3 ай бұрын
7 ай бұрын
9 ай бұрын
10 ай бұрын
10 ай бұрын
Жыл бұрын
Жыл бұрын
Жыл бұрын
Жыл бұрын
Жыл бұрын
Жыл бұрын
Пікірлер
@kerriegibson7562 5 күн бұрын
I have sle and cutaneous and also lupus profundus
@fionaestherfortuin4185 2 күн бұрын
Pls pls what do you use I know I can't go into sun but I'm popping little pimple an my face an then it pops suddenly more now it's around my nose dr gave me prednisone cream nothing helps ever since I got shingles on my back after op on c 4 c5 c6 back was full I didn't feel pain as I was on Morphin Then I had it in my eye then on my hip now on my face
@kaihughes1857 8 күн бұрын
Dr Haaland is an amazing person and doctor. I'm thankful my wife has him as her Lupus Dr. He is very knowledgeable on the subject and treatment. Hope you have more webinars with him. I did miss it in Sept but was able to watch it now. Very informative and I got info for myself and my wife. Thank you.
@prairiestonecollectiblescu835 20 күн бұрын
I haven't been diagnosed with Lupus yet but I'm thinking this is what "has me". Thank you for this presentation, Ive found Dr. down to earth and explained things great!
@pardeep290884 Ай бұрын
I have SLE. How can i get cart T cell therapy. I am in Canada.
@rebeccajohnson629 Ай бұрын
Im type 1 trust me its now causing liver issues,throid issues too
@rebeccajohnson629 Ай бұрын
Im type 1 trust me
@rebeccajohnson629 Ай бұрын
I have lupus , fibromyalgia at very least
@artemidak2514 Ай бұрын
Thank you, the greatest Doctor, for sharing with us!
@marcia-marcahwilliams2411 Ай бұрын
My take on rheumatologist , some I’ve had don’t know much about what Lupus does. I had one doctor ask me did I know the formulary for the mouthwash that my past doctor in another state used. I asked him how would I know, I’m not a chemist or a doctor that write prescriptions. I left his practice after that, why go into this field care if you don’t know anything about it. He wasn’t the only one like that, I suffer for months with severe mouth lesions. So over having this disease…period and the doctors. Have anyone been diagnosed with Sero Negative RA ? It’s No joke….it’s so painful burning and freezing…all at once…brain fog… and extreme fatigue.
@marcia-marcahwilliams2411 Ай бұрын
My take on rheumatologist , some I’ve had don’t know much about what Lupus does. I had one doctor ask me did I know the formulary for the mouthwash that my past doctor in another state used. I asked him how would I know, I’m not a chemist or a doctor that write prescriptions. I left his practice after that, why go into this field care if you don’t know anything about it. He wasn’t the only one like that, I suffer for months with severe mouth lesions. So over having this disease…period and the doctors.
@sharicarter5647 2 ай бұрын
Hello Ontario 👋 from Indiana. I’m sure I have both types I have also developed mesenteric vasculitis and brain aneurysm. I am very blessed to still be here even if in diminished condition. Can you tell me what is the gold standard care for this In Ontario or Canada? Thank you.
@sharicarter5647 2 ай бұрын
Hello Ontario 👋 from Indiana. I’m sure I have both types I have also developed mesenteric vasculitis and brain aneurysm. I am very blessed to still be here even if in diminished condition. Can you tell me what is the gold standard care for this In Ontario or Canada? Thank you.
@LatchkeyKidX 2 ай бұрын
There also needs to be more awareness and diagnosis in men of all races. Just listening to this lecture shows how man get forgotten about with this disease. I’m a white male 40 with the disease
@SelvyBushby 3 ай бұрын
Waste of time going to the drs. They cannot give you definitive answers. Even my blood test was negative
@ttaylor8239 3 ай бұрын
I have a BIG question. So I've been diagnosed with Lupus SLE since I was 19. I'm 49. That being stated in the last several years, I have grown 6 masses of unknown origin. Two are in the brain. One is in the sinus cavity. Two are in the right breast. One is in the left breast. No biopsies have been done on ANY of them, and everybody keeps saying "Well, we think they're okay. My grandmother had Scolderma for added context. Is there ANY known conditions associated with Lupus that would involve growing masses?"
