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Пікірлер
@ariannahuffington-b1i Күн бұрын
Hello everyone, I'm excited to share my personal experience with Dr. Okouromi herbal remedies on KZbin. After incorporating his herbs into my daily routine, I noticed a profound improvement in my overall well-being. What impresses me most is Dr. Okouromi dedication to natural healing. The quality of his herbal products is exceptional, and it's clear that he's passionate about helping others achieve optimal health.🥰🥰🙏🙏🏆
@martawalczak-c7w 15 күн бұрын
Writing ✍ From USA 🇺🇸 my husband finally found a treatment that worked for him health condition (TMAU) with the help of Doctor Okouromi Herbs on KZbin.
@phoebecampbell-qd3yx 3 ай бұрын
thats me
@sdautsch7803 3 ай бұрын
thank you for sharing your story! stay strong! my son was born with severe otc, and was in the emergency room, blue and shaking from constant seizures, with ammonia level was 24, at age 30 HOURS!! after 3 day dangerous dialysis treatment, we considered liver transplant. at age 6 weeks, he had a liver transplant, and is doing amazing. i am looking for more information about recovery for the damage caused by the high levels of ammonia. its different than any other brain injury, and i wonder if anyone would know more about that.
@1117King 3 ай бұрын
Can you get disability for this?
@metabolicsupportuk4342 19 күн бұрын
Hi @1117King, do you mean disability as in financial support like ESA or PIP? If so, like all applications, it depends on the individual and how they and their life are affected. If you'd like some advice or support please do reach out :) You can email us on [email protected]. Take care!
@danielleriversrealtorextra2705 7 ай бұрын
I'm from Florida in US. If you'd like to interview me to further your online reach, I'd be happy to be on your podcast about TMAU and other health related topics. 😊
@acceptinglife6491 6 ай бұрын
hey there, I'm curious if you were diagnosed with tmau or are you in the health field
@acceptinglife6491 6 ай бұрын
hey there, I'm curious if you were diagnosed with tmau or are you in the health field
@danielleriversrealtorextra2705 6 ай бұрын
@acceptinglife6491 TMAU. I'm into health but not in the field in traditional sense.
@emmaandrew1358 8 ай бұрын
Yes, well done The same happened to us - we have a daughter with MMA and I guess if Ammonia had been tested for it would have been different story for her. Great campaign x
@Sue-bx4co 8 ай бұрын
My story is too long to tell all. Between my mother, myself, my sisters and my daughter, we have had 6 male babies die early on after birth from OTC. Of the females that are carriers, some don't seem to be affected and some do. You are very lucky that your daughter was diagnosed and treated. Have you found out if you are a carrier?
@metabolicsupportuk4342 3 ай бұрын
Hi Sue, I'm really sorry to hear about the loss you and your family have faced. We are always here to listen, whatever the length of your story. Take care
@Bettinasisrg 9 ай бұрын
Such valuable medical knowledge and only one medical personnel thought to check? Wow! Well I know I'll be telling all new parents! I would definitely contact all baby and parent magazines and blogs to get the word out!
@songbirds3712 9 ай бұрын
It really isn’t that loud, and every single word is shown, so???
@Султанжобасы 9 ай бұрын
Hello. I am from Kazakhstan. I had a strong sweat odor (tmau). It helped me reduce the odor by 80% and sweat less. Probiotic (bacillus coagulans 6 billion cfu). This is not an advertisement.😊 
@DoreenGranger 9 ай бұрын
Good luck to you all for ever .
@margarethume4407 9 ай бұрын
Ditto that. Sending out love, to you all. XXxxx
@Bezuidenhout474 9 ай бұрын
I really find it hard listening to you when your background music is so loud. You don't need it.
@johnanddenisemarsh7708 9 ай бұрын
I agree
@metabolicsupportuk4342 3 ай бұрын
@@johnanddenisemarsh7708 @Bezuidenhout474 thank you both for your feedback 🙂
@nancyjackson8886 10 ай бұрын
I’m sending you and Ethan best wishes and prayers.🫶🏼👍
@MarieJackson-sp3be 10 ай бұрын
I am praying for Ethan. 🙏🏻❤️
@shawnajones1755 10 ай бұрын
Jesus loves you
@MOoooo-ol1uu 8 ай бұрын
It wasn’t easy living with embarrassment, bullying in high Shcl from friends, co-worker.I cured my Body odor & Bad breath smell with alternative herbs & gluten free diet protocol on DR.UWENBOHERBALHOME KZbin page…😓🥀🥀🥀
@mattstagg9881 10 ай бұрын
Such a rare and terrifying condition but you guys have done amazing!
@tudormiller887 Жыл бұрын
I have Tyrosinemia Type 2.
@saiqabano6896 Жыл бұрын
Exactly the same story with my son but a different metabolic condition.
@christylopez3400 Жыл бұрын
kzbin.info/www/bejne/bnmqh6WueLp6e9Usi=OKlHVqh_TzV3giYO
@Elyselitteraturoglotte Жыл бұрын
It is my case
@JolefeFlamenia Жыл бұрын
What if u smell and ur stomach always upset?its not tmau right? theres another disease that cause us smells
@Ib90 Жыл бұрын
Does he have breath issues too because I also get bad breath from lungs due to this condition.
@NT-qb7td Жыл бұрын
My breath smells like fish sometimes metal and sometimes like garbage when I am hungry
@ghostfaceangle8202 Жыл бұрын
Check my page out. I got something 4 TMAU
@Ib90 Жыл бұрын
@@NT-qb7tdsame, specially when I eat a lot of protein.
