Dr Pope- Epidermolysis Bullosa
2:44
Wrenleigh's Story
5:48
Жыл бұрын
EB Hacks- Hospital Card
4:08
3 жыл бұрын
EB Hack- Birth Plan Template
10:47
3 жыл бұрын
EB Hacks- Dystrophic Nails
2:51
3 жыл бұрын
EB Hacks- DIY Padsicles
3:59
3 жыл бұрын
EB Hacks- Hospital Check List
7:59
3 жыл бұрын
EB Baby Bath Hacks
4:10
3 жыл бұрын
EB Hacks- Extra Padding
4:55
3 жыл бұрын
EB Hacks- Pregnancy & Baths
4:22
3 жыл бұрын
EB Hacks Maternity Clothing
3:40
3 жыл бұрын
EB Hacks- DIY Bath Bombs
3:58
3 жыл бұрын
Rachels EB Cooking Hacks!
6:50
3 жыл бұрын
Kaleidoscope Kids Father's Day Craft
3:28
EB Hacks-Magic Skin Cloth
1:59
4 жыл бұрын
EB Wound Healing Hack
2:25
4 жыл бұрын
DIY Hand Sanitizer- EB Hacks
2:45
4 жыл бұрын
Kaleidoscope Kids-Easter Craft
4:48
4 жыл бұрын
EB Hacks- Easy DIY Body Scrub
2:05
4 жыл бұрын
Starting Seed- Kaleidoscope Kids
2:58
Пікірлер
@brianbelgrave3639
@brianbelgrave3639 Ай бұрын
Hi this is Hana’s grand parents from pra. Hana misses Mia alot😢 ❤❤😢
@Geneva4Mops
@Geneva4Mops 4 ай бұрын
The memory foam holds in heat with no air flow.
@kreese316
@kreese316 5 ай бұрын
Absolutely mind blowing. Beautiful art, beautiful person.
@sheikhnewazshorif2461
@sheikhnewazshorif2461 8 ай бұрын
Hi, I saw your video. Your video is good But you have to reach more people. I noticed that your videos don't have that much engagement. I checked and found your video doesn't have SEO by which people generally search for any videos. It will help you get more views and subscribe.
@miathrives8681
@miathrives8681 8 ай бұрын
Ok, thank you!!
@HelloL.G.
@HelloL.G. 2 жыл бұрын
Oh wow this is such a great idea! Thank you for sharing!
@HelloL.G.
@HelloL.G. 2 жыл бұрын
Thank you for sharing!
@HelloL.G.
@HelloL.G. 2 жыл бұрын
Thank you for sharing!
@abigomez3995
@abigomez3995 2 жыл бұрын
i would love to meet you!!!! i have been seeing your videos even when you werent pregnant and you are glowing now girl good luck !! I
@heyyou9313
@heyyou9313 3 жыл бұрын
Does the shark float in the normal bath ?
@faizaamir6123
@faizaamir6123 3 жыл бұрын
Hi please let me know where are you buy from ??
@zelalcelik5671
@zelalcelik5671 3 жыл бұрын
Türkçe altyazı seçeneği ekler misiniz teşekkürler!
@karankaranjee6657
@karankaranjee6657 3 жыл бұрын
How are you emily
@zelalcelik5671
@zelalcelik5671 3 жыл бұрын
Türkçe altyazı ekler misiniz bütün videolara Türkiye'deki hasta sayısı çok fazla
@sonymj1647
@sonymj1647 3 жыл бұрын
👏👏
@karankaranjee6657
@karankaranjee6657 3 жыл бұрын
You know I love you
@abigomez3995
@abigomez3995 4 жыл бұрын
Hiii I loovveeee your videos ! I have a bigg question .. so I have a 10 month old baby girl who gets blisters on her feet . I have Eb and so does she. What kind of material do you recommend me buying for her socks ? I feel like every time she wear cotton socks it triggers her blisters and they come back I feel so bad so she stays barefoot most of the time and I would love for her to be able to wear comfortable socks ! Pleaseeee help 🙏🏽❤️
@miathrives8681
@miathrives8681 8 ай бұрын
Hey! We have a lot of great suggestions on our blog! miathrives.org check it out :)
@designbysweta
@designbysweta 4 жыл бұрын
Video is good .. can u plz avoid music in background
@miathrives8681
@miathrives8681 4 жыл бұрын
Yes I will not use it again, thank you for the feedback -Emily
@mgalgenbeld
@mgalgenbeld 4 жыл бұрын
I have had some positive effects from using CBD, but they were drops taken orally to help deal with some of my chronic pains. I'm debating using it topically as I have a lot of open wounds and don't know the effect on them.
