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Marriott Shadow Ridge-Villages
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Пікірлер
@vishalchaudhary-nf6gr
@vishalchaudhary-nf6gr 3 ай бұрын
After trying many different treatments for arthritis, I finally found relief with Planet Ayurveda. Their natural remedies have improved my joint health and reduced my pain.
@Vixinaful
@Vixinaful 4 ай бұрын
Holy COW.. Your story has me in tears. So young, peers thinking it's fake and doctors not helping either. And a pain so sharp you vomit.. Thats hardcore anxiety right there. I suspect I have rheumatoid arthritis. Im wondering if youre taking any vitamin D?
@sarahjames2245
@sarahjames2245 4 ай бұрын
You're so brave ❤ thank you so much for sharing. I have Fibro and RA also... so I relate to a lot of what you are saying xxxx
@kimmead3683
@kimmead3683 10 ай бұрын
I've had dreams of sawing my legs off because I'd be in so much pain. It started as foot pain in '95. I had breast cancer in '97 and it was all downhill after that. I hate doctors now!
@kimmead3683
@kimmead3683 10 ай бұрын
I've had dreams of sawing my legs off because I'd be in so much pain. It started as foot pain in '95. I had breast cancer in '97 and it was all downhill after that. I hate doctors now!
@marouaneazza3519
@marouaneazza3519 10 ай бұрын
Hi there! I'm a 27-year-old guy who has been dealing with Sjögren's for over 10 years, and I've been struggling with extremely dry eyes. I just wanted to say that your experience and your smile give me hope. I'm planning to get punctal plugs next week, and hearing about your journey has been really encouraging. Thank you for sharing, and I hope you're doing well!
@M00159
@M00159 Жыл бұрын
You did this video 4 years ago. Since so much time has passed, what are your thoughts now regarding the plugs? Did they make a difference for you? Do you still use them? Have they made your eyes worse?
@luticiasmall817
@luticiasmall817 Жыл бұрын
Just found out this past Monday when I call my doctor nurse bout my results n she that my A1c was good n my x-rays was good they foud out that I have rheumatoid arthritis n they referral me to a rehmatiodligist so I'm just waiting for them to call me n I be in so much pain my feet my hands n my shoulders my lower back n rite hip pain n left hip pain to n tailbone pain it's crazy
@karenkent8525
@karenkent8525 Жыл бұрын
I have a ton of lug bags. They are kind of my obsession. But I go back to my lug via travel more than any bag because it holds so much. I use it as my teacher bag. It holds my planners and my teacher binders as well as my lunch and a Dr. Pepper. Great video! I'm a new subscriber.
@wendabonazza5536
@wendabonazza5536 Жыл бұрын
I related to all of this so hard except the sleeping part. I spend most of my life in bed but I can’t sleep.
@pamelasmith2625
@pamelasmith2625 Жыл бұрын
I had Fibromyalgia for over 10 years before I was diagnosed. My doctor sent me to a psychiatrist who said I was obsessed with my health. Like you, I have been told to exercise more, get physio therapy. Take Tylenol. There is NOTHING that helps with pain. I cannot take Any of the meds they offer. I am allergic to them all. I was married for 55 years and after many years after receiving my diagnose I had a breakdown. My husband said Why didn’t you tell me you were in so much pain. He said you look ok! I couldn’t sleep with him as I would be up all night trying to sleep in my recliner and crying all night. I was devastated that after all our years together he wasn’t aware, or didn’t even try to understand what I was going through. I was in my early fifties when I as diagnosed, but feel I had it many years earlier. I can’t imagine how difficult it must be for you being so young. At least my family was grown up. I feel like I was an awful grandma to my grandson as I could never lift him or babysit on my own for my lack of energy and pain issues. My son and daughter in law just didn’t understand what I was going through as I always looked ok. Now at age 76 I am getting more and more symptoms as if Fibro isn’t enough. I just can’t imagine the hell you have been through. We just have to hope that the young scientists and doctors are curious enough to research this and come up with some answers or better yet, a cure. Most of us try to physically do as much as we can, but there are times when we need help with the little things. Please try to give yourself some tender loving care every day and surround yourself with things you love and people who are positive and support you. You have a long journey ahead. I pray you have strength,and eventually,get the help and relief you need for your your chronic pain. There are millions of us dealing with this very debilitating disease. I wish you lots of love and big hugs. There are no words to describe the pain and total discomfort we feel every minute of the day. I finally got a walker which enables me to go out for walks. It gives me the support I need and makes me feel safer so I won’t fall. I am so,proud of you being able to work and dance. What a great accomplishment for you. Love and hugs, ❤️🇨🇦❤️🇨🇦❤️🇨🇦💐🥰🌻🌹
