Have the other children been tested for this horrible disease.

Gotta drink that Lorenzo's oil.

This family has really been through a lot. Four years after this was made, Ed Powers passed away from brain cancer. Kristen and Nate lost both of their parents before they were even 23 years old. I cannot imagine. And yet, they push forward.

If I was in danger of a hereditary disease like HD, I’d get tested. If positive, I’d do everything I could to live to the fullest and as soon as the first symptom showed up, I hope I’d have the courage to commit suicide. I know that seems harsh or horrible, but I would not want to live with it or have my family suffer through it.

I see this video was 11yrs old, wondering how things are going for you know? You certainly handled the testing quite well...very positive about your life and career...thank you for sharing this!

Can't begin to imagine what going thru that testing and waiting period was like! Test of Negative was like winning the lottery! What a weight lifted off your heart! Glad it was negative 😊

Hug your wife man... Why was he just sitting there? What a story... What a terrible disease. I'm so pleased for her. Glad the consultant came straight out with it right off the bat 🎉❤

So happy for her! ❤

Odd thing to make a video about, their parents are the ones suffering.

😢 please stop producing children if this condition is in your family..

The worst is people realize what they are going through. It is a locking disease. I had seen 1 patient in nursinghome and will never forget that beautiful soul(them)..prayers to all families going through such difficult time.

😊 Would love an update on what she is now up to!

I've also been tossing the coin. Mom's got it.

He dumped her ? What a dick !

Sheehan is such a beautiful person ❤️

Franco Route

Selfish. If I knew of this in advance, I would never have a child.

My fargert had to 😞

❤❤❤❤❤❤❤

love you all! a wife of a amazing husbend that has HD❤

What a relief for Mandy, i do hope shes doing well in life, shed a tear when the test results came.

Your story touched my heart cause I can definitely relate cause I love to run and my dad had hd❤️❤️❤️. I decided not to get tested until I got symronatic cause there’s no cure. My mom was harassing me to get tested as soon as I turned 18, but I said no cause I didn’t want to be thinking about it all the time. I’m from Los Angeles and there’s a lot of things I did a lot of things with family and friends. Some of my favorite things to do were clubbing, my drinks, shopping, traveling, driving, rode trips, cooking,baking from scratch, bbq, music concerts, movie theater, restaurants,pool, bowling etc. I’m so happy that you texted negative, but if you were positive at least you had your husband to support you ❤️❤️❤️. I’m single and I don’t have any kids, but I have my family and friends who are very supportive of me ❤️❤️❤️. I I’m 39 and I tested positive, but I’m still happy and positive. I’ enjoyed my life to the fullest and I did all these things cause I’m a surgical RN.

I have a question, has anyone used GENISTEIN or GENIVIDA for Huntington's disease? If so, with what effect? ​​Thanks in advance for any information.

inheriting HD from your father makes the juvenile form more likely. that’s why all these kids only have their mums left 😢 so sad

Jesús Christ that kids a fuckin hero. 15 years old and he has this mentality? Spectacular

Lucas saved his mother found his family found his dad.. When i watched the movie it broke my heart, Lucas was so brave protecting his mom and everything and finding the other guy family of 3

Feel bad for the family

Just recently tested positive for HD gene. I'm 25, male with not symptoms whatsoever. My grandmother at 65 started to show symptoms of HD 3 years ago and was ultimately confirmed the following year. Mother already died (not with HD) of cancer when I was a kid so we couldn't tell if she inherited the gene. My brother at 22 tested positive with the gene. While my other 3 siblings refuse to know their status even after having children of their own. With my condition, I decided not to have a kids unless I could afford PGT in the future. I think it's very selfish for someone to conceive if they know that they are at-risk of having the gene.

ANY kid with ANY disease is fucking horrible and unfair. Kids aren’t meant to suffer, they never should. At least give these damn kids a chance before they are diagnosed with a disease. Life is truly cruel sometimes. But still, these kids are absolute blessings. They are different but they are unique and beautiful in their own ways.

My family has hd it’s so hard to watch it. I got myself checked and thank god it isn’t in my children or I

stay strong and believe in yourself. wow I'm listening with full attention and feel I can learn alot from her doing just that

Shame on the parents

Why on earth would you have a child if there was a 50% chance? Cruel.

Excellent production on such a gut-wrenching experience and unknown life-expectancy. TY for sharing.

I cried a lot 😢 and I'm so happy for you, in my country there's no specific test for HD and I'm 39 and I started getting worried about some symptoms I have. I hope I can be that happy you are and free my two children of the burden ❤

Huningtons Disease is a horrible disease! I feel for those who have it. But, if the person with the disease chooses to have kids and subject them to that misery. It is damn right selfish! Why? Because you want a child! You can adopt.. your parents did you a disservice by bringing you into the world and they knew they had that curse! Not to say the cost that will fall upon the state to take care of these people with this disease. Those who are afflicted can get the disease as a minor or and adult . To say I am going to go on with my life as normal and have kids. How fucking selfish!!!

My fiance lost his first wife to it. They had 4 kids. Her mother had been diagnosed with dementia, so they did not know. My friend's oldest had it. #3 child died in an accident. The wife's family was large with 7 kids. 6 had huntingtons. My fiance died from type 1 diabtes. I had a talk with his late teen daughtrr. She said she wiukd be tested. Turns out she did not and had 2 children. She now has or had huntingtons. I only know what i can find on facebook. Assuming she is in care or dead. She has ruined the lives of her chikdren and husband and maybe passed it on. It ruined her father's life and all of his children. It could be erradicated if all were as responsible as this young man

Javier, como ya sabes, siempre nos encanta escucharte. Vuestra familia sois un ejemplo a seguir y las familias afectadas por EH tienen mucha suerte de poder seguir vuestros consejos. Gracias por todo lo que hacéis

thank God for DNA testing...

😊😊😊😊😊❤❤❤❤❤🙏🏻🫂♥️🤍💙

I have never met someone as brave as Luís. He is such an inspiration for other human beings. Thank you for sharing your story, I don't know how painful this must have been , but it will remain as a gift for others. ❤

Its the Diet!!! Check out these doctors on KZbin: Dr. Ken Berry, Dr. Anthony Chaffee, Dr. Shawn Baker, Dr. ERic Berg, Dr. Darren Schmidt - all on youtube!!! Please keep open mind. Carnivore diet - eating only animal products - heals the nervous system and neurons in the brain. Our foods are destroying our health. We must get back to the foods that we were eating prior to 1900. We ate more fat, cream, butter, beef, bacon, eggs, - our bodies make cholesterol if we do not get enough. Seed oils are destroying our health. They did not exist prior to 1880. Do not eat packaged foods, only one ingredient foods. NO SUGAR. SKIP FRUITS UNTIL YOU ARE HEALED THEN SLOWLY BRING BACK. Fruits and vegetables were seasonal foods and fermented for preservation, not canned. God gives us things in the world for vitality. We must save ourselves and the next generations.

so happy for you sweetie

eat paleomedicina diet to be healthy

Prayers for Us all.❤️🌎🙏📖💕

Thank. God 🙏

So happy for Kristin's test results!❤🎉❤

Thank you for your inspiring and informative talk. ❤️ 😍 💖

My condolences to all. This makes me so sad. The strength and beauty of these kids is astounding. With all the stupid crap on this planet, think of these kids and how much they have contributed to humankind.

One of my classmates from High School died of Huntington's Disease 2 years ago. Sad disease for anyone.