Thankyou so much. Very h3lpful

Did 14 weeks of Actemra. First I had mouth sores, doc said keep taking it. Then I got a rash on my legs, doc said to keep taking it. Then my calf was sore and I was out of breath. CT and ultra sound revealed blood clots. No more Actemra for me

Hi! Thanks for your testimony, could you please give us an update about your experience witn Actemra? Are you still using it?

Hi, how are you now?

You need to try Prednisone 20mg pills take 2 a day and goodbye headaches trust me it works giv it about 2days

Wow, watching those hives dissolve every day until they disappear is definitely appeasing, I went with what I commented about and after 20 or so days the urticaria’s history, I simply go'ogled the latest by Shane Zormander and now my skin is as smooth and healthy as it has ever been!

I have been prescribed verapamil for migraines. Can you tell me if it worked for you ?

How had the treatment been.. I was recently prescribed verapamil for cluster headaches. I feel my anxiety plays a role with my headaches and causes my bp to raise..

Saw your vids stopped 2 years ago. How are you doing? Has your disease worsened? Hope you are well. I just started on Actemra, an researching vids.

Hey do u have an instagram page ? I suffer from migraines and would love to chat about my experience.

I watched several of your RA videos. I feel for you. I'm 58 yrs old, was diagnosed 30 yrs ago; by head of Rheumatology-Scott & White (largest diagnostic ctr in TX); My Rheumatologist said I was worst case he'd seen in his 28 yrs of practice. I was 28 , single, raising my 6 yr old daughter & 4 yr old son & going to college with 6 months til graduation with a dual degree, Accounting & Business. I did struggle & barely could walk across stage to receive my diplomas. At that time I couldn't get my shirts on/off, my feet/shoe size went from 7 to 9 bc swelling. I was started on Methotrexate, Prednisone, some NSAID, Restoril-sleep med, Ferrous Sulfate. My hemoglobin was 6; they talked about transfusion but waited & my # came up to normal within a month. My body responded well to MTX. A few years later I was pretty much in remission, lasted severwl years (dr said my ra was still active) Anyway I remarried, had my 3rd baby 1997, I was 36 yrs old , nursing & RA under control, not on any DMARDS, only pain med when needed. Long story short, I've had good years but I became allergic to all NSAIDS in 2009, anaphylactic shock, almost died 5 ×'s that yr from NSAIDS. So only anti-inflammatory I've been able to take is PredniSTORM! Prednisone has destroyed my bones, joints, etc. I've had several insufficiency fractures aka stress fx. I've needed total bilateral knee replacements over 10 yrs & wrist/hand reconstruction due to old fx, cyst, dropped hand & total shoulder. Nov. 2018 my car was hit- totalled; My hip was hurting as well as everything else that I couldn't differentiate the pain. My hip was broke, had CT, 2 Xrays all 3 were failure to diagnose hip fracture for 3 months. I'm now in wheelchair & have been for 11 months cuz my spine is degenerated & inhumane pain to stand- walk more than 2 minutes. Oh plus Neurologist dx me w Neurodegenerative disease. The brain spine surgeon has suggested pain pump, rhizotomy, neurotomy, neuro-electric muscle stimulator (all requires surgery), epudural & more injection of corticosteroid. NO TO ALL. I just started Orencia 8/12, infusion. I have more overall pain now than b4 i started that poison- Dr had been pushing me for yrs. I'd had bad experience with Humira, ER, serious upper sinus infection across from blood brain barrier. I research EVERYTHING, take multiple suppliments, bone restore, too much to type. I pray you are in remission. BTW there have been many RA pts cured, but not in the United States, one place in the International Bio-Health Clinic in Tijuana Mexico, ppl go there from all over the world. I can't afford to get there. They have many ways of financial assistance. Best of wishes on your journey. You are not alone. Most importantly, I've made it this far only by the grace of my Heavenly Father, Jesus, my saviour & His Holy Spirit. God Bless You.

After a few days of trying this arthritis treatment “Rοngοdο Ruzο” (Google it), I lastly felt its results. The pain in my feet was because of arthritis vanished because of this item. I like to recommend sufferers of arthritis or tendonitis to use this treatment. All you need is to adhere to the guidelines and it will work miracles for you! .

