Do you have to do this perfectly? I have the pills but I haven't been able to replace stuff like toothpaste. I just want to feel better 😢
@liliaslens4 ай бұрын
Yes. If you do not follow it completely it will not work. I recommend reading the book as it helps explain a lot. For toothpaste I recommend Tom’s of Maine silly strawberry.
@slemire Жыл бұрын
thank you for all your updates and sharing your story with the internet! my girlfriend (21) is contemplating guaifenesin and we are exploring all the resources and information available. it's been so great to hear your experiences and stories as someone who is also young and still physically and mentally growing. we are working through St Amand's book and the protocol prep, but taking things slow since my girlfriend can often be a hypochondriac when trying new things and her fibro symptoms are a sensitive subject. if you don't mind sharing, what dosage are you taking? how bad were the first few weeks/months of reversal pain? how did you know when you reached your first set of "good days" on the treatment? how often do you have reversal cycles now that you have been on the protocol for so long? and is there any other information someone just getting started should know about the pain and pain cycles, etc? thank you so much for any and all information <33 have a great day!
@liliaslens Жыл бұрын
Hi! Everyone reacts differently but I am a low dose so I take 300 mg. I would recommend joining the Facebook group because it’s really amazing to have support and hear a bunch of other peoples stories. It can be scary to start, especially when medical things are scary which I 100% understand. Wishing the both of you healing thoughts with your journey!
@bryankang32862 жыл бұрын
Would you say the guai protocol is working? And do you know how much salicylate is allowed and how long it stays in ur body to block the guai? Thank you
@liliaslens2 жыл бұрын
The protocol is definitely working. I wasn’t really able to function at all before. You can’t really have any salicylates. The website www.fibromyalgiatreatment.com really has more info. It blocks for 24 hours after you take or apply something that would block.
@bryankang32862 жыл бұрын
@@liliaslens thank you. For hand soaps and hand sanitizers, do I need to get salicylate free products for them too?
@liliaslens2 жыл бұрын
Yes. Anything that goes on your skin. If it’s just once and awhile at a restaurant or something like that it’s ok but not everyday use. Read the website at least and the book if you can because it really helps. If you don’t follow it correctly it doesn’t work so being careful about products is important.
@bryankang32862 жыл бұрын
@@liliaslens ty so much. I’m a nurse so only thing I can’t control is hand soap and sanitizers at work bc I constantly have to use them… bad news for me. I’ve read the book already and it was good. May I ask u what product of hand soap and toothpaste u use at home? Sorry for asking so many questions :(
@liliaslens2 жыл бұрын
@@bryankang3286 Hand soap and sanitizer at work can be hard. If you can carrying your own is useful or if you use the same bathroom keeping some in there. I use an olay one from target that is orange blossom scent or some of the softsoap brands for hand soap. For toothpaste I use toms of maine strawberry.
@simoneperumal23342 жыл бұрын
Hi Lilia. I love your videos. You have such a positive attitude about life, and it is truly refreshing. I've been watching your videos for a few years, and I notice that you speak alot about your fibro flaring up during periods of heightened stress. Do you think that, even through the stress, you are still much better now than prior to gaui? I am wondering because I am in my twenties and I am in a stressful job (teaching). I know it is anecdotal, but I'd love to hear what you think :)
@liliaslens2 жыл бұрын
Hi Simone! My flare ups from stress don’t even compare to how I felt before guai. I was bedridden before and now when I get a flare up from stress my body will just be a little achy, I’m more fatigued, my brain gets a little foggy, and I sometimes get a migraine. Even these things I can make less intense with things like yoga, walks, meditation, or just taking a bit to relax. Being a teacher is stressful (my mom in one) and having ways to help manage the stress also then tends to help fibro symptoms, for me at least, be less intense or flare up less.
@masteringfibromyalgia2 жыл бұрын
That’s the thing, once clearing the symptoms and feeling better, we do more and get too busy. And our thoughts are that we want to spread the hope of the guaifenesin protocol for fibromyalgia. Thanks for sharing your update, and blessings on your new adventure.
@masteringfibromyalgia2 жыл бұрын
This is awesome! Congrats
@MasarrabahaaAbdullah3 жыл бұрын
Can I ask if you do exercise with the protocol?
@liliaslens3 жыл бұрын
Exercising helps in general, so yes. I tend to do less impact things like yoga and walking most of the time.
@MasarrabahaaAbdullah3 жыл бұрын
@@liliaslens thanks
@ebonytrotter29833 жыл бұрын
You look good with your head shaved! 🙂
@androidcelperu96904 жыл бұрын
Hiw are you? This protocol help you?
