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Пікірлер
@SeoExpertKabir
@SeoExpertKabir 3 ай бұрын
Greetings!,I saw and analyzed your KZbin channel I found some problems. Due to Which Your videos not getting enough views, Do you Want to talk about it for a while?
@mandywoodberry3583
@mandywoodberry3583 5 ай бұрын
My daughter was definitely diagnosed in/at the end of September. Her rash developed in May and progressively got worst throughout the summer months. Thank you so much for this amazing information.
@user-xj4ub8dc4l
@user-xj4ub8dc4l 5 ай бұрын
@user-xj4ub8dc4l
@user-xj4ub8dc4l 5 ай бұрын
كيف احصل على هذا الدواء
@suzanneedison9766
@suzanneedison9766 9 ай бұрын
Alex made me cry re: the little girl inside her...
@suzanneedison9766
@suzanneedison9766 9 ай бұрын
Shannon is the most enthusiastic fundraiser and family support person I have ever met.
@nicolemeyer9046
@nicolemeyer9046 11 ай бұрын
Thank you for providing this info! Please keep searching/researching.
@wyatankurtis8679
@wyatankurtis8679 Жыл бұрын
👊 "Promo SM"
@doctorv9336
@doctorv9336 Жыл бұрын
I was diagnosed with dermatomyositis 6 years ago when I was 20. I was unable to bathe my self. get up from bed and was on huge fall watch. I could only imagine what that is like for a kid. Thank you guys for what you are doing!
@sunilgupta2508
@sunilgupta2508 Жыл бұрын
Please 🙏 hury up
@JustMeKaylaB
@JustMeKaylaB Жыл бұрын
kzbin.info/www/bejne/bmeYZZupo9yCoNU
@Becks.V.
@Becks.V. Жыл бұрын
I wish I'd known this 17 years ago. Thank-you for this video. . I had this illness when I was 11 years old. I've been in remission 17 years now. It came out of no where. I remember I was covered in a rash on my legs and I was so weak I couldn't dress myself, or get up off the floor, yet the doctors kept saying I was imagining it and looking for attention (as my Mum had recently died of an unexpected asthma attack a year before). .As for the rash they kept giving me creams...Long story short after a year of hell one doctor finally sent me for a skin biopsy and I was rushed into hospital and pumped with steroids (prednisone).. I was ill most of teenage years and it kept coming back. When I was 15 I went to live in Glasgow with my Auntie fir a year. In that year I stayed at York Hill Children's hospital where they kept me in for 6 weeks doing allsorts of tesrs that had never been done, as I'd moved from England and I felt I was never treated properly (another long story).. I'm writing this comment because after the tests at York Hill hospital I spoke to a wonderful doctor who suggested a new treatment but to wait until I was 16 to try it.. I moved back to England and my hospital notes were obviously transferred.. As I was 16 I was now sent to the adult part of the hospital and met a wonderful doctor in the rheumatology department...I had another flare up at 16 as the rash appeared again and I was feeling weak.. over the years the prednisone kept me as well as could be where it took my rash away and eased some weakness... The doctors always hoped I had Juvenile Dermatomyositos as I'd grow out of it but when it flared up at 16 years old they weren't sure. . My new doctor who was a rheumatologist (who was a great doctor) read my notes from the wonderful doctor at Yorkhill children's hospital, and suggested I try METHOTREXATE.. I had to sign a form as it came with warnings as it could've affected my bone marrow etc but I was brave and couldn't wait to sign even though my Dad was hesitant..but this illness ruined my childhood, you wouldn't believe me if I told you how badly I was treated...I couldn't move and no one believed me for a year.. Anyway, I remember I started feeling better. I remember the tablets were bright yellow.. and I got a job and started having fun.. I forgot I was even ill after years of pain and no help or relief.. Every check up and blood test was fine. My bone marrow and other things they were worried about , were fine. .I carried on .. Then one day at 21 years old I was given the all clear from this illness as I'd not had a flare up since i was 16 but the doctor said to me I wasn't out of the woods and if anything changed to contact him. I was taken off the methotrexate as they'd been reducing me over a year and as I was leaving the doctor reminded me not to get pregnant for atleast a year after taking methotrexate as he knew I was engaged at that time... That was nearly 20 years ago and I've been cleat of this illness. I wrote this comment as I don't know if I had the juvenile version of this disease or the methotrexate helped. The doctors didn't know. I hope there's better help and understanding for this illness today as I was ignored even though I went to the doctors every week covered in a rash and so weak I couldn’t even stand up without help. .and sometimes there wasn't any help so I would just lie down crying thinking it was in my head. The rash I had was dark purple. It got so dark because it was left untreated. I'm lucky it never caused any longterm damage but the emotional and anxiety still affects me today.. I feel for anyone who's living with this illness as I remember feeling so hopeless and misunderstood 😔 I'm so thankful I got better as I know that's rare.
