video. thank. :)
@louicviton74424 жыл бұрын
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@louicviton74424 жыл бұрын
*CureGRIN Foundation* pls help my best friend get 200 subs please dont unsub pls kzbin.info/www/bejne/jGfHiH16a66ChpY&ab_channel=ACCELERATE
@louicviton74424 жыл бұрын
*CureGRIN Foundation* pls help my best friend get 200 subs please dont unsub pls kzbin.info/www/bejne/jGfHiH16a66ChpY&ab_channel=ACCELERATE