2025 Denver Symposium Promo
2:28
3 ай бұрын
Speaker Series: Powerful Storytelling
1:00:36
Getting Well Outdoors Webinar
58:36
Life as a Care Partner
3:06
9 ай бұрын
Walk & Roll for GBS|CIDP and MMN
1:02
2023 Walk and Roll Season Recap
1:11
Rare Disease Day 2024
1:15
10 ай бұрын
Speaker Series   Pain
1:03:47
10 ай бұрын
What is MMN
58:14
11 ай бұрын
Variants of GBS|CIDP, Speaker Series
54:21
Ask the Experts, Research Update
56:14
Пікірлер
@shiarafigoni1464
@shiarafigoni1464 5 күн бұрын
Epstien bar
@DonaldMark-r1p
@DonaldMark-r1p 10 күн бұрын
Haven't got a Dr diagnosis yet but I believe I have this and it's getting really bad.
@AntenehGetu
@AntenehGetu 18 күн бұрын
I had GBS three times in every ten years 😢
@SwarajGawande-b6k
@SwarajGawande-b6k 24 күн бұрын
I had GULLIEN BARRE SYNDROME 1 year ago, so I am in hospitalized for 3 months. Don't worry about this disease it will take a long time to recover.
@joshdempsey1002
@joshdempsey1002 Ай бұрын
I got diagnosed 8 months ago, I'm still struggling with walking, though I can do it for a short time with help from a Walker. I still have tons of pain and the numbness/tingles. I pray for anyone with this disease, stay strong and keep going
@MaryHockborn
@MaryHockborn Ай бұрын
😊
@AllenGeorge-u6c
@AllenGeorge-u6c Ай бұрын
Cuanto tiempo se conserva esas plaquetas en esos frascos y en que condiciones atmosfericas ? que indican que se daña antes de que expiren ?
@orkomukherjee5239
@orkomukherjee5239 Ай бұрын
Thank you. you have helped me walk!!
@ultragamingx2
@ultragamingx2 Ай бұрын
You are the dark knight! I wish you all the best and hopefully a cure will soon come up for your and all CIDP patients, including my son!
@Asakura1414
@Asakura1414 Ай бұрын
I had GBS 5 years ago, I stayed in ICU for 2 months and then I got out, It took me about 9 months to heal fully, stay 100% positive and stay strong and fight the hell out of it, wish U all well ❤
@JijiShibu-hb6mr
@JijiShibu-hb6mr 2 ай бұрын
😢😢😢
@DavyTracy-l7i
@DavyTracy-l7i 3 ай бұрын
Walker David Taylor Susan Moore Dorothy
@MorleyJamie-t5k
@MorleyJamie-t5k 3 ай бұрын
Rodriguez Susan Walker Charles White Donald
@EueyrSueon
@EueyrSueon 3 ай бұрын
724 Lewis Course
@EileenMoore-n6v
@EileenMoore-n6v 3 ай бұрын
Haag Trail
@SaloGemb-r1d
@SaloGemb-r1d 3 ай бұрын
Hernandez Richard Wilson Kimberly Martinez Eric
@SmedleyRudolf-w4k
@SmedleyRudolf-w4k 3 ай бұрын
Clark Edward Lee Kenneth Martin Barbara
@FreemanArno
@FreemanArno 3 ай бұрын
Jackson Barbara White Patricia Moore Scott
@RJ-nk9wb
@RJ-nk9wb 3 ай бұрын
It should get better folks with the correct treatment. It can take time but thanks to my IVig (Privigen) infusions it’s keeping me going.😊 Currently on my eighth year of CIDP.
