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Пікірлер
@reanna1441 4 ай бұрын
Being physically ill is so hard 😪 when it happens before your time simply because people who are young and healthy dont see or feel they dont believe 😔 😢so u feel so lonely 😔 she made me feel so much less lonely i loved her. R I P sweet girl!!❤❤
@albertyao7708 4 ай бұрын
Thank you for sharing. Where did you get those plastic cover?
@Erin96316 4 ай бұрын
Thank you so much!! I have had my port for years and was never able to shower without getting wet!! I was able to take my first non sponge bath in a while!! 😂
@hainguyen-bv1gm 4 ай бұрын
Where to buy those plastic sticker ?
@mandyholmberg5106 5 ай бұрын
I am sending out my thoughts and prayers and love to all of you I am really! So very sorry for your loss 😢💔 even though it was a long time ago she is gone way to soon she is gone but she will never be forgotten
@Alluska 6 ай бұрын
How many medicines did you try before they started doing the infusions :o I want to really try once I hopefully get diagnosed and try meds at the same time but I've heard that it's a long term thing to try them and can take YEARS, so I would really want to try to do infusions to get even maybe some relief IF they work for me. But let's see what the doctor says and If I can even get diagnosed. I'm so late but congrats on the port!!!
@CreatorOfTGCFS 6 ай бұрын
Giggiti
@ThePomoman 6 ай бұрын
That was a close one. 😂. Mines pretty much healed. Trying to learn to cover mine. For a shower. I got both. Chest one n peritoneal ports on my stomach. Healing for use in 3 weeks,
@debbiekanoza8535 8 ай бұрын
I something like that I have my foldable cane pocket
@StephanieJordan-qc7uu 8 ай бұрын
I just met her and now she's in a much better place no more infusions doctors appointment s i hope she's at peace.i have Crohn's disease 17yrs.enlarged heart defibrillator implanted one heart valve not working the left valve cataracts both eyes diabetic type 2 on insulin high blood pressure arthritis in the right hand bending right small bunion on the outer left big toe.prayers thank you.
@liespypolygraph 10 ай бұрын
I don't know you, lady, but keep up your positive spirit! MASSIVE love and SUPPORT from South Africa ❤❤❤🇿🇦🇿🇦🇿🇦
@LM-nu3em 11 ай бұрын
Hi, any update on the cromolyn treatment? Did you see any improvement? any side effects? Thanks
@1991pjc Жыл бұрын
I have idiopathic hypersomnia and active duty coast guard. I’ve been on xywav for 7 months now and I’m back to getting fatigued again. Did you feel you needed to come off medicine yo not build tolerance ?
@shonnybooo 11 ай бұрын
I have the same diagnosis. I was on Xyrem for years, then switched to Xywav for almost 2 years. Today, my doctor is switching me to the one-dose version of LumRyz. It may be better for you too…
@DallasMckee-ev9hw Жыл бұрын
This video is a great help
@DallasMckee-ev9hw Жыл бұрын
Where do you get them
@GAINZonWHEELS Жыл бұрын
Wait for 3 months and can during 2 months now also ..
@Jane-lw4jb Жыл бұрын
Come check out Maine !
@deborahbrunson7842 Жыл бұрын
Where can I get the plastic from?
@cv6442 Жыл бұрын
6:25 not trying to make you feel bad, but just wanted to share with you that if the medication is antibiotics, that's very dangerous. When prescribed antibiotics, you have to take the entire course of antibiotics for it to work. Otherwise, you will start to get better, but the infection will not die completely, and then it comes back with a vengeance over time. Please be careful. ❤
@RoboticNerd Жыл бұрын
Sounds like getting diagnosed is hell in itself... I have anxiety and cannot sleep in a sleep center. I could barely use the take home sleep test :/
@thunderbird3694 Жыл бұрын
Best of Luck!
@trsavage9778 Жыл бұрын
"Roofer"? I just met her... 😁
@SarahjeanandAlicia Жыл бұрын
What am I missing?
@ChronicExcessiveManliness Жыл бұрын
"Roofer"? I hardly even know her. 🤣😁
@SarahjeanandAlicia Жыл бұрын
Huh, what? What am I missing. Clearly you and someone knows something I don’t.
@ChronicExcessiveManliness Жыл бұрын
@@SarahjeanandAlicia Sorry. Old (but rather juvenile) joke. Any word that ends with the sound of "her" you treat as a double entendre. Roofer, banger, hitter, quitter, tiller, boater, whatever...and follow that with "I hardly know her" or some version. Its right up there, in the stupidity level, of "That's what she said." Humor effort, which failed...sorry. 🙂
@SarahjeanandAlicia Жыл бұрын
😀 well clearly you aren’t the only one. There were only two comments and they both said nearly the same thing. So you aren’t alone
@morgancalvi6675 Жыл бұрын
Quick release wheels...not push wheels. You can't jump a curb with wheelie bars. Power assist wheels use a different part of your arms...Smart Drive is for people with wrist function...many quadriplegics don't have good or strong wrist function and how are they supposed to connect it?
@marshmallow7640 Жыл бұрын
I loved her channel, she passed away on my birthday 😢 It devastated me
@julianhernandez6457 Жыл бұрын
I'm really sorry to hear she's going through this. It's never easy. Keep ya head up, she will get better. Sending her the biggest hugs and luck possible.😊
@thesupergreens1874 Жыл бұрын
I will try and I and so sorry for you and your dog 😢
@vernoncrivello8242 Жыл бұрын
Damn I'm sorry....
