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@shellbacksclub Ай бұрын
I lost my beloved uncle to this devastating disease in February of 2024 at the age of 60. His father had died only a year before this with what they said was dementia. He also had a childhood brother who died as an infant with CJD like symptoms but was undiagnosed at that time.
@melissawilliams361 7 ай бұрын
I lost my mother to CJD in 2015, she also had REM behavior disorder "RBD". I was diagnosed with RBD in 2010. I started losing my eye site and short term memory. Myclonic movements when sleeping. I had to medically resign as a RN. I had started an all fruit diet 4 months before I went into full blown dementia . It took me 1 1/2 to recover almost all my faculties. It worked !! My biggest issue is having 4 children " 2 out of the 4 had RBD also. I can't find anyone to test my daughter and I via blood test or CSF for the mutation. The CDC called and spoke with my sister and I soon after my mother passed. They asked if we wanted to be tested. We both at the time said no " it's fatal" I didn't want to worry every day , am I starting to go downhill. CDC now says they have b never done that , four ER's pushed me out the door when I was declining. It was terrifying then and still is. I have contacted a lady that works in a lab here in the US. They need me to send my MRI " that showed a positive pulvner sign. They said it was normal. Never sent the results to my sleep doctor , who watched my decline . I feel I am going down again. I am so scared, nobody wants to test me to find out for sure. I need the information , especially for my daughter's sake. My other child that had RBD passed away in 2018. Crossing an interstate on foot at 5am" in the middle of nowhere . If someone reads this " if you can help me please . I'm about to give up . Thank you
@bigbadbruins1 11 ай бұрын
My mom died from CJD. She went to her primary and he said it’s a stroke so he sent her to a rehabilitation office. One of the doctors said this is not a stroke. I have seen 1 case years ago and I guarantee you it CJD. we never heard of it.Thank god she went quick
@reanimationeas342 2 жыл бұрын
Prion disease or as I like to call it- Horrible way to die
@marcika 3 жыл бұрын
Pause at 0:40. :DDDDDDDDDDDDDDDDDDDDDDDDD That's not a PhD look. :DDDDDDDDDDDDDDDDDDDDDD
@marcika 3 жыл бұрын
Kids, grand kids, grand grand kids, grand grand grand kids, grand grand grand grand grand kids.........LOL. :D Old bitch, this is just a proof that you've lived enough. :DDDDDDDDDDDD
@marcika 3 жыл бұрын
What’s the point here? A 200 years old bitch died? Does this make this family special at all? :DDDDD Idiots. It happens every day. Maybe not with this kind unicorn disease, but it does happen.
@marcika 3 жыл бұрын
What do they mean the eyes go first? Idiots. Visual symptoms are only part of hCJD, not fCJD. These channels should be banned from youtube which only spreads anxiety terror, and nothing else.
@marcika 3 жыл бұрын
I dont believe this was CJD. The old witch was able to speak. I WANT TO SEE THE AUTOPSY RESULTS!!!!!!!!!!
@AndrewDrewJamison 2 жыл бұрын
Stop acting like nobody gets prion diseases.
@r.xkiiwa2171 Ай бұрын
What in the actual fuck is wrong with you? It's very clearly cjd, some people who are in early stages of the mutation are cognisant enough to talk and speak, it's later that they lose the ability to do so. To call her an "old witch" is so fucking disgusting
@marcika 3 жыл бұрын
This shit should be banned from youtube.
@marcika 3 жыл бұрын
I had SFI, and then CJD, but I recovered from both. Probably because they were only in my head due to the too much shit (like this video) I watched on youtube...
@СветланаТрофимова-у2щ 3 жыл бұрын
Ты дурак, от бкя нет спасения
@elantintelectual 3 жыл бұрын
@@СветланаТрофимова-у2щ 👊👊👊👊👊😲😲😲😲😲😲😲😲
@AndrewDrewJamison 2 жыл бұрын
You thought you had it. Yes.
