Very similar LC experience as you. I fully recovered after a year for a year. Last October I got food poisoning and it all came back. I got to 80% recovered and then August I had a viral herx reaction to a probiotic and have been severe ever since. I get this SEVERE autonomic dysfunction, hyperPOTS, just constant fight or flight. Literally having days of staring at a wall breathing. This time is real bad though, I'm experiencing massive PEM and it's presenting as severe ME/CFS on top of the hyperPOTS. So if I let my HR get too high I get PEM and get even worse, insomnia, burning brain, higher heart rate/adrenaline. I had to quit my chill remote job as I'm not able to care for myself fully. I'm only able to walk a couple hundred steps a day. It sucks because the tools I used in the past like walks and cold showers I'm not capable of doing anymore. Primarily bed bound and there's no way I could get to a doctor, I'd have to climb up and down all of the stairs in my apartment to go outside, my hr would go crazy.

Have you tried making homemade kefir? It’s the only thing that helps the anxiety for me. I started with long covid in january 2021 and was up and down for a long time. I still just have some anxiety left (and the symptoms that come with that) and i believe its because covid destroyed my gut bacteria (which i dont think was great before covid). Could be the same for you.

What issues do you have with sleep? Is it multiple wake ups?

@beatinglongcovid do you consider yourself fully recovered? What was your total time with long covid?

What about covid injection injury

Anyone had dizziness head problems.

Omg. Thank you so much for sharing this information. I am experiencing this too. Ivermectin is helping with the other long vax syndrome symptoms like fatigue, but this particular symptom is crazymaking. I feel so very isolated and it’s very painful

Been dealing with long covid for over 2 years now. Not really getting any better anymore. My new normal im afraid.

Please, stick around- Like the never ending fakecines they promote

Hey Adam i see that you had brain inflammation. How much improvement had you have during your journey

Does a daily cold shower help?

@beatinglongcovid Can you give another update on how LDN has worked for you so far?

Hey i want to asked you if you really had bad bad really bad panic attacks and PTSS?

Tried to take it for pain, anxiety & fatigue. Started at 1.5mg, helped pain tremendously within just few days, made my fatigue thousand times worse….thought I was dying I was so tired. Dropped to .75mg, didn’t help the fatigue…so I quit….thinking of jumping back in at .25mg to see, afraid that dreaded fatigue will get way worse though….let me know what you think and how you’re doing please??

Congrats! How long did you have it for?

A warrior and nobody even knows. Love your neighbor because you never know what battles they’re up against. #wedorecover

Glad to hear about the milestone you've accomplished. Keep up the good work. Thank God and blessings to you.

This is my version of the viral Star Wars Galaxies Edge TikTok that I watched over and over when I was bed bound and not knowing if I would wake up the next morning. It’s been a hell of a ride and I continue to look for the positives in life. I never thought this dream would come true and just making this video brought tears to my eyes thinking about how much happiness this trip brought me and how much hell I have battled over the last 2.5 years. Over the 9 days I only had one day that I was a bit off. And considering we went full press and did over 20,000 steps a day, thats a hell of a feat. Thank you to my partner Jen for always encouraging me to keep fighting and helping me get past the mental block. Even down to the very end I didn’t think I should make this trip because “I didn’t know how I would feel each day”. Thank you to all of my followers for allowing me to post here and share my journey. Many of you reached out to me and also encouraged me to go! Time heals as well as so many of the other things we’ve discussed here. Keep fighting and hold out hope. I never dreamed I would be able to do this back in 2022. Looking forward to my next adventure and travel. #longcovidrecovery #longcovid #longcovidawareness

Right before the LC started i had gone on a trip to universal studios Orlando! It was a great time and i think about it often. I ask myself will i ever be that healthy again. Im so much better now. Not 100 but getting there. Im so happy for you man! It really helps to see others succeed and enjoy things we thought were over. I was able to drive more than a couple hours and we made a trip to savanna GA. Its was great! Theme parks might be a little much for me rn but progress is what matters. Anyways happy you’re doing well🤙🏽

Did it help you?

