I get things like this w my neck when I'm real tired XD (the jerking lasts a fair bit longer and is closer together tho, and sometimes affects my arms or hands, but recently ive been getting facial twitches as well and they happen more often). Should I be worried or nah?

1:51 i would be yhat girl😂😂❤❤

Captured beautifully, and i can relate to this. The most frightening feeling, but you can do nothing to prevent it. Thank you Epilepsy Action 💜💜xx

Thanks for sharing. I feel less alone after watching this. My epilepsy got me down for so many years. I lost 3 jobs, my driving licence 3 times, lost 2 friends to epilepsy. But after i lost the 3rd job it made me determined to achieve my lifelong dream of becoming an author, writing my book Jo's hidden secrets which raises money for charities close to my heart and make it into epilepsy information packs for schools

Finally somebody who understands i wish i was taken more seriously.

Well done on covering some key aspects of certain types of seizures to give insight to how experiencing an Epileptic seizure can be described by those who have them. I have a film in my mind's eye from decades of lived experience of seizures. Far less sugar coated and more gritty graphic and dramatic. I'd love to make it a powerful short film. I was interviewed for one, signed and returned the consent form but never heard from the grant recipient director again.

Balled like a baby but thank you for giving me peace 💙

I cried watching this this morning when I woke up. It encapsulates epilepsy beautifully. I just showed this to my wife (who I thank god for every day) and she was crying. Epilepsy affects loved ones as well. Once again, masterful video, I hope more get to see this.

Beautifully made

Im not crying, you're crying. Beautifully done. It just scratches the surface. The image of standing up in the sea got me....

Does anyone have serizurrs when it raining with thunder and lightening

Amazing vid

I had seizure before at school but I was playground. One happened fell out the swing, and the other 2 times over monkey bars. I was at wrestling event one started out after taking my meds I was fine.

What crap acting lol nothing like a tonic seizure

Diagnosed in 2003 the morning of state band competition. The fear before always gets louder. I've never seen this. I've said these exact words and felt the same way. Sharing the journey and process on youtube is part of the fear cycle epilepsy put me in. Love that we can use it to share that together.

This was exactly me and still is me I hate having absence seizures I get so embarrassed thanks to my childhood neighbor I got diagnosed with epilepsy because she noticed that I blanked out a lot but now I’m on lots of meds I used to collapse to the ground and times and even drop things now I blank out sometimes even say random words when blanked out and do stupid things when I blank out like recently I was drawing and I blanked and Drew a line somewhere I wasn’t meant to I got mad at myself and scribbled it out since I didn’t have a rubber I hope it gets better for anyone who does have epilepsy you guys can do this you are strong ❤❤❤❤❤❤❤❤❤

I had to work 🙃 in high school.. it's awesome you had the support I think that's so awesome!!!

I have this sorta thing though my eeg showed nothing so did my mri and stuff and I'm fine rn but I can develentily see myself in her.

Can I just proffer an update considering this was made 10 years ago. Guidance has changed about the recovery position. Now the arm that isn’t on the cheek ought to be straight as a lot of people we’re ending up with injuries to that arm unrelated to the event

I have actually have 4 different types of epilepsy, aware focal seizures & a fall risk, catamenial epilepsy, stress-induced seizures and food that have too much estrogen & damage the seizure control you have. I've have had 3 VNS surgeries, 1 right partial lobectomy(taking out damaged tissue. I gave up driving, keep my feet on the ground and plans set when I know when I might have a problem. Fortunately, my auras make me hyper aware of the condition I have; from today will be ok, to when will it happen. Don't despair, control is possible; watch what you eat. Some food is high estrogen-seizure trigger. Always be careful, sure to eat and things already listed. It is possible to live through this, but bosses aren't understanding. We need to start bugging the government, the alphabet agencies, etc. We are provided SSDI, but with today's inflation, it's ridiculous. Be very careful with using Advantage Plans. The salesman are more interested about their sales rather than than your health. For those of us who fall, make strategies to lessen the consequences. An ESA, even a cat, will help and YES, they can be trained, just like a dog. However, they do not qualify as service animals. But my cat loves me dearly. After 45 years of this, I've learned a lot. Nutrition is very important. If you have a cell phone, use it for research. Do you're best to have support group to get help and reassurance. I've found to be very good. That's the wisdo 0:50 m I have today, besides DON'T let people and their opinions affect you. Always look for the positive. I know it's hard to find, but calm & recentering yourself really works. For me, it's Chruan worship music, as I'm musician. Singing gives me great joy. Blessings & strength to everyone walking this challenging path, a better life is possible. I'm actually in rehab right now fixing my meds and strengthing my body. J😊🙏💜 0:50

I have actually have 4 different types of epilepsy, aware focal seires& a fall risk, catamenial epilepsy, stress-induced seizures and food that damage the seizure control. I've have had 3 VNS surgeries, 1 right partial libectomy(taking out damaged tissue). Gave up driving, keep my feet on the ground and plans set when I know when I might have a problem. Fortunately, my auras make me hyper aware of the condition I have; from today will be OK to OK, when will it happen. Don't despair, control is possible; watch what you eat. Some food is high estrogen-seizure trigger. Always be careful, sure to eat and things already listed. It is possible to live through this, but bosses aren't understanding. We need to start bugging the government, the alphabet agencies, etc. We are provided SSDI, but with today's inflation, it's ridiculous. Be very careful with using Advantage Plans. The salesman often are interested about their sales than your health. For those of us who fall, make strategies to lessen the consequences. An ESA, even a cat, will help and YES, they can be trained, just like. However, they do not qualify as service animals. But my cat loves me dearly. After 45 years of this, I've learned a lot. Nutrition is very important. If you have a cell phone, use it for research. Do you're best to have support group to get help and reassurance. I've found to be very good. That's the wisdom I have today, besides DON'T let people and their opinions effect you. Always look for the positive. I know it's hard to find, but calm & recentering yourself really works. For me, it's Chruan worship music, as I'm musician. Singing gives me great joy. Blessings & strength to everyone walking this challenging path, a better life is possible. I'm actually in rehab right now fixing my meds and strengthing my body. J😊🙏💜 0:50