@pnaresh5146
@pnaresh5146 Жыл бұрын
Looking for a cure to that body odor problem, I recommend #drokouromi Herbal supplement and body cleanser I was able to shrink TMAU goiter with his herbs in less than 3 weeks🎊🎊
@anjalikulkarni603
@anjalikulkarni603 Жыл бұрын
Mi2 anitbody positive means what?
@saravanans-tu2py
@saravanans-tu2py Жыл бұрын
Mam pls request msm iam tamilnsdu writting my daughter jdm disease 5 years cheenai ramachandra hospital treatment why years cure
@graham9316
@graham9316 Жыл бұрын
p̲r̲o̲m̲o̲s̲m̲ 👏
@maskermedismccons3090
@maskermedismccons3090 Жыл бұрын
Thank you for information about ivig , from Indonesia Jojo
@anoukpovel
@anoukpovel Жыл бұрын
What about 'rare' adults having JDM? Is there some information about recognizing flares and the use of medication to get into remission again?
@huddyhowell6469
@huddyhowell6469 Жыл бұрын
That is a sorry state of existence. There can be no life on earth without the sun. We're been living under the sun for thousands of years and suddenly it will kill you? What about vitamin D and serotonin? Direct sunlight is one of the healthiest thing you can do for your body.
@thagrintch
@thagrintch 2 жыл бұрын
Can you be eligible for IVIG if you have good IgG values but extremely low B cell values?
@kristinwallace6551
@kristinwallace6551 Жыл бұрын
As far as I know, no. But you would have to talk with an immunologist to be sure. All the best. (I am not a doc just a patient with common variable Immunodeficiency who is on IVIG for life)
@tommy.schreiner
@tommy.schreiner 2 жыл бұрын
Thanks so much for your efforts
@TheWiesle
@TheWiesle 2 жыл бұрын
Informed consent is the law, however IVIG has way LESS side affects than the COVID JAB, and no one was given informed consent of 9 pages of adverse reactions before they were given the JAB. Because if they did receive 9 pages of possible side affects no one would have accepted the JAB
@MohamedAli-bi5bl
@MohamedAli-bi5bl 2 жыл бұрын
I am muscular dystrophy patient
@MohamedAli-bi5bl
@MohamedAli-bi5bl 2 жыл бұрын
Prize
@elenatewmey5267
@elenatewmey5267 2 жыл бұрын
Thank you again.
@casterakabadman805
@casterakabadman805 2 жыл бұрын
They need to aspirate during administration
@freecat1278
@freecat1278 2 жыл бұрын
Very much appreciated. I received very little education about my illness. I'm looking to hire an advocate to sort out the disgraceful situation between my various providers. This presentation has made me more optimistic.
@freecat1278
@freecat1278 2 жыл бұрын
@Evan Hodge That's part of it. The entire neurology department is completely ignorant of how IVIG therapy should be done for my illness. The department head admitted this to me. They refuse to adjust the dose when it stops working, so I just told them to stop. He thinks the pain relief is some odd side effect; he has no understanding of how it works. The immunologist is at another facility & can't access my records. The hospital ignores all of her orders for labs & prescriptions. When I called, the supervisor answered. She didn't know who I was & she couldn't access her own records because the facility swapped her cell phone. I get no pain management & all I know about my illness is what I learn in these videos. I had one of the best doctors in the country before they shut down the Gulf War clinic. I think they want us all dead.
@Inkatown-six
@Inkatown-six 2 жыл бұрын
What if you noticed small blood in the end of the line when you inserted?
@Inkatown-six
@Inkatown-six 2 жыл бұрын
Thank you, you answered my question.
@angelofheaven9120
@angelofheaven9120 3 жыл бұрын
Mam , plzz find out a medicine for Ichthyosis skin disease.. It's my request🙇😖😖
@g.drichard4745
@g.drichard4745 3 жыл бұрын
Greeting from me, how I was able to survive coldsore through a friend that direct me to Dr alamale on KZbin healed hi gave me his product that get me cure...
@morlis2052
@morlis2052 3 жыл бұрын
I contracted herpes' I was told there is no Herpes cure except treatment to control it. I totally lost hope. All I could think was losing my life because it was so embarrassing to have this virus, few weeks ago I read about a possible natural cure which was guaranteed. And I ordered the treatment after some weeks I got 100% cure. Now I'm so excited to share this testimony thanks Dr omohan Email:[email protected].
@catelyncat6441
@catelyncat6441 3 жыл бұрын
I know not pains and i recovered from my depression ever since I used a herbal medicine from Madida herbal center that I can boldly say that I am no longer HIV because I am cured from it with Dr Madida herbal medicine and I am so happy about it.
@donisaac702
@donisaac702 3 жыл бұрын
All thanks to dr ishiaku who helped me get rid of my herpes virus completely with his herbs
@elizabethcolt2278
@elizabethcolt2278 3 жыл бұрын
I'm so grateful to dr isibor on youtube
@elizabethcolt2278
@elizabethcolt2278 3 жыл бұрын
Dr isibor on youtube is God sent to cure all kind of illness and disease, I never believed that there's a cure for herpes I'm a living testimony I was a carrier of the herpes virus now I'm totally cured through his herbal medicine.