@Lila-qr5zo
@Lila-qr5zo Жыл бұрын
Hi! Just found this video, I know it’s old but I wonder how you feel? I have RA since 4 years ago, very similar story, even the rheuma nodules in my feet and all, but mostly and more surprised is the voice box. Mine was SO swollen that I had an operation 4 months ago and the ENT couldn’t pinpoint why I had vocal cords of someone who’s smoked for 20 years (I’ve never EVER smoked and I think he didn’t believe me), so he said had to be RA although there’s no evidence of it attacking the vocal cords 🤔 . Anyway, I’m glad I saw your video honestly and really hope you are well… if not, I can tell you from my own experience what has worked for me, I was about to start Biologics this September and thankfully been feeling SO good with this health protocol, I still can’t believe it, fingers crossed I won’t need the damn medication. My aim is in a year to stop MTX too. Wish u well!
@vanwyke1
@vanwyke1 Жыл бұрын
God bless you and your family during this difficult journey. Impressed with your story and very impressed with you, your courage and your daily struggle with this insidious disease. You are doing better now and you will continue to improve as new medicines and treatments are discovered.
@lauried6974
@lauried6974 Жыл бұрын
Thanks for sharing. Sounds like you have Ehlers-danlos syndrome. Hypermobile type is most common but a geneticist would determine and there are other types of hypermobility. The flexibility, some of the pain and the bruises are consistant. That would explain why you've had symptoms your whole life. The hypermobility is also associated with more frequent infections, allergies, and autoimmunity. There is a book called Disjointed that may help.
@cris1977
@cris1977 2 жыл бұрын
Beautiful face
@shoshanachavab
@shoshanachavab 2 жыл бұрын
Please find a functional medical doctor. I am soooo sorry you are going through this. Sending love and healing energy
@shoshanachavab
@shoshanachavab 2 жыл бұрын
I too have fibromyalgia my whole life has and arthritis and possibly RH and I am going next week to test for that. I have learnt to handle my pain to a certain degree. I take natural remedies. Turmeric and magnesium and many more supplements. I don’t eat gluten or lactose or anything with preservatives in it. And you go tell your doctors that unfortunately my grandson has had RA since 9 years old.
@sarshatharayil7400
@sarshatharayil7400 2 жыл бұрын
I just pray that you keep doing great in life. Totally relatable I also ask my mom the same thing and I am pregnant and not sure how to deal with it.
@Jesussaves11155
@Jesussaves11155 2 жыл бұрын
To whoever is reading this Jesus loves you and he’s coming soon. All you need to do to be saved is believe that Jesus Christ died on the cross for your sins was buried and came back to life on the 3d day. Confess with your mouth Jesus is Lord and you’ll be saved! I hope to see you in the clouds! God bless!
@jennifer7648
@jennifer7648 2 жыл бұрын
I am 42 years old and have had fibro and RA for many years now, but was just finally diagnosed 9 months ago. I am terrified of going to a rheumatologist and will not. There are two things I will be trying. One is seeing a functional medicine doctor near me. The other is a different kind of treatment that is about two hours away, but my mom is going to take me. I feel and know every single word you are saying. I am not on disability and do not have a handicap tag for my car either. In a way it makes me feel a bit better to hear someone say that I will never not be in pain. I force myself to function too for my husband and our three kids too.
@rnguyen2516
@rnguyen2516 2 жыл бұрын
I was a backstage mom, and one of the parents didn’t send her daughter in with pink tights! I had extra tights for that reason. I wish parents sent their kids in with a double layer of tights to make changes easier. How do you label the shoes?
