Where is this Driving Simulator located in Boston?
@hayleyarlt322928 күн бұрын
Thank you so much for this! It is incredibly helpful as we are trying to navigate endocrinology post-op with hemispherectomy with very little resources on the subject!
@VernonRhemАй бұрын
I don't have any vision lost just double two the right which is a quality of life change
@KaposiJuliusberg3 ай бұрын
Ce putain de collège bientôt la fin
@n8sterling7273 ай бұрын
Left HH and Unilateral neglect from ABI in 2019. Loss my pure autonomy not being able to drive and so much more. I luckily get around with the bus system in Pioneer Valley. I miss driving ao badly
@KathrynTurnerMediPal4 ай бұрын
Is the PP doc or slides available? TIA
@arghhh37645 ай бұрын
Tout bébé qui vomit vert doit être ouvert
@magik76432 ай бұрын
(Ou presque ) Apage
@simplydee25675 ай бұрын
Thank you!
@sirloin8695 ай бұрын
searched"High Schoolers Walk Out as Adults Advocate for Transgender Rights",and this sh;t came up?!?
@kikaqueen5045 ай бұрын
أنا لا أفهم اللغة الانجليزية أعلم أنهم يتكلمون عن مرض الصرع فقط لكنني أريد أن أعرف عن مدى شرحهم لهذا المرض وعلاجه فهل من أحد يترجم لي حتى ولو كان مختصرا فسأكون شاكرة لكم .
@knmusic96 ай бұрын
Sir I am from India and my 1 year baby girl suffering from hemimegalancephaly & 10 to 20 time seizure in a day.all are medicine apply but not improve to till.so we decided to brain surgery,so i was your video from youtube & i am feel good & trust .therfore I requested you can u help me ,whic is my beautiful baby can survive .then we will obliged to you.
@monikajones11106 ай бұрын
There is a good surgeon, Sarat Chandra, at AIIMS in New Delhi. Can you get there?
@knmusic96 ай бұрын
Yes sir I will reach,, is he a paediatric neurosurgeon?
@monikajones11106 ай бұрын
@@knmusic9 yes.
@СакеМаке-ь4ю6 ай бұрын
Молодец, привет из Казахстана!
@simplydee25677 ай бұрын
Can you write down the link? I have been getting push back from the school to obtain AAC for nonverbal autistic child? He is 7 years old and still don't have AAC device. 😢
@calebhollen53168 ай бұрын
I have LHH from a GBM tumor resection in my right occipital lobe. I still have some peripheral on the left. Not all homonymous hemianopsia is total.
@pgyhuang19 ай бұрын
Awesome explanation in detail of everything I need to know regarding SEEG, a process that I am about to go through. I suggest people living with epilepsy considering surgery should look at this video to get more insight. Thank you for putting up this video; it truly gave me more insights too to the questions I should ask that I did not even ask prior.
@df22069 ай бұрын
I'm a sibling of a brain cancer survivor. She had a glioblastoma when i was 6 and she was 9. I'm 57 and she is 60 now. She had brain surgery and full head and body radiation and consequently brain injury which made her cognitively impaired.
@GoldThumbGardens Жыл бұрын
I had this done in 2018 in Portland at OHSU and am going to be having it done again here soon. I was able to go home the next day!
@rakeshgulati3622 Жыл бұрын
Suffering from Right Homonymous Hemianopia since 1989 after a road accident and brain surgery to remove a clot. Please advise. Thanks. Rakesh Gulati, Delhi, India India
@shariecebrewster5962 Жыл бұрын
Need more information on what s you did
@adrianfischer7036 Жыл бұрын
*Promosm*
@gloriaodumo6353 Жыл бұрын
Thanks for this!!❤❤❤❤
@crystalharris-diaz3333 Жыл бұрын
Can I please get the email address to request the slides for this?
thank you for this, my son 6 may have to go through this. God Bless.
@simplydee2567 Жыл бұрын
Does this apply with kids with autism? Have a verbal and nonverbal kids. What assessments would I need?
@davidpayne3749 Жыл бұрын
As a former special education teacher I would see this presentation being very beneficial to all educators as an inservice opportunity. As stated often in this presentation even trained professionals do not have the knowledge to understand and assist with techniques needed for educating children with Rasmussen's Encephalitis who had a hemispherectomy. The information shared provides so many positive "tools" for assisting students with varying abilities. Thank you for sharing your experiences and creating such positive environments for your children to flourish.