@crutch4242 Жыл бұрын
i’m so sorry
@alicevoluntad3553 Жыл бұрын
May God bless you and Frekles. ❤️🐾❤️
@ChronicExcessiveManliness Жыл бұрын
Sorry you had such a rough time...on multiple fronts, hope everything improves.
@puppyteacow2748 Жыл бұрын
Thank you for continuing to post on in her memory.
@memesissydollar3080 Жыл бұрын
Is that Freckles? I am so sorry to see she’s sick . Talk about off grid in the deep forest … Y’all have Taking life by the horns ❤! Y’all are both super talented. ❤ I love seeing ur blogs ❤ . Have a great weekend !
@elaine5470 Жыл бұрын
God bless everyone of u that helps dog. It was so sad
@catejacob1777 Жыл бұрын
Hope she recovers! Sending love ❤
@Trollge_playz Жыл бұрын
What happened 😢
@GraysenAldridge Жыл бұрын
❤
@Tejuxx Жыл бұрын
Pls how much does this medicine cost and which website can I buy it
@user-zx1ir7jt4c 10 ай бұрын
lol, you can't. It's a scheduled drug. It's literally GHB. I'm pretty sure that most doctors would be very hesitant to prescribe it as well considering the current world we live in...
@crystalkeara8868 Жыл бұрын
Do you ever have episodes of tachy brady? I have episodes where my heart rate drops into the 30’s-40’s then jumps to 140-150 bpm. It will bounce around like this for at least an hour. Breathing is difficult, presyncope and overall feel horrible. Then I just began to have tachycardia and adrenaline surges. After I feel so exhausted. I don’t know what’s going on. I’m medicated for POTS (Corlanor) and MACS. I don’t know what causes the tachy brady attacks. It’s not positional and it happens out of nowhere. Any thoughts?
@ChronicExcessiveManliness Жыл бұрын
Totally dig the staining music...truly. Sorry about the little critter, that's unfortunate. Fatigue can certainly set off additional anxiety...as can being isolated and missing your "Hunny Womans" who was gone. Should it ever behoove you (behoven? behovement?) to do an MCAS update...there are many that would appreciate it. Any updates on treatments that helped, meds that worked or not, things of that nature...should you care to. 🙂
@dancingpianofairy Жыл бұрын
I'm at 10 months. Ugghhh.
@ChronicExcessiveManliness Жыл бұрын
Lezbehonest....first time I *ever* heard of a fashion update...prior to a construction project. Cute, endearing, love your channel. The double entendre's? Top notch. Like those "steel toe"...flip-flops. 😁
@dragonflyfarm9154 Жыл бұрын
Why must you ruin the video with your nakedness? My Husband and I want to learn and watch your channel but won’t because of you advertising your body in an extremely inappropriate manner. Not all men need nor want to see a women’s body other then his own wife’s or girlfriends. If you want serious watchers then stop the nudity
@SarahjeanandAlicia Жыл бұрын
😂 then you are on the wrong channel. It hurts no one. This is how I live in the woods. So that’s how the thumbnail went. You make it seem like lots of thumbnails or videos contain nudity?!? But in-fact this is my first video like this out of hundreds of videos since day one in YT. I won’t change who I am. If I loose followers then so be it. Most people just skip it and watch the video since they are looking for insight or looking for a particular thing. If nudity makes you feel some type of way then I’m sure you’ll find a better video suited for you else where. Sorry but not sorry.
@ChronicExcessiveManliness Жыл бұрын
Came for the screenshot in the title...instead I found near starving "womens" with some cute puppies. 😁
@SarahjeanandAlicia Жыл бұрын
Not sure what any of that means 😂
@ChronicExcessiveManliness Жыл бұрын
@@SarahjeanandAlicia Naked booty on the screenshot photo at the start of the video. The two charming "womens" kept delaying the start of the greenhouse project, and may have starved to death were it that they had to rely on the produce from said greenhouse. And, some cute doggies. Mostly just trying to make you laugh. 😁
@warchild3701 Жыл бұрын
I dont get it you can walk why do you need a wheelchair ??????????
@SarahjeanandAlicia Жыл бұрын
Because a wheelchair is made to assist a person. And guess what it was assisting me at the time of this video. Have you seen old people in them? Most can walk but they need help so they use a chair. Watch my videos it could answer your questions.
@bigdogthe9th604 Жыл бұрын
Can you flip the stabilizer to protect the inside of your knee?
@apwmojack Жыл бұрын
I go in Monday to get my port . Kinda nervous about it . Maybe because it brings the whole realization that this is real . Do you have to keep the port in even after your done with chemo ? My treatment at this point is 6 treatment every 21 days so I figure it should be done in 6 months
@SarahjeanandAlicia Жыл бұрын
I don’t have the port for chemo. And since this video in 2020 I still have the port. Actually I’m on my 3rd.
@ChronicExcessiveManliness Жыл бұрын
Bravo and encore. Let us know when that kitchen window becomes a...drive up window. :)
@SarahjeanandAlicia Жыл бұрын
Deal!
@dustinkfc6633 Жыл бұрын
Just think in the 90s this was available at GNC. It does work, and can counter the side effects of finasteride side effects.
@simak2391 Жыл бұрын
Which side effect are we talking about here? Does it have an effect on androgen receptors or 5a reductase? I know they sold it as a GH boosting supplement but I haven't looked into the mechanism behind that, if there is any 😂 The supplement industry isn't exactly the most ethical...
@victoriagoddard4617 Жыл бұрын
That a great hack ! Thank you !