I am 45 Years .my health problems started 10 years ago .I fight every day to survive .I hope someone can help Al poeple with this evil disease ..I can't do sport because I have intolerance of exercise it's a hell . especially the kids with this disease i really feel sorry for them .where are all the rich poeple who can help to invent a medicine for all these sick children and poeple I hope God will take away this disease out of this world it's an evil disease
@ソトヤママリアテレサ Жыл бұрын
so the hit compound is called Khondrion? Am i , right, am i wrong or Am i just dreaming? 🎶-Erasure's song Am I Right? 🎶☮️ How can i get some khondrion? i live in Japan despite being an American. is it legal in Japan or in America? Are there clinical trials for Kondrion in Japan or America? -J from my wife's KZbin with her permission of course.
@ソトヤママリアテレサ Жыл бұрын
preventive measures are worth a pound of cure. GABA is a neurotransmitter that is a glucocorticoid inhibitor. Glucocorticoids are stress steroids such as cortisol from the pituitary gland &/or noradrenaline/norepinephrine from the adrenal glands above the kidney stress & steroids are mitochondria toxins. also try switching to a vegetarian diet. it works for my sister. she hasn't onset yet. i onset with my MELAS syndrome at age 35. 10 years ago. the older one is at the age of onset of MELAS syndrome, the longer one lives. My mother's onset around age 55. she's now in her 80s & still alive & kicking. Good luck, a cure is needed. for the 200 in the Netherlands, roughly, 2,000 in Japan. i've noticed some patterns. typically with mothers who have kids with MELAS Syndrome. after the death of her child, the mother often onsets, meaning it's the stress that causes MELAS Syndrome onset in other words avoid stress. Eat GABA Chocolates by Glico. ☮️
@jeffjohnson86242 жыл бұрын
the CCs are very off. there's a Cyber Stalker aka hacker harrassing me. who do i contact to make them back off and leave me alone. ☮️🖖🎶i have MELAS Syndrome. ☮️🖖🎶 "Everyday is a new challenge."-Jonathan acoustic version by Ice Nine Kills aka INK. ☮️🖖🎶
@AVan-lu5rv3 жыл бұрын
Worst doctor ever. Didn’t saw cancer multiple times
@cay54233 жыл бұрын
My boyfriend's stepmother has this and she's gotten violent. She's super mean and aggressive for no reason. If her things are in the way and there's a possibility of tripping over it and you move it.. she freaks out then becomes violent. Its frustrating bc nobody knows how to handle it or knows what to do.
@angelinarobert6223 жыл бұрын
What's the name of the "hit compound"/ medication that changes bad mitochondria into good one's? And when will be on the prescription market?
@angelinarobert6223 жыл бұрын
i hear that the only country actually researching for a cure is the Netherlands. America and Japan are working on supplements which would only be like consumable band-aids for a broken bone that doesn't treat the actual problem. Would nanomachines or atomic cellular automata that walk on DNA (see KZbin's Veritassium channel's "cellular automata" video) be able to deliver an ionized NH2 molecule to set point 3243 and dislodge the Oxygen/O in the Guanine and then put the newly deionized NH2 in the Oxygen/O atom's place for an Indy Jones sand bag swap making the Guanine/G become Adenine/A? Does Mitochondrial DNA even have Cellular Automata?
@katerinere59433 жыл бұрын
The video was so educational. I've been trying to research for video like yours that explains the stuff in this KZbin vid. 🩺 👌Your breakdown is like the channel from this awesome med student Doctor Ethan! Ethan's tips are for sure knowledgable and I really learned a lot for school. I suggest you check out his page out and give the doc a like! 👉 #DoctorEthanQuestions
@angelinarobert6223 жыл бұрын
L-arginine dialates small blood vessels in the brain allowing nutrients into the deeper parts of the brain which prevents stroke-like episodes. An IV of L-arginine should be kept at your hospital to prevent brain damage in case a stroke-like episode does occur. i'm on 5 grams of L-arginine granule packets 4 times a day. CoQ10 30mg in tablet form 3 to 4 times a day to support the Citric Acid/Krebs Cycle. Vitamin B1 30 mg 3 to 4 times a day for cognition. L-Carnitine 500mg in tablet form 3 to 4x a day for my heart muscle. My doctors in Japan prescribe it so i can pay for it with health care insurance. Leaving the US for Japan was the best decision I've ever made. Who knew the Republicans would make Mitochondrial Diseases Pre-existing conditions in the US? i sure as heck didn't. i dodged a bullet with leaving the US for Japan 19 years ago. My MELAS Syndrome onset occured 14 years after i moved to Japan and do mean 引越した/Hikkoshita/moved (as in changed residence). Trump left America's health care system in shambles. it's why he lost the presidential election in November 2020. Anyways, politics should stay out of people's illnesses which should be private information anyway. Politicians should support sick people not deny them of health care. Cause sick people still vote and so do military veterans with PTSD. ☮️
@amberoppermans91504 жыл бұрын
Nooit medicijnen voor gekregen
@amberoppermans91504 жыл бұрын
Ik heb ook een mito condriele stofwisselingsziekte
@JasperRiedijkWat4 жыл бұрын
Eens...