@PESAlliance Жыл бұрын
Thank you for this suggestion! We do offer free school training and will consider adding several of these points to the presentation. We’re grateful for your feedback. epilepsysurgeryalliance.org/resources-for-school-teams/school-training/
@jerrydon9639 Жыл бұрын
Mrs. Emcee Epileptic seizures has nothing to do with eating right or sleeping right !! You should not give advice you know nothing about!!
@leobarbier3903 Жыл бұрын
Page 599 bientôt la fin les gars (non)
@Chloevian90 Жыл бұрын
Jsuis a bout ☠️
@maximeszkop5795 Жыл бұрын
Le meilleur pour la fin
@Viviane-fe7nz Жыл бұрын
Hahaha 😂
@titouan82888 ай бұрын
621/840 mtnt
@adderladders Жыл бұрын
Which side of the head so I slap people who tell me just to movemy head?
@everydaymiraclesfarmhomesc6587 Жыл бұрын
What kinds of accommodations could be made for my son who has recently had a hemispherectomy two years ago at age 6. He is now 8 and struggling and I believe this could be a large part of it. Also shine what on the Autism spectrum. Just wondering what kinds of solutions you have for these kids?
I would love to see the reference list used for this presentation
@NNaadah Жыл бұрын
Question? How does a parent find a doctor that will dig far enough to find the answers? I have a 20 year old son who's had an epilepsy diagnosis for 17 years. Weird thing is; in probably close to a dozen neurologists, no one can definitively "find" his seizures? We're talking level 4 epilepsy centers with neurologists who have 20 plus years of experience reading EEG's. At least 6 LTM's, and I've lost count of how many other office EEG's. There's very clear epileptiform activity. Posterior left temporal lobe with cross over to the right temporal lobe. Some discharges in the frontal lobes and sporadic generalized discharges that appear in random places across the rest of the brain. No change in EEG on or off meds (vimpat and depekote). (February 2022 - Cleveland adult epilepsy unit) Currently classified as "intractable". He's lost some neurological function over the past 4 years. Think he's had 4 MRI's at this point. Recent T3 epilepsy weighted; "sparse nonspecific punctate FLAIR/T2 white matter hyperintensities of the cerebral hemispheres" and "Left posterior temporal lobe developmental venous anomaly" (known on first MRI done when he was 4 years old). Also "Note is made of calcification along the falx." (First noted on MRI 2019 between the two hemispheres frontal lobes.) Current neurologist tells me the MRI is "normal". The current issues are memory, language processing, executive function and a constant tremor of the extremities. Right side of the body is weaker than left; comparatively speaking, arms have more strength than legs; is ambulatory with some balance and gate problems. Difficulty going down stairs, but not so much going up. He fatigues easily (maybe can walk 20 minutes to 1/2 hour before having to sit down) and sleeps between 10 and 12 hours a day. No ability to keep track of time. Has a bit of anxiety in busy public places because he states he gets confused. Emotionally stable affect though irritable when fatigued or physically uncomfortable. Had significant speech delay / processing and motor cross over midline / motor planning difficulties as a child. Was in OT until 4th grade and speech therapy until 6th. Lots of stereotyped odd posturing had been caught on previous sleep EEG's. All said to have not been seizures. Sent for 4 sleep studies over the years. Sleep clinic had no diagnosis for this behavior. Only noted frequent arousal out of stage two sleep. Much of this behavior subsided with age. Only occasional and barely noticeable now. Is more prevalent off meds though. Still stated to be non seizure. (Can't find EEG discharge correlation.) I'm told the hypothesis is "yet to be determined genetic epilepsy of unknown seizure presentation" Yet he's had every single genetic test they can run. Nothing! Mitochondrial blood work and genetic testing = nothing! My hypothesis is cognitive temporal lobe epilepsy with secondary generalization. Though I don't discount the possibility that he could have more than one form of epilepsy. IQ reasoning capacity score = 94 Memory subsets only score high 50's to mid 60's Overall IQ = 84 (Last IQ assessment done when he was 17.) Only attained about 6th grade education for lack of ability to remember / executive function organizational issues. Was diagnosed with "Aspergers" in 1st grade. Changed to PDD-NOS by 9 years old. By 14 years old; no longer met threshold for "Autistic spectrum disorder" according to DSM-5. Was given diagnosis "social pragmatic language disorder" by psychologist. I don't think he has ever really had autism. He's too aware as per "theory of mind". Understands emotions, read facial expressions, maintain eye contact, gets jokes, understands other people have different opinions. Capable of in-depth philosophical conversations that are in line with an IQ of 94. Doesn't drive, not employable. Individual martial arts lesson as form of physical therapy and acupuncture treatments seem to help. Mom here is worried about his future and current quality of life. Contacted neurology team at Henry Ford in Michigan; but we live in NY. (Waiting for response.) Any other suggestions for epileptologist who will dig far enough to find the answer as to whether or not surgery would work for him? Thanks; these videos were helpful.
