Sign up to our 10k Sparkle Walk
0:39
We are Haven House
1:01
7 ай бұрын
A Christmas message from our CEO
0:21
Thank you to our Volunteers
0:55
Жыл бұрын
A message to the families we support
5:39
Haven House Spring Appeal 2022
3:01
2 жыл бұрын
Meet Huxley
1:51
2 жыл бұрын
Haven Island playground
1:19
3 жыл бұрын
Mike CEO, Volunteer's Week 2021
2:39
Every Hour Counts
1:41
3 жыл бұрын
24/7 challenge
0:53
3 жыл бұрын
24/7 Challenge
1:20
4 жыл бұрын
Lily's Walk
3:02
4 жыл бұрын
Iain Duncan Smith at Haven House
6:15
Virtual Music Therapy 2
0:21
4 жыл бұрын
Thank you from Annabelle's mum
0:19
4 жыл бұрын
Пікірлер
@sandymay784
@sandymay784 Ай бұрын
She is precious
@jessicaperez4061
@jessicaperez4061 3 ай бұрын
Poor kid
@klvoshall6799
@klvoshall6799 3 ай бұрын
From a beautiful little girl to a beautiful little angel 💖💖😇
@sarahelliott7926
@sarahelliott7926 3 ай бұрын
She was beautiful!
@suziesuzie9455
@suziesuzie9455 4 ай бұрын
An amazing, beautiful little girl
@Smile-xe1tu
@Smile-xe1tu 4 ай бұрын
Should have been terminated right away. Stop wasting time and money. Move on. Rest in peace.
@lindaplank5972
@lindaplank5972 3 ай бұрын
@Smile-xe1tu What a horrid thing to say!
@bernieoconnell5515
@bernieoconnell5515 2 ай бұрын
@@lindaplank5972yes but then low grade people are everywhere.Terminated? This wonderful child? She has wonderful parents and she’s living life on her own terms. No one gets to decide whether a child’s life is worth living not even the parents. Annabelle is an addition to this world not a burden. God bless you little girl.
@a.life.reimagined
@a.life.reimagined 5 ай бұрын
Love these children, they are our angels on earth and the Mommas, I just thank you for all your hard work. Physically and Mentally. These kids are adorable.❤❤❤❤
@Clayguy903
@Clayguy903 5 ай бұрын
Why didn’t you have his cleft palate fixed when he was younger?
@bunglejoy3645
@bunglejoy3645 14 күн бұрын
Because of his complex needs the surgery eould maybe have been too risky
@BG-ef8sk
@BG-ef8sk 5 ай бұрын
Well done for letting someone with special needs make this speech, his parents will be so proud
@lynnechitty9153
@lynnechitty9153 5 ай бұрын
@CallateTuyoBoca-tw7cz
@CallateTuyoBoca-tw7cz 5 ай бұрын
P
@user-jb2nc3wo3q
@user-jb2nc3wo3q 6 ай бұрын
They need to see squirmy and grubs
@MegaBlondie1967
@MegaBlondie1967 6 ай бұрын
That is amazing. I follow a influencer name Shane Burcaw. He also has SMA. He is 30years old and happily married to a beautiful person named Hannah.
@HildaBolivar
@HildaBolivar 6 ай бұрын
❤❤❤❤❤❤❤❤❤❤❤❤❤❤
@donnamcardle8928
@donnamcardle8928 6 ай бұрын
Adorable Annabelle ❤
@kellyruddock8822
@kellyruddock8822 7 ай бұрын
she looks like my 4yr old granddaughter.Beautiful.
@oonaghbonner4363
@oonaghbonner4363 7 ай бұрын
Why is there no content comments 😂😂😂😂😂😂😂😂😂😂😂😂
@Conquest115
@Conquest115 7 ай бұрын
He is so beautiful! I have a grandson named Finnley
@user-zf1oz6ry5m
@user-zf1oz6ry5m 7 ай бұрын
God will oneday heal your son when he returns. Bless your baby boy in Jesus name.
@joepop25
@joepop25 7 ай бұрын
Amen
@jeanzyc.5103
@jeanzyc.5103 7 ай бұрын
SOON!
@user-ow9bq2qg9m
@user-ow9bq2qg9m 7 ай бұрын
2:31 ❤❤❤ Beautiful.!!! For anyone that does NOT understand ,.. pediatric hospice is for a child with a "disease", that is NOT expected to live to adulthood. But, YES, even then they have to meet criteria. It's respic for parents in a safe place.
@olivedog1880
@olivedog1880 7 ай бұрын
Ok, she’s downright adorable!
@anasofiamoreno5486
@anasofiamoreno5486 7 ай бұрын
Yo le rogaria a dios que se lo lleve ....una torura para el niño...un encarte para los padres
@ScottBeck-hk2lq
@ScottBeck-hk2lq 7 ай бұрын
She is PRECIOUS!!
