Ugh, FND...the bane of the existence of zebra patients.

FN diary

sounds like lets through everything at it as we really don't know what's actually cause the mix of symptoms. there seems to be no real why or how and its not real by been real at the same time. meanwhile people are experiencing a problem. there is no real logic been used here

this and your website looks like aa massive act of gaslighting to be honest with you

I suffer from this disease. Thus, your info is very helpful. Thank you ❤

Trent Rest

Lopez Elizabeth Thomas Thomas Jones Deborah

Pascale Causeway

Willard Center

What makes it Functional, Dr Stone? Is it the 'incongruence' theory you recently came out against?

Jackson Brian Robinson Mary Thompson Michelle

On vient de me diagnostiquer cette pathologie, après une greffe cardiaque j’ai énormément souffert et été incomprise. On m’a tjr prise pour une malade imaginaire ce qui m’a fait douter de mes propres capacités et développer cette maladie :/

Thank you for identifying recovery is a possibility. So many seem to think FND is a lifelong problem but this shows with good psychological, physiotherapy and ot services there can be a lessening of symptoms. Have hope for recovery and understand an end to FND can come.

Hernandez Maria Jones Laura Jones Susan

That's how I walk now. Just diagnosed with FND, looking for some hope here on this channel.

I have this caused by a glomus jugular tumour facial symptoms led to diagnosis .

Is she having a stroke?

Isthereacure, ❤😢

Getting the same problem since last year I was getting stressed out last year big time.

Yes I have both ms and fnd

My “specialist” told me that there’s no treatment route for the disorder. A lot of these so called specialists have no clue what FND even is.

The patient's mind is so concentrated on performing the act the neurologist is asking them to do they forget to concentrate on what was the problem. Real disorders of the mind do exist and can be treated - Dr explain simply what Hoover's test has shown you and that is movement and strength is clearly there when the patient is focusing on something other than weakness, lack of movement etc. There should be no stigma surrounding mental illness but I find fnd as a label stigmatises the disorders of the mind by virtue of the fact you are ruling them out and using the title FND. Give reassurance the physical tests rule out degenerative illness (which is good news) and explain the disorders of the mind which allows patients to understand the mind/body connection and if explained properly Conversion disorder should not be a demeaning diagnosis but instead one which explains how the mind can cause symptoms which one can recover from. No one is suggesting the patients are making up Conversion Disorder symptoms and it is demeaning to some medics that FND is used to dismiss the thought that they are. Patients are less likely to recover if they are bamboozled into believing Hoover's test has shown they have fnd which many still explain is a rare Neurological Disorder. Simply explain there is no physical cause for symptoms to exist and help the patients understand the mind/brain connection which causes stoppage of or change in movement.

Où trouve t on une prise en charge comme celle là

I was told by my physiotherapist that there is no cure or pink colour for this is this true??

Magnesium

PLEASE READ .... If you've been diagnosed with this, like ,I was ... *without* an MRI, EMG, NCS, and basic bloodwork ... PLEASE go get a second opinion. I actually did NOT have #FND, and testing now shows my neurological disease is too late to treat ... I am terminal. Please be careful ... true FND is real, but it is very rare. Since 2020, they are overusing thus dx. See a neurologist and DEMAND tests. In my case, I had both CIRS and hATTR.

Prima delle crisi devi fare la respirazione diaframmatica

FND is sooooo fake. No tests. No symptoms. Fake seizures. Video taping their own seizures or talking to their doctors while having a seizure. All attention seeking behaviour.

I have had FND for 8 years but just 3 years ago I got diagnosed and I'm still waiting for help on how to manage or get any physical therapy. please respond I live in Washington State in The USA. Thank you

Thank you, for sharing I just recently got diagnosed with FND. 🙂

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I have both ms and fnd so I see myself as a broken computer

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Is it after dental precedure?

This was the best explanation I have seen! I’m going to share with my friends so they known what I suffer from😊

Thanks. Merci

this is only the beginning of what's coming towards the advanced nation states. Lots of mental issues coming with kids.

I have facial spasiums but not like this

This hurt my heart 😢

It’s been 3 months and I still can’t walk properly and not on my own even with crutches 3 months ago I was a perfectly normal 30 year old with just your regular human things: stress, anxiety, depression, had been abused by a landlord, had appendix surgery, gallstone pain, ear infections amongst other things. I know that kinda sounds like a lot but I guess everyone has their own problems and some have it much worse than me Still, 3 months ago I was a regular person walking about going to work and living a somewhat normal life Until out of no where my limbs began to be weak and give out, and twitch and spasm uncontrollably I can’t use stairs anymore, I have fallen a lot of times and gotten bruises It’s very stressful Even when I don’t think about it even in bed, my limbs still have a kind of their own and sometimes my hand hits my face or just won’t stop moving like my leg I just wanna be able to walk like I used to 😞

You jon stone are a fraud go away in my opinion you have destroyed many lives here in the United States with your KZbin videos and book someone should investigate you in my opinion your a fraud my family members life has been destroyed and neglected because of you and your wrong theories

Why is she facing ??

What is the treatment plz tell me my dad suffering last 20year and we can't find the treatment in India. So if you have any information about the treatment plz tell me.

Neuro I Monday im.scared not diagnosed

What a wonderful mini-documentary on this a largely unknown and unpredictable disease. My daughter Grace, 16, has been to every "ologist" in the book. Like everyone else here, most doctors did not know how to deal with it; but we found the best knowledge falls through the cracks of disciplines so we organised school, neurologist and psychologist to group chat which helped everyone understand. As the Westmead Children's Hospital functional seizures unit booked out for 9 months; we sent the health professionals guideline to a private hospital who have been wonderful in supporting Grace (she is currently there now). It's so wonderful to hear some positive stories too! So very grateful to you Jon for sharing this and also showing that these young people - despite their affliction - are so resilient, innovative and resourceful. Might also point out that hypnotherapy was enormously helpful for us too. Jerry Knight Newcastle (seizures went down last week from 10 to 20 a day, one 21 minutes, down to three or four a day mostly a minute or two.

After all the years of having Menieres diseases and constant ear ringing , it is nice to sit in a quiet restaurant without anything bothering me. Even the fullness in the bad ear is hardly noticeable. And the constant ear ringing is gone.Took 4weeks ?thanks Dr Liam Ogbebor centre on KZbin for the tinnitus program and herbal ear drop treatment and I hope it stops for everyone else sooner.

Even I am facing same ,but the cause is trauma in my case

This can be result of trauma too,what caused you this? Which dctr you visited? What kind of exercise, physiotherapy, test mri ,scan ?? What ? What ? And more important how is it now????

Which channel is this where no response????

Is it cured???