@reamaygiray2297 Жыл бұрын
My son is already 4 years old now, he is diagnosed with Hydrocephalus and put a shunt on his head and undergo surgery when he was 4 months old. Now he is suffering different type of seizure and I am so afraid of what will happen 😭
@paulleFIFOU2 жыл бұрын
BONJOUR JE VIENS DU COLLEGE DE PEDIA
@calicornnor68922 жыл бұрын
Can you use EMS on anoxic brain damaged patients?
@lancelier82 жыл бұрын
Voilaaaa le collège de pieda représente
@rawlinjernigan85482 жыл бұрын
why can't u just remove or fix whatever it is without removing any part of the brain we need our brains also why can't u go into the brain very carefully to reconnect whatever it is instead of wanting to remove a portion of the brain because we need our brains and if it were me I wouldn't want to have an after affect after surgery and what is up with wanting to drill in somebodys brain u make it sound as if ur target is too kill people with seizures or epilepsy
@gloriaodumo63532 жыл бұрын
Amazing!! For the first time I am knowing about the assesments necessary for my child. Thank you so very much Audrey and Mónica for this massive information 🙏🙌❤
@salihoque82672 жыл бұрын
please your number
@nataleehutchins94762 жыл бұрын
This was really eye opening, because we were told from the beginning that our son would need surgery. I am so grateful we live in Utah and were connected to the right people to help us. I was so unsure about surgery and was a reck that day, but my son has a quality and full life. We lived in and out of the hospital with his seizures. He was on 4 medications right before surgery. Our team was just trying to wait until he was 3 months before surgery, but after having non stop seizures for an hour and a half we couldn't wait. Our little one was 7 weeks old and is now 4 years seizure free! He is doing amazing. Growing and developing.
@sophieamarant15362 жыл бұрын
This is my worst fear. I’m 14 years post opp. I had one seizure a year later. I was recently given Keppra for a non epileptic event. It’s been almost 2 weeks and I’m still terrified.
@billieellish9553 Жыл бұрын
I'm 11 and have epilepsy and take keppra and clobazam and aptiom. So I take like over 1000s of mg of medicine a day because I need to but I hope ur better now
@SRoseBlog2 жыл бұрын
working w an 11 year old boy w intellectually disabled. he is at the beginning. he doesn't know letter sounds I desire greatly for him to be literate and know to count money
@TinaLouiseWallace2 жыл бұрын
Thank you so much for this. I definitely need to watch multiple times but this is so helpful!!! I have 2 children now with IEP’s out of 3 kids one is in 3rd, the other is 3 years old but he should be in the district preschool which is for children with special needs as well as typically developing “peers”. He qualified for an IEP and is getting PT since not walking yet but they say he doesn’t qualify for the preschool. 🙈 makes no sense
@SomosLaNuevaEra2 жыл бұрын
❤❤❤️
@chalid53622 жыл бұрын
where can I get this stuff, or how to built it
@HonestlyAnnaFun2 жыл бұрын
Thank you, very Informative!
@daveyeager68992 жыл бұрын
Teaching Sammie to read
@chetagracious95562 жыл бұрын
I will recommend you all to Dr Omar regarding infantile spasms. His medication is unique, very effective and fast in action. You can as well subscribe to his youtube channel via Dr Omar Meds