@amberalexander3662
@amberalexander3662 4 жыл бұрын
hot 💔
@abigomez3995
@abigomez3995 4 жыл бұрын
My name is abi and omg I never met or heard of anybody else who had this condition other than myself and my dad !! And now my 2 month old baby has it too it’s awesome to see other people who have the same condition
@miathrives8681
@miathrives8681 4 жыл бұрын
Hi Abi! Thank you for your message! Are you on facebook? There are some great groups where you can connect with others with EB. Please also check out our website www.miathrives.org
@abigomez3995
@abigomez3995 4 жыл бұрын
Mia Thrives no I don’t have a Facebook but I will definitely check out that website I feel good knowing there’s groups out there with this condition
@lisas9482
@lisas9482 5 жыл бұрын
a question: how often do you have to shower? i have to shower sometimes at night because I can't handle the itchiness, but normally i shower every evening. do you think showering everyday is bad for our skin? sorry for these many questions, I'd just like to hear a second opinion
@lisas9482
@lisas9482 5 жыл бұрын
can i use this on my lip? i always have this damn spot underneath my lip and it's always wet and wont dry :/
@zoestasanastasiou9867
@zoestasanastasiou9867 5 жыл бұрын
Keep doing what you are doing Emily. Your skin looks great. And thank you for sharing all of these tips. My 21 month old has RDEB-GI, and her skin is improving all the time with natural treatments.
@miathrives8681
@miathrives8681 5 жыл бұрын
Thank you Zoe, I am so glad to hear your daughters skin is improving!
@vegeta9585
@vegeta9585 5 жыл бұрын
I’m looking for a new pair of shoes for my job I do a lot of standing are the comfortable to stand on for a long time
@miathrives8681
@miathrives8681 5 жыл бұрын
Yes they are memory foam and great for standing!
@vegeta9585
@vegeta9585 5 жыл бұрын
Mia Thrives ok thanks do they sell them at Costco
@miathrives8681
@miathrives8681 5 жыл бұрын
@@vegeta9585 I have not seen them at Costco but you can order them online.
@OurDestiny
@OurDestiny 5 жыл бұрын
Hi Mia 👋
@thisisnotmyname91
@thisisnotmyname91 5 жыл бұрын
I played music with Ed for years. You'd never know he had EB just by his playing. Ed is a great musician, and is always positive and upbeat!
@lorisaparker
@lorisaparker 5 жыл бұрын
I bet it would be nice to put it in a bath and soak for awhile. I may have to try it. Thanks
@shauna-gaymitchell6175
@shauna-gaymitchell6175 5 жыл бұрын
that's what we do
@elsetrottier8157
@elsetrottier8157 5 жыл бұрын
Love you content !
@gracefollin1510
@gracefollin1510 5 жыл бұрын
How would you go about creating a KZbin channel centered around EB?
@coltondaniels8224
@coltondaniels8224 5 жыл бұрын
Ok first I couldn’t help to notice but I have EB as well and I’m really curious about the tattoo. I’ve always been told I’ll never be able to get one but I have proved my doctor wrong multiple times when he said I couldn’t. But anyways I just want to know you’re experience with it!!!
@miathrives8681
@miathrives8681 5 жыл бұрын
Hello Colton! I have DDEB and have 10 tattoo's that I haven't had any issues with. I have had a few other people ask about my tattoos so I will make an EB Hacks on it with a few suggestions I have :)!
@coltondaniels8224
@coltondaniels8224 5 жыл бұрын
Haha that’s awesome. You need to do one. I finally ended up getting one and I thought my skin wouldn’t take it but it actually came out extremely good and it didn’t even rise, blister or scab!
@coltondaniels8224
@coltondaniels8224 5 жыл бұрын
Btw I love your channel. Just because there is not a lot of people who don’t know about our skin and I think it’s a great educational channel for the ones younger than us who will see these one day and they will soon learn they are not alone. Love it
@miathrives8681
@miathrives8681 5 жыл бұрын
@@coltondaniels8224 So glad to hear that!
@miathrives8681
@miathrives8681 5 жыл бұрын
@@coltondaniels8224 Thank you so much Colton, we are hoping we can all share our experiences and learn from each other :).