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@RonaldMartin-o5y 2 күн бұрын
You're doing a fantastic job! Could you help me with something unrelated: I have a SafePal wallet with USDT, and I have the seed phrase. (alarm fetch churn bridge exercise tape speak race clerk couch crater letter). How should I go about transferring them to Binance?
@kimbrown2787 9 күн бұрын
My daughter is 37 and has PWS… I fell upon your video, however, I had no idea what the trial was for until about 4 minutes in. Then, immediately lost again. Is this video meant for professors and med students?
@ankeetsharma3186 2 ай бұрын
Hoping for positive outcomes in phase 2 🤞🏼
@ankeetsharma3186 2 ай бұрын
Thanks for update! Hoping for better results in low dosages 🤞🏼
@ceciliapuime4038 7 ай бұрын
I’m getting testing for this . I’m scared
@IPWSO 7 ай бұрын
Thanks for reaching out to us. I hope you're well. If you need any support through the testing process, do contact our advice service, ipwso.org/how-we-can-help/advice-service/ where can help provide information for you, your family and your professional health workers. take care,
@jacquischwarz5263 10 ай бұрын
Can an adult person only get it as a child or can the person who is an adult just start getting PWS? I am always hungry; I take meds for bipolar disorders and most times I eat cake and custard and other food; but I feel like cake and custard helps me to calm down; but most of the time I get this hunger pains; and cannot sleep or concentrate when I get that feeling
@IPWSO 10 ай бұрын
Hi, PWS is present from birth. Sometimes people get diagnosed later in life, but the signs and symptoms would always have been there. You can find out more about diagnosis on our website: ipwso.org/information-for-medical-professionals/diagnosis/
@vinitham1359 11 ай бұрын
Behavior problems means what??? Can you say one example???
@IPWSO 10 ай бұрын
It can be things like verbal outbursts, physical violence, meltdowns, self-harm. It can happen sometimes when communication breaks down or where there is inconsistency in a particular routine or access to food, something that might trigger anxiety in the person with PWS.
@momodzaaaaa428 Жыл бұрын
My son is a patient PWS . He is 8 years old. In Thailand, there was no information about this disease for mothers like me to study. The doctor here made me accept that my child must leave me. My child must die. But I don't like this idea. I believe my child needs to live longer.
@IPWSO 10 ай бұрын
I am very sorry to hear the doctor said this. There is information and support available and the future is very positive. We have an active PWS group in Thailand, please contact the office for the details: [email protected]
@ankeetsharma3186 Жыл бұрын
My child is 45 days old, can these be administered to her? Is this clinically approved?
@IPWSO Жыл бұрын
CSTI-500 is not approved for use. Phase 2 trials of CSTI-500 are being planned.
@ankeetsharma3186 Жыл бұрын
My daughter is a month old and diagnosed with the syndrome. What can we do about it? I am from India.. please reach out if you can help.. much obliged
@IPWSO Жыл бұрын
Hi, please contact the Indian Prader-Willi Syndrome Association, they have lots of information and support: www.ipwsa.com/ You are also welcome to ask our experts for advice using this form: ipwso.org/how-we-can-help/ask-a-professional/
@shellinsight1756 Жыл бұрын
I believe my daughter, whom is now nearly 27years old. Has Pradar Willi - Which has by now already caused other Health Issues! We live in London... Do you have any advice for how I may get a proper diagnosis, to get the help she so obviously is in need of. Kind regards
@IPWSO Жыл бұрын
Hi, if you contact PWSA UK they will be best placed to point you in the right direction for diagnosis and support in the UK. www.pwsa.co.uk/contact
@lisadaniel6750 Жыл бұрын
Great video! I think you're right that many people don't understand PWS.
@mickeyikawa Жыл бұрын
Thank you for sharing!! My son also has behavior issue at school by stress, then I should better try the same kind of strategy!
@lakewoodmontessori4353 Жыл бұрын
Ricky, you are a smart, kind and a handsome young man. You are amazing! Thank you for sharing your story.😊❤😊
@vedaShreep4029 Жыл бұрын
Hai, sir I am from India, my 1.6 year baby had this problem. Please tell me the medicine and where you suggested for treatment ? Please reply me
@IPWSO Жыл бұрын
Can you complete our form please: ipwso.org/how-we-can-help/ask-a-professional/
@shicmay Жыл бұрын
Cheer up, u r great
@مهوديدنيتي Жыл бұрын
عدني طفل وزنه اكثر من 30 كيلو عمره سنه وشهرين شنو علاجه شگين انو عنده متلازمه برذر فيلي
@IPWSO Жыл бұрын
Please complete our form and we will try to advise you: ipwso.org/how-we-can-help/ask-a-professional/