Hi Neil & T , thinking of you both & wishing you the best. Me? Awaiting a Mri head & full spine w contrast,after VERY long overdue neuro consultation cple months back ,waited just over 2 ½ years, had to chase multiple times) various lifes ups n downs, eldest moved out of home so changed dynamic at home. Some improvements or improved ways of dealing with life mentally ( a v good Counsellor) , symptoms much the same, still no answers & stuck.my head in the sand alot of the year , not bothered with gp ( last saw him spring) as he does sod all to help. Take care both xx

I been taking LDN for over 13 years now!!!

LDN is the ONLY ANSWER!!

Merry Christmas Neil I hope you are doing well!!

Merry Christmas Neil and Teresa. Forgive me if i got the Misses name wrong! I have followed you since i can't remember when! Thought of you guys today. We've messaged a couple times back in the day. I actually found that I also have Hereditary Spastic Paraplegia. So thats fun. I see by your recent comments that you are doing ok. I hope thats true. Never give up sir! 8ve always enjoyed your videos. Merry Christmas and a Happy New year!

Im an MS Patient too. Does anyone felt numbness throuhout the body as a symptoms of MS?

When I got my puncture I started pouring sweat. Like you could hear it dripping on the table. Now EVERY single night I sweat so hard in my sleep I have to live alone. This is one procedure I'd never suggest anyone to get.

At the end of this video, I said, the ultimate question is how long will it last? The Answer: NOT LONG. Watching this now (22.12.2024) is very upsetting as it was only two years ago. Now, I’m unable to take a single step without holding on, otherwise I’ll be on the floor. My mobility is currently on a significant decline.

I am also diagnosed with MS 😢😢first I had flat foot than double vision now I feel problems in walking with my right leg 😢😢😢

Thinking of you two over there in the UK. Best wishes for the holidays. ♥🎄

not sure if your still ok. not been on much myself hope so but scared to ask. Merry xmas Neil well to both of you.xxxxxxx

All the best, mate 👍

I was thinking of you both, and came on to check on you. Then I read below that you are no longer doing videos, but keeping track of the comments. Glad to hear that. I think you and I are in almost the same exact place, reading your responses to others. Very tough stuff, isn't it? Still, we live on, with almost unimaginable difficulties every day. It takes a strong person to do what we do. You are a man of great courage, Neil. Remember that.

I was put on ropinirole.and i had it severe .sometimes in my face .this med has got it under control

Hey Neil, do you think you'll ever do a video again?

Thanks for the description of MS hug

Turn to Jesus He loves you, He is the healer of the body And savior of the soul, There is True Hope in Jesus, God protects Psalms 91, He is the God of miracles Acts 2:21 And everyone who calls on the name of the Lord will be saved Jesus alone saves Trust Him with your salvation John 3:16 1 Corinthians 15 1-4 Moreover Brethren, i declare unto you the gospel which i preached unto you, which also ye have received, and with wherein ye stand By which also ye are saved, if you keep in memory what i preached unto you, unless ye have believed in vain, For i delivered unto you first of all that which i also received, how that Christ died for our sins according to the scriptures And that He was buried, and that He rose again the third day according to the scriptures, Take care

YES!!! you described my dreams to a T. I never am in a wheelchair in my dreams, I'm always running or walking and MS is Never even a thought. Until I wake up

Wow, this just happened to me. Diagnosed with MS in 2014 and never experienced an MS Hug. I thought I was dying and called 911, very painful and hard to breathe. It lasted about an hour and a half. I took a Baclofen before the ambulance arrived and about 10 minutes after arriving at the Emergency Room the pain stopped. Durring this time they monitored my heart, took blood, and Xray. All came back normal so I'm guessing it was an MS hug. Thanks for posting.

