Mindfulness Meditation and Rare Disease: Taking Care of Your Mind
53:15
Mindfulness Meditation and Rare Disease: Taking Care of Your Mind
6 ай бұрын
Tribute | Remembering Vicki Modell
10:27
Tribute | Remembering Vicki Modell
6 ай бұрын
Panel Discussion | Rare Disease Diagnosis Odyssey
54:56
Panel Discussion | Rare Disease Diagnosis Odyssey
6 ай бұрын
Welcome | The Meaning of Rare Disease Day
43:12
Welcome | The Meaning of Rare Disease Day
6 ай бұрын
Closing Remarks from Rare Disease Day | Gaurav Shah, M.D., Chief Executive Officer, Rocket Pharma
5:21
Closing Remarks from Rare Disease Day | Gaurav Shah, M.D., Chief Executive Officer, Rocket Pharma
Жыл бұрын
Patient & Caregiver Perspective | Pyruvate Kinase Deficiency (PKD)
33:43
Patient & Caregiver Perspective | Pyruvate Kinase Deficiency (PKD)
Жыл бұрын
Patient Advocacy Video Resources | Pyruvate Kinase Deficiency Foundation (PKDF)
3:07
Patient Advocacy Video Resources | Pyruvate Kinase Deficiency Foundation (PKDF)
Жыл бұрын
Raising Awareness of Sudden Arrhythmia Death Syndromes | Alice Lara, President & CEO SADS Foundation
10:45
Raising Awareness of Sudden Arrhythmia Death Syndromes | Alice Lara, President & CEO SADS Foundation
Жыл бұрын
Patient & Caregiver Perspective | Arrhythmogenic Cardiomyopathy (ACM)
33:19
Patient & Caregiver Perspective | Arrhythmogenic Cardiomyopathy (ACM)
Жыл бұрын
Ensuring Patient Access to Rare Disease Treatments | Claire Booth, MBBS PhD
23:54
Ensuring Patient Access to Rare Disease Treatments | Claire Booth, MBBS PhD
Жыл бұрын
Stories that Need to Be Shared: The Human Side of Rare Diseases | Latika Hickey, PharmD
5:22
Stories that Need to Be Shared: The Human Side of Rare Diseases | Latika Hickey, PharmD
Жыл бұрын
Opening Remarks from Rare Disease Day | Kinnari Patel, President & Chief Operating Officer
9:28
Opening Remarks from Rare Disease Day | Kinnari Patel, President & Chief Operating Officer
Жыл бұрын
Looking Back on a Remarkable 2022
2:01
Looking Back on a Remarkable 2022
Жыл бұрын
Reuters Cell & Gene Conference 2022 | Kinnari Patel, PharmD, MBA, President & COO, Rocket Pharma
17:13
Reuters Cell & Gene Conference 2022 | Kinnari Patel, PharmD, MBA, President & COO, Rocket Pharma
2 жыл бұрын
Wall of Stars
2:09
Wall of Stars
2 жыл бұрын
About Shaping Foundations | Rare Disease Day 2022
8:34
About Shaping Foundations | Rare Disease Day 2022
2 жыл бұрын
Shaping Foundations "I Support Rare" | Rare Disease Day 2022
1:07
Shaping Foundations "I Support Rare" | Rare Disease Day 2022
2 жыл бұрын
Rare, But Not Alone: Lucas and Emma
4:21
Rare, But Not Alone: Lucas and Emma
2 жыл бұрын
Rare, But Not Alone: Paul and Barbara (Infantile Malignant Osteopetrosis)
8:22
Rare, But Not Alone: Paul and Barbara (Infantile Malignant Osteopetrosis)
2 жыл бұрын
Closing Remarks & Musical Performance
30:58
Closing Remarks & Musical Performance
2 жыл бұрын
Rare, But Not Alone
35:12
Rare, But Not Alone
2 жыл бұрын
Rare Disease Resources
40:13
Rare Disease Resources
2 жыл бұрын
Danon Disease & Multi Generational Care: A Rare Patient and Family Story
23:08
Danon Disease & Multi Generational Care: A Rare Patient and Family Story
2 жыл бұрын
Rare Innovations: Harnessing Collaboration to Drive Medical Innovation in Danon Disease
1:04:22
Rare Innovations: Harnessing Collaboration to Drive Medical Innovation in Danon Disease
2 жыл бұрын
Opening Remarks | Kinnari Patel, President & Chief Operating Officer
14:56
Opening Remarks | Kinnari Patel, President & Chief Operating Officer
2 жыл бұрын
Answering Your Questions | Pyruvate Kinase Deficiency (PKD) | Gene Therapy Experts
1:04:21
Answering Your Questions | Pyruvate Kinase Deficiency (PKD) | Gene Therapy Experts
2 жыл бұрын
What Makes Rocket Unique | #RocketRecruits
1:36
What Makes Rocket Unique | #RocketRecruits
2 жыл бұрын
PKD Webinar March 2021
1:11:32
PKD Webinar March 2021
3 жыл бұрын
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