@Ceerads 2 жыл бұрын
No one recovers from CJD.
@danielsmith9548 Жыл бұрын
So you didn't
@wormhole331 3 жыл бұрын
At least she was lucky to have a long full life. A lot of people with this die in their 20's.
@kinjalghosh3350 3 жыл бұрын
Lot of people? Cr Jacobs is One in a million disease, that too most common in the mid 50s-60s age group.
@СветланаТрофимова-у2щ 3 жыл бұрын
It is common, at 60 years old, but many young people die, even at 25 years old.
@somnuswaltz5586 2 жыл бұрын
@@СветланаТрофимова-у2щ Just cuz some CJD victims die in their 20s does not mean MANY young people die of it. It is exceedingly rare for people below their 50-60's and higher to die from CJD.
@blemmyaes3734 8 ай бұрын
@@kinjalghosh3350one in a million is not that uncommon lol
@KaoruSan241 2 ай бұрын
@@kinjalghosh3350it’s actually one in 2,000 in the UK. Don’t talk about something you clearly don’t understand. You have no idea the impact this disease had on my country
@SeecondToNone1 3 жыл бұрын
My mother was just diagnosed with CJD. No history of disease. We are in sock, it's devastating. Going down rabbit holes lead me here. We decided to go biopsy when she passes to find out if it's fCJD or sCJD.
@СветланаТрофимова-у2щ 3 жыл бұрын
Hello, I am from Russia, please tell me how old is your mother and how much is she sick?
@SeecondToNone1 3 жыл бұрын
@@СветланаТрофимова-у2щ she has passed away. She was 62.
@da-yp1wu 3 жыл бұрын
@@SeecondToNone1 Sorry for your loss. Do you know by any chance if she had Covid? Covid virus has been known to cause prion misfolds which cause neurological issues similar to CJD.
@SeecondToNone1 3 жыл бұрын
@@da-yp1wu she did not have covid-19 and was tested at hospital multiple times. Was tested at multiple hospitals as well. Please explain to me how this works. Are you trying to claim every type of coronavirus or just this one specific stain? I cannot see how a simple coronavirus can accelerate the mutation of a protein molecule. But if this is the case please explain how.
@marcika 3 жыл бұрын
@@SeecondToNone1 it’s a bullshit of course.
@JohannRosario1 3 жыл бұрын
Is it a GENETIC? Isn't is cause by ingesting PRIONS in beef, or deer? Don't entire families eat together a meal that may contain PRIONS and then gradually some get sick, only to blame their genes, when its really a single exposure to a version of MAD COWS DISEASE in the US?
@angelrsalazar92 5 жыл бұрын
How is this spread? Genetic ? Might be a dumb a question... bless everyone that has to go through this
@hereisyoursign6750 5 жыл бұрын
Familial CJD is indeed genetic, with offspring typically having a 50% chance of getting the gene
@palmspirit1833 5 жыл бұрын
The other kind is through infected beef, blood donation and organ transplants. But there have been effective measures that really reduce the chance of spreading/acquiring CJD in a person’s lifetime.
@palmspirit1833 4 жыл бұрын
Good Goy I agree.
@远山-k3s 3 жыл бұрын
Sporadic CJD is the mutation happens spontaneously in people.
@reanimationeas342 2 жыл бұрын
There is genetic, sporadic and infectious. There is a lot of mystery behind prion disease
@trauma6829 5 жыл бұрын
Not worth living and conceiving. It's a Familia disease that can't be stopped unless u accept not to make another unwanted family disease life. This disease just keeps going and going
@vitaliyankudovich142 3 жыл бұрын
Have your ever heard of preimplantation screening?
@lizichell2 5 жыл бұрын
A most upsetting sickness
@sangeeta4645 6 жыл бұрын
My mummy is suffering from CJD and she is bed ridden, she is just 55..can anybody help me with any remedy.... I don't want to lose my mom... She is my world....
