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@enchyxxx 4 ай бұрын
What a sad story... But it's incredible how much progress has been done just in the past decade with the CFTR modulators and especially Trikafta (and afaik, another one is supposed to come out in the next few years, apparently it's even better than Trikafta). And there are also various mRNA therapies in development for those who can't take the current meds... It's insane, young people with CF today will probably have a normal lifespan.
@skeptigal2785 Жыл бұрын
I think this is the first time I've heard about a male having CF! Is it just much more common in females?
@karlenebrantleycoleman9687 Жыл бұрын
No. This disease is Autosomal Recessive so males and females are affected equally. It could just be your experience...
@karlenebrantleycoleman9687 Жыл бұрын
Hi Owen: You are growing into such a nice young man. Your dad would be sooooo proud! I'm the person who made this video. Your mom and dad were so generous to do this. Take Care, Karlene
@OwenChannel4002 Жыл бұрын
Thank you guys for saying this stuff it it makes my heart happy because he is my dad❤❤❤
@angieconstantino3281 Жыл бұрын
Amazing persons in this video. I met two girls with CF when I was only 9 yrs old at the hospital In 1979. They both were 11 and were much smaller than me. I once witnessed one of the girls having difficulty breathing and a lot of nurses rushed in the room to help her. I didn’t know what the symptoms were. I shared a room with both girls because I had an accident with boiling water and needed surgery. I’ll never forget those darling girls so sweet and kind. Both girls taught me the lyrics to the song Take Me Home Country Road by John Denver.
@kaitlynhanson1434 Жыл бұрын
😢
@kaitlynhanson1434 Жыл бұрын
R.I.P. Sam😢😢😢
@shantris4883 2 жыл бұрын
💖💖💖
@axonedude9167 2 жыл бұрын
💔
@kaitlynhanson1434 2 жыл бұрын
Me in my age group me and my friends they have me and Jennifer on Sam’s grave.
@kaitlynhanson1434 2 жыл бұрын
It’s as old as someone who can go to the Olympic Winter Games.
@kaitlynhanson1434 2 жыл бұрын
This made me tear up😢
@athenaashby7887 2 жыл бұрын
Back off
@athenaashby7887 2 жыл бұрын
Good for nothing
@athenaashby7887 2 жыл бұрын
You don't have to do anything you don't want to.
@athenaashby7887 2 жыл бұрын
Did you used to get shuned because of the coughing I feel like it did that to me made me feel horrible like I didn't exist and that I had nothing good about myself starship constantly made me focus on everything bad I started feeling suicidal.
@athenaashby7887 2 жыл бұрын
Do you feel good about yourself?
@andresfermin8303 2 жыл бұрын
Estoy buscando un video de un hombre joven que murió de fibrosis acústica en el hammersmith y no consigo ese video tenia de profesion probar los carros de una fábrica y murió de fibrosis acústica Quisiera ver el vídeo otra vez ya en la urna le cantaron esta música Somewhere over the raibow Todos estaban llorando familiares medicos también terapeutas
@andresfermin8303 2 жыл бұрын
Yo no escribí fibrosis acústica YO ESCRIBI FIBROSIS QUISTICA Y PUSE HAMMERSMITH HOSPITAS que no lo pusieron. Le cantaron en su urna creo que está cancion. Todos estaban llorando el no quería morirse SOMEWHERE OVER THE RAINBOW
@annemcdermott1321 3 жыл бұрын
Thank you for sharing this emotional documentary. It touched my heart as a parent who lost my son Daniel at age of 21years. He too was someone who NEVER gave up on ANY of his treatments and did everything he was supposed to do, he was talented both musically and artistically and lived his life to it's fullest. God Bless ALL our dear ones who are now free of their earthly restrictions. X
@carolynlong9148 3 жыл бұрын
God bless those going through the fight of CF.