Congrats on your milestone my friend. Blessings

How are you doing now?

Hey Adam, i hope you are doing fine i Will do today before sleeping this Yoga video. I went to the Neurologist and we did today an MRT to see if this any inflamation in my brain , did they give you antiinflamatories like ibuprofen or Aspirin? And another question did you have to blury vision? Thanks for everything Adam ❤

Hey Adam, i have a question Did you have also really weird headaches and one day were you "okey" and the next day were you so confused thinking non of this is real? 😢 Neurocovid is really the worse thing i had to deal in my life

I never had covid but after getting the vaccine it seems like I developed many of the symptoms those with long-haul experience. I sometimes spend days in bed because of the fatigue and pain. Jelly's songs have been so therapeutic to so many

Medical intensive care nurse aka Covid ICU nurse here. Just want to say I’m glad you’re still here. Much love to you and may God bless you and your story🧡

What do you think about eating honey? They said its antiinflamatory .

Jelly is 🔥

Please update us about the result. Haven't you recovered from LC yet? I thought your problems have been resolved. I'm in month 18 and still dealing with some symptoms.

Infected dec 2021. Vented jan 2022 for 10 days. I am not ok. I am doing what i can when i can. But i am defeated. Im strong... i know i am, but even the biggest trees can be ripped out by the roots.

React to blueanon by nick nittoli its about co vid 19

I like it. In combination with Ketotifen I like it even better. I notice a difference off of these two meds since I broke my ankle. I restarted asap and already doing a bit better. Give it a few months though, took about one and half months and it helped. I stopped it early the first time because I didn’t know it took a bit to kick in. Also, I was scared to take Ketotifen and wish I started it a while back! Wish you luck.

thanks for the song...Iam 4 years in now...love to you...Eileen from Missouri.

I'm 5 months in and still not right. Exhaustion. Fatigue. Dizziness. Hate it. Also he has got an incredible voice. Didn't know he could sing like that.

💩prob same..well same sleep crap..no matter what! covid fking sux!!!!!

I have been going through this long covid for a little over a year now. It seems to come in waves. It feels like 2 steps forward 1 step backwards at times. It can definitely make you feel like you're going crazy. Thank you so much for making this content and bringing inspiration to those of us going through this. We shall overcome

Doesn't help when you have Fibromyalgia and Long Covid. I have symptoms I didn't know existed. Nothing seems to help. Some days the battle gets the best of me.

I have been on it for a little over 3 months. My long covid symptoms are mostly neurological, digestive issues and fatigue. I started my dose with .5mg for a couple of weeks and didn't notice much. Went up to 1.0mg and after a few days noticed my brain fog and headaches were reduced. Still really tired though. Every few weeks I would add .5mg and evaluate. At 1.5mg my headaches were almost gone and I was able to focus but still tired. Went to 2.0mg and my head felt heavy and the brain fog came back. I was only at 2.0mg for 4 days and went back to 1.5mg. The negative symptoms could have been due to something else. Just out of pure curiosity I will go back to 2.0mg just to see what happens. I think that is the tricky part figuring out your dose. Reading other people's stories it seems starting low and working your way up seems to have more success.

It did not help me. I tried it in year one, and I went between .5-1.5. But I know plenty of others who swear by it. It’s like I always say, “if you’ve met one long hauler, you’ve met one long hauler.” 🤷🏼‍♀️

Enjoy the dreams. It gave me ultra complex and lengthy dreams. Didn't help me with much. Might have caused my anxiety to spike. Dr. took me off it because of that. Good luck.

This is interesting, I'd like to hear your opinion on this after you've used it for a while. A lot of my issues are imbalances when I walk, like a heavy weight on top of my head along with fatigue in my legs and through out my body. Thanks

Took me 6 months to get LDN prescribed for my long covid issues. I was finally able to get it through a physiatrist specialist in Burlington. Worked overnight for my leg pain and tingling. Life changing for me!

Did nothing for me 😢

Hey, great video, bro. I think I might give this device a try. Thanks for sharing 👍.

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