Mutation-Driven Therapy in MDS
5:15
2 жыл бұрын
Пікірлер
@noobiedooby26
@noobiedooby26 Жыл бұрын
is 312 high? My doc is worrying me... my albumine is at 53-55 (5.3-5.5)
@Anti-leftist7777
@Anti-leftist7777 Жыл бұрын
Your hematologist will know your genetics immediately
@yourPTHannah
@yourPTHannah Жыл бұрын
Thank you so much!
@meredithknight-bx8gt
@meredithknight-bx8gt Жыл бұрын
My mother was diagnosed with MDS
@آياتنجيبخلف
@آياتنجيبخلف Жыл бұрын
Wow it’s helped me a lot thank you
@waniaarif3390
@waniaarif3390 Жыл бұрын
Quite satisfactory,,thanks
@dianeteta6057
@dianeteta6057 2 жыл бұрын
Wow nice one👌
@amymontoya9098
@amymontoya9098 2 жыл бұрын
THANK YIU SOOOOO MUCH
@shyrellspicer5173
@shyrellspicer5173 2 жыл бұрын
What if you don't have MDS
@liyasherin1232
@liyasherin1232 2 жыл бұрын
Thanku for very good explanation 🥰😊👍
@beckylucas9360
@beckylucas9360 2 жыл бұрын
My sister has MDS.Just 63 years old.She seeks her care on Monday28th.
@israrshahi6145
@israrshahi6145 3 жыл бұрын
Thanks alot great 👍
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Most welcome 😊 For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@katherinequesada7382
@katherinequesada7382 3 жыл бұрын
Love how they skipped Over the colonoscopy and endoscopy and went Straight bone marrow biopsy. Keiser stretched this out to over 3 months to get what the could have gotten in a week!
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks for your feedback! For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@farzanaalam2154
@farzanaalam2154 3 жыл бұрын
It's quite helpful ... Thanks for making such videos
@YouAndMDS
@YouAndMDS 2 жыл бұрын
It's our pleasure. For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@TexasRebornMommaShow516
@TexasRebornMommaShow516 3 жыл бұрын
My favorite Larry Hagman passed away from Myelodysplastic Syndrome 😔😣😟😥😪😢
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks for letting us know. For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@dr.gourisharma824
@dr.gourisharma824 3 жыл бұрын
Great
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Most welcome 😊 For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@madhan.s901
@madhan.s901 3 жыл бұрын
Nice job 👏
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks 😁 For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@PythagorasHyperborea
@PythagorasHyperborea 3 жыл бұрын
You can also donate blood. Great video.
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks! For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@sreenivasulusree5123
@sreenivasulusree5123 3 жыл бұрын
Very clearly explained
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Glad you think so! For more MDS information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@workingman7865
@workingman7865 3 жыл бұрын
Genesis 9:4 ESV / 223 helpful votes But you shall not eat flesh with its life, that is, its blood. Leviticus 17:14 ESV / 212 helpful votes For the life of every creature is its blood: its blood is its life. Therefore I have said to the people of Israel, You shall not eat the blood of any creature, for the life of every creature is its blood. Whoever eats it shall be cut off. Acts 15:20 ESV / 179 helpful votes But should write to them to abstain from the things polluted by idols, and from sexual immorality, and from what has been strangled, and from blood. Leviticus 3:17 ESV / 141 helpful votes It shall be a statute forever throughout your generations, in all your dwelling places, that you eat neither fat nor blood.” Acts 15:29 ESV / 135 helpful votes That you abstain from what has been sacrificed to idols, and from blood, and from what has been strangled, and from sexual immorality. If you keep yourselves from these, you will do well. Farewell.” Deuteronomy 12:23 ESV / 133 helpful votes Only be sure that you do not eat the blood, for the blood is the life, and you shall not eat the life with the flesh. Leviticus 17:10 ESV / 112 helpful votes “If any one of the house of Israel or of the strangers who sojourn among them eats any blood, I will set my face against that person who eats blood and will cut him off from among his people. Deuteronomy 12:16 ESV / 92 helpful votes Only you shall not eat the blood; you shall pour it out on the earth like water. Mark 7:18-19 ESV / 86 helpful votes And he said to them, “Then are you also without understanding? Do you not see that whatever goes into a person from outside cannot defile him, since it enters not his heart but his stomach, and is expelled?” (Thus he declared all foods clean.) Romans 14:1-23 ESV / 80 helpful votes Helpful Not Helpful As for the one who is weak in faith, welcome him, but not to quarrel over opinions. One person believes he may eat anything, while the weak person eats only vegetables. Let not the one who eats despise the one who abstains, and let not the one who abstains pass judgment on the one who eats, for God has welcomed him. Who are you to pass judgment on the servant of another? It is before his own master that he stands or falls. And he will be upheld, for the Lord is able to make him stand. One person esteems one day as better than another, while another esteems all days alike. Each one should be fully convinced in his own mind. ...