@Hellthee 8 ай бұрын
Oh I thought I was the only one
@Hellthee 8 ай бұрын
It’s horrible
@albabeatrizrivera1485 2 жыл бұрын
Hello ! I have an 11-year-old son and since he was born we have struggled with GA1 every day, it is an achievement due to the condition of his disease, even more so than before, there was not so much information to be able to carry this, thanks for the video.
@tudormiller887 2 жыл бұрын
I only found out recently that I've been living with Tyrosinemia Type 2, I'm now in my 40s.
@randalgomez4522 2 жыл бұрын
I shared it. THANK YOU SO MUCH ---be happy ❤. #1 spot to increase your channel's engagement P R O M O S M!!
@averybruggeman607 2 жыл бұрын
p͓̽r͓̽o͓̽m͓̽o͓̽s͓̽m͓̽ 🌈
@medics4rarediseases-m4rd11 2 жыл бұрын
Hiya, has anyone heard from Daniel recently? His KZbin channel is empty. Hoping he will speak at RareFest!
@Ib90 Жыл бұрын
What happened to his channel?
@biba350 2 жыл бұрын
Can you tell me what's the importance of exercise great interview Thank you
@brendstiles9952 2 жыл бұрын
My success stories started with the use of Alternative treatment and body cleanser, it wasn't easy found healing from alternative herbs
@brigithhii7751 2 жыл бұрын
What herbs r u using?
@N_NSIIMA Жыл бұрын
I’d love to know what body cleanser and herbs you are using
@Talkingtoyself 2 жыл бұрын
Definitely is a struggle living day to day, but the relationships that you actually create are generally stronger. I'm just thankful to be alive, things could be worse.
@NT-qb7td Жыл бұрын
What is worse than this??? This is a nightmare!
@Marilyn-rb3hj 7 ай бұрын
How are you? It causes homelessness and stalking/harrassment in my life.
@Talkingtoyself 7 ай бұрын
@@NT-qb7td I apologize for the late reply, I believe everyone has their own struggles, and this disorder can be horrible and isolating. But I've learned a lot because of this, I don't know where I would be without it.
@Talkingtoyself 7 ай бұрын
@@Marilyn-rb3hj I'm doing well, all things considered, I don't have any issue working thankfully. I have been harassed and abused for sure, people think they can do whatever they want to you. The best thing to do is get away from those people and know your value. Try to keep strong with proper diet, exercise, and positivity so we can all be placed back into homeostasis.
@Marilyn-rb3hj 7 ай бұрын
@@Talkingtoyself bless you and thank you.
@kerstinwestermark6537 3 жыл бұрын
From the perspective of a colleague of Lesley’s in the Committee for Orphan Medicinal Products (COMP) at the EMA: Converting a personal experience like that of her family’s into something as constructive and successful is amazing.
@abbeymeyers2679 4 жыл бұрын
I applaud Peter and Leslie on the anniversary of Metabolic Support UK. From the beginning we at the National Organization for Rare Disorders (NORD) worked closely with the Greene's and this relationship has been very important over the years. Metabolic Support UK, under other titles in the early years, was essential to the passage of Europe's orphan drug legislation, and other health related concepts. Thank you Leslie and Peter!
@katedurie5771 4 жыл бұрын
Well done both of you - an inspiring account.
@jessthoene997 4 жыл бұрын
BRAVO Leslie and Peter!! Well done. What a wonderful synopsis of the entire history and future of rare metabolic disease . Best, Jess
@bekig8514 4 жыл бұрын
So proud of everything you and the charity have achieved over the last 40 years and for many more years to come. Love you mummy and daddy ❤ My hero's xx
@Os_-tw4ot 4 жыл бұрын
Very informative Peter and Lesley 😊. Congratulations on bringing awareness to this important cause. Your hard work has/is paying off 🥇 You have done a fantastic job!
@laporshafaceslife 4 жыл бұрын
❤️
@jb-zq8vg 4 жыл бұрын
1. Low choline diet 2. Exercise 3. Probiotics - kefir , sauer kraut etc... 4. Supplements : zinc, vit. B2 5. Bandaids: charcoal , chlorofresh 6. Intermittent fasting 7. Eating less at night And most of all very important is Prayers to Lord Jesus Christ. He is our healer. These are the above list which help me deal with my TMAU.. it works!
@metabolicsupportuk4342 4 жыл бұрын
Thank you for sharing your tips and we hope you're keeping well.
@NT-qb7td Жыл бұрын
What kind of God allows this kind of suffering? He is not real.
@judenhio-son9902 Жыл бұрын
@NT-qb7td I've noticed that people with tmau you are more resilient then other. I have this and tbh made me driven when it comes to my goals.
@NT-qb7td Жыл бұрын
@@judenhio-son9902 I have been strong for so long because I held onto hope that one day I would be free from this but I am starting to realize nothing is ever going to change and this is always going to be my life
@mlw9195 Жыл бұрын
@@NT-qb7tdGod didnt create the suffering. Ppl did
@shameemaktar613 4 жыл бұрын
Beautiful family Ma Sha Allah. Totally understand and relate to your situation as I too have a child with complex medical needs. May Allah Swt give your child aafiah and strength to you all as a family.
@jessdoyle3972 4 жыл бұрын
Hi Shameem, Thank you for your comment on our Breaking Down Barriers video. If you would like to take part in our series and share your story, we would love to hear from you, you can contact us via [email protected] if you are interested. Best wishes, Jess, Metabolic Support UK.
@maureenmorgan8188 4 жыл бұрын
Before Sebastion I had never heard of his condition..Emma gives a brilliant overview and insight into living with this awful condition..