Ask Me Anything - GRICON 2024
39:35
Family Talks - GRICON 2024
59:26
5 ай бұрын
GRI Medicine Cabinet - GRICON 2024
1:09:31
GRI Animal Models - GRICON 2024
58:04
Research Talks - GRICON 2024
43:00
Neurostorms - GRICON 2024
1:02:48
5 ай бұрын
GRI Speaks - GRICON 2024
59:48
5 ай бұрын
GRICON 2024 Welcome
26:09
5 ай бұрын
Meet and GRI Chicago
34:08
Жыл бұрын
Пікірлер
@oneloveonelove2435
@oneloveonelove2435 3 ай бұрын
Thanks for sharing this video with us. My son was diagnosed with PSH. Hi is not the same person 😢
@iaret220
@iaret220 3 ай бұрын
YAY NOLAN!! 🎉🎉🎉
@Scrappydee234
@Scrappydee234 8 ай бұрын
My child has a VUS GRIA1 mutation. My child had the symptoms of GRIN1, are these linked?
@AliciaGuitar
@AliciaGuitar 4 ай бұрын
They very well could be since both affect brain glutamate. I have ATP1A2 gene mutation, a subtype never seen before, and i have many symptoms like GRIN. We are going to trial memantine to see if that will help with pain and seizures.
@BrunoG-hi8mg
@BrunoG-hi8mg 9 ай бұрын
You're right, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
@ArnoldT-qp6lz
@ArnoldT-qp6lz 9 ай бұрын
Totally unexpected, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
@ArnoldT-qp6lz
@ArnoldT-qp6lz 9 ай бұрын
Pretty good stuff, I just realized that Mario updated his favorite way to tackle ED and it's crazy! Although what he previously talked about was pretty decent, it was difficult to follow, I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
@DarylC-iq7qz
@DarylC-iq7qz 9 ай бұрын
LOL, until recently I hadn't realized that Mario updated his favorite way to tackle ED and it's a relief! Although what he previously suggested was pretty good, it was a real pain to follow... I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
@alane8039
@alane8039 Жыл бұрын
😴 Promo>SM
@suebanks4427
@suebanks4427 Жыл бұрын
Loved the clarity of all these presentations. Just amazing to know all this powerful research is happening.🎉🎉❤❤
@sheilavardaman4871
@sheilavardaman4871 Жыл бұрын
This was one of the best experiences as a parent of a child born with a very rare genetic disorder. Casey has a diagnosis of GRIN1. There is not a cure at this time, but there is hope.
@FrançoiseetLéa
@FrançoiseetLéa Жыл бұрын
super les sous ttres en français MERCI
@suebanks4427
@suebanks4427 Жыл бұрын
Such interesting and informative sessions and so very moving.
@minemine3203
@minemine3203 2 жыл бұрын
Do adults have this? Will you look into adult episodes to see if an adult has this?
@楊德蘭-k6l
@楊德蘭-k6l 2 жыл бұрын
I work with people with special needs in Taiwan, and one of our service-users has GRIN1. Really happy to find this film. 😊
@ClaudiaMartinez-xi6du
@ClaudiaMartinez-xi6du 2 жыл бұрын
Hola me interesa saber más mi hijo fue dianosticado con grin 1 y quiero saber más de esto xq es el primer niño en Chile gracias
@suebanks4427
@suebanks4427 2 жыл бұрын
Well worth watching as there are some really good ideas for assisting CVI children. Very encouraging. Thank you Cindy.
@valerieh.3757
@valerieh.3757 2 жыл бұрын
Is there a clean copy of the presentation/script from Dr Benke available? Perhaps one that does not have the technical difficulties and background noise from the presenter's location?
@CureGRINFoundation
@CureGRINFoundation 2 жыл бұрын
Yes. Here is the link on our channel to his presentation. kzbin.info/www/bejne/nZjYhWxrg6mnaMk
@tweisskopf8170
@tweisskopf8170 2 жыл бұрын
Thanks for sharing this information.
@SEBA.C.
@SEBA.C. 2 жыл бұрын
Gracias por subir el video traducido!
@dayaepm6380
@dayaepm6380 2 жыл бұрын
Hello, he's beautiful. What game do I want for my baby? He also has grin 1 is called Estefano.
@CureGRINFoundation
@CureGRINFoundation 2 жыл бұрын
Hello! This app is called Infant Zoo. Here is the link: geo.itunes.apple.com/us/app/infant-zoo-visual-stimulation/id676487207?mt=8&at=11l8DE
@suebanks4427
@suebanks4427 2 жыл бұрын
Well done Cecelia. Keep it up! Love Sue CureGRIN grandma xxx
@tamib4018
@tamib4018 2 жыл бұрын
Thank you so much for this!
@tatsiananasevich6252
@tatsiananasevich6252 2 жыл бұрын
Great job Kaelin
@zachary8433
@zachary8433 2 жыл бұрын
promosm 😭
@christopherperkins4538
@christopherperkins4538 2 жыл бұрын
Good job Kat, captured it very well
@kylerussell8972
@kylerussell8972 2 жыл бұрын
Awesome, congrats!!
@suebanks4427
@suebanks4427 2 жыл бұрын
So interesting and exciting to listen too. A MUST watch for everyone. Thank you Meagan and Dr Amy Ramsey. Fab work CUREGRIN.