My friend has them too

My uncle has this

God created you perfectly in his image and. Put your Trust in the Lord stay still and he will fight for you and.Stop using the Lords name in vein Guys wake up judgement day is coming give your life to JESUS CHRIST LOOK I WAS A SINNER STRUGGLING WITH LUST THEN I REPENTED AND GAVE MY LIFE TO CHRIST AND IT WAS AMAZING SO REPENT ASK FOR FORGIVENESS I BEG YOU PLEASE REPENT GUYS GIVE YOUR LIFE TO CHRIST JUDGEMENT DAY SIGNS ARE COMING THE MOON IS TURNING RED SO GIVE YOUR LIFE TO CHRIST THINGS TO DO ONCE YOU HAVE GIVEN YOUR LIFE TO CHRIST: 1. READ THE BIBLE EVERYDAY 2. PRAY EVERYDAY EVEN FOR YOUR ENEMIS SND EVERYONE IN THE WORLD DEEPLY ASKING JESUS TO ENTER YOU HEART SO HE CAN TALK WITH YOU AND ASK FOR THE HOLY SPIRIT AND REPENT EVERYDAY 3. FORGIVE EVERYONE EVEN YOUR ENEMIES IF YOU DO YOUR FATHER IN HEAVEN WILL ALSO FORGIVE YOU 4. FOLLOW THE TEN COMMANDMENTS AND SPREAD THE GOSPEL LOVE EVERYONE EVEN YOUR ENEMIES GOD BLESS YOU ALL LOVE YOU JESUS IS KING AMEN✝️✝️✝️✝️✝️✝️✝️✝️✝️✝️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

I recently had a epilepsy seizure, I was coming home from work and my neighbor heard someone like crying (was me) I don’t even remember opening the door of my flat, but thanks to my neighbor I’m alive

I have focal seizures and I pretty much dealing with it for my day it's okay

I have focal awareness seizures but I don't know why I got them but it's okay I just deal with it

Only yesterday I was getting constantly getting small seizures,l can't do anything apart from getting to the floor and letting it pass. I have a broken tooth from when I fell down to the floor,black eyes,cut forehead,l can't tolerate any bright lights as my eyes just have black out constantly,what l have is FND and l have other illnesses to deal with as well. I have had seizures in my supermarket and when taken my dog out. This is a horrible thing to go through,l lose my speech and l have no control of my body. There's nothing that can be done medication wise.l am lucky to have my families near by.l rarely leave my home because I just get so anxious about having a seizure in a public place. I wear a bracelet all the time and I carry my phone on me with a note saying to phone 999 and also to tell someone to phone my son who lives the closest to me (l have 3 sons and all of them have seen me having a bad seizure. I don't want sympathy just understanding how this affects me.l am in bed for a few days because I feel so exhausted. I have had to learn to accept what I have and get on with life the best l can.

I have epilepsy I give up beef and pork, and I take my medicine every day and night. I drink water every stop drinking soda. I love eating vegetables n0 🚫 more 🐄 or 🐖

Innoculation effects

I have jme Juvenile myclonic epilepsy and non epileptic seizures but one of the jerks can be more violent then the other its hard to tell which is which sometimes the jerking

I don't know how should I take care of myself because I was epilepsy it was so hard i use my life during for each day🤦🤦🤦🤦

When people didn't understand you so hard for stay with them

I just can’t do it with the character being named Annie.

Is this in the UK

try thc edibles.Experiments with pharmacology. There are a ton of medicines you could experiment with. good luck brother

Also if you start vomiting after a tonic clonic seizure and have dark urine or kidney pain see a doctor immediately as tonic clonic seizures may cause rhabdomyolysis which is a breakdown of the protein from your muscles that may damage your kidneys and its very painful try to drink water to flush your kidneys doctors my recommend that you receive IV

This is Nikki Anderson I been married for nineteen years

My husband always holds my hands and prays

I all three kinds when I have vocal ones people just think I am fake a serizure

I get these jerks,then I fall completely unconscious and get a seizures that longs for 1 or 1 and a half minute

This is Nikki gates

...funny that i live in Russia and have epilepsy and this video was recommended to me. I wish you luck with your campaign nonetheless. Even if i maybe unable to help.

Lesly Ramos

Is there a treatment for these seizures? I have been suffering for 5 years 🥺

Do you guys get violent after waking up from a seizure ? I had my first seizure when I was 2 it came back when I was 15 I’m 26 now & I feel like it definitely ruined my life I feel like it stunted my mental growth I have a hard time remembering things & have a hard time conversing with ppl I’m tired of ppl saying I’m immature that just makes me not talk to anyone anymore

Jelo❤😊

Annie are you okay? You taking kick 😂and I’m about to date a girl that has this so Im Researching here I want to make sure I handle it well and she’s looked after

The only thing I would say I am confident about is my art. I freaking hate hate driving. It makes me anxious, tense, and sweaty. I wish things were easier.

I got epilepsy when I was 12 I was in the 7th grade it happened in 4 period and when I woke up I was terrified and confused why I was in the nurses office and I become scared not knowing what happened a teacher informed me what happend and I was crying ,myself asleep that night😢😢😢❤❤