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Пікірлер
@TheJohndeere466 Күн бұрын
Im a 57 year old male but I have many symptoms that you do. I have head aches, rapid heart rate, exteeme exhaustion sometimes, pressure in my chest and a feeling of being full. I have heart palpatations every time I urinate. I sweat pretty bad at night and I smell. its hard to describe but it smells up our whole bedroom. I also get pain in my legs. my dr is trying to figure it out . She did a urine test and I am pretty high in metanephrine and normetanephrine but I read where you should save 24 hours of urine. I only gave them a small sample about the size of a pill bottle. She sent me to see a urologist but I dont see him until teusday.
@spinstercatlady Ай бұрын
I'm going through a debt collection lawsuit for an old credit card debt, and between it and my chronic illnesses like RA, I'm beyond stressed out. My attorney has a countersuit against the debt collector though, so I'm hoping and praying all goes well. Have a great week!
@chronicallyhopeful5407 Ай бұрын
@@spinstercatlady I’m so deeply sorry with all my heart. I can’t imagine the stress you are enduring. Should be illegal to have to deal with this on top of chronic illness. I am hoping praying strength and spending positive vibes. I know you will get through it. One breath at a time! You are courageous, resilient, & determined. I’m hoping my week ends up being better than today. It’s definitely not easy.
@spinstercatlady Ай бұрын
@chronicallyhopeful5407 thank you so much 🩷
@turkishpostman525 2 ай бұрын
I would also look into Cushings Disease or Syndrome, good luck take care
@chronicallyhopeful5407 2 ай бұрын
@@turkishpostman525 I have Addisons not Cushings. Low cortisol, not high.
@mandyholmberg5106 2 ай бұрын
RIP Jaupie 😢💔
@mandyholmberg5106 2 ай бұрын
I have a childhood friend Courtney she has autism and gastroparesis and also only 18% of her stomach works and she also has an autoimmune disease as well
@mandyholmberg5106 2 ай бұрын
I have learned a lot more about autism and gastroparesis for watching her KZbin videos and also my childhood friend has both of these conditions after watching her videos after the whole lot more about both of them before I started watching her videos I only knew a little bit more about both of these conditions but after watching these videos I have learned a whole lot more about both of these conditions
@mandyholmberg5106 2 ай бұрын
I am sending out my thoughts and prayers and love to her family and friends and her dog Harlow I am really! So very sorry for your loss 😢💔 even though it was a long time ago forever young she is gone way to soon she is gone but she will never be forgotten
@hmaurer1565 2 ай бұрын
It’s such a sickening feeling. You lose who you were and who you could’ve been, and it hurts so bad. Stay strong girl, we can do this. You aren’t alone.
@jillfrank6691 3 ай бұрын
It’s a PHEO pronounced “FEE-O” not THEO.
@worldbiggestgeek9366 3 ай бұрын
Amazing 😻 ❤
@exCBmami 3 ай бұрын
OH HelloW PELLOW!! I are the Czech Republic, and I'm. MY are AGE? is eighdeen!, I are carry a smith and wesson smile and I'm. I are kno every day will bee an opportunity to, to. I are here to share imforgettable momants with you. But mowst exciting is, I are in I'm, won day going to anihiem. Thurst for fun and advendure: ill now put that in a blenter lololllol!
@adamguymon7096 4 ай бұрын
I hope you are doing well?
@liamodonovan6610 4 ай бұрын
Love your videos victoria you are awesome
@meerachakkera9968 4 ай бұрын
Hi Victoria 😗😗😗😗😅
@liamodonovan6610 4 ай бұрын
You are beautiful and your twin would have been equally beautiful. You are a beautiful survivor
@chronicallyhopeful5407 4 ай бұрын
This means so much more to me than you’ll ever know. Thank you with all my heart
@liamodonovan6610 4 ай бұрын
You are a unique beautiful intelligent person victoria you are always interesting
@chronicallyhopeful5407 4 ай бұрын
Thank you so much🥰🥰 how are you doing today?