@ΕιρήνηΛάγιου-κ7ο 3 жыл бұрын
R.I.P. SAM....so sad
@TraumaSurvivorCynthia 4 жыл бұрын
RIP Sam💙🙏 So grateful that the new drug Trikafta is saving the lives of CF patients in 2020!!✌#davesandersstepdaughter
@kaitlynhanson1434 4 жыл бұрын
Rest In Peace Sam 👼🏻
@lb22853 4 жыл бұрын
K
@macbuff81 4 жыл бұрын
This once again makes one appreciate simple, but so necessary things like being able to just breathe freely. Sam's son and wife will have to go on without him. It is truly heartbreaking. It is very frustrating to see someone smoke especially when they are younger. Folks like Sam would give everything just to have a healthy lung while folks who choose to smoke willingly throw that gift away.
@jimbowa 4 жыл бұрын
Hello Karene, thank you for this video, we would like to use it for viewing at our school but for unknown reasons it is being flagged as "Mature" content and we cannot view it. I was wondering if there was a possibility to download your video with permission and upload it to our library content management system with full attribution and reference to you and the original location
@sadie4me2 5 жыл бұрын
😢RIP
@hydie0073 5 жыл бұрын
I found Luke's story very inspiring and I think he's an amazing young man...Thank you so much for sharing your story...I know by sharing you are helping so many people and that's just awesome! Keep doing what your doing it's working...mom and dad you've raised Luke to be an incredibly smart and outgoing person! xo ❤
@hydie0073 5 жыл бұрын
My heart goes out to you Sam..I can't imagine how it must feel not getting enough air...my thoughts prayers are with you and your family! Stay positive and keep the faith...hugs Btw...your nurse and Dr. they are absolutely amazing...not only as caregivers but as people!!
@Youre_Right 2 жыл бұрын
Did you not watch the video? Sam passed away. You’re commenting like he’s still alive.
@hydie0073 2 жыл бұрын
@@Youre_Right Sometimes its a real virtue to keep your thoughts to yourself...you should try that...have a beautiful day...
@HaydeeStoffelTV 5 жыл бұрын
Does the baby have CF?
@karlenebrantleycoleman9687 5 жыл бұрын
No.
@HaydeeStoffelTV 5 жыл бұрын
People we must bring awareness to this horrible horrible disease!!!!! The saddest video ever!!! I
@hydie0073 5 жыл бұрын
I was so hoping he got his new lungs...He just looks like such a sweet loving man...To Sam's wife and son I'm so so sorry for your incredible loss...I hope you and your son are doing well..I cried through the whole video but when he said he would have the transplant I balled like a baby...happy, excited tear's then when he said he passed away on the waiting list it broke my heart! Sams son will know he has an amazing dad watching over him...He was so positive and such a fighter! RIP SAM...❤👪❤
@lindseysloan8735 5 жыл бұрын
What a sweet doctor.
@creativecoffee1508 6 жыл бұрын
I'm sorry for your loss.
@alisonwatts972 6 жыл бұрын
So sorry for your loss. At peace with the angels now.x
@deborahkelly1489 6 жыл бұрын
What a beautifully done video. I found myself very emotional watching this . I have a different chronic disease and have only one functional lung . I am sorry for your loss. I hope this video does what it was designed to do. It is full of hope .
@karlenebrantleycoleman9687 6 жыл бұрын
You are so very kind and I hope for the very best with your journey. Karlene
@karlenebrantleycoleman9687 6 жыл бұрын
I think Sam did the best he could at the time. He was so hopeful through research a drug would become available that would allow him to not go through a lung transplant that has a limited "lifespan" itself. It was his decision and his wife supported him the whole way. As for his son, he is growing and thriving and he and his mom have an incredible support system of friends and family. I cannot imagine a world without Sam's son in it. He is amazing and brings joy to so many people.
@HaydeeStoffelTV 5 жыл бұрын
Karlene Brantley Coleman Hi first of all I am so sorry for your loss! My son in law has CF he is 26, on waiting list for double lung transplant.
@Tomahawk1999 6 жыл бұрын
extremely irresponsible of sam not to have a lung transplant. the poor kid will grow up without a dad.