@LifeHacksbyStacy
@LifeHacksbyStacy 2 жыл бұрын
Oh man yup. Or the tights get torn on the littles from tap shoes etc. I always put extra in each costume bag for myself or of course a fellow dancer. For shoes I use the round mabels labels shoe labels. I have ordered the same pink ballet slipper pattern with Zoe’s full name sine now there are 4 Zoe’s alone on team! Haha. The only shoes I do not put them in is her pointe shoes because of the possibility of blisters. I don’t think they would cause an issue since they have always been in every shoe but don’t want to risk it. I put it right inside the shoe on the heel on the sole so it is super fast to see!
@RaghuvirSamartha
@RaghuvirSamartha 2 жыл бұрын
Is there a way I can connect with you directly? I am myself a patient for 35 years. I am having exact same issues you mentioned in this video. I would like to know what works! Body developing antibodies for medicines which worked earlier is the scariest experience I am having. It will be really helpful if I can connect and talk.
@francesmartha2417
@francesmartha2417 2 жыл бұрын
There's a perfect cure for fibromyalgia, my problems got solve when I started Dr. Isibor Alternative Herbal treatment and cleanser no more pains cured completely 💯🙏🙏🙏🙏....
@timschannel910
@timschannel910 2 жыл бұрын
Yes going through all this now so not sure what I have.
@nailz_byjenn9062
@nailz_byjenn9062 2 жыл бұрын
My family doesn't understand me only my 4 boys and i feel guilty that i cant function for them 😔
@nataliestevenson3621
@nataliestevenson3621 2 жыл бұрын
Wow! So glad I found this video. I was diagnosed with Fibromyalgia last summer and recently diagnosed with Seronegative Rheumatoid Arthritis. I swear im looking at myself. Everything you said you're going through and have gone through is almost identical to me accept being diagnosed as a teen. It sucks going through this crap every damn day! I'm 44yrs! And I can't even walk through the darn grocery store. I have to get one those battery carts. Forget going to the mall or something. I just stay at home. I feel all alone. The friends I thought I had are no where to be found. My poor kids, I know they get tired of me asking can they help me with stuff. I hope I can get to a point where I can walk with looking cripple and without needing an aid of some sort.
@ubself
@ubself 2 жыл бұрын
I can relate to this 💯 if you ever want to personally become messenger friends I’m down. If your on fb try find me, I live in Hawaii my fb profile pic is all in white, outside, with only the back showing, long brown hair. 🌺🌺🌺
@nataliestevenson3621
@nataliestevenson3621 2 жыл бұрын
@@ubself okay I will look you up now. Thanks
@sakshim7274
@sakshim7274 Жыл бұрын
Which specialist doctor are you seeing?
@sakshim7274
@sakshim7274 Жыл бұрын
@@ubself Hey I have the same issue may I please know which specialist doctor are your seeing?
@Dellparks3
@Dellparks3 2 жыл бұрын
I’m going to be hear this summer
@Paperchacer2010
@Paperchacer2010 2 жыл бұрын
No one understands it at all unless they experience it. It’s a battle each and everyday.
@Paperchacer2010
@Paperchacer2010 2 жыл бұрын
♥️🙌🏽🙌🏽🙌🏽
@InjectSomeCommonSense
@InjectSomeCommonSense 2 жыл бұрын
EXCELLENT JOB!
@stephanieroberts4474
@stephanieroberts4474 2 жыл бұрын
I just seen your video: doing research about the punctual plugs. I also have Sjogrens and Rheumatoid and have the dryness all over the place lol. Sometimes (for the throat) it helps to suck on sour candy, like lemon heads. The sourness forces the glands to produce more saliva. For me, sometimes it works, sometimes just a moment of..aaahhh...and sometimes it doesn't seem to help that I can notice. What eye drops are you using? Systane, over the counter, makes eyes drops. Unfortunately I haven't found the 1 kind that works for my eyes where I live anymore. I seen my eye Dr today and he suggested the gel drops. It doesn't do me good. I bought those before and it just glued my eyes shut. So, no lol. Anyways, I use what I can get as long as the doses are in sterile capsules: not a bottle. And be careful which otc eye drops you use; for people like us, some can make things worse especially when in bottles like visine. And my eye Dr told me today to call around and see what opthalmologist will take my insurance and will put the plugs in. And I also have major sinus issues. I'm scheduled for another sinus surgery next week lol. So, I do feel for you but at least your Dr recognized your symptoms as rheumatoid with Sjogrens and didn't give the run around. Praise the Lord for that. Anyways, will you keep us updated if they work for you? Or if any irritation?