@jimmojokind4 жыл бұрын
rat
@gaatjullieniksaan49364 жыл бұрын
We weten inmiddels dat medicijnen 17.000 doden eist in nederland, per jaar wel te verstaan. Meneer vind het oke om mensen te straffen als ze het covid vaccin niet nemen. Kom maar op Ruud!! Ik ben strijdbaar, ik ga niks geen vaccin accepteren. Met die corona hoax ben ik wel klaar en met de medische corrupte wereld helemaal. We zullen jou naam onthouden😉.
@Sarah990074 жыл бұрын
Hi I need Melas patient karyotype can any one help me.Where can I find it ,please ?
@DylanJGehl2 жыл бұрын
I'm looking for MELAS info too, but it's kind of rare to find
@scottmenteith47785 жыл бұрын
I was diagnosed with MELAS almost 2 years ago. What is the best method of keeping up to date on the progress being made with the medication and breakthroughs noted in this video?
@akshatgupta47324 жыл бұрын
How u survive plz explain its important for a life message me on 9462536369
@Dryocopus_martius5 жыл бұрын
leren voor HEEN lol
@shellycolson93655 жыл бұрын
My friend at 42 was jist diagnosed her mom died 2 years ago we wonder if it was the same reason .my friend has had two strokes and now has some dementia. She is back in the hospital as of mon i am so sad . her stroke was in november it is now january . this is breaking my heart . ! She doenst even know who i am
@tolgay11585 жыл бұрын
hello my wife since 2005 melas patient and now you have a treatment that you know the situation please help me thank you
@NC-curious5 жыл бұрын
alhoewel ik twijfel of "social well-being" mee zou tellen tenzij het ernstig is, factoren zoals discriminatie word niet meegeteld lijkt mij.
@JdeVrijer2 жыл бұрын
misschien niet via dat begrip, maar een zorgvrager kan wel naar aanleiding van discriminatie naar de huisarts gaan?
@vincenttenbergh99216 жыл бұрын
Wat is het verschil tussen wijkzorg en thuiszorg? Of is het hetzelfde? En zo niet, wat is het verschil?
@martineplante91246 жыл бұрын
My Husband is 62, his mother and brother died around the age off 60. He is 85% deaf and he has a pacemaker since his first AVC at 60 in 2016. The just had is colon remove. He knows that he has MELAS since 2017. We live in Québec Canada.
@tisiaan6 жыл бұрын
In vertrouw hem voor geen cent
@MrK-wu7ci6 жыл бұрын
01:55 This is why the Zorgpad Stervenfase/Liverpool Care Pathway kills, and why it is so popular with the insurance companies, that they even paid doctors to put patients on the LCP in the UK. When sick people go to hospital, they need treatment no matter what their diagnosis is. What happens now, is that if someone has a terminal diagnosis or are labeled in some way, and they go to hospital with a pneumonia, they don't get treated for pneumonia. If they have high blood pressure, they don't get treated for high blood pressure. They don't get fluids or nutrition through IV, whether they arrive in a dehydrated or malnourished condition or not. And that is how they kill the elderly. That's how the LCP kills, and that is why it has been officially abolished in the UK, but not in all the other countries it has been introduced in - including the Netherlands, Belgium, Germany, etc. More here: twitter.com/MrK00001/status/917561842020601857
@Gelengider276 жыл бұрын
echt heel mooi hoe ze het overbrengt medeleven in haar blik respect voor deze dr ❤ ik mis me broer hij zit nu in dat situatie moge Allah hem genezen insallah canim allahim❤❤❤
@willemh33196 жыл бұрын
hoe verstaat het nu met het onderzoek en een andere vraag hoeveel keer komt een avm voor met een doorbraak naar de centrale ventrikul ik ben nog steeds op zoek naar de oorzaak van een avm
@mariejosehaerkens7 жыл бұрын
Mijn stem heeft ie. Beste huisarts ooit. Zo gaaf om te eind resultaat te zien als je als ik en andere longpatienten bij meeting over hoe bijbehorende app zou moeten worden was
@jasperkolbrink4867 жыл бұрын
Premiumbeat.com audiowatermerk op 1:05. Wel zo fijn als de auteur van de muziek ook betaald krijgt voor z’n werk, toch? ;)
@rishabpal47977 жыл бұрын
Hello My daughter is also have Melas..... I m worried of her very much..... The doctor from GMCH32 Chandigarh is treating her but not useful.... Can I have any help from u...plz
@SegaDisneyUniverse7 жыл бұрын
I had a good friend who recently passed away due to MELAS Syndrome. He only lived to be 23...:'(
@RobinHood-ki5gg6 жыл бұрын
If it is the tRNA leucine mutation it is treatable with succinic acid.