@sonja0707
@sonja0707 3 жыл бұрын
Inositol I6B reduces high ferritin. Drink coffee or calcium based foods up your D3 levels B8 all this lowers ferritin levels
@jaycole2109
@jaycole2109 3 жыл бұрын
It sounds overwhelming. My relative has this new diagnosis. Praying for all of you!
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks for your feedback. For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@ashfaqahmadofficial1257
@ashfaqahmadofficial1257 3 жыл бұрын
What a an incredible explanation...
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Glad you liked it! For more MDS information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@erikgarcia3778
@erikgarcia3778 3 жыл бұрын
Men don’t need iron woman do, donate blood 🩸 removes iron overload so you don’t cook your heart
@creativesolutionsart-h3o
@creativesolutionsart-h3o 2 жыл бұрын
How often should we donate to keep iron levels from getting too high?
@papiyadas2597
@papiyadas2597 3 жыл бұрын
💕💕💕💕💕💕 beautiful explanation
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Glad you liked it. For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@naitikxvi
@naitikxvi 3 жыл бұрын
Well explained. Thank you !!
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Glad it was helpful! For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@nehagoyal9780
@nehagoyal9780 3 жыл бұрын
Thank you for information
@YouAndMDS
@YouAndMDS 2 жыл бұрын
You are Most welcome 😊 For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@_.you._1215
@_.you._1215 3 жыл бұрын
Great video
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks!
@mudogopaul2796
@mudogopaul2796 3 жыл бұрын
Thanks its well and clear to understand
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks please share with friends and family! For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@rohitnursingacademy2150
@rohitnursingacademy2150 3 жыл бұрын
Thank you so much Mam
@Sumbu-254
@Sumbu-254 3 жыл бұрын
Thanks Soo much You saved my semester 😂😂✋
@immadisarojini2775
@immadisarojini2775 4 жыл бұрын
Lenolinamide
@immadisarojini2775
@immadisarojini2775 4 жыл бұрын
Azacitidine
@Justice4ALL.120
@Justice4ALL.120 4 жыл бұрын
I have been reading about blood transfusions and all the diseases that a person can potentially catch from them. I just found out (by reviewing my medical records) that I had blood transfusions some years ago while in an ICU on a ventilator because I had hospital-acquired double pneumonia and hospital-acquired septic shock and was not expected to survive. My life has been destroyed as I am now permanently disabled and suffer daily. (My underlying condition was a UTI and a kidney stone that I passed on my own.) My question is: How safe is medicine in general? It doesn't seem very safe to me, given all the unknowns (everything I read goes like this, 'the tests are not 100 percent accurate', 'we do not know a lot about what causes it', 'the treatments are experimental', 'there are no treatments'; 'try ibuprofen', etc, etc, etc, ad nauseum.) Then there are all the diseases one can potentially acquire while hospitalized (e.g., MRSA, C-diff, sepsis, pneumonia, etc., etc., etc., ad nauseum.) Personally, unless I am bleeding out, I will never again allow myself to be admitted to a hospital. The procedure performed almost killed me; however, I had never before been sick or hospitalized and I (stupidly) blindly trusted the urologist who said he 'needed to look around inside my kidney.' (I never saw him again after I went septic; he abandoned me.) So, given my personal experiences and all that is happening in the world right now, I really want to know what good medicine and big pharma do (unless, of course, you have money and influence and are, therefore, the recipient of only the very best medical care that money CAN buy.) NOTE: IF NOT FOR NURSES (who, in my experience, are the real heroes and lifesavers), many would die. I am certain I would have. It was the nurses and one ICU physician (with God's guiding hand) who saved my life. After I was able to be taken off the ventilator, I was transferred to the critical care respiratory unit. During my additional 12 days there, it was the nurses who managed my care (a hospitalist dr would pop in every few days for a minute or two.) When I was released I went to a urologist 60 miles from where I reside; he discovered a mass in my kidney which he successfully removed. (The 1st dr and hospital released me knowing there was a mass in my kidney; they just never bothered to tell me. Maybe they underestimated my intelligence. Or maybe they just did not give a damn, since single, older females (I was 55 at the time), in general, get worse quality health care. Watch John Oliver's segment titled, 'Bias in Medicine' on YT (when I saw this, it explained a lot about the way I was/am treated by doctors...at least that's how it is where I live in NYS.)
@BS-dq1kz
@BS-dq1kz Жыл бұрын
Thank you. I’m very anemic and contemplating going to the hospital because I’m having chest pains/palpitations and can’t breathe. I know it’s my iron. I have been told a blood transfusion helps immediately. The previous iron infusion didn’t help me at all. Idk what to do now after reading your comment. I hope you’re doing well now.
