Well done. I've mimicked the progression you've outlined. I'm 79. My RBD started over 15 years ago. Then was troubled with constipation, depression, anxiety, loss of sense of smell. The pieces didn't start to come together until about a year ago. I joined the Michel J. Fox Foundation research project PPMI (Parkinson's Progression Markers Initiative). Only within the last year have I started to experience motor symptoms. Your research is interesting. I've been convinced, in a non-clinical personal point of view, that RBD is the most important marker for Parkinson's.

Excellent..discoverer of parkinson disease

Simply gorgeous ten minutes--you are light and joy and hope--and fun...how can it be otherwise when you start us out with "Planes, Trains, and Automobiles"... thank you for this...I was looking for a wonderful speaker on Parkinson's who had early onset and I met her in Santa Rosa, CA around 1994 but cannot find her, but then in searching, that is how I came across your video. A grand way to begin my morning.

Yo tengo Parkinson y me daban discinesias muy fuertes, llevo 4 años con la enfermedad y hace 2 años empecé con las discinesias, y apenas me cambiaron el medicamento ala pramipexol, con un 1/4 pero y asi a ir umentado, pero estos primeros días no veo el cambio a un de la rifidez, lo que si ya no me dan la discinesia

well done from a 36yo brother in fate loving these lines: I was only 44 when Parkinson said hello i said degenerative illness? yo, i didnt get the memo they say it keeps getting worse until you can't even eat well, try me buddy I got grandkids to meet

Beautiful message! Thanks Becca

❤🇳🇱🙏👋

after 9 years the government in the Netherlands are getting worried and starts a investigation..

She is a treasure

You are a beautiful person I listen to you almost every night

exciting!

Es el himno del mal de Parkinson ❤

wow

Bless you...I feel you!

Can’t wait for 2026🥊

Fabulous #excited!

He's just exceptional ❤

Wow, Thanks i need that 😢

I'm also in the prodromal cohort of the Fox foundation PPMI study.

Fascinating and enlightening conversation. I've had RBD, loss of smell, constipation, depression, for 15 or 20 years. In the last 6-8 months (2023/2024) mother symptoms have started to show up. Rigidity foremost among them. I don't have a final diagnosis yet, but I've been put on carbidopa/levodopa recently.

Very doubtful

Beautiful. She is deeply missed/

Cried. Unshakable impressive for real slim

very enlighting webinar. Can you please share the name of the research physician who is being interviewed in this webinar?

Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine that truly works that helped treat, cure and reversed all his symptoms…My Dad is well again😊.

Thank you 😢😊 I needed this.xx

Great interview. The comments on patient stratification and biomarkers are very pertinent. Thank you to Roger Barker and Simon Stott.

Rest in peace Enzo. The ripples will continue ….

Excelente explicación

We need this to change around the world.

Admirable, amigos.

Absolutely wonderful Thank you Pamela Quinn and WPC.

Great talk! I really wish I could have been there Richelle and Indu!

Just came across you. Wish we were friends, you are amazing… and hilarious! Tim Conway… 😂 I relate.❤

Does anyone have Maria's Tik Tok handle?

Excellent explanation. My wife has suffered from Parkinson’s for eight years and she found this very informative. Thank you for your clear and easy to understand explanation.

Beautiful!

Just watched this video with Richelle's excellent presentation. As a PWP diagnosed for just over two years I'm trying to explore every avenue, and this has inspired me such a lot. At least to start with I intend to find out more about our dietetic services locally and request an appointment to see someone. I guess my consultant should be the avenue for that, but I know we don't have enough consultants so in our area we are lucky if we are seen once a year and most of us are waiting longer. From the video we couldn't see what was on the slides, so I'd be interested to know if I can find them anywhere on the web. Richelle you're an inspiration!

That brought a tear to my eye. Happy memories of singing this beautiful song with WPC choir. Thanks to the composers, to our choir directors Judi and Jenny and all my fellow WPC choristers and all involved❤

Beautiful speech. Thanks WPC.

Heather! You are so beautiful and amazing! 🤗

Most incredible creative thing I have seen lately. super congrats

Masterpiece

youre such a wise person....fully positive too

music is something elsential in my life

I try to remember that I'm not alone with that illness and I can cout on people around me to get through this You seem so young to habe PD

"What are you here to teach me..? " That blew my head, and touched my soul. kzbin.info/www/bejne/aoKmnIZrprGZarM

Good stuff Adrian😀 Spread to my parkinsons group here in NE

Amazing performance!! Mamma mia!!!

Great to attend WPC 2023 in Barcelona and present the exciting data on NLX-112. A big thank you to the organizers of the session!