Physiotherapy for Scleroderma Webinar
1:08:44
Matthew Slater & SRUK's Concert
1:46
SRUK's Free Will initiative
0:55
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Virtual  with Dame Carole Black
1:44:12
Face Facts with Dr Elizabeth Price
39:51
The SRUK Patient Registry
2:52
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Calcinosis with Dr. Ariane Herrick
53:01
What do SRUK's Research Team Do?
7:29
What is precision medicine?
1:01
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SRUK's Research in 2023
42:24
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Пікірлер
@marilynshelton2371
@marilynshelton2371 2 күн бұрын
She looks 35-40, and has no wrinkles. A sad disease, but she managed to find the humor in it.
@lulsegedbeyene5009
@lulsegedbeyene5009 9 күн бұрын
My wife is with the disease Suffering a lot. i hope doctors are working on it to get it medicated.
@lulsegedbeyene5009
@lulsegedbeyene5009 9 күн бұрын
great one
@MargaretClark-s5b
@MargaretClark-s5b 20 күн бұрын
Most people including health professionals have never heard of this cruel and devasting condition. Systemic Schlerosis is a better term for the disease in its worst form.
@spencerwilliams3385
@spencerwilliams3385 20 күн бұрын
May the penis and like be effected as well or are these organs too close to the core?
@sangitapatel1308
@sangitapatel1308 25 күн бұрын
Is that okay if i move to hot country like India then I'm getting better pls let me know dr thanks
@sangitapatel1308
@sangitapatel1308 25 күн бұрын
I have same problem start last February 😢
@abdulziyanvlogsuk.2534
@abdulziyanvlogsuk.2534 Ай бұрын
Very informative video
@Amit-i6i9u
@Amit-i6i9u Ай бұрын
"Ayurvedic treatments take time, but they work from the inside out. I trust Planet Ayurveda because they use natural ingredients, and I’m seeing real progress in my skin condition."
@Maheshthakur-vh3sx
@Maheshthakur-vh3sx Ай бұрын
After years of trying different treatments, Planet Ayurveda’s herbs have been the most effective for my scleroderma. My skin feels softer, and I have more energy now.
@priscilafry7582
@priscilafry7582 Ай бұрын
I started using prucalopride after doing extensive research when doctors couldn't help me resolve my chronic constipation. I found promising information about prucalopride's effectiveness, and after looking into where I could obtain it, I purchased it from a pharmacy in Mexico. I experimented with both 1 mg and 2 mg doses and found that the 1 mg dose works best for me, as it causes fewer headaches, though it's harder to find at Mexican pharmacies. When I take it on an empty stomach, it typically works within 30 minutes; otherwise, it takes a bit longer. I prefer prucalopride over Dulcolax (5 mg), as it provides relief that lasts for about three days, whereas Dulcolax only works for a single day and doesn’t fully address the issue. I wish I could by it here in the US
@raeharrow5140
@raeharrow5140 Ай бұрын
I found that living in Queensland, Australia, my symptoms disappeared, now, back in the UK, they have returned.
@stoicsketch
@stoicsketch 2 ай бұрын
Very good
@Felicity2121
@Felicity2121 2 ай бұрын
Very informative thank you. I have suffered since I was 19 so it’s been 30 years. Sometimes I have stopped (even in a shop) to check my feet and make sure my toes are still there. I have it all year round, even when I travelled the Gold Coast of Australia in extreme heat I was still affected with it! My FIL purchased a heated gilet last year and we all made fun of him, infact I have been with him today and he had it on. I will definitely keep it a secret if I buy one now😆🤍
@raeharrow5140
@raeharrow5140 Ай бұрын
I found that living in Queensland , Australia my Reynauds gave me no problems, now, back in the UK,, all the problems are back.
@Felicity2121
@Felicity2121 Ай бұрын
@ aww no I’m sorry to hear that. I certainly got some looks wearing my gloves!
@NikkiWilliams-vn1is
@NikkiWilliams-vn1is 2 ай бұрын
you advice me to get treatment
@danaiismile4652
@danaiismile4652 2 ай бұрын
I have a question please. I’m a man 32 years old I have ACA positive. And finally i must be SC? Now i have GERD and pain around joint finger and muscel 😢
@Hounddog3333
@Hounddog3333 4 ай бұрын
I need help!! Where can I get this procedure done in the US ? This is cutting edge science. I have hope for the first time in four years.
