I know very well what you mean.

Your observation is unfortunately very correct. That's why I do these videos and try to speak to medical students of any career path in college. However, as academic calendars are short on time, I have a hard time getting in.

Thank you, I appreciate the prayers and comment. Thankfully, I'm pretty well back to normal again.

That’s good. It’s no fun being stuck in a hospital for too long. My uncle used to joke that he could only count the dots in the ceiling tiles for so long before it starts to get old.

It's why we always keep educating.

@@TheQuadLife yes, definitely....Hope you are better. Was our blood pressure ok? Do you remember?

@@morgancalvi6675 The first time, it was really high, like 190/147, until they started relieving my stomach. The second trip was okay, but the third went from unable to find up to around 199/170.

@@TheQuadLife oh no! You know and I know a quad’s blood pressure should be low...like my normal is around 90/50 or 90/60. Lately it's been anywhere from 133/77 to 214/101. Nurses...NURSES...say well, 137/77 isn’t too bad...for a quadriplegic!!!??? It makes me wonder just what they’re teaching in school today! I’m on beta blockers because I guess the nerves coming off C4 control heart rate and mine’s like fast with almost no rhythm. I attribute the autonomic dysreflexia to my supra pubic catheter and my leg/hip amputism.

I have the same problem with Autonomic Dysreflexia and my Blood Pressure too and I Spasm a lot when they try to do things like change my Catheter. There is really nothing you can do about it and it is just how my Body reacts to having something done. I do not feel Pain but I get this instead of Pain.

Thanks, me too.

Not on camera. Keeping track of my oxygen was a higher concern than prop placement.

My diaphragm does spasm sometimes and that results in a deeper breath when my pacemaker stimulates at the same time. Otherwise, I do a little of my frog breathing between breath stimulation to have more air and speak louder. Those are the only ways my breath changes.

He can Breathe on his own for a short time so he could probably take an extra Breath between what his Breathing Equipment is doing and it would kind of being able to take a deeper breath and get more Air to make his voice stronger.

We often realize how fortunate we are to have certain abilities, like breathing, after it's lost.

@@TheQuadLife yes, many take advantage of the simple things...until they no longer can do them, like walking and breathing....

Yes this is a great Video because I have had problems with my Medical Equipment and it can happen to me at any time and you need to know what to do with it because you need it to stay alive. I have had to go to the Emergency Room too when something happens to get me working right again and it is scary when it happens.

​@@TheQuadLifeYes I think that most people take doing Body Functions for granted but it is different when you are not able to do it and you need Medical Equipment to do it for you. There is more to it than people know about and Medical Equipment can break down and I can have problems with mucas clogs and Spasms and Infections and everything else.

@@morgancalvi6675 That is what I said about it too.

I hope you get everything straightened out.

Thank you.

Thank you. My voice is recovering, now I just need energy again!

That's my issue as well. It takes much longer to do any mouse work by voice. I frequently give in and just click with my stick.

@@TheQuadLife Yes I think that it would not take so long if you had a stronger voice it can recognize better but for me I need to keep trying until I can get it to start working for me and you get frustrated trying and not able to do it.

Getting help always takes longer. That's why I try to start eating first in group settings so that everyone doesn't wait for me to finish.

@@TheQuadLife You are right about that and that is a good idea to start earlier. For us it takes even longer because there are more people there and you are right about not wanting the rest to wait for it to get done.

When I was on the regular vent, I used a speaking valve that allowed me to talk without stopping. It's the one thing I miss about the vent.

@@TheQuadLife Yes but you are doing a good job. I can tell that you are stopping to take a Breath but it is not that long and you just need to keep it shorter to fit in between Breaths and you are good at doing that and you are right about that it helps to take breaks and not go too long because it is different being on Breathing Support and it affects it and what you can do and for how long.

@@TheQuadLife Yes you are right about that and being on a Vent you can have a speaking valve but you are always connected to the Vent and there is a lot of Care that goes with it and all the Medical Equipment you have doing Body Functions because it can malfunction and clog up with mucus at any time and you need something done to fix it.

I think they have most farm animals represented. If the entire video was of animals, I still don't think it would be enough for you. :)

Jesus said in Matthew 28:18-20 to go and preach the gospel to all nations, not only where someone is comfortable. The Gospel Outreach/Ark Encounter booth has been at the fair for over 20 years and this was my eighth year volunteering. The vast majority of people are thankful we are there and happily talk with anyone. We do have a couple visits from every year from atheists or those that oppose Christianity. However, they are treated respectfully as well with answers given to objections. There are likely around 100 different booths in this one building offering everything you do, or don't, want. Like most people, I just roll on and don't interact with something I'm not interested in. Any group has the ability to rent space at the fair. They rightly don't discriminate and charge the same rental fees for anyone.