@suebanks4427
@suebanks4427 2 жыл бұрын
Such an interesting interview. I am taking so much from all the talks I have heard so far this week. It is brilliant to have a focus like this for the GRI parents and families. Thank to all who organised it and are participating. Sue x
@suebanks4427
@suebanks4427 2 жыл бұрын
As always you and your team are inspirational. Your results cannot come fast enough! Thank you so much. A GRIN1 grandma x
@brunotomassetti54
@brunotomassetti54 3 жыл бұрын
♥️
@Frank2tek
@Frank2tek 3 жыл бұрын
Thank you for your invaluable work. My nephew was diagnosed with grin2b.
@Frank2tek
@Frank2tek 3 жыл бұрын
Thanks for your precious job. My nephew was diagnosed with grni2b
@nacidadenuevo
@nacidadenuevo 3 жыл бұрын
MARANATA !!! 🎺🎺🎺 WHAT DOES MARANATA MEAN? MATTHEW 4:17 / ROMANS 10: 9 / JOHN 8:58 / JOHN 1:11 Matthew 24:39 ^ And they had no care till the waters came and took them all away; so will be the coming of the Son of man. COME INTO THE ARK, YOU ARE ON TIME MY FRIEND: THERE IS STILL PLACE. MARANATA
@nacidadenuevo
@nacidadenuevo 3 жыл бұрын
MARANATA !!! 🎺🎺🎺 WHAT DOES MARANATA MEAN? MATTHEW 4:17 / ROMANS 10: 9 / JOHN 8:58 / JOHN 1:11 Matthew 24:39 ^ And they had no care till the waters came and took them all away; so will be the coming of the Son of man. COME INTO THE ARK, YOU ARE ON TIME MY FRIEND: THERE IS STILL PLACE. MARANATA
@elizabethbetty4959
@elizabethbetty4959 3 жыл бұрын
All thanks to God🙏 and Dr Oziengbe on KZbin. He was able to cure my only child that was suffering from Autism with the herbal medicine I order from Dr Oziengbe,
@bertanimation7436
@bertanimation7436 3 жыл бұрын
that's some seriously good design. Love it. Brilliant work!
@carolwilliams6288
@carolwilliams6288 3 жыл бұрын
Hello everyone I want to thank Dr. Ekpen for helping me with his herbal medicine that cure me from epilepsy and acne completely. I have been living with epilepsy for the past 11years. I was so happy when I found Dr Ekpen blogs. the great herbalist doctor who cure me from epilepsy and acne recently.,
@carolwilliams6288
@carolwilliams6288 3 жыл бұрын
Hello everyone I want to thank Dr. Ekpen for helping me with his herbal medicine that cure me from epilepsy and acne completely. I have been living with epilepsy for the past 11years. I was so happy when I found Dr Ekpen blogs. the great herbalist doctor who cure me from epilepsy and acne recently.,
@prostofedya7984
@prostofedya7984 4 жыл бұрын
Круто
@ronaldbaker4316
@ronaldbaker4316 4 жыл бұрын
0:36 myhotmom.online
@frederickm6538
@frederickm6538 4 жыл бұрын
Nice vids, keep it up! You deserve more views, I think you should use SMZeus . c o m it will help you get the views you deserve!
@georgelincon8789
@georgelincon8789 4 жыл бұрын
Dr. Nze has done it again for me and my family. My son who has Autism was cured totally after 14days after he finished taking the herbal cure medicines which Doctor Nze has prepared for him. I never believed there is cure for Autism and never believed herbs can cure it. Today am a living testimonies and witness and I can boldly stand anywhere and testify about the marvellous work of Doctor Nze. People are out there discriminating all the traditional doctors and saying there is no cure for Autism in life. Whatever [email protected] are doing you have to apply faith and focus on what you are getting in return. Write her on her email and wait for her response,Dr. [email protected] or Whatsapp 08116004247. Thanks for taking your time to read this .
@johnnyseawright4639
@johnnyseawright4639 4 жыл бұрын
Nice channel! Keep up the great work. I hope you'll get a kick out of my content too 😁 ✌️
@ЛарисаГузеева-е2щ
@ЛарисаГузеева-е2щ 4 жыл бұрын
0:34 I will setup your blog and setup it to earn money w h a t s a p p +7 9 6 7 1 5 7 0 5 8 1
@colorizedenhanced-silentmo8371
@colorizedenhanced-silentmo8371 4 жыл бұрын
Good day, CureGRIN Foundation. it's particularly enlightening video. thank. :)
@louicviton7442
@louicviton7442 4 жыл бұрын
*CureGRIN Foundation* pls help my best friend get 200 subs please dont unsub pls kzbin.info/www/bejne/jGfHiH16a66ChpY&ab_channel=ACCELERATE
@louicviton7442
@louicviton7442 4 жыл бұрын
*CureGRIN Foundation* pls help my best friend get 200 subs please dont unsub pls kzbin.info/www/bejne/jGfHiH16a66ChpY&ab_channel=ACCELERATE
@louicviton7442
@louicviton7442 4 жыл бұрын
*CureGRIN Foundation* pls help my best friend get 200 subs please dont unsub pls kzbin.info/www/bejne/jGfHiH16a66ChpY&ab_channel=ACCELERATE
@elementsofstars
@elementsofstars 5 жыл бұрын
My son has grin1. What steps if any can be taken?