@linm9598
@linm9598 7 ай бұрын
You have a beautiful family & you obviously think the world of your son! Sending love to you & hope Finnley continues to thrive & stay healthy 💜💜🙏
@mariahelenajarvenpaa8834
@mariahelenajarvenpaa8834 7 ай бұрын
❤❤❤
@hadipujut7775
@hadipujut7775 7 ай бұрын
bravo❤❤❤❤🇲🇨👍
@rebeccamccready1135
@rebeccamccready1135 8 ай бұрын
Watt amazing charity as person who works in childcare who loves working with them I love to support them and give back to any charity that needs it most ♥️♥️♥️♥️♥️ every year I give to one charity a donation but this year I will donate to this wonderful charity ♥️♥️♥️
@jessamygoddard4112
@jessamygoddard4112 8 ай бұрын
Bless you all. I worked teaching in special schools and I understand how hard your life can be. Xxxx
@HavenHouseHospice
@HavenHouseHospice 8 ай бұрын
If you would like to join us by walking 10,000 steps a day in February and help provide care to seriously ill children, visit the link below and sign up now! givp.nl/register/nBBUU70V
@kunjpatel9570
@kunjpatel9570 8 ай бұрын
No way kane only gets a few hundred views like that 💀, btw good luck for the charity work i hope it goes well
@chrissmith-no3bo
@chrissmith-no3bo 8 ай бұрын
I love listening to black ppl in the uk. They talk proper. Unless the black Americans with all that. Ghetto crap. Nigga and bro and the slang with what I can barely understand. My son is black and white American and he knows he better speak correctly especially his elders.
@farmwife7944
@farmwife7944 Жыл бұрын
there is treatment for SMA now. It is the #1 genetic cause of death with newborns yet most of us have never heard of it until it hits close to home.
@rhondaroosa9179
@rhondaroosa9179 Жыл бұрын
God bless you.❤
@applejellypucci
@applejellypucci Жыл бұрын
Her eyes are so blue <3
@ninademci1500
@ninademci1500 Жыл бұрын
I had a friend with SMA who was born in 1954 and passed away in 2006. Her parents were told she’d live to be six. She became a lawyer and served on the Ohio Department of Developmental Disabilities. If someone had a respiratory illness/infection, he or she couldn’t be around her until it cleared or was on an antibiotic for two days. I’d make sure I was on the antibiotic for three days to err on the side of caution.
@ninademci1500
@ninademci1500 Жыл бұрын
She’s so darn cute!
@Weatheredstorms1
@Weatheredstorms1 6 ай бұрын
I think there’s something to Ohio and children who are given a short life expectancy but go on to live decades past that. I worked with a woman who was adopted by parents who were married for 20 years before they got to adopt their daughter. She had San Filippo syndrome. She was hitting mile stones until age two and then she started regressing. The doctors told her mother she’d live to be 10 maybe into her teens. She lived to be in her 40s. Which if You know about SF, that is extraordinary
@shoshannafachima1306
@shoshannafachima1306 Жыл бұрын
I hate when doctors tell a mum that she is hysterical Doctoers absolutely must respect a mothers gut feelings. Annabelle is so beautiful and precious ❤
@jillianmuldowney6021
@jillianmuldowney6021 Жыл бұрын
Bless haven house and all how needed
@shauntayecooper9489
@shauntayecooper9489 Жыл бұрын
I will be your friend
@ailsamallison3061
@ailsamallison3061 Жыл бұрын
She’s absolutely adorable ❤
@finnleydowdy4715
@finnleydowdy4715 Жыл бұрын
My name is Finnley
@michaelkennedy8642
@michaelkennedy8642 Жыл бұрын
My 6 week old is named Finnley. I highly approve
@taylormcdermott2113
@taylormcdermott2113 Жыл бұрын
Great video as always!!! You really need smzeus.
@sabrinafraternale7691
@sabrinafraternale7691 Жыл бұрын
❤️🥰❤️🤟🥹😘😘😘🏅
@Lilstinker63
@Lilstinker63 Жыл бұрын
I had a friend that had the exact same SMA Type 1and he lived to be 70 years old.
@laurabalderas3879
@laurabalderas3879 Жыл бұрын
🙏🙏🙏🙏🙏❤️❤️❤️❤️
@missymunro7691
@missymunro7691 Жыл бұрын
She's adorable x
@twinlems1232
@twinlems1232 Жыл бұрын
God bless you all. You are the real heroes of this world!!
@twinlems1232
@twinlems1232 Жыл бұрын
I can't believe this doesn't have more views and more comments!! You guys are the real heroes of this world.
@brendaseager7371
@brendaseager7371 Жыл бұрын
If you are worried about who would look after your son, should anything happen to you, Stop with the dare devil stunts that put you in the position to leave your son with no one to care for him! There is other ways to try and raise money, other than the stunts you do. Your children need you, stop with the dare devil stunts!
@unknownentity7964
@unknownentity7964 Жыл бұрын
There's a higher chance that she'd get in a car crash vs chance of wing walking etc going wrong. So what, she should avoid cars forever? Avoid stairs in case she falls down? Have you not heard of how important fundraising is, and how crucial 'stunts' like that are? I understand that it may seem like a risky thing to do but there's so many safety regulations and procedures in place to keep it safe. Cars have a much higher death toll
@kellyoyen3421
@kellyoyen3421 Жыл бұрын
How has she been doing?
@jeannieves6275
@jeannieves6275 Жыл бұрын
😇🙏🏽