I know what problems you have I rely relate to you problems I have lost my dear wife and I live in a first floor flat I walk with 2 crutches as my legs will suddenly fold up under me so going down 13 steps I have to go on my rear but when I am on my scooter I am free. I have some wonderful neighbours who will take my rubbish to the bin and will do little bits of shopping for me. Please look after that wife of yours she is your best friend I know I miss mine badly. Take care best regards Ken

I also am a scooter rider, I have 2 scooters one I keep in my shed and the other is in a garage which is too far for me to walk so I can get to my shed JUST so the smaller one takes me to the garage so I can use my bigger scooter. if you have to use a dropped kerb make sure you take them at right angles a lot safer and just take it easy until you are more used to your scooter. If you watch you tube there are many videos on staying safe. Best regards Ken.

Praying for you sir. Please don't give up!

I just got my first full dose of Ocrevus. Didn't sleep much last night. I hope this makes me feel better. Continuing to pray for both of you.❤

Anyone know what happened to NB?

This was me last year..worst i developed ulcers ..9 months of wound care.

I had a pain pump installed to deal with chest pain. It's saved my life from MS hug, transverse militias

I have not been diagnosed but this is one of symptoms that got me into the MS rabbit hole.For me it it happens everywhere, mostly right leg, arms, hands, neck but sometimes it happens without the “warning”. It’s very disturbing and annoying.

Hello from across the pond! We miss you sooooo very much; praying all is well🙏🏻 How are your gardens this year and your bird friends? Our gardens drowned out by all the rains we've had😢 and the birds have been keeping our Ruby kitty busy on her perch by the window😂 Know that you two are loved❣️

I tried coming off pregablin it made me so ill sickness, shivering and hot, unsteadiness very agitated diahria my whole body ached and my teeth and gums where so sore too,I had to re start it again and to not just stop taking it and follow my gps advice xxxx

My daughter gets this in her arm. She never knew how to describe it, your description is perfect.

Omg how much you can take 🙏😞 Without sleeping s terrible

Horrible side effects 😢 omg what is that epilepsy types of side effects 🤔😱

I’ve had those symptoms for 3 1/2 years with a neurologist and he said everything’s fine I have the same pepper burning you have in both legs now I have problems walking so I’m getting a second opinion from another neurologist. I I am a runner. I can’t even run a mile now I’m very fit. All my blood work comes back normal at the same type of problem with my spine pushing against my nerve root the sack I’m just feeling from you I don’t think I will get an operation on it my left and right leg. Stay numb all day long even when I’m driving. Thank you for your feedback. God bless.

Hi first of all wish you the very best, during your first symptoms did not you have any l'hermitts phenomenon, and when your first neurologist saidd it is traversal mylopathy did you upper motor neuron tests (like babyniski,and there are other to test) came positive

Hello. I’ve been searching for years to find someone who knows how it feels like.. I’ve been diagnosed with RA and fibromyalgia years ago .. and the RA injections did not work (at least till now.. I’ve tried 3 different ones) but .. 2 years ago I started having a constant corset like feeling .. really tight around my ribs and abdomen.. it’s not getting better even with anti inflammatory or ice/heat .. I have to wear a bandage like thing around me all the time just to trick myself etc .. also the chest pains are non stop too… I have to press on my chest and sides all the time.. and weird numbness and pulling sensation on my chest/neck/face area .. all the time too. Sorry for the long comment. I’m in my 20s and in pain and tightness 24/7 .. can’t even lie down cause it gets worse .. headaches and pressure in head and face too.. it’s just so messy and I’m always in panic.. I have really bad health anxiety with all the things that I’m going through. I hope you found something that helps you feel better though and thank you for posting helpful videos for all of us!

I got Yag appointment coming soon…

I'm having strange symptoms I think it's MS. Recently I got a, zap and now where it has started my ass itches like hell. I have dizziness, weird emotions, ear ringing, flinching, spasms, weird skin sensations.

Hi Niel, I have now finished my video in detoxification as a treatment for MS. Could you please take a look and let me know what you think? I used to watch your videos many years ago when I had some MS like symptoms. Cheers

Is puffy eye one of the side effect sir?

Hello sir. How are you now?..