@pennynolan7597
@pennynolan7597 4 жыл бұрын
No mention of eliminating cast iron frying pans, vegan diets to eliminate taking in more iron, avoiding dried fruit, like raisins. Only drugs with side effect. Not happy with this session!
@paddywhack9261
@paddywhack9261 4 жыл бұрын
Thank You, sir. I am currently [late 2020] in the low-moderate risk category, with sub-par Red Blood Cells but not needing transfusions. There are a lot of MDS vids on KZbin, many are long and very technical. Yours is short and clear enough for me to send to friends who ask "What is MDS." Thank You again.
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks for your kind feedback. For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@themusicman2005
@themusicman2005 4 жыл бұрын
Chelation takes all metals out of the body. Which is a painful process leaves you weak.
@katc2345
@katc2345 4 жыл бұрын
my husband has been diagnosed, but we haven't had the exact kind related to us yet. But Dr wants to do chemo. Is that safe?
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Please check with your Doctor. For more information check out www.youandmds.com/en-mds/home or visit www.mds-foundation.org/
@bbchung4452
@bbchung4452 4 жыл бұрын
My mom have MDS in 2019 who was 66 years old and had done the chemotherapy ,but get the negative result,. Now she need the blood transfusions every week . So sad from Hong Kong.
@mikepreston-engel8869
@mikepreston-engel8869 4 жыл бұрын
My pancytopenia/neutropenia/thrombocytopenia/MDS (yes, I have had all four including more than one at the same time) was caused by exposure to poisons while serving in the military. My liver has failed, my kidneys are almost gone, I have c-ptsd, my heart has murmurs and arrhythmias in every quadrant, I have type 2 diabetes, edema, seizures, and other afflictions which have astounded every doctor/specialist I have every seen. (I estimate at least 50) Everyone diagnosed my illnesses as idiopathic and sent me on my way with their deepest condolences and apologies for being unable to offer me anything in the way of treatment, while at the same time, dismissing my claims that it had to be exposure to substances while serving in the military. I finally have convinced several of my doctors that it had to be exposure that has destroyed my life and health. Of course, the military refuses to own up to this. The main substances were; beryllium, benzene, silica(s), chromium, lithium, vanadium, with the worst likely being depleted uranium. Over 25 years ago, I was 'given' 6 months to live. I refuse chemotherapy, bone marrow transplants, and do not take blood due to my spiritual beliefs, so what has kept me alive? Prayer and belief in God and Christ. It's that simple.
@jesmartv4885
@jesmartv4885 5 жыл бұрын
My son is myeloid displastic syndrome, what I can do 😥😥😥today is bonemarrow procedure, all bloods are low, specially hemoglobin and pletelet 😥😥😥
@ghettoblaster4life1
@ghettoblaster4life1 3 жыл бұрын
Is everything ok ?
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks for letting us know. For more information check out www.youandmds.com/en-mds/home or www.mds-foundation.org/
@memebakri9178
@memebakri9178 5 жыл бұрын
I have MDS and i'm 33 years old 💔😢
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks for letting us know. Please reach out to the MDS Foundation visit www.mds-foundation.org/.
@alankraj9139
@alankraj9139 2 жыл бұрын
Where u go treatment
@masterofmobile7701
@masterofmobile7701 5 жыл бұрын
Available this medicine ?????
@masterofmobile7701
@masterofmobile7701 5 жыл бұрын
Well done
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks! For more info please visit www.mds-foundation.org/
@masterofmobile7701
@masterofmobile7701 5 жыл бұрын
Good
@masterofmobile7701
@masterofmobile7701 5 жыл бұрын
Thanks
@Joylifesmile
@Joylifesmile 5 жыл бұрын
Thank you for your video! My husband is trying to get to the bottom of his condition of low red blood cells count, we did a bone marrow a year ago and it was normal, did another one last week, waiting for the results but his Dr. told us he can't find a cause and recommended we go to Miami and see another Dr.
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks for letting us know. Please visit www.mds-foundation.org/
@madhukardeshpande563
@madhukardeshpande563 5 жыл бұрын
Nice explanation
@YouAndMDS
@YouAndMDS 2 жыл бұрын
Thanks for letting us know. Please visit www.mds-foundation.org/
@randilarocca8812
@randilarocca8812 5 жыл бұрын
Thank you for sharing. I learned a lot. God bless. You Rock.
@YouAndMDS
@YouAndMDS 5 жыл бұрын
We added a new content on the MDS-related Anemia topic. It includes experts discussion videos and more interviews with patients who have MDS-related Anemia. Hope you will learn more and, please, share it with others.
@varshavishwakarma6008
@varshavishwakarma6008 5 жыл бұрын
Thanku