GaucherCanada

The Gaucher Canada Channel is a place to share video stories about life with Gaucher disease and other rare diseases. Gaucher disease is a rare genetic disorder that is passed down from parents to their children through the genes. Gaucher is the most common of the group of diseases called lysosomal storage disorders.

This channel is sponsored by the National Gaucher Foundation of Canada (NGF Canada). The Foundation's mission is to improve the health and well-being of Canadian patients living with Gaucher through community building, education, advocacy, and support of research.

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@marshamichael1926 2 жыл бұрын

Wonderful telling Emma!

@m.b.9776 4 жыл бұрын

Bonjour. Mon fils est atteint de la maladie de gaucher. Il a huit mois et on va commencer la thérapie dans quelques jours. Merci bcp pour cette vidéo. Elle donne de l'espoir.

@CrazymanGreek 8 жыл бұрын

Really inspiring video Emma , Thanks for sharing ! (I was diagnosed when I was 10, I started ERT at 10,5, I am now 20 and better than ever :D )

@GaucherCanada 9 жыл бұрын

Subtitles are available in German, Portuguese and Spanish. Press the CC button to turn-on and then make your language selection.

@jayg2313 10 жыл бұрын

😖 gaucher is my last name

@elodievmm3532 10 жыл бұрын

merci beaucoup pour cette petite vidéo très instructive

@minazasani-kanji666 11 жыл бұрын

Emma, I didn't know you were living with Gaucher the entire time I worked with you because you live life to the fullest! It is so inspiring to see what you've done, how far you've come and how you're spreading the word about Gaucher! Keep it up! P.S. Love your blue polka dot bikini :)

@amymichon4140 11 жыл бұрын

Thanks for sharing your story Emma, very moving. I love Megan's drawings, they're beautiful.

Ең жақсы KZbin

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