This arthritis treatment “Rοngοdο Ruzο” (Google it) is by far the ideal product I`ve ever useful for my arthritis joint pain. It`s a magic. I am old and fairly active, work full-time, maintain a vegetable garden here in South Florida, do a lot of lifting and carrying bags of soil and fertilizers, and also harvesting and pruning. .

Please learn how to talk simultanesly before you post anything o yt! Its almost unlistenable

i just got approved for Actemra at age 21 this is about the 4th drug i am on hope it works for my RA

Remicade failed and Im now allergic to the medicine. Humira didn't like me and the medicine made me vomit. I remember I tried Plaquenil and Arava and those pills made me sick. Then I tried Cimzia and the medicine caused an Iritis.

I completely identify with your experiences as a musician and having the faintness and anxiety and having trouble reading music. I have really intense hypertension both pretty much throughout my life and it worsened after medication use (clonidine, opioids, benzos) and also drug use. I tried to force myself to break through my anxiety. I got in two motor vehicle accidents, including a hit in run where someone T boned me on my old moped. I had seizures a lot then they went down. For hypertension I was maintained on clonidine (because it treated most of my other problems as well), which wasn't something I was genetically built up well for. When you quit clonidine all the sudden your BP, pulse, and anxiety spike. I tried tons of augmentation with different classes of drugs and since I've always had a sedative tolerance and verapamil is, like clonidine, sedating, verapamil was by far the easiest drug to live on. It cut my migraines down drastically. It is always free for me. I've never had a heart attack but I am young and bent out of shape. I have liver problems, liver failure not too long ago from autoimmune hepatitis and hepatitis C and probably the drugs I was using around the time. I got clean...but I'm worn out. I get chest pain, shortness of breath, fluttery heart beats, faintness, stabbing pain in the back of my head, incredible pressure in my head, vomiting, and sudden jolts. That's how severe the anxiety is. That's how gnarly clonidine withdrawal is. My resting pressure has hit 200/110 during the beginning stages of clonidine withdrawal because it's a pain in the ass to take anything three times a day and I already have cognitive and memory problems I'm sorting out. I just tried to get off clonidine and benzos at the same time gradually and it almost killed me. I mean over six months. Sorry for the digressions. I take 600mg verapamil a day. Even though it has CNS effects that interfere with school work, a heart rate lowering effect that's hazardous, a pretty easily life threatening and attainable overdose Verapamil is a good step in the right direction of calming your heart and brain down but it can cause problems later in life such as heart failure. That's how good it is at relaxing the heart's electrical conduction for a long term effect on the calcium channels of the SA node or "pacemaker" of the heart. I'm not diabetic but my hepatitis under stress causes my body to not let go of drugs and toxins, then when it's in better shape, all of those drugs flood out of my body and I have a withdrawal from everything. Verapamil helped stabilize that conundrum. The sustained release products like the coated tabs or the capsules are a better option over a long course of time but certainly not right away. 720 mg (and I take 600) is a threshold where life threatening overdose has occurred. But verapamil's anti manic...and somewhat anxiolytic effects...mellow out the mind which controls the perception of everything that's going on in the body. It can contribute to drug overdoses for sure. Not as drastically at therapeutic doses as benzos and barbiturates (since we've all probably had at least one fioricet in our lives for a severe headache). But probably more drastically than a massive dose of gabapentin or lyrica. Clonidine is a wild card drug that anesthesiologists administer to keep vital signs down. Verapamil is used to slow the heart down. Quinidine or similar agents would prevent superventricular tachycardia. Finally verapamil also blocks CYP3A4 and P-glycoprotein. It makes someone therefore more vulnerable to opioid and/or benzo overdose. I'm only talking about this topic because it happens way too often to unsuspecting patients/they aren't educated about it. It also directly combats opioid tolerance. But as with drugs like ACE inhibitors and beta blockers you'll find that patients will stick with verapamil for decades. Verapamil has been a friendly drug to me but those interactions and my own erratic dosing regimen with the clonidine and other medications make me more vulnerable to too slow of a heartbeat or too low of blood pressure but guards against hypertension which is the most hazardous problem I live with. God once I was on nifedipine and doxazosin and vistaril and my heart rate would usually be around 130 and I couldn't exercise. With verapamil and clonidine and even nitrates, I have a better exercise capacity and don't have dangerous drops in pressure that could lead to stroke. Now my heart rate is usually 60-120. I take nitroglycerin for chest pain and I thank myself for having verapamil there to make the reflex tachycardia you'd get with nifedipine or nitroglycerin or alpha blockers tolerable. I'm more scared by a racing heart than I am with a slow heart. I have no endocrine reasons to have this hypertension. I'm dehydrated more than I realize most of the time and it always helps to drink water! Just don't overdo it and you're fine. As with most things. All of this stuff taught me a lesson and I was able to understand and live with a zen approach and unapologetically accept myself for who I am, find purpose, accept this cruel world, and see almost all of my travesties until the end until I've become ten times stronger and healthier behavior wise, with the help of verapamil. It doesn't cause a withdrawal! It's fantastic if you're under too much stress or if your migraines get set off by stress. Unfortunately it takes too long to start affecting you to its peak orally to be a substitution for like nitro or a benzo. I'm here to help you guys too.

