In Saudi Arabia doctor advised to take medicine called Hydroxyurea . It is good and help to reduce the pain and visiting hospital specially ICU . So ask doctor for more information , I hope this help you coz I know how the pain feels. I’m 38 old but my mom still crying if I need blood or ICU

Right! But healthcare workers take that as us being fine since we’re not wailing out loud

Same ans loose this belly

😂me too

It really is so sickening n so heart breaking how medics treat those with full blown sickle cell and the trait is disbelieved when we show up in pain. I’ve been disbelieved since childhood when gps told my mum it was growing pains yet those same stabbing bone pains and fevers and swollen limbs have continued till today and I’ve had multiple tests growing up until 2020 where my body got worse and I suffered the worst sickle cell trait crisis of my life, was left disabled for 3 months with crisis that began on my stomach and arms and then my full body went into crisis and then because I kept calling my gp after the sickle cell society in London got in touch with me and a local sickle cell thalassaemia centre genetics counsellor advised him of what I was going through, my tests were already in the system from all the years I’d suffered, I ended up having a stroke and other complications because they left me untreated for so long. Still constantly unwell now because of complications of being left untreated for so long! There’s a huge racial bias within healthcare globally! It is disgusting how sickle cell haemoglobinopathies are treated or rather mistreated. Sending blessings your way ❤🙏🏽

@@symptomaticSCT Thank you so much for your reply I found it extremely heartwarming. I am so glad I have found somebody else who has been having the same issue as I have. I shall carry on trying to campaign for better treatment equality for all whether one has sickle cell disease or traits. One must be treated equally and believed. What makes me so cross I have to real beg for a blood transfusion I know my own body when I don’t feel very well.

I saw you comment and as well have sickle cell and believe I’ve been experiencing crisis. But not sure if it what I’m having. Can you tell me what it feels like, from your perspective!

@@MSANNA-jy7kf hello! I hope you’re well! Here’s how I’ll describe it in different areas Arms: They fell heavy and hot to the touch. It hurts to move them, so I keep them close to my body. Legs: a dull, deep annoying pain with sharp pain in between. Like a Charlie horse times 20!! Back: is the worst! Indescribable pain honestly. Chest: like you’re having a heart attack. It hurts to breathe in and the pain goes around to your back

When I was younger, I’ve experienced some doctors thinking I’m at the emergency room just for pain medication. When in reality, I am in so much pain. They do not understand the type of pain we experience.

Black people need to start donating the blood you need for transfusions.

@@grabbymcpoosey614 people in general need to donate…but healthcare is so bad these days when it comes to accommodating sicklers, I stay home.

My children are sickle cell.please try plant stem cells very efficient to eliminate vaso occlusive pains for months

Please try plant stem cells very efficient to eliminate vaso occlusive pains

No lies there

I also agree. Important points raised but one of the key issues is management of the condition therefore prescription should be free, not everyone can afford pre paid prescriptions.