I was told by my physiotherapist that there is no cure or pink colour for this is this true??

Magnesium

PLEASE READ .... If you've been diagnosed with this, like ,I was ... *without* an MRI, EMG, NCS, and basic bloodwork ... PLEASE go get a second opinion. I actually did NOT have #FND, and testing now shows my neurological disease is too late to treat ... I am terminal. Please be careful ... true FND is real, but it is very rare. Since 2020, they are overusing thus dx. See a neurologist and DEMAND tests. In my case, I had both CIRS and hATTR.

Prima delle crisi devi fare la respirazione diaframmatica

FND is sooooo fake. No tests. No symptoms. Fake seizures. Video taping their own seizures or talking to their doctors while having a seizure. All attention seeking behaviour.

I have had FND for 8 years but just 3 years ago I got diagnosed and I'm still waiting for help on how to manage or get any physical therapy. please respond I live in Washington State in The USA. Thank you

Thank you, for sharing I just recently got diagnosed with FND. 🙂

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I have both ms and fnd so I see myself as a broken computer

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Is it after dental precedure?

This was the best explanation I have seen! I’m going to share with my friends so they known what I suffer from😊

Thanks. Merci

this is only the beginning of what's coming towards the advanced nation states. Lots of mental issues coming with kids.

I have facial spasiums but not like this

This hurt my heart 😢

It’s been 3 months and I still can’t walk properly and not on my own even with crutches 3 months ago I was a perfectly normal 30 year old with just your regular human things: stress, anxiety, depression, had been abused by a landlord, had appendix surgery, gallstone pain, ear infections amongst other things. I know that kinda sounds like a lot but I guess everyone has their own problems and some have it much worse than me Still, 3 months ago I was a regular person walking about going to work and living a somewhat normal life Until out of no where my limbs began to be weak and give out, and twitch and spasm uncontrollably I can’t use stairs anymore, I have fallen a lot of times and gotten bruises It’s very stressful Even when I don’t think about it even in bed, my limbs still have a kind of their own and sometimes my hand hits my face or just won’t stop moving like my leg I just wanna be able to walk like I used to 😞

Mr. Stone, someone recommended your work in a social media post. My wife was diagnosed with Conversion Disorder around 2004 at Mayo Clinic. She was having tremors that were seizure-like. They recommended that she go to counseling and she went just 2 or 3 times and stopped because she didn't want to be psychoanalyzed and that her tremors stopped. Now, so many years later, she fights battles of frequent migraines that she says comes on by her sinuses (allergies), smells, beef, etc. We spent tens of thousands of dollars in tests and the doctors couldn't find anything. She'll say things like, the mold in the A/C of the car is making her sleepy or giving her a migraine. I have asthma, if I get into contact with mold, I have an immediate reaction and can't breath. This never happens in the car. Any time I try to ask if she thinks it's FND, she gets offended. Can FND manifest stress into migraines? If so, what can we do?

You jon stone are a fraud go away in my opinion you have destroyed many lives here in the United States with your KZbin videos and book someone should investigate you in my opinion your a fraud my family members life has been destroyed and neglected because of you and your wrong theories

Why is she facing ??

What is the treatment plz tell me my dad suffering last 20year and we can't find the treatment in India. So if you have any information about the treatment plz tell me.

Neuro I Monday im.scared not diagnosed

What a wonderful mini-documentary on this a largely unknown and unpredictable disease. My daughter Grace, 16, has been to every "ologist" in the book. Like everyone else here, most doctors did not know how to deal with it; but we found the best knowledge falls through the cracks of disciplines so we organised school, neurologist and psychologist to group chat which helped everyone understand. As the Westmead Children's Hospital functional seizures unit booked out for 9 months; we sent the health professionals guideline to a private hospital who have been wonderful in supporting Grace (she is currently there now). It's so wonderful to hear some positive stories too! So very grateful to you Jon for sharing this and also showing that these young people - despite their affliction - are so resilient, innovative and resourceful. Might also point out that hypnotherapy was enormously helpful for us too. Jerry Knight Newcastle (seizures went down last week from 10 to 20 a day, one 21 minutes, down to three or four a day mostly a minute or two.