@ad6417 3 ай бұрын
Isn't it awesome to test positive for ANA, ssDNA, and others, all the symptoms and the nurse says you probably don't have autoimmune disease. 🙄
@mariselacorral1893 3 ай бұрын
I tested positive for ANA, high anti-dsdna, plus a multitude of symptoms and rheumatologist said it’s “fibromyalgia.”
@marucastro7789 4 ай бұрын
How to treat type 2, pls..
@TwoSeasons3396 4 ай бұрын
What about lupus that presents with chronic angioedema and urticaria???
@Faye-jewel 4 ай бұрын
Type 2 requires more of the doctor to be liable for once you report it Pain : controversies Fatigue: off label If u can’t do a job you can’t be a homemaker It gets to the point your nothing to no one
@CheongPuiFun-gf3rn 4 ай бұрын
Very informative for lupus community!
@britnilee6229 4 ай бұрын
How is Type 2 treated?
@seidayusuf3294 5 ай бұрын
I have all type 1 lupus, but ANA and biopy skin and muscle were negative
@sheerazhenderson572 5 ай бұрын
Thanks for this presentation. Very informative in my understanding of the disease. So much to learn in own disease management both now and ultimately in the future - feel like I’ll never know enough or full picture of disease. Knowledge is definitely empowering when this disease and its unpredictable associates can remove the ‘good health’ we once took for granted.
@karinbrown-barrios4577 5 ай бұрын
I have secondary sjogren's syndrome I'm almost positive I have Lupus type 2. I don't know if my rheumatologist is aware of it I will show him your video and maybe he'll learn something
@simhifree 6 ай бұрын
Doctor, please answer my question. Is Drug Induced Lupus a type 1 or 2? How many drugs are known to induce Lupus, at this time? 63 F with RA x 30yr. Also, Hashi, Sjodren's, Cushing's, Lupus and who knows what else.
@Queen_OfLeos 6 ай бұрын
Mixed 😢
@flea10x6 6 ай бұрын
"Type 2" is much like "B" lymphoma symptoms.
@flea10x6 6 ай бұрын
I completed a full formal neuropsych eval after a non dominant hemorrhage and my "goofiness" post. I have been unable to find out exactly what i was or was not doing. My SLUMS was like 22 or 24. I am assuming I was off the fentanyl and any benzodiazepine long enough that it should not have been interfering. During Cognitive therapy post, I mentioned concern since much younger re possible ADD-Inattentive. The neuropsych was consistent with ADD but the neuropsychologist mentioned that the Executive Function issues are noted with Lupus as well. Unfortunately I am not certain I can understand how SLE activity interferes with neuronal function or possibly neurotransmitter specific. (I do have some improvement with atomoxetine which acts more at NE synapses (and presumably where amphetamines also work.) Pred helps too, and together ... But I still cant figure out hoe pred makes a difference. Since I have Rufus, I'm not certain how much MSK issues are RA v SLE.
@WoodyGal56 6 ай бұрын
Everyone says get help asap….how do you do that when seeing a doctor, your appointment is over a year away? I just don’t understand….
@Happylilsis Ай бұрын
Wow! Why do you have to wait a year? That’s awful!
@vicko5000 Ай бұрын
Wait for the appointment... Then don't miss it when the appointment comes.. if it becomes urgent, go to ER.. then you'll see someone fast.. I'm not a medical doctor but patients get upset with doctors for waiting so long for appointments.. i always remind myself the world doesn't revolve around me, I'm not the main character, and there are many many people going through the same. There are thousands of us and few of them, we must be patient when we can.
@prairiestonecollectiblescu835 20 күн бұрын
A year to wait is unacceptable! Please keep trying to get in, perhaps there will be cancelations! Best wishes to you!
@Bichonfrise369 7 ай бұрын
I have lupus rheumatoid arthritis and fibromyalgia. I don’t like to bring fibromyalgia up with my dr. I can see her getting upset then I have to deal with everything is fibromyalgia. It is sad that rheumatology only like to see red hot joint.