@LadySax45
@LadySax45 2 жыл бұрын
I came across this video! It has been a blessing for me! I have known I had fibromyalgia since 2003. I have not been diagnosed with RA because my test keep coming back negative. But my joints hurt so bad. I’m on Lyrica and Plaquenil now. But I really don’t feel it helps me! If anyone have anything they can share with me please do!!! I was told I have OA but sometimes I feel that it’s RA so my everyday pain is awful. And you saying about the flip flops and showering I feel you 100% on that that’s me!!!
@Valir15
@Valir15 2 жыл бұрын
Have you tried changing your diet? I have all the symptoms and have changed my diet immediately. I can already feel that I am getting much better.
@LadySax45
@LadySax45 2 жыл бұрын
@@Valir15 Good morning! If you don’t mind sharing what was your diet change? Thank you in advance for your answer. Soft hugs and blessings 🤗
@Valir15
@Valir15 2 жыл бұрын
@@LadySax45 I have stopped eating wheat, gluten, meat (except for fish), anything with sugar, coffee. I eat lots of green veggies, deep coloured fruits, flaxseed, oats, a bit of brown rice, heaps of salmon, and nuts. Lots of water, yoga, and reading have helped me immensely too. Read Dr. Sarno’s books or listen to his interviews on youtube. You can do this girl 💪 Praying for you 🙏
@LadySax45
@LadySax45 2 жыл бұрын
@@Valir15 Thank you! You are so kind! Yes I want to feel better! Because hurting and being tired all the time is very depressing. I really appreciate your information you gave me!!! 💜🙏🏽
@kellycapelle9515
@kellycapelle9515 2 жыл бұрын
I am in the diagnostic phase right now, waiting to confirm with a Rheumatologist. I feel like you just shared my story. I'm so greatful you used your spoons to tell it. 🙏
@MayraGarcia-rb2zy
@MayraGarcia-rb2zy 2 жыл бұрын
Thank you do much to be so brave and share your story
@MayraGarcia-rb2zy
@MayraGarcia-rb2zy 2 жыл бұрын
So sorry, it’s incredible that all the things you said is like you were talking about me😩 every single thing you said is so true.
@grimmandmiagaming7572
@grimmandmiagaming7572 3 жыл бұрын
I am so glad that I found this video. I was diagnosed with fibromyalgia in 2015, and even then my gp thought I might have Lupus or RA. The rheumatologist thought differently. Now, 8 years later, my new gp is running a bunch of tests and my rheumatoid factor just came back positive. My sed rates are more than double the normal rate and my c reactive protein is high. The blood tests just came back today, so no official diagnosis yet. I completely understand about your husband though, as mine is the same way. Some days he really seems to get it, and others he thinks that I can just work through the pain.
@jameeldaraghmeh821
@jameeldaraghmeh821 3 жыл бұрын
How do you feel now
@jodiemorgan8063
@jodiemorgan8063 3 жыл бұрын
“And do your makeup “ so hilarious 😂
@LifeHacksbyStacy
@LifeHacksbyStacy 3 жыл бұрын
Lol! I had to re watch to see what happened. 😜 also wow how much my desk area has changed. Hahahhsa
@jodiemorgan8063
@jodiemorgan8063 3 жыл бұрын
Thank you so much for this video and your honesty. I can relate so much. I feel this video will help me come to terms with having fibromyalgia, and with learning to cope with it. Thanks again. ❤️💐
@Kimifer15
@Kimifer15 3 жыл бұрын
Would this be ok as a carry on ?