@pilotavery 6 жыл бұрын
Unfortunately, it is a disease with no cure. There is likely not going to be a cure for at least a few decades, because we have a lot to learn about understanding proteins in the way that they are folded. I'm so sorry to hear about the loss of your mom. You can volunteer for protein folding at home by using any processing power of your laptop that's not being used, it folds simulations of proteins which in turn figures out how they interact. Continue in this is the best way to assist in finding a cure.
@ugandanknuckles2813 5 жыл бұрын
This was 7 months ago. Goodluck sangi, people with CJD are not expected to live more than a year once infected.
@rosemartinez2218 5 жыл бұрын
I just lost my husband to CJD October 31 -2018 it started July only 4 months My husband and father .
@vikkishelton9360 5 жыл бұрын
So sorry...
@JizzPope 3 жыл бұрын
@John Levison why dont you go and scam people who arent desperate you piece of shit vulture
@nancymarieg 6 жыл бұрын
lost a friend today from this.. gone in 2 months... She was 57.
@achilleamillefolium1369 6 жыл бұрын
1 in million ist not true...there are more people with this disease...they must to find the cure...
@PBMS123 4 жыл бұрын
incidence of cases is 1 in a million per year
@СветланаТрофимова-у2щ 3 жыл бұрын
Я думаю болезнь встречается намного чаще, чем 1 на миллион
@virginiapozas1376 3 жыл бұрын
I think the same. I am Mexican. It is even more difficult here and it is so painful to see someone you love going through all this and there's nothing we can do. My mom was just diagnosed.
@СветланаТрофимова-у2щ 3 жыл бұрын
Как ваша мама?
@远山-k3s 3 жыл бұрын
@@PBMS123 And that's 7000 people all over the world...
@monicapagoto1483 6 жыл бұрын
I have a loved one with CJD. He was diagnosed two days ago. He just went on hospice today. Very hard to accept
@propagandazombie5252 6 жыл бұрын
Monica Pagoto So sorry to hear that.
@JohannRosario1 3 жыл бұрын
What do you know about PRIONS DISEASE?
@marcika 3 жыл бұрын
liar
@AndrewDrewJamison 2 жыл бұрын
@@marcika Stop acting like nobody gets prion diseases.
@nathankeel4308 2 жыл бұрын
@@marcika listen idiot, obviously a lot of people looking into prion and CJD videos are doing so because they're dealing with it in their lives. Obviously, it's only a topic for people who are specifically interested in learning about it, or who are experiencing it in some way. You're a loser.
@tinang5999 6 жыл бұрын
I lost my brother last night at 1:00 am after 6 weeks. They called IT CJD. Horror. Can't accept it. It hurts. I love him so much
@nancymarieg 6 жыл бұрын
sorry for your loss. my friend passed from this today.
@_JUAN_-nl9sh 6 жыл бұрын
I have to admit they're not doing nearly enough to cure this
@rochelleb1338 3 жыл бұрын
I am so sorry for your loss my sister just got diagnosed with it a month ago and it hurts so bad to see your loved one like that
@СветланаТрофимова-у2щ 3 жыл бұрын
Здравствуйте, как ваша сестра, расскажите её симптомы.
@СветланаТрофимова-у2щ 3 жыл бұрын
Hello, I am from Russia, please tell me how old is your sister and how much is she sick?
@lizichell2 7 жыл бұрын
A sickening malady that is caused by prions
@alexalvarado7325 7 жыл бұрын
I just lost my friend to this disease today at 2:30 I'm devestated!!!!
@marcika 3 жыл бұрын
liar
@AndrewDrewJamison 2 жыл бұрын
@@marcika Stop acting like nobody gets prion diseases.
@reanimationeas342 2 жыл бұрын
@@marcika people get prion disease. Bet you are a COVID-19 denialist
@thedianacamidgefoundation9577 7 жыл бұрын
So hard to watch as we went through a similar experience www.dianacamidgefoundation.org. However there is hope for the future. www.curecjd.org