@LoriZ-y8p 7 ай бұрын
Very informative. Thank you. My Gran passed at 61 undiagnosed from SLE. my mom passed last year after 64th birthday undiagnosed both SLE and Ms as well as diagnosed Hereditary Alpha Tryptasemia. The Uni Coroner said we all need to be tested. My ana was negative in fall, but dealing with alot aches and fatigue lately when im very energetic and want to be retested at the Uni. I felt i was dismissed at the Rheumatologist. Is it too early stage for positive results or im not as severe as them (at 45yrs old)?
@Queen_OfLeos 6 ай бұрын
I'm not a doctor. But you need to be a severe flare for some antibodies tests to show up as positive. I've suffered undiagnosed for so long (similar age) and let me tell you, pain is not normal. I knew before I was diagnosed whilst still under investigation. When confirmed I thought I was prepared. But nothing really prepares you. Wishing you luck, I hope its not lupus though x its awful x
@yaelWolfebaz 4 ай бұрын
I just got diagnosed, had mostly minor symptoms for 10-15 years and negative tests, suddenly had a flare and dsdna extremely high, so probably yah- you have to meet enough criteria. Also drs want to see the numbers
@CaptainKirk1963 7 ай бұрын
I have SLE I dont even waist my time with Rhemo people. They do nothing for me.
@WVgrl59 5 ай бұрын
True
@Chrysalis616 4 ай бұрын
I was just diagnosed “likely to have lupus but need to see a rheumatologist” and I’m not sure what type I have until I do because my nurse/doctor doesn’t know. Just curious, may your explain what you mean by this comment and what rhemo people means if you don’t mind? I’m debating on going to a rheumatologist or not because I have little to no faith in the medical system at the moment. Apologies for the rant, just trying to get some answers 🙏🏼
@rosebudadkins6803 4 ай бұрын
Me too! Done alk treatments & drugs. Nothing has helped. I am American Indian and we don’t do well with the meds/treatments.
@ad6417 3 ай бұрын
@@rosebudadkins6803Have you tried spiritual remedies?
@vicko5000 Ай бұрын
@@Chrysalis616establish a relationship with a rheumatologist, the likey hood you will need them at some point in high. It may not hit you often and al ays but if could knock you out for weeks at a time.. or you can be suffering unnecessarily.
@tt2524 7 ай бұрын
Many general practioners and Rheumatologist don't discuss type 2
@lupus_ontario 7 ай бұрын
That is true, and it is so important!
@DivineAska 7 ай бұрын
17:53 How to talk to your doctor. Exceptional information
@nanawolf320 10 ай бұрын
I so wish I have doctors that could help me. I have been suffering for so long.
@hnielsen1000 6 ай бұрын
You need to keep looking. They are out there. Reach out to Lupus Ontario for my contact information. Heidi
@CatieBrown-tx8tg 10 ай бұрын
Please keep up the wonderful work! I'm at wits with my lupus! You guys have taught me more than anyone❤️
@CatieBrown-tx8tg 10 ай бұрын
Plaquenil makes me feel worse!
@CatieBrown-tx8tg 10 ай бұрын
Thank you! Lupus is hard to understand and what medicine to take?
@SharonBoissonneault 10 ай бұрын
Angella Evans
@williamterry5262 Жыл бұрын
🤪 Promo_SM
@Bichonfrise369 Жыл бұрын
I have lupus and I no Dr. 😭😭😭
@Mark_4386 Жыл бұрын
You helped a young man with autism, Chris, live his life with such better quality. Thank you from a grateful caregiver who saw some remarkable results due to your attentiveness, patients and knowledge. You will be missed by many but it is now time for yourself, so enjoy your well deserved retirement. Best wishes and stay well!
@deviniaMacasadia Жыл бұрын
Thank you so much,i need this information a lot,i hope you helping like me suffering in lupus like financial assistance to buy my medicine,,thank you ❤❤❤
@cassthompson6168 Жыл бұрын
It's very hard to deal with lupus, we go through a lot of different symptoms we don't know what to do, some of the medication don't work, and then when you take the medication the nasty side-effects that comes with it,, who want to feel this way... then we become so l depressed.. we need better help. My head feel like a burning tingling sensation , can anyone relate plz..