@liliaslens4 жыл бұрын
Androidcel Perú I’m doing well thank you. The protocol has helped me a lot. I wasn’t able to get out of bed and now I’m able to actually go to school and live my life. Just make sure you are following it correctly per the website www.fibromyalgiatreatment.com to make sure it works. It takes time, but it’s all worth it.
@dianeh8204 жыл бұрын
Wonderful, uplifting story, Lila!
@liliaslens4 жыл бұрын
Thank you!
@juliafuhrmann25065 жыл бұрын
How long untill you felt a difference
@liliaslens5 жыл бұрын
It depends from person to person, I started to notice I was feeling better within 7 ish months. With this protocol, you feel a little worse for a little bit before getting better.
@juliafuhrmann25065 жыл бұрын
Thankyou for the replies I’m not anywhere near there but I guess I can do it I order the product and still waiting for a diagnosis I live in australua
@liliaslens5 жыл бұрын
Julia Fuhrmann ok. Good luck! Make sure your products are salicylate free. Sending you healing thoughts!
@juliafuhrmann25065 жыл бұрын
Thank you 😘I’m trying there’s no doctors here that map. Did you have any urinary discomfort symptoms
@liliaslens5 жыл бұрын
@@juliafuhrmann2506 There are only really two that map and they are in California. Not really.
@juliafuhrmann25065 жыл бұрын
Hi I’m scared to do the protocol but need some advice help and inspiration ? Do you recommend I am scared to try .
@liliaslens5 жыл бұрын
Julia Fuhrmann I totally recommend it! About 6 years ago I couldn’t even get off the couch and now I was actually able to graduate high school and go to college full time and work. It definitely works if you do it correctly. You should check out the website www.fibromyalgiatreatment.com for more info about it.
@juliafuhrmann25065 жыл бұрын
Wow that’s amazing so happy for you I’m still waiting to get properly diagnosed I have only had it a month . Do you think it would hurt trying it even I’m not diagnosed I have the lumps all over my body and aches on trigger points
@liliaslens5 жыл бұрын
@@juliafuhrmann2506 I don't see that it would hurt to try. The only thing is that some of the bumps might go away. If you are anywhere near the LA area I recommend going to see Dr. St Amand because he can diagnose you.
@maggyshaji36185 жыл бұрын
Hello, I am from Australia Perth. Is it fine to buy the guaifenesine from Australia
@liliaslens5 жыл бұрын
As long as it is long acting you should be good.
@bibonivine5 жыл бұрын
How did you start it?
@liliaslens5 жыл бұрын
If you go to www.fibromyalgiatreatment.com they have everything you need to do to start correctly. I started with switching my products to safe ones and getting to know the protocol better. It took me a bit to completely read the book, but getting the products and guai was pretty easy.
@Jodyco15 жыл бұрын
I got mine done to it helps so much glad it helps you
@liliaslens5 жыл бұрын
I'm glad it helps you!
@FRANCESCA012346 жыл бұрын
Can I please ask, how much guaifenesin do you take and how did you establish your correct doze? I have recently started but i am not sure if i am cycling on 300x2 a day. Thank you.
@liliaslens6 жыл бұрын
Hi! Have you read the book? Everyone is different in what dose they take. I take 600 2x a day while others take a lot more or less. You should start out at 300 2x a day for about a week and see if your symptoms get worse if not bump up to 600 2x a day and keep going to you start to feel worse. Are you keeping a symptom journal? This helped me find my clearing dose. Hope this helped!
@Jodyco16 жыл бұрын
This was amazing thank you and very helpful
@liliaslens6 жыл бұрын
Glad it was helpful!
@marthasdays6 жыл бұрын
It’s really strong of you to post this
@liliaslens6 жыл бұрын
Thank you!
@NormalLifeGaming6 жыл бұрын
Great video to help others to get awareness others illness. Stay positive
@liliaslens6 жыл бұрын
Thank you!
@laineycastle25576 жыл бұрын
I completely understand. You're not alone in this fact because I've always felt the same way. I'm glad someone understands😊
@liliaslens6 жыл бұрын
Me too!
@kellyburnett49926 жыл бұрын
I’m so happy for you!!!!! I am also on the Guai protocol. Started a month and a half ago. Cant wait to feel better :)
@liliaslens6 жыл бұрын
Thank you! Good luck on the protocol! Wishing you pain free thoughts!