I take injections of methylcobalamin, and they make me sleep like a newborn baby. May be that you need a different type of b12.

How you doing?

try some 72+ h fasts, eating low carb and home made l reuteri yogurt.

Vitamin B12 injection without Folate b9 doesn't work. You need folate to absorb or transport the b12 to its destination - the area that needs to be repaired! And it take up to 4-10 months before you gonna notice big changes. The damaged areas that causes your symptoms will take a long time to heal.

Are you better? Where's the best place to stick the patches?

How are you doing now? Hope all is well 💕💕

search KZbin for... cannabinoids autoimmune therapy Judy Mikovitz

Aw man its kinda sad to see how few people have seen/commented on this. But i can't tell you how glad I am that there's at least _SOMETHING_ Im 31, and have had psoriasis and psoriatic arthritis since I was 9. And all my life... everyone from teachers, to kids, to my own mother and father, all my friends etc... never said anything other than the dreaded "L" word when talking about me. They'd point and laugh, and theyd glare at me derisively _"look at that useless boy. He is so lazy yet so young and healthy. Who does he think he is"_ My name starts with L, too, so you can imagine how that went, given how much people like alliteration - it all but became a nickname/presumed identity for me because of how often people made throwaway remarks about it. Throwaway for them. Everyone. For over half my life, they all just kept telling me "stop being lazy" and "youre so lazy" and "why are you always lazy" Even now, I see doctors and they note that my WCC and CRP are unusually high - to which I tell them "its been that way since I hit puberty" - they all just shrug and then forget about it. Not a single one has ever said something like "do you feel like the inflammation affects you at all?" Or anything like that. In fact nobody has really ever asked how i feel about anything... and why would they - they think im a no good lazy slob 😭😭😭 Only now am I finding out that I was right all along. I _WASNT_ making things up. I _WAS_ more tired than anyone else could have understood. And I feel robbed. I feel like I've been cheated out of a whole bunch of stuff from the best years of my life just because no one ever took an active interest in my well-being until my lack thereof started causing problems for theirs. 😒 Like... how DARE people judge me when all this time they haven't even comprehended the difference? How dare they minimise my struggles and laugh like my distress is some big joke? How dare they presume to be more intelligent than me about a condition that i HAVE and they're only just hearing about (if at all). 😠 if it weren't illegal to knock people unconscious, I swear to God... Thanks for sharing. Stay strong. I cant tell you not to let people's ignorance get you down because I cant even do that myself, but just know that you're not alone. I understand how unfair and BS it is for people to treat you like a hypochondriac just because they're too ignorant (AND LAZY) to spend 10sec learning about you. I hope for your sake that you find an easing in the harder symptoms in your life. Feel free to message me (or reply to this and ill send you my details) and I'll listen to your rants and probably have more than a few of my own 😅 Bsst wishes and take care!

I always thought ME was made up. You’ve really pushed me to investigate and I’ve been left wondering if ME is actually one single illness. It appears through all the studies in the last 5-7 years that there’s no one determining factor apart from the ridiculous muscle fatigue and often strong headaches and migraines. I wonder, and am enthused to put a few months into researching, are you actually suffering from something else undiagnosed and your GP/Doctor is just putting you into the ME umbrella? I realise this is an old video but I’ve watched as much of your stuff as I could before commenting and thought an old vid comment might pique your interest x

OK

You look very run down too :/. Supporting you and cheering you on this health. I did a channel on my tubes and stuff as people keep asking on here wat they are but I got one sub so it's sitting dormant lol. I hope your pet subs help with watching little floofys

I hope you are doing ok. I see lots of neurologists for epilepsy and ms. How are you doing now? Thoughts and wiggle sniffers from Binky

I appreciate all your nice comments on my channel and I hope watching my piggies and kitties helps a bit. It’s good to hear your voice.

The blood pressure drop sounds like NMH (neurally-mediated hypotension), so a form of orthostatic intolerance.

Hey how r u now?

Thanks you very much for information,

This was very well done, subscribed!

thx 4 post.. winter is tough eh..

I can completely relate to your choice of ice cream as comfort food. I’m 3 yes & 5 months into this illness. Sometimes it feel so ill I wonder if I’m actually dying! I found your video after checking online about mortality rates for folk with CFS/ME & like you I found no really good research other than a marked tendency for those with CFS/ME to acquire comorbid or co-occurring medical conditions, potentially worsening so-called ‘quality of life’. I’m already 50 so I just take each day as it comes. I actually work 3 days a week in an office-based job but it takes everything I’ve got to maintain those working hours. I used to work full-time but that was just way too much. I’m so grateful for your videos & your honest thoughts & feelings which mean so much to this CFS/ME sufferer. I wish you the very best moving forward & Ive subscribed to your channel too. Take care & best wishes from here in the UK 😊

Sending you strong hugs and lots of love xXx ❤️💜💙

Hi ! From the UK. & had CFS/ME since 2016. I’ve only just discovered your YT channel really hope you’ll continue to make videos. I’ve found it so encouraging to listen to you share your thoughts & feelings because it has helped me to feel less alone with this illness. Thanks again for your channel & videos & wishing you the very best for 2020 😊 Perhaps if there’s a few other followers with CFS/ME following you on this channel we could try for a small WhatsApp group to share together & talk about every day stuff as well as give each other encouragement & support. Just a thought! There seems to be a lack of good quality online groups. We could collectively agree on a simple set of parameters for the group & take it from there! Just a thought ! 😊

Thank you so much for your videos. I really needed them right now and just honesty and being real. Thank you.

47done ok plz support my channel

I would much rather take vitamins instead of NSAIDs also! Glad you are trying different things. Thanks for posting this review. :)

I’m glad you are having less pain, that’s something. Are there other vitamins that help? I take a multi vitamin but haven’t noticed it helps my memory problems or energy level. Thanks for the info maybe I should try them.