@lupus_ontario Жыл бұрын
It can be quite a difficult journey, both physically and mentally. Joining a lupus support group may help, it may help to talk to others who are going through lupus. You can visit lupusontario.org/support to register for any of the free online support groups.
@veganwinter2090 11 ай бұрын
I just stay on a healthy vegan diet and avoid as much man-made pharmaceuticals as I can . I want the healthiest diet possible . I got through covid with no vaccination as none were available . I enjoy chai. And 😎 .I notice a lot less arthritis... ❤
@Theselbyfamily 10 ай бұрын
@@lupus_ontariohow long do brain fog last if it's ur first time feeling like that
@lupus_ontario 10 ай бұрын
@@Theselbyfamily Only a doctor can provide medical advice, and each person's experience with brain fog is quite unique. It may help to join one of our support groups and discuss this with others with lupus. You can register for the free online support group at lupusontario.org/support/
@pjperalta Жыл бұрын
Scientists have found the relationship of transgenic wheat (gluten) to people becoming stupid and sick - See the article published by PubMed - Gluten induced neurocognitive impairement (Brain Fog Lupus) www.ncbi.nlm.nih.gov/pmc/articles/PMC9256899/ They have been killing people for decades with transgenic wheat (gluten) and glyphosate. See the articles published for about 15 years by Dr. Stephanie Seneff and her team in the MIT.
@ashrafahmed8269 Жыл бұрын
S l e is too dangerous
@lp9194 6 ай бұрын
Dangerous OMG how? I'm 61 1/2 no living family, newly dx 3 days ago. Haven't been able to work for 2 years I'm covered in Bloody sores numb and feel CRAZY. IN BEHAVIOR therapy already bc i feel like I'm going Nuts. Everybody stays far away from me. I hurt so bad I can only lift my arms for a few mins, can barely use my hands anymore, drop everything I cant sleep for numbness and I feel my mind slipping away I can't remember things from 2 mins ago. IM USELESS I literally am convinced I'll go mad before I get help from SSI Im About to be EVICTED THUS MO bc NO ONE BELIEVES ME. ANY SUGGESTIONS? I CANNOT BE HOMELESS with these wounds. Lately I feel lonely terrified disrespected and discarded. I have been a Nurse for 40 years NOT IN THIS FEILD THO and I'm getting worse not better. I hate to say it, but I have to. If after all ive done over 40 years, ive won 6 awards for going beyond the miles to help save peoples health, livelihood , their lives. Now here I am 6:50 Savings for retirement ALL GONE. IVE 30$ TO MY NAME. I'm truely afraid I won't be able to stay living anymore if I'm in the street. My whole life of caring so deeply for the lives of the ill.... was for nothing. Thanks for listening ( took me 34 mins to type this note) I'm on my knees begging Jesus to make SSI GIVE me MY MONEY JUSTA little esrly save me my dog and my home. Im DESPERATE I need Help please
@pjperalta Жыл бұрын
Scientists have found the relationship of transgenic wheat (gluten) to people becoming stupid and sick - See the article published by PubMed - Gluten induced neurocognitive impairement (Brain Fog Lupus) www.ncbi.nlm.nih.gov/pmc/articles/PMC9256899/ They have been killing people for decades with transgenic wheat (gluten) and glyphosate. See also the articles written by Dr. Stephanie seneff and coworkers, MIT.
@tracysmith245 Жыл бұрын
thank you good work
@Kolana42 Жыл бұрын
So happy to find your channel. This year (2023) being so hot and UV extreme - I've really struggled with holding down flares and in particular the cognition impairment which drives me crazy. Its so frustrating.. Blessings to all.
@lupus_ontario Жыл бұрын
Thank you! You can also visit Lupusontario.org for more information on upcoming webinars, events and support groups!
@hnielsen1000 Жыл бұрын
Loving these walk videos