That was very corny

👍

Yay, Amelia! Thank you for sharing!

Behind the scenes footage: kzbin.infoWf5ahrU1DLU?si=UNYlwhhuSPYA3-jS

Hey friend, congratulations 🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼 Please could you tell how to recover balance in a MS body? Please 🙏🏼

Hykes Pinnacle

Ooo, my husband doesn't have MS but always runs hot. Gonna get us a matching pair lol

Thank you! It's been a struggle but I'll give this a try

I wear postal walking shoes.

I don’t feel my big toes right now am in big pain I will to take my insurance for that thank you for your help

This was absolutely beautiful. It needs to be out there. The thing about country is that most songs tell a story. Love this

This was really good. You should be proud of yourself!

i also moved there from california. central valley and it gets to be 110 degrees somtime. however austin 105 degrees as you stated feels like you are in Hell. its a new level of hot. my sister has MS, godspeed brother thanks for video. im guessing you moved to Idaho, if not Idaho im going to say Colorado. if not colorado im going to say Montana. i know i got 1 of them right. no way you moved to the PNW.

It sounds a bit like a rollercoaster ride in hell.🤔

When you can't look cool, be cool. Now I want one of those.

How are you now? Thanks so much

thanks for sharing. I start on ocrevus next week, and hearing about even small improvements gives me hope,

Great videos. Made me feel a little optimistic

I’m yet to be diagnosed with ms, but I have inflammation on my brain and spinal cord, have bands in my lumbar puncture and I have been housebound for 2 years. My body feels so heavy I struggle to walk, I have dizziness and my hands and feet move slowly. I was seeing double, but seems to have gone away following the oms diet. I’m hoping once diagnosed and on medication I will be able to get some kind of life back. The doctors now think I have ms after they thought I had something called adult onset Alexander disease. I go back in September and I’m hoping to be diagnosed so I can start treatment.

I used to have all of that before finding kzbin.info/www/bejne/e3m5iX2meaeWo7c

Just had my first 'full' infusion the other day, feeling good (can't stand the heat either but here in Ireland it rarely gets above 25 degrees so that's good for me 🤗) good to know that it could take a while before things really improve so onwards n upwards💃🍀

Perfect! Thank you very much 🙏🏼🙏🏼🙏🏼

Hey Cliff [sp?]! Saw this video while browsing then I watched your others. Glad the Ocrevus is working for you. I was Dx'd with RRMS last June (when I was 49); had my initial Ocrevus infusion in October and I'm getting my 2nd next week. I'm smack dab in the middle of California where it's pretty much 100 between June-Aug. Guess we will see how that goes. Oh, and I ordered an e-bike, too. Seems like we got some things in common, so I'll be excited to ride along this journey with you! Take care!

I have PPMS and I’m on Ocrevus, every 6 months, but I find it’s the side effects of O that return a month before my next infusion...not necessarily my MS symptoms. It happens in the exact same order as the first month’s side effects...first it’s stiff or ’concrete neck’, then it’s scapula pain, or ‘growing wings’ because the outer edges of the bone are really painful like my body is trying to grow wings (nothing angelic about it btw), then there’s ‘crowbar rib’ where it feels like someone is trying the pull my ribs out with a crow bar... that is a ‘shock you awake’ pain, with a gasp at the instant agony that is a 10/10 pain (and I have a high pain threshold and have had multiple major surgeries with 6/10 unmedicated pain, max!) and then of course there is the ‘nail gun head band’, where it feels like someone has used a nail gun to secure a headband across the top of my head ear to ear. More than a migraine. Lots of ‘tools’ used I know, but it’s the only way to describe this odd yet intense type of pain I’ve never experienced in my life. So I get these side effects, in that order that group together kick my ass for a month after O, then 5 month down the track...’concrete neck’, ‘growing wings’, ‘crowbar rib’ etc...in the EXACT same order when the Ocrevus is wearing off. It’s good that ‘Concrete neck’ gives me a warning that all these are ramping up, but weird that it only started and only happens after and before Ocrevus. So I was wondering if this type of pain perhaps is specific to my Ocrevus interaction with PPMS lesions and their location, or do they happen to other PPMS Ocrevus patients as well? Doctors have said ‘musculoskeletal pain’ can be a side effect, but that is vague, and mine is oddly and harshly specific. Thoughts?