@@TheQuadLife I was also surprised to see in the brochure of my local fair: mass and the time. I guess I may have been incorrect thinking many would not welcome state and religion mixing. However, I think it should remain separate only because of mixed feelings and people won’t suddenly become tense when they’re somewhere where they normally would be relaxed. By the way, you say many were thankful...thankful or polite?

@@morgancalvi6675 As I said, thankful. This year, just like all the previous years, multiple people come to me or the other volunteers and heartily say thank you for our work and being present at the fair. We have also had multiple people thank us for the prayer and resource support we provide as they may work in a difficult situation.

@@TheQuadLife I may be wrong, but it seems to be a world where many don’t know where to turn...except the heavenly skies.

@@morgancalvi6675 Which is why groups like I volunteer with at the fair are needed.

It was mostly sunny and no rain, so I didn't need to be too concerned about getting wet. As long as I stayed away from the fountains.

I agree, but it's part of what it takes to get needed services.

Timing really depends on caregivers as well since some are faster than others. Anything government related to healthcare rarely makes sense.

Thanks! You have a great day as well!

It's great that you're able to, but that requires more upper body control than I have.

@@TheQuadLife right...every injury is different. There are 2 nerves coming off each vertebrate...sensation and mobility. I'm very fortunate my injury is more sensation.

They were here yesterday to do my Review again and they did want me to know that they can use your Home to pay for what they spent on my Care and Medical Equipment Supplies and everything else. I think that they have to let everyone know that now and I already kind of knew that anyway.

So you are right about all fifty states are doing it. It is not good but you need the Care and Medical Equipment and Supplies to stay alive and they know that.

@@pagzplay as far as I'm concerned...'needing' is an excuse not to try other avenues. If you can, I'd get out there and work and get off BS state aid. You make it sound as if they are he only way you can live...NOT TRUE! The barefoot preacher (Joel???) is a C1 complete quad and he works!!!

@@morgancalvi6675 C2/3 to be precise, but I do rely on government assistance. I work as much as I am able and allowed without losing benefits. I have worked regular 40-hour weeks in an office, but that was right after college. Now, my body is unable to tolerate that much. Every person's physical limitations are different and they change with age.

That sounds like a great setup. The problem I've had for the last few years is that my silver fish (Giant Danios) haven't got along with anything and tank mates don't survive long. I have gone through probably a dozen algae eaters from different suppliers and different species, but they last a few weeks or just a couple months.

I've been totally barefoot for over four years and primarily for at least ten. Footwear causes more problems than anything and are really only needed in extreme cold weather. For people who walk, barefoot is also best, especially for kids. Traditional footwear restricts natural movement and leads to deformed feet and problems with knees, ankles, back and more. This is a few years old, but I explain more in this video: kzbin.info/www/bejne/hHqtYaSPmpp-mbssi=UIfgJMVaM1euzGGf

@@TheQuadLife Thank you. While Im not often barefoot I wear sport sandals whenever its warm enough and have for 30 years despite a big toe amputation when I was 16 .For me, regular shoes just arent comfortable. My feet (at least the right one) look better than most people my age who always wear regular shoes and I have no issues other than those caused by my amputation.

I prefer slower items like trucks and farming. Thanks for the comment!

Can you please check something? When you're watching, move your mouse to the bottom right corner of the screen (near the full screen button). You'll see a gear that says settings, click on it. A box will appear with the bottom item saying quality. Click on it and make sure it says 720p, should be the top option. If that doesn't help or make sense, let me know.

@@TheQuadLife That helped - Thanks so much

@@TheQuadLife That helped - Thanks so much

@@TheQuadLife That helped - Thanks so much

You're welcome!

Thanks for letting me know. It's okay on my screen, but not everyone is the same. Unfortunately, my computer's web cam can't record in HD. If it continues, please let me know.

@@TheQuadLife ok thank you

That is an option as well as a mouse called the quad joy. For now, I'm trying the easiest solution possible. I hope to keep mainly using the stick if I can.

My pleasure!

Temp regulation is part of the function of the upper spinal cord. It makes it so that I'm unable to sweat for cooling or move around for warming.