@ZainulAbideen-im7fe
@ZainulAbideen-im7fe 3 ай бұрын
My niece has this syndrome she is only 3 years old and it is already one week in progress. Can any of you guide me through healing process
@AdrianScottty
@AdrianScottty 3 ай бұрын
Lewis David Smith Deborah Wilson Elizabeth
@HarrimanLennon-o1c
@HarrimanLennon-o1c 3 ай бұрын
Lee Michael Robinson David Davis Scott
@EvelyneHeikes-e5r
@EvelyneHeikes-e5r 3 ай бұрын
Ortiz Ramp
@MikeDerrick-p3z
@MikeDerrick-p3z 3 ай бұрын
95594 Stefan Heights
@AnthonyHeinz-d1s
@AnthonyHeinz-d1s 3 ай бұрын
Clark Radial
@PaulVasquez-b5i
@PaulVasquez-b5i 3 ай бұрын
Orn Hollow
@JayMiller-w8j
@JayMiller-w8j 3 ай бұрын
Natalia Gateway
@ThorndikeJoanna-u4z
@ThorndikeJoanna-u4z 3 ай бұрын
Chanelle Junctions
@ChristopherThomas-p7g
@ChristopherThomas-p7g 3 ай бұрын
Brooks Court
@CottonChristian-e3r
@CottonChristian-e3r 3 ай бұрын
Jackson Lisa Anderson Betty Thomas Betty
@TrevelyanPalmer-s6l
@TrevelyanPalmer-s6l 3 ай бұрын
Stroman Divide
@FlynnVerne-k7y
@FlynnVerne-k7y 3 ай бұрын
Isabella Stravenue
@RolandMeroy-r2q
@RolandMeroy-r2q 3 ай бұрын
Hudson Crossroad
@GallacherNelson
@GallacherNelson 3 ай бұрын
42481 Gorczany Causeway
@AlyCarr-q3h
@AlyCarr-q3h 4 ай бұрын
Dietrich Forges
@SefrenGoly-p7k
@SefrenGoly-p7k 4 ай бұрын
Alek Isle
@CherrineShortdy
@CherrineShortdy 4 ай бұрын
Will River
@WsdcteHsdgxhte
@WsdcteHsdgxhte 4 ай бұрын
Jesus Shoal
@LancelotMandy-g6z
@LancelotMandy-g6z 4 ай бұрын
Garcia Patricia Moore John Davis Elizabeth
@JustinThiel-y2l
@JustinThiel-y2l 4 ай бұрын
Hyatt Route
@LancelotMandy-g6z
@LancelotMandy-g6z 4 ай бұрын
Martinez Melissa Young Sharon Martinez Matthew
@HansenKay-q1h
@HansenKay-q1h 4 ай бұрын
Jones Dorothy Clark Kevin Gonzalez William
@SapirAfra
@SapirAfra 4 ай бұрын
Taylor Edward Jackson Jason Brown Larry
@DonaldMartinez-y9r
@DonaldMartinez-y9r 4 ай бұрын
Bernadine Cove
@MansourKesserwany
@MansourKesserwany 4 ай бұрын
It happened to me in 2004, and I thank the Lord Jesus Christ that I was able to overcome it, even though the doctors diagnosed it late.
@evalynekoech9895
@evalynekoech9895 4 ай бұрын
I was diagnosed with gbs 4 months ago now on rehabilitation .God has been gracious
@medicos2718
@medicos2718 5 ай бұрын
Bro just tell what u are telling no need to tell may be you are diagnosed with 😐
@AbbeyCausley
@AbbeyCausley 5 ай бұрын
I woke up and my legs from the waist down were totally numb. I thought they were jyst alseep so i waited for them to wake up, and waited and waited..... i was at a friend's house and he had to go to work and kinda wanted me to get gone so he was rushing saying stop stalling i gotta go to work! I tried too scoot down the stairs on my butt knowing something was terribly wrong by then called the ambo they carried down the stairs got diagnosed that day
@soy_sweet99
@soy_sweet99 5 ай бұрын
I had thoracic spinal fusion for losing my ability to walk 7 years ago almost with a long recovery. I had a flare up of paralysis this March too. Now A neurologist just told me that I really had GBS. I knew this all along too and they originally said that when i got to the hospital. I had unnecessary spinal fusion surgery
@nadiahamayoun
@nadiahamayoun 5 ай бұрын
my dayghter digonesed gbd i m really worried about her any tips plz share