Over time spacing out shampoo longer and eventually now i only have to wash my hair once a week or week and a half and i use to have greasy hair in a day but i let my natural oils regulate itself to less washes and i very much appreciate washing my hair less. Its to my tail bone now. I highly suggest braids for anyone with long hair, protect ur hair with braids or even a bonnet and stretch out washes and one less thing to worry about in a flare. If ur in bed or laying down put on a hair bonnet, keep those locs from getting tangled or dirty and its not in ur way when lying down.

🌮 🎉! 😂

Are you allright, Aimee? We haven't heard from you in 4 weeks...

I dont stay in bed. But have my chair and sometimes on the couch. Recently stuffed a duvet to use as floor mattress and thats wonderful. Laying on floor mattress my youngest loves to come cuddle or brings his stuffies out while i rest on the floor mat.

Your an amazing women thankyou so much for your story ❤

Anyone else flare up when they have to take a #2 in the bathroom 😭😭😭

I am Indonesian people and i have sibo,i dont now what will I do😭

Recognize that evil happened when they stopped treating pain anymore. For what? It used to be 30,000 people died of opioid deaths now it's 100,000. Nice job way to botch things up. And thank you US policy for synthetic Kush. Number one reason for liver transplant? It's not from booze or hepatitis. Number one reason cause of liver transplant . Too many people relying on Tylenol?

Does anyone know if she posted an update on her journey on the Lion's diet? Did she have a post on tue positive and negative?

Aimee, so glad you got the scooter! I wanted one, but I’m not strong enough to pick it up to put in the car, so I opted for a 43lb foldable, electric wheelchair. I love it!!🥰

Awesome

It’s a fake video.

LSD treats autism and ADHD.

Try psilocybin mushrooms or LSD to treat depression. You need to get completely off of your antidepressant medication slowly over time before you can safely use psychedelics. Psychedelics can't be combined with an SSRI. Psilocybin improves interoception, and LSD improves exteroception.

Have you tried Kratom to treat your pain?

WEED is addicting

I recently quit because I don’t love smoking but I started having seizures bad and I’m epileptic. It makes my quality of life so much better it’s unreal I love the CBD nasal mist indica too it helps my tremor

I feel like so guilty my son has been seeing me have horrible seizures I’ve broke my back multiple times I feel like it’s my fault and I really hate it

I do this all the time. I was born with osteogenesis imperfecta and epilepsy. Definitely not the best combination but I’m trying so hard.

My name is Amy and I’m chronically ill too just found your channel, thank you!

You have beautiful eyes😊

I hate salt and I have pots lol ive had to find ways to enjoy it. My favorite is pouring a bunch on avocados

Pain free you Dan Buglio KZbin

So, what you do.... Go down to mexico, lose all your documentation, sneak across the border, go to the ER, give false info, and let everyone else foot the bill. Or, even better, just lie and say you dont have identification and lie about who you are, then let everyone else foot the bill. Its more expensive cause you are paying for everyone else. Its already socialism. EMTALA

I live in middle of nowhere in bed more and more and feel like the world is going on without me , I can’t fight the gravity feels like I weigh 1000 lbs It bites

I'm pretty sure I have EDS too... 😅 I feel so seen ❤

I say that I'm having a 'good day'. That way they don't think that I'm 'getting better', because I know that I can have a 'bad day' at any moment.

I have such bad heat intolerance, too! It is like progressive. I am thinking of trying the Embr Wave 2 and it’s nice to hear what it’s like from someone who has several of the same chronic illnesses. We definitely have to team up on coming up with the best kits to survive. 😂 Thank you so much!!!

Really enjoyed these---it's so good to be able to laugh in the midst of the craziness.

Hi Aimee, I noticed this video is 2 years old, I hope you’re doing much better today. You’re very young to have this dreaded fibromyalgia. I wonder if we will ever find out the real cause of fibromyalgia ? I think stress and trauma may have something to do with. Good luck to you, and all fibromyalgia sufferers out there, let’s all hope there’s a cure or understanding of this disease someday soon.

Follow Dr. Pimentel. He has 2 new tests and new protocols to help fix this.

debating on going homeless just to wait for disability

Have you tried NAC before atibiotics? I'm a SIBO Sufer myself and i feel the NAC is making the Diference to distroy biofilms

This guy has explained all my symptoms, if you browse his channel. He has a flow chart that takes my POTS all the way back to a neck compression injury 40 yr ago. kzbin.info/www/bejne/n3rKoauOhrOAaa8si=OmXKGrdtFFqmgukq

It looks like you are doing it all. Does your spouse help much? If you're a mom with several chronic illnesses, HE should be helping a lot more!

Thank you for this. Sometimes I feel like such a burden because a lot of times all I can do is “sit around”, hearing it from someone else as resting is helping change my mindset. I’m harder on myself than I would be to anyone in the world. Id never make anyone else feel bad for what we have to deal with and how we cope. I hope today was a low pain day for you ❤

Your kid, she is so adorable

I searched for to make sure its true, I saw a randomly came across a short skit about this, i thought they're just being funny, do people really pay for Ambulance in America ???

I want to understand. My granddaughter has been diagnosed. My worry is my daughter not wanting her to go out. Frustrated Chuck.

H1 + H2 medicines might be an obvious answe shes already tried. Pepcid/zertec. Or something prescription like chromolyn sodium. If she's already gone that route, perhaps there might be something environmental like mold that's keeping her state of decline up. My girlfriend was eating nothing but potatoes and lettuce at one point, and we realized the apartment we were in was really affecting her. We moved to a sterile environment and her MCAS has improved tremendously.

When i see someone online with the same condition(s) as me doing more than am I, I don't see it as a competition. It gives me hope that I could get there one day too💜

Have you experienced tinnitus with your conditions?

Doing it right now

Thank you for your video

I’m glad I found your videos today. Long Covid, pots, SFN, arthritis I’m sure. I’m 35 and only working as a nurse two days a week again and it has burnt my energy so bad.

Vacuuming is really hard for me because of back trouble and chronic illnesses. Which vacuum do you recommend? My goals are to exercise 5 min a day, 3 days a week; keep up with dishes, laundry and vacuuming; and find ways to cook less. Thanks for your videos!

I feel you... It's too painful

All fibromyalgia means is "muscle pain".