How are you? ( 25.8.24) I've had a chaotic year, hope you're both OK? Best wishes xx

If you notice exhausting SymptoMS help facilitate Neurovascular Disease MS Research If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. Eliminating the cause of SymptoMS SO CALLED called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely! Diagnosis so called Multiple Sclerosis every Season change can see the introduction of new SymptoMS and possible heightening existing! #CCSVI Everything is great with so called Multiple Sclerosis depending what side of the Track you are on 10+ years fighting for the best possiblity eliminating the cause of the Symptoms! #CCSVI If only the availability Medical Scientific Clinical Trial Research! If you noticed..... Matthew - CCSVI and his Liberation Treatment Matthew FB Group: MultipleStenosisSociety t.co/PkskR16OXN Dr. Bill Code 2011 FB Group: MultipleStenosisSociety t.co/gWnhQ1AC6k Italy where the Medical intervention originated with Dr. Paolo Zamboni Professor of Vascular Surgery from Ferrara University Italy. Venous Angioplasty treating CCSVI liberates or frees blood flow alleviating often easing or eliminating Symptoms of Neurovascular Diseases. Iron is an essential element for blood production. About 70 percent of your body's iron is found in the red blood cells of your blood called hemoglobin and in muscle cells called myoglobin. Hemoglobin is essential for... FB Group: MultipleStenosisSociety t.co/JklA0Ve1q1 As much inflammation from Iron accumulation is a significant causative factor bringing free radicals response in the pathology of Multiple Sclerosis and Neurovascular Diseases in the recognized Medical condition CCSVI disease process! #CCSVI Venous Hypertension >microbleedings >IRON >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Cerebral micro-bleedings (CMBs) are small chronic brain hemorrhages that have many side effects. For example, CMBs can result in long-term disability, neurologic dysfunction, cognitive impairment and side effects from other medications May 17, 2019 t.co/rhmrQ9D4uG › full Many feel and KNOW so called Multiple Sclerosis is a vascular mechanical issue that should NOT be Solely Treated by Neurologists! #CCSVI #BloodFlowMatters Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY afflictionutoimmune vs CCSVI Treatment By Berukoff FB Group: MultipleStenosisSociety m.facebook.com/groups/493935520792751/perm MS Many feel and KNOW so called Multiple Sclerosis is a vascular mechanical issue that should NOT be Solely Treated by Neurologists! #CCSVI #BloodFlowMatters Important Debate Liberation MS Society Part 2 by Berukoff FB Group: MultipleStenosisSociety m.facebook.com/groups/493935520792751/permalink/1920670818119207/ Help facilitate NeurovascularDisease Research Collaboration! When Recognized Medical Condition CCSVI is Treated w/Venous Angioplasty MS Symptoms often Ease/Disappear!! Kathleen 2 years Angioversary t.co/VF3QFyuRDJ CCSVI Treatment vs MS Autoimmune t.co/VTtS6nckM1

I'm still trying to get a diagnosis myself..August 22 2034 now. Still so many symptoms & srmray so ill. New neurologist appt soon i hope. I'm for them to call me with appt. 2 abnormal Brain MRI's. Plus Brain Volume Loss/ Brain Atrophy diagnosis in 2023, June 26 Last Brain MRI's. Enhancement on periventrical are. Still have soells bedridden/ & bedbound. Then after 2 months, in bed off & on. A little break again, and drive after 1 1/2 Month's down. I had a flare of something, June 26 2024 where i guess i was trying to write a check, and me & husband noticed i couldn't spell several words correctly. 😮 goofy. I hv done that before but been awhile. Its scary. Legs & feet terrible. Exhausted beyond believe. Trouble sleeping. On heating pad most if time, legs & feet feel like in a bucket of ice water, to the bone, marrow!!!

I'm still waiting on a new Neurologist. 2 abnormal MRI's. A lot of symptoms. Still. Possibly MS ? Well See?