@liamodonovan6610 4 ай бұрын
@@chronicallyhopeful5407 iam ok you're video's always make feel better
@sharrison8155 4 ай бұрын
Thank you. I really needed to hear this :)
@chronicallyhopeful5407 4 ай бұрын
My pleasure! Sending positive vibes & love. I hope it’s an amazing week 🥰🥰
@worldbiggestgeek9366 4 ай бұрын
👍👍👍👍
@chronicallyhopeful5407 4 ай бұрын
I hope you’re having a lovely day
@worldbiggestgeek9366 4 ай бұрын
@@chronicallyhopeful5407 thank you 🙏
@FlaGrown1955 5 ай бұрын
Go online to Request-a-test and buy your own test. Plasma metanephrines is the true test. That is all you need.
@chronicallyhopeful5407 2 ай бұрын
@@FlaGrown1955 unfortunately it’s not that simple
@liamodonovan6610 5 ай бұрын
Wishing the the best victoria you are beautiful strong person proud of you sweetheart
@EddyB-nq3mq 5 ай бұрын
Thanks for the info, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!
@AnthonyE-rf6qu 5 ай бұрын
Well done, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!
@ShayVidz 8 ай бұрын
I love your personality
@chronicallyhopeful5407 8 ай бұрын
Thank you so much. I hope you’re having an amazing day!
@Blessedepilepticzebra 9 ай бұрын
I still miss her today. Her loss and most recently, Cheyanne, Seemed to hit me the hardest and I really interacted with them, especially Jaquie on her Patreon. Do you still find yourself missing her extra or thinking of her a lot on some days, More than others? Even so long ago frm when she passed?💔🩷🥺
@janetredus8510 9 ай бұрын
How long have you been on Xolair and how long did it take you to see a change? What were your sypmtons before Xolair was offered to you?
@valm2092 10 ай бұрын
Hello Victoria, I am totally new to your channel, after also having a Pheo, and watching your intitial video. How are you doing now? I am so sorry you have SO MUCH to contend with. I am thinking of you. ❤❤❤
@eileengabellini6935 11 ай бұрын
Hello from Chicago. Chronic urticaria non stop for over 3 months. First injection went well. Next one is scheduled. Felt sone relief in eyes and breathing. Hoping for more Relief after the next injection. Thanks for this informative video.
@shannongreenwell1278 Жыл бұрын
I was wondering what happened to you. When my dad was alive he had a PEG tube to get his Tube Feeds.
@worldbiggestgeek9366 Жыл бұрын
Hope everything is going well
@drawingclosertochrist Жыл бұрын
Praying for you on your journey.
@liamodonovan6610 Жыл бұрын
Sweetheart victoria haven't seen you in a while you are beautiful person so good to see you hope your mental health improves
@stephaniecastro1835 Жыл бұрын
Thank you for sharing, I have a lot of the same symptoms. I’m getting a CT scan in a couple days to see if I have pheochromocytoma. Your video has really helped
@aussieamy6367 Жыл бұрын
I like the name of your channel :)
@instasupermamka Жыл бұрын
How are you feeling now? Did you have surgery?
@codiannsmith Жыл бұрын
What about pvcs? Heart feels like it's skipping beats?
@chronicallyhopeful5407 2 ай бұрын
Yes, you can have that as well
@aly5117 2 жыл бұрын
Can you explain your leg pain? I’m still in a journey of diagnosis, but so much of what you describe with anxiety and sweating has taken over my life the past year. But what stood out to me was the leg pain you mentioned - I’ve had leg pain that has drastically impacted my ability to keep up with the physical activity I love so much and no one can get to the source of it. I just wonder if yours is a similar feeling to mine?