Diagnosed 1997 and then 6 months later also diagnosed with l h o n Worst exacerbation popped up 2015, which is actually when I went what most people believe or call vegan I am on a diet because this is a gut disease, started out studying the practice of Dr Roy swank and his practice was moved to Dr McDougall although I never met them, I just studied what they found in their research

Heyy it’s my birthday on 28 feb 😜😂

Hey brother, thanks for the video first of all. Secondly we should always be thankful to god and i was diagnosed year a go. This was the second video i just viewed and your symptoms are similar to mine. I’m on Gilenya 0.5mg and i hate taking it. I lost my job I’m afraid to tell the MS issue to my fiancé because she might leave me thinking I’m good for nothing, sick etc and if she googled it definitely she will. On the other side I love camping and traveling ( who doesn’t ) but unfortunately I’m lazy sick feel dizziness weakness ALL the time specially 3 hrs approx after wakeup my balance has some kind if issue too nowadays despite my MRI reports shows no progression since one year ( thank god ) I am barely capable of doing anymore jobs literally any job I’m an aerospace engineer and now I feel working as a security guard for parking lot is also a difficult job for me. I’ve been let go of my job and will appreciate if you can guide me how to overcome my problems. Keeping in mind i live in the world’s worst country with zero human rights and planning to move to Europe with easier immigration so would be great if you can suggest where to move. Thank you

The Crap Gap is real. I have decided to stop Ocrevus and go back to Tecfidera due to the severity of fatigue, nausea, and headaches the Crap Gap has caused. This started 4 weeks before my next infusion. I also had very similar symptoms the week following my loading doses. I have heard it works great for others, but not for me. Good luck.

I'm on Tysabri and didn't know much about this medication, thanks for the info! I stumble on my words too! That's MS for us lol

great video, quite hopefull. I get my first infusion on the 29th. A lot of your stories of past adverse episodes sound quite familiar and I hope the Ocrevus helps. I was all good (relatively) with the MS til 3 years ago (diagnosed 15 years ago). Now I'm largely bound to our property

A woman talks about the natural method by which she cure multiple sclerosis. kzbin.info/www/bejne/nWa9fJV-abFja5Y

Glad to hear that your doing well. I was in the hospital for a week in april2019 because of numb arms, foot drop, bad balance, fatigue and confusion..I couldn't remeber 90% of that hospital stay untill 2 weeks later. After 1 month I remembered every test, drug doctors,nurses and even the crappy food. In the hospital they said I had acute disseminated encephalomyelitis(ADEM) its kinda like MS but more aggressive and hits you fast and hard. The good thing is if the attack doesn't kill you then after 6 days of IV steroids you can go home and feel normal again within 4-7 weeks. Also unlike MS ADEM is not a life long illness. In july2019 on a follow up with the neurologist. I said I feel much better then I did in april but I still can't do my physical job and I can't even ride my bike for 2 miles. Normally I bike 25miles evey day after work then hit the trails on the weekends. The fatigue, my shitty balance and the heat intolerance says NOPE. Not happy this summer😢 The neurologist said you should've been back to at least 90% ...lets do another mri... August 2019 officially diagnosed with RRMS😢 Neurologist said your MS is aggressive you gonna what good drugs....looking at all the spots on my brain and spine give me the hard stuff..Neurologist said not a good idea for u to take tysabri because you tested positive for jc virus😢... Lets try for Ocrevus👍😃 September 2019...Insurance DENIED OCREVUS😥😖😒😠 Appeal process has started my neurologist is confident that I will get this treatment with no out of pocket cost😀 Thanks for the videos...I wish you all the best on your MS journey.☺