@theyankeegal13 6 жыл бұрын
Tomahawk1999 I'm sure he had considered a transplant but a transplant at 18 is hardly the best idea, especially if the person had a college plan. Maybe he wanted to make sure that he understood why he was doing it, making time to commit to the recovery and understanding the risks. Remember decision, time and risk are always the three most important things
@TheMusikat 5 жыл бұрын
How do you know he didn’t consider a transplant? Maybe he was on the list and didn’t get a match in time. Maybe the doctors determined he wasn’t a candidate. For a lung transplant, there’s only a 50% chance that a patient on the list will get a transplant because there aren’t enough donors. Even those who get a transplant, there’s still only a 50% chance they will live five years. You need to educate yourself before making judgmental comments.
@franny5295 3 жыл бұрын
The 5 year life expectancy is only 50%. That's part of why I didn't have one. Lungs don't like being transplanted. They get inflammed with rejection and you die.
@carsonsmith8362 6 жыл бұрын
What are tax dollars should be going to.
@michellewr5961 6 жыл бұрын
What’s that thing in his nose called ?
@karlenebrantleycoleman9687 6 жыл бұрын
It is a nasal canal to deliver oxygen.
@connorbradshaw2268 6 жыл бұрын
Was lung transplantation never considered for him?
@karlenebrantleycoleman9687 6 жыл бұрын
Unfortunately Sam got too sick for a lung transplant before a donor could be found. Karlene
@karlenebrantleycoleman9687 6 жыл бұрын
Thank you so much Jorge! You are so right about the baby and how much love he brings to Sam's wife.
@raefcon9816 6 жыл бұрын
I cried like a baby. He left a part of him with his wife; a mini SAM!
@Justice824 6 жыл бұрын
kzbin.info/www/bejne/faS9kqh_o9qYqas
@beetle2147 6 жыл бұрын
Apparently there's been a breakthrough in cf but I don't know what it is
@gryffindorlife9446 6 жыл бұрын
Lebrun James 214 probably orkambi that you have heard about. It’s a drug that slows down the destruction of the lungs and is adding so many years onto people’s lives. It’s incredible however we cannot get it on the nhs as it’s too expensive. There are many people trying to get it here but we don’t know if it will be accepted. My cousin has cf and it will be so amazing for him.
@ap4702 6 жыл бұрын
Gryffindor Life its for a rare and specific mutation
@gryffindorlife9446 6 жыл бұрын
A P it is proven to help around half of people with cf
@jameshubacher2585 6 жыл бұрын
I've known a few people who have had this disease. Very Sad.
@TaigaNine 6 жыл бұрын
Rest in peace Sam. you will be remembered :(
@MeliannaK. 7 жыл бұрын
People with cystic fibrosis should all go vegan. Red meat and dairy products produce mucus. Eat lots of fruits and green vegetables.
@chaimshmuel7746 7 жыл бұрын
Great video but I think a better analogy for her opening statement would be getting to the same place but just by different means of transportation because you don't want to allow the medical condition to dictate where you end up in life but rather the route one takes to get there...
@Erinnsproductions 7 жыл бұрын
I have cystic fibrosis and received a double lung transplant. Please check out my inspirational video at: kzbin.info/www/bejne/moPQf2h6g7ONr6M
@lynnam1648 7 жыл бұрын
I am studying cystic fibrosis and i was trying to understand all about it so i looked it up in youtube and watched this video and it really touched me. Being a medical student means sometimes we forget that there are real people suffering from these diseases, Sam may failed in his battle but he had a life filled with love and success.. may he Rest In Peace
@karlenebrantleycoleman9687 7 жыл бұрын
Thank you so much Lynn. If you are going to this length to learn about patients with this disease, you are going to be an outstanding physician Karlene
@frankiekohl1593 3 жыл бұрын
Sam did not fail in his battle. That was in bad taste to say that. I too have an illness everybody has their own Journey.
@Youre_Right 2 жыл бұрын
@@frankiekohl1593 He died. As long as you fight as hard as possible. To fall short or fail isn’t a negative. It’s just the way it happened. Also this is a world wide community it’s narrow minded to assume everyone’s first language is English.