@bradpittsburgh9049
@bradpittsburgh9049 3 жыл бұрын
Dr Erayo on KZbin has permanent cure for herpes virus with natural herbal medicine.
@loramori8214
@loramori8214 3 жыл бұрын
Living with a virus for eternity is something you need to sit down and think. There is a cure for any type of virus and diseases. So why listen to people who will discourage you and not give you cure. Alternative cure for any type of virus, diseases and STDS available. 1; HSV1 and HSV2 2; Lupus diseases 3; Cancer 4; Human Papilloma virus (HPV) 5; Crohn's diseases 6; Diabetes 7; Sickle Cell Arnamia 8; Herpes 9; HIV 10; Neratitis 11; Diabetes 12; Pile for any health issues Contact Doctor omohan for help in ridding out your problem. WhatsApp +2348164816038 his websit dromohanherbalmedicine.webs.com
@nesting.nursery
@nesting.nursery 3 жыл бұрын
I have Jm and I have had depression and anxiety for many years.
@edieramos6261
@edieramos6261 2 жыл бұрын
thankfully i’m not the only one, i was diagnosed in december 2020 once i was put on prednisone my mental was not good due to weight gain, i’m still on it but not a high dose , i have 4 more months of treatment left
@Zaheerahmad-cy2bm
@Zaheerahmad-cy2bm 3 жыл бұрын
English ka test la rahiy han
@prompt_luxe
@prompt_luxe 3 жыл бұрын
Why aren't there subtitles ?
@mommysandra4576
@mommysandra4576 3 жыл бұрын
My daughter is starting IVIG monthly doses Should we get a port put in?
@FBlibirisi
@FBlibirisi 2 жыл бұрын
Hi! How's treatment is going ? Is there any side effects ?
@tnicolle41
@tnicolle41 Жыл бұрын
My daughter, 8 yrs old is starting ivig and we have so many questions. How does and when can she function normally in life.. Did they put ports in to ease hooking up for home treatment?
@lilysacco3408
@lilysacco3408 Жыл бұрын
@@tnicolle41 hi I’m 17 and I do ivig and I have a port! It’s a lot to get all that medicine through a regular iv I struggled with it that way. With a port it’s much better!
@dalenesbitt
@dalenesbitt Жыл бұрын
@@lilysacco3408 how much does a port get in the way of everyday life? Can you go swimming?
@tarastewart4994
@tarastewart4994 3 жыл бұрын
Is just six months since I got free from hsv2,,I always have some outbreak and I could not sleep at nights,hospital medications did all their possible best, it really disturbs me a lot I could not concentrate deeply on my studies,,I nearly failed my last exams.exactly 6 months ago my mum purchased a herbal remedy from Dr Osunma,,,I used it for three weeks and it cleared out the disease gradually till it was gone totally from my body.my Dr could not believe a herb can cure herpes till he ran a four times test and all the result showed negative..so don't stand there and be waiting for medical doctors or government to fix a cure for this virus,,,there is already a cure and only one man can cure it,DR OSUNMA Email adress [email protected] and see things for your self.
@walecole248
@walecole248 3 жыл бұрын
It all started from my lips,due to the outbreak my fiance broke up with me,my family members abandoned me all because I was effected,,I could not bear all the pains I decided to struggle hard to help my self get rid of the virus,I spent awhole lot of money in hospital bills still couldn't get rid of it,,,I came in search of cure in the Internet and I saw a comment made by ROSE ALLI ROSE how she was cured from this same virus by an african traditional healer named Dr osunma,,I was skeptical about it but just couldn't hold my self from the pains I ordered for the herbal remedy.I used it as directed by the Dr ,I used it for few weeks and my lips was as fresh like that of a new born baby.it was really hard to believe that natural root and herbs can cure herpes virus.well now I understand that nature really have answers to our health problems,feel free to share your health problems with him.his email: [email protected] and he is a renowned African traditional healer,,well trained.
@mommysandra4576
@mommysandra4576 3 жыл бұрын
Thank you fo this video!!
@doctorakhigbe9095
@doctorakhigbe9095 3 жыл бұрын
@akhigbe.dr Herbal treatment is 100% guaranteed for all kinds of infection, the reason why most people are finding it difficult to cure their infection is because they believe on medical report, drugs and medical treatment which is not helpful to cure any infection, Natural roots/herbs are the best remedy which can easily eradicate virus/diseases forever,for more information about how he cure diseases/virus please contact him on WhatsApp or Email address [email protected] +2349046230269
@micotheentrepreneur
@micotheentrepreneur 3 жыл бұрын
Check out facebook.com/PGSBYMTC. This may help with teenagers and young adults.