I definitely can relate. Especially with the part of can't find the word to describe the fatigue feeling. Best I can come up with is it feels like the flu without the cold & cough. It is frustrating to try to get others to understand, and because they don't, there's no or little support. Keep seeking knowledge and understanding of what to do to make it better for you. There is help out there. There are other people who experience the same thing. It's a learning process to find what works for you. There's helpful info out there. Seek it. Be encouraged that it can get better. 😊👍

Hi this is Jay I have a question I just got onto Verapamil and I have numbness in my lips should I stay on it or what can I do plus I also take thyroid medication as well can anybody help me with this situation that I'm in

Hmmmm Not really liking the idea of keeping the dogs locked up while you're out?

My days and nights which are now years

I heard mine cost 400 bucks

Verapamil saved my life with migraines !

I’m very very sorry 😐. I know when I was on Remicade I felt really good for the most part. Stay strong your a fighter!!!!!!!!!! Good Luck!!!!!!!!!! 😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍

Your video is awesome. 😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍 Hope your doing okay.

Honestly I think you might do better on a new medicine. I’ve had JRA since 2005 and I was Eleven years old. Medicines I have tried 1) Enbrel Orally and Subcutaneously 2) Methotrexate Orally and Subcutaneously 3) Remicade Intravenously 4) Humira Subcutaneously 5) Plaquenil and Rava Orally 6) Cimzia Subcutaneously

Humira made me vomit 🤮. I’ve also tried Enbrel and Methotrexate and Cimzia and Plaquenil and Rava. I’ve tried an Infusion it’s called Remicade.

Thank you. Very helpful, but pleeease speed things up.

I’ve tried Enbrel, Methotrexate, Remicade,Humira,Plaquenil,Rava and Cimzia. It’s very scary because I have a long history of disabilities like Cerebral Palsy shunts and hip displasa. I’ve been through a childhood of 🧠 surgeries and at the age of Eleven I was diagnosed with Polyarticular Juvenile Rheumatoid Arthritis. I also have Cerebral Palsy and when I was a baby I had a stroke. At age 19 I was diagnosed with Osteonecrosis and Osteoarthritis. I might try the Orencia Infusion.

Some people believe that R.A. is caused because they eat gluten. That isn’t true and it never will be.

It takes everyone working together to find a cure.

I 💜 everyone who wants to be courageous enough to take the medicines that are given for Rheumatoid Arthritis. 💖💚💙❤️💜💗🙂😂😂😂😂🙂😂😂😂 I will always continue to support medical research. The theory’s that people believe about R.A. are wrong that’s an opinion not a fact.

This arthritis treatment method “Rοngοdο Ruzο” (Google it) is definitely the best product I`ve ever used for my arthritis joint pain. It`s a wonder. I`m old and fairly active, work full-time, keep a vegetable garden here in South Florida, execute a lot of lifting and carrying bags of soil and fertilizers, and also harvesting and pruning.

Im scared to start cimzia 😔

I can relate 💯% no one understands I've lost friends I'm so tired they think I just don't wanna be bothered my boyfriend? Idk how much more... it's affecting everyone in my life. You're not alone. Rosanna RoseAngel Vacca

I have my first infusion May 2nd. I have severe RA with joint and tendon damage. Im so nervous but cant wait to feel better. Thank you for posting your vids!

Hi what are you taking now and what worked better for you?