@krunalvaghela56232 жыл бұрын
@@RobinHood-ki5gg can you describe more or do you have any references thanks
@DylanJGehl2 жыл бұрын
@@RobinHood-ki5gg any info?
@sarvjeetyadav5141 Жыл бұрын
Hii rishabh ji my son is patient of melas please tell tritment
@theflyingfox82047 жыл бұрын
Het is gebakken lucht. Zoek maar eens op www.loketgezondleven.nl/vraagstuk/positieve-gezondheid naar écht concrete voorbeelden. Men vindt ze niet.
@CoalitieErbij7 жыл бұрын
Zelf last van eenzaamheid of veel alleen zijn? Kijk eens op www.eenzaam.nl
@PreventiecoachNl8 жыл бұрын
Terecht heeft Machteld Huber een parel verdiend. Een gezond iemand heeft veerkracht! Het wordt tijd dat we het eigen vermogen om gezond en dus veerkrachtig te zijn vergroten. De PreventieCoach houdt zich al jaren bezig met curatie, preventie en amplitie. Het versterken van medewerkers in organisatie gericht op gezond, veilig en plezierig werken. We spreken bij voorkeur medewerkers aan op hun eigen denkkracht, veerkracht, veranderkracht en daadkracht. Meer aandacht vragen we voor het versterken van mensen door het stellen van vragen op eigen regie, mogelijkheden. Positieve Gezondheid zet ons aan tot het anders kijken naar gezondheid. Wat kunnen we nog wel? Het scoringinstrument van Machteld Huber is een praktische methode om met mensen in dialoog te gaan en ze aan te zetten tot hun eigen OplossingsKracht.
@spacelobster9 жыл бұрын
Fijn dat Machteld Huber in de lijn van Rudi Westendorp en anderen ook haar steentje bijdraagt aan het begrip gezondheid. Een belangrijke uitdaging ligt bij het snel ontwikkelen van 'health literacy'. Een grondige samenwerking op dit gebied tussen de departementen van Onderwijs en Volksgezondheid zou met hoge prioriteit moeten worden aangevat. E-learning kan hier grote diensten bewijzen.
@josvandermeulen29679 жыл бұрын
Inspirerende gedachtegoed dat aansluit bij de mens en niet bij de ziekte. positieve gezondheid is meer dan alleen maar ziekte/ handicap of wat dan ook. Het is van een ander niveau het is een middel om zinvolheid te ervaren, EINDELIJK!! Maar nu nog de professional zien te inspireren!
@thisisPanza9 жыл бұрын
Mooie video. Is deze ook in het Engels beschikbaar?
@TracyKolenchuk10 жыл бұрын
This concept of health is a step in the right direction. It recognizes that health is not binary, even that health is measurable. However, it is still stuck in the medical model, focusing on illness and disease. We can do much better. Health is many things. Healthiness is a measurable aspect of health, like illness is a measurable instance of ill. If we are to improve healthiness, instead of just trying to 'maintain health, or regain health, we need to learn to measure health. Measuring health requires us to recognize the many different aspects of healthiness, study and combine them to make useful summary measuremetns.
@ryand14111 ай бұрын
The ability to 'adapt and self-manage' is not a "step in the right direction" at all. She sounds like a politician. Patient care is the priority. This compromises that.
@TracyKolenchuk11 ай бұрын
Patient care is sick care" not "health care." A focus on patient care often ignores "health".