After all the years of having Menieres diseases and constant ear ringing , it is nice to sit in a quiet restaurant without anything bothering me. Even the fullness in the bad ear is hardly noticeable. And the constant ear ringing is gone.Took 4weeks ?thanks Dr Liam Ogbebor centre on KZbin for the tinnitus program and herbal ear drop treatment and I hope it stops for everyone else sooner.

Even I am facing same ,but the cause is trauma in my case

This can be result of trauma too,what caused you this? Which dctr you visited? What kind of exercise, physiotherapy, test mri ,scan ?? What ? What ? And more important how is it now????

Which channel is this where no response????

Is it cured???

FND PATIENT OF SIX YEARS

My neuro wants me to try neurofeedback because I have mostly sensory FND

What about inflamation in the body? And how good food can heal us?

How are you doing now?

Is it cured?

How did this happen to you??? Are you fine now Is it curable One person said 20 yrs she had this ,is it cured???

Pls let me know abt your present condition

Is it cured?

Is it cured ,are you alright now

Quelle est la différence entre une tnf et les maladie dites dégénératives l (stylé à corps lewy Parkinson Alzheimer)

Ok

A silly disease to Homeopathy

Please can somebody help me? How do I try to stop head tremors?

Cobblers. I was diagnosed with FND twice a year apart by a neurologist who didn't see or at least discuss any positive signs whatsoever. I was diagnosed with FND based on her view that the Pfizer vaccine couldn't possibly cause neuropathy. Nearly two years later with completely numb toes and feet and no ankle jerk reflexes I have been told by a different neurologist that I have an idiopathic neuropathy. I accept that FND can be a useful diagnosis for some people but far too often it is used as a rubbish bin to throw people into. Kick the can down the road, get this patient out of the clinic kind of thing.

I have the same condition but now my surgeon prescribed a ankle support device to help relearn the position of the hip/leg/ankle of the left side.

My wife's been diagnosed with this - anyone recovered to a decent degree ?

Bonjour monsieur le docteur, je vous remercie de cette vidéo explicatif. Cela m’a permit de comprendre qu’est ce que c’était ainsi que pouvoir comprendre qlq’un qui malheureusement possède ceci. De ce fait, je peux mieux comprendre ce que cette personne comprend et je lui attribue tte ma force même si cette personne là est déjà très forte et qu’elle prend bcp sur elle, je la respecte à fond ! (Si tu vois ca, continue à te battre car tu le fais déjà très bien, t’es une battante) !! 🧏🏼‍♂️

I believe I've got functional gait disorder now, with the orthostatic tremor, GP is now suggesting wheelchair referral whilst waiting for neurology, I can demonstrate when concentrating on walking, as if balancing a few books on my head, that the ability is there, but try doing it all day....

If it’s not real I deserve an Oscar!

I was misdiagnosed by a hospital with fnd because I have a history of anxiety, i was having seizure like symptoms. Constant tremors for an entire week. They kept insisting it was anxiety or fnd because there was nothing wrong with my brain so I wasn't having a stroke. It turned out I had a dislocated disc in my back that was pinching the nerves and i ended up fixing it myself accidentally. I was still in hospital on my birthday and I feel angry that I was dismissed and ignored for saying that I knew it wasn't being caused by anxiety.

12 years old? I didn’t have so much self awareness at 30

It breaks my heart to see all who suffer with this and yes it is harder not knowing than knowing; at least knowing gives you a fighting chance. The evolution can be complex and even the best neurologist can be confused by it. As all have described, it takes years sometimes to find someone familiar with fnd and how to test and what to look for. It’s a hard dark road but light in the distance. Thanks for sharing your experiences. It gives us hope.