@chronicallyhopeful5407 2 жыл бұрын
Hey, I hope you are as well as possible. Please make sure to get tested if you have any suspicion. I would best describe it as cramping at times, sometimes it can be sharp, and very heavy. I’ve had an extreme amount of weakness. For symptom like that I feel like multiple illnesses probably play into it. I hope that helps a little. Please let me know if you have any other questions. Always feel free to reach out to me privately on Instagram if you need anything as well. I hope you have a lovely day
@aly5117 2 жыл бұрын
@@chronicallyhopeful5407 thank you so much for your response, I know it takes a lot when you’re going through so much. I had a 24hr urine test with some higher levels but nothing wildly out of range. As grateful as I am for a good test, I sure wish I could get to the bottom of all of this!
@chronicallyhopeful5407 2 жыл бұрын
@@aly5117 you need to do urine and blood. I hope with all my heart you get compassionate care. It can be Difficult to get a diagnosis for rare in general.
@heatherprivatecraftandchat3345 2 жыл бұрын
Thank you 🙂
@emilysadventures9165 2 жыл бұрын
You look really pretty!!!! I love your make-up, your hair, your earrings, your top....you look gorgeous!
@Imperfect21stCenturyPioneer 2 жыл бұрын
Always love listening to you Victoria no matter the distressment you are in, you are such a sweetheart. ❤️
@shannongreenwell1278 2 жыл бұрын
Unfortunately we have to keep paying for these quacks with our taxpayers money! They only see us as a money sign, half of the doctors couldn’t give a rip about the patients! I thought I could trust my Neurologist but I don’t know if I can have full trust in them now, I feel like I’m a burden to them! I would rather trust my dog’s veterinarian more than I do my human doctors! They’re useless!
@mosaicgirl4002 2 жыл бұрын
Hello Victoria! I haven’t chatted for a while- I so agree about creative projects! Enjoy Sweetheart!🌺❤️👋
@liamodonovan6610 2 жыл бұрын
You are beautiful complete woman you deserve doctor's who will listen to you to you and look after you love you victoria you are a sweet person
@liamodonovan6610 2 жыл бұрын
You are an amazing person love you so much victoria
@shannongreenwell1278 2 жыл бұрын
Prayers going up for you! Hope you feel better soon, even though we are going to have these illnesses for the rest of our lives! But we can look for the pot of gold on the other side of the rainbow 🌈
@spinstercatlady 2 жыл бұрын
May I ask what meds you take for your AI issues (Rhupus patient here - RA and lupus)?
@Imperfect21stCenturyPioneer 2 жыл бұрын
So delighted to hear from you, just as I delight in your presence to begin with. 🥰 And your cat! What determination you have!
@shannongreenwell1278 2 жыл бұрын
People are just plain ignorant and rude, you can’t fix stupid not even with a baseball bat! Ignore them. Tell them to leave their drama with their llama 🦙! I pray that you get to feeling better soon! Even though we are dealing with a chronic illness, we can hope for a little ray of sunshine ☀️!!!
@liamodonovan6610 2 жыл бұрын
You are awesome victoria your cat wants to be a KZbin superstar you are such a strong person glad you are able to achieve so much love you victoria proud of everytthing you have accomplished
@shannongreenwell1278 2 жыл бұрын
Thank you Victoria for sharing your story with me. You’ve been put through the ringer but you are still keeping on trucking! We have to, I have Epilepsy and EDS& other illnesses but I don’t want to let them keep me down!
@kristenhelmsdoerfer8390 2 жыл бұрын
I am a medical student; thank you so much for sharing your story. You are a beautiful person. All the best to you.
@chronicallyhopeful5407 2 жыл бұрын
Thank you from the bottom of my heart for taking the time to watch! Rare disease is an important element of health care. I am an extremely unique presentation medically. I've been told by most that they haven't encountered anybody quite like me. In addition to my rare diseases, we're looking into if I am a chimera. So it's all quite interesting at least in my opinion. It means so much that you took the time to learn about this. I really think education empowers all of us. Thank you from the bottom of my heart for your compassionate comment. Thank you for your diligence, hard work, and all you do. May I ask what you are studying/planning on doing?