@Kikimo588
@Kikimo588 3 жыл бұрын
Thank you so much for posting this. I've felt so alone for so long 😭 I was diagnosed with fibromyalgia and arthritis at 17 😭 I had to use my grandma's walker in school and missed so many days 😭 I slept for 2 or 3 years about 20 hours a day because of the pain being so difficult. I just wanted to know what was going on and if there was something to make it go away. I still cry because I'm scared and in so much pain. It's so hard being young and our pain isn't see able. I was told at so many doctors that I was faking or it was one of my psychological diagnoses. I'm praying for a job just for something to feel normal 😥 I'm on medication for both now and it helps but the pain on bad days still is killing. Could we be friends and I also ask for some advice 😭🙏
@Kimifer15
@Kimifer15 3 жыл бұрын
Thanks great video
@jennakinion9189
@jennakinion9189 3 жыл бұрын
this was so helpful! Thank you!
@PurpleSceneNinja01
@PurpleSceneNinja01 3 жыл бұрын
From the bottom of my heart, thank you. I resonate so deeply with all your symptoms, down to the thoughts and feelings on things affected by your condition. When you talked about hating trampolines, I was floored. I hated things like that but I really couldn’t tell you why. It WAS pain. I should mention I’m 25 and haven’t been diagnosed yet.. I’d grown so used to the pain that I don’t ever think to mention it to my doctor. I thought it was normal to feel the way I did. I hadn’t yet looked into RA, never even considered until a few days ago when I had the worst bad pain day I’ve had in a long time. After listening to your story, I decided I’ll talk to my doctor. The realizations and connections I was making had me sobbing.. it made so so much of my life make so much since. I finally don’t feel like I’ve just been imagining this pain. Again, thank you! I can’t put into words the impact this has made on me <3
@madcaprhe
@madcaprhe 3 жыл бұрын
Pain like I have never experienced before in my life has hit my joints, especially my fingers and wrist, over the past month. Thank you for sharing your story, you are incredibly brave and strong.
@the_claire
@the_claire 2 жыл бұрын
can you elaborate on how it felt in your fingers and hands? thanks, and hope you’re feeling well!
@madcaprhe
@madcaprhe 2 жыл бұрын
@@the_claire it was stabbing pain that radiated, every movement, and heavy like every individualfinger was weighed down by a weight, I've never broken any bones before but I imagine it is a similar pain. Luckily, prednisone helped and then I started a course of Methotrexate and another medication (can't remember it's name right now) so the pain is mostly gone, just a little discomfort these days, manageable.
@the_claire
@the_claire 2 жыл бұрын
@@madcaprhe thank you for replying! this past month, i have experienced excruciating pain in my hands/finger, and toes/feet. it’s only when i wake up. i can not make a fist at all. everything feels very tight and won’t bend. i have to use my other hand to force them closed. same with my toes. can’t bend them. it has come to my knees recently as well. it’ll last for about a week, then i’ll have no pain for a week, then it’s all back. it only gets better with movement. even if i take a nap it comes back.
@madcaprhe
@madcaprhe 2 жыл бұрын
@@the_claire I'm sorry you are experiencing that, it is really scary when it first happens. The hardest thing I think is how exhausting it all is, when the pain is at that initial level and even when it morphs into the ongoing ever present ache and little stabs. Medication has helped a lot but it is exhausting. And medication effects people differently too, I am lucky that it works for me. I hope the pain eases for you.
@sakshim7274
@sakshim7274 Жыл бұрын
I have this pain in my complete left side of the body.... I am not able to find out to which specialist doctor I should go for the check up🥺 please help me
@Nanynmous
@Nanynmous 3 жыл бұрын
Thanks for sharing. I'm getting my puppy soon so looking forward to having a buddy on my bed days! <3
@PINKAngel0813
@PINKAngel0813 3 жыл бұрын
Can you link this want to order
@myrenehowell2940
@myrenehowell2940 4 жыл бұрын
......you right.......let people think and say what they want,..........I feel, and get same harassment issues!!
@myrenehowell2940
@myrenehowell2940 4 жыл бұрын
. good luck......he wanted a divorce, sadly..... frustration , is tight......but God, is still good.......!
@myrenehowell2940
@myrenehowell2940 4 жыл бұрын
Wooooo.......I can't get my disability.....25 plus yrs.........