I have been so ill for about 7 years. Started legs & feet. Too much to go through here. But i hv 7 Dr's now, specialist. I'm 61 now. Bed bound mostly, off and on. Neuropathy bad!! I hv to hv heat on feet most of time. Heating pad. Numb legs & feet. I feel as if I'm in a bucket of ice water freezing my bones. Deep cold. I can't get cold or hv cold a/c on me. Pain level of 10. I can get out of pain if i get on Heating pad. Sometimes feel like cold water running- trickling donw my legs sometimes. A wet/ cold sensation. My nerves dying off dr says. I had a spinal tap 4 years ago from hell. Headache for 3 months super duper bad!! Had a spinal leak, come to find out. Pin hole, too late to do a blood patch dr said 😮 horrific! It's been an on going thing throughout my whole body. So many symptoms can't list. 4 years ago rulled out MS. But was told i might still hv it or end up with it. 😮? Now i hv had 2 abnormal brain MRI's. The last one June 23- 2023. Showed more whit enhancements periventrical, plus now, Cerebral volume loss 😮. So I'm waiting to see another Neurologist again now. Let you know when i know something, here ok. I already hv 3 autoimmune diseases. 1.Graves disease 2.Sĵodrens disease 3. Small Fiber POLYNEUROPATHY ect. I do hv times with writing odd things, misspelling. Walking, words, talking, on certain spells. But not often. My legs & feet are the most. But sometimes whole body symptoms. Bedridden sometimes for weeks till spells subside. But I've never really gotten any clear diagnosis for all these symptoms i hv. Numerous. Cognitive isses, fatigue, exhaustion at times are unbearable at times. Pure misery & pure HELL sometimes. Never feel good, just some days are better than others. Optic neuritis 2 years, 4 years ago. I don't feel like me anymore. Brain farts a lot lol 😂 brain episodes. Muscles ect. I will be back here, on this channel. Thank you for video i subscribed 😊i enjoyed reading all the peoples comments too, thank you ALL.

Thinking of you and Teresa and praying for you to know God loves you and will hear you call on Him in the midst of suffering. Blessings Frank and Kerri Arceo

Praying that You, Teresa and your Mom are doing better and everything is ok. Keeping you all in prayers. Haven't seen post in a while, miss you guys!

I’m sorry you went through all of this I myself am having a brain mri done in a few days I’m very nervous.i have had some symptoms of ms for many years and I am now 50 years old I finally got a new doctor that actually listened to me and ordered this mri we are starting with a brain scan I will also see a neurologist but for many years I would just get my symptoms dismissed and now for the last two months I have had like these episodes and I have all the symptoms now they hit me all at once it started with blurry and double vision headaches that still haven’t gone away pressure headaches also tingling in my extremity fingers to elbows toes to knees won’t go away now it numbs up during episodes of whatever is going on then I get like a boa constrictor wrapped around my rib cage pressure on my abdomen and sometimes chest makes it hard to breathe at times also can be very painful at times it’s hard to walk or relax always having muscle spasms and stiffness . My face gets numb there is even a stabbing pain in my face and also in my neck it’s so stiff and stabbing pain shoot down into my spine . Sometimes eye movements are painful to . I’m clumsy now also and stumbling. It’s embarrassing. Sometimes with the stiffness my knees won’t bend right stairs are hard all of this just won’t go away non stop over and over daily two months .i can’t sleep well the itching all over the spasms and squeezing wake me up and urge to urinate I’ve also lost 40 lbs in 4 months with no changes in diet . I’m thinking they should have listened to me more before I seen a neurologist once he said my gait was off some and dimissed me lol 😂 oh and because I felt his touch same on both legs I was ok at the time. I went to er a few times for stroke symptoms and nothing . Swallowing found nothing.i think this time at 50 years old we finally will . The burning and shooting pains are so painful I’m sorry you have that I get what your saying never experienced it like these last two months before though just here and there . Again I’m sorry for your experience and I hope I get answers to mine.

I can’t tell if I have the MS hug or costochondritis :/ it flares bad for 5 minutes or so then goes away

Does running or walking or exercising makes your symptoms worse. Does it get worse after eating carbs