Hi Sarah! I'm glad to hear the patches are helping with the body aches. I have some sleep music if you have headphones. I also have a version if you don't like headphones when you sleep but here's the headphone version. m.soundcloud.com/inner-space-station/sleepforsure-deep-restorative-sleep

Patches seem better than shots. I know what you mean my drugs make me so tired as well. Paw prayers from all of us! ❤️❤️✝️

Hi! I scooted over here from Kaye's Guinea Pig channel. Please know that I wish you huge amounts of healing energy. I cannot imagine what it would be like if my owner, Shark, had a chronic illness. I just wanted to explain for sure that I know you are right, at times talking/writing/communicating about such things can help. I just have been trying to add a light, boinkful touch to Kaye's comments, and, hopefully, to have her videos stay upbeat. There are many young people in Kaye's life, and her channel gets shout-outs from much larger guinea pig advice channels (Scotty, from Scotty's Animals, in particular has mentioned Kaye's channel several times) as a place to go for accurate guinea pig care information. Sometimes it is easy to veare away from a channel's original purpose, especially when serious problems seem to take over your whole world. It concerns me, that Kaye's channel is particularly vulnerable to that. I wish you all the best and hope some special magic finds its way into your world.

Update: no allergic reaction to the patch, so that's good! I don't feel any better, but at least that's something. The patches came yesterday. They're these little circles that go behind the ear. The instructions we got online had been unclear. Turns out you're supposed to use one for 24 hours, once or twice a week. Since the dose is much lower than what I was getting in the shots, I'm going to be using them every day instead. Hopefully with time it'll help. I'd like to not be asleep all day, at least, but I'm not gonna hold my breath.

You are there and you are loved. Like complete. Love, M

hey I just found your channel I love your videos I see ur feeling bad I hope you feel better. I will pray for you!

Hang in there Sarah! I hope the vitamin B injections make a difference. Sometimes the hardest exercises just breathing. But I find it can also be the most energizing. Let me know if you have any video requests

Is ME worse in the summer or the cold? Or is it mostly affected by stress? We are saying our paw prayers for you!! 🐾✝️🐾

Glad to see that you got to your new ground floor apt ok! it looks like you are settling in well!!! :D

Get better soon. I Understand I have M.E. so sorry .I see a Chinese herbalist helps me but everyone is different I also have fibro. 👍

Hallo im from Denmark. I thought I suffer from Me/cfs unfortunately. I get ill for about 7 mounts, and I know its came from a viral infection, because my CRP was normal, so its not baktria, I get it only from kiss with a gye, unfortunately! Therefore I think Me/cfs came from some kind of strange viral infection. Take care sweaty.💪🦋 My symptoms is the worst in my hole life, I have get, and I have been very sick in my childhood, and also get a oparation, but this symptoms are the worst, and I also struffeling with suicide thoughts, but I have a little good effect of high doses c-vitamin every time taking from meaby effervescent tablets, meaby it could help you too, its not a cure, but it get a little bit energy to your body and brain 💪 vitamin c has also a antiviral effect, meaby therefore it has a effect?

You are so cute! ❤️ And so strong too! I’m really impressed.

Glad ur doing well!

Paw prayers from all of us including Bun!

Glad you are home and doing well. Hospital stays are scary for us severe M.E. people....Phew!!!!. You seem pretty upbeat and on the mend and you are definitely awake! CONGRATS on getting A FIRST FLOOR APARTMENT!!!!!!!!!!

Much love to you Sarah

Oh Sarah! Lots of paw prayers especially from Johnny!! I’m relieved you got the care you need.You are remarkably cheerful for what you have been through. We love you.

Wishing you love and strength!!!!

I’ll write you if you have a mailing address....I also have severe M.E...haven’t been out of this apartment in weeks. And the no showering, right there with you sister

I also have M.E and I know how hard it is every day...keep fighting ❤️ sending love...Jackie...Scotland 😢😔💙💖

i so empathise with this. I talk in my sleep too, and once woke from an anaesthetic mumbling about GST tax reform!! I've had this sort of dream before but it was not a machine. Have you seen spirited away? It makes me think of the spirit that accumulates stuff, like bikes etc, that goes to the bath house, absorbs everything in its path. I find a lot of those things for me that were so integral just froze, and I forgot about them for a long time, and just thought they would come back. And some will never. I mourned , and still have a lot to do, but I did not necessarily know that is what I was doing at the time, its that undercurrent upset thing. More the loss of potential, and not having the same energy etc. And realising some of them have to stay past. Most of its not lost i find though, we are still rough diamonds, it just takes a lot of strength to shine. Thank you for sharing this. I'm here if you need a friend Sarah. I get it big time. Even if its a disjointed long game of digital ping pong.(meaning online chat etc). Even if I just send you photos of small things that make me smile, like flowers.

You're doing a great job with your videos Sarah!!

Aw Sarah you drew him petite and fuzzy! I enjoyed it. Is the climate in Sweden better for your eczema? Also, I am ignorant about tarot cards, will have to look that up. Hang in there we love you and send our paw prayers!

re comments, i know and get it. Please dont feel you need to, and if you do, when your time is right. I am really glad i woke up to this today. Perfect choice of card too. i dont know about you, but nails reminds me a little of myself, so much stress and trauma, and there was a solution (for me it was just knowing what i am dealing with). I was written off by the doctors, and mine got as far as fits when i got cold. I could not stop shaking. watching him when they first got him hit that home. Like a nail. And i know that itch. as you do. That is fantastic about the ME clinic. There is more light at the end of the tunnel. I love the drawing

I wonder if anybody out there has some special eczema treatments