@nancyrudisill5404
@nancyrudisill5404 4 ай бұрын
Hi Lynn hope you are doing well still
@cindyleduc9146
@cindyleduc9146 4 ай бұрын
Very informative.. thank you
@Nisha-kl8rl
@Nisha-kl8rl 5 ай бұрын
Finding a treatment for Scleroderma that actually works has been challenging. Fortunately, Planet Ayurveda's approach has been effective. Their treatment is found satisfactory, and I’ve noticed significant improvements in my symptoms.
@MrHitec333
@MrHitec333 5 ай бұрын
great video thanks
@cielomaticaproducciones4747
@cielomaticaproducciones4747 5 ай бұрын
Please, PLEASE! Try the carnivore diet. It has reversed so many autoinmune conditions in sooo many people. Just give it a try. Many plants don't wanna be eaten so many experts theorize that they have developed deffense mechanisms that hurt us acutely (think peanut allergy deaths) or chronically (like many autoinmune conditions). Do your research and see how many THOUSANDS of people have been healed from all sort of metabolic and autoimmune diseases. Just try it. If it doesn't work, just go back to what you were doing. I know you won't regret it as it absolutely changed my life.
@lillyrocks2011
@lillyrocks2011 6 ай бұрын
I'm scared of this disease.I pray for a cure and treatments to stop or slow down immensely the collagen overproduction. 🙏🏽
@lillyrocks2011
@lillyrocks2011 6 ай бұрын
I pray for a cure, and better treatments 💊 to really stop it. It's a terrible disease! 😢
@jasanders5877
@jasanders5877 6 ай бұрын
Seriously 😳 why do you all do these video's, bur don't help anyone 😭😭😭😭
@jasanders5877
@jasanders5877 6 ай бұрын
Chloe do you reply. As I'm in desperate situation 🙏🙏🙏🙏. Please talk to me🌺💓
@Hanna-s5j
@Hanna-s5j 6 ай бұрын
Thank you.
@brendad7582
@brendad7582 6 ай бұрын
I have it on my upper back I’ve had it since I was a teenager it didn’t bother me as much as it does now as an adult it gets very itchy when it seems to grow and feels like it tightens my muscles when it gets smaller. People have said it looks like a bruise that’s only one area on my back and some days it looks like it covers my whole back just about it’s annoying.
@elainedreamies7380
@elainedreamies7380 7 ай бұрын
This was 7 years ago, be nice to know how he's doing now in 2024
@RobertaBrown-zo5km
@RobertaBrown-zo5km 7 ай бұрын
Thanks for sharing. I was just diagnosed as well. Thought I was going crazy with loosing my abilities.
@Yogagirl9935
@Yogagirl9935 7 ай бұрын
Not necessarily, I survived an almost fatal Sclero renal crisis in 2015, kidneys shut down, lungs filled up with fluid & I coded, in the ambulance..spent some time on life support, 2 months on dialysis, now kidneys function on their own, but it’s not just an early thing, I was in year 6 of diffuse Scleroderma with the Poly 3 antibody
@calpol92
@calpol92 8 ай бұрын
Anyone taking this experience trapped Gas ? I am suffering really bad with it and it was around the same time I got prescribed this?
@habanero6332
@habanero6332 8 ай бұрын
Well I had a bad Reynauds attack last night from picking up cream at a supermarket. I was wearing gloves but all of a sudden lost all my blood to my hands and had to sit at the shop for half an hour until it resolve. It makes no difference how warmly dressed you are. I lose blood while training in the middle of summer. I have tried to find a cure for this too. Just touching cold eggs while I cracked them triggered that a few days ago. I get it from cool breezes too even though I am warmly dressed. I have also been exposing myself to cold and thought it was starting to improve and it suddenly got even worse. It seems to have something to do with estrogen dominance. If I touch cold weights my vessels in my finger burst. I have no heating and I can deal with that for a while and then all of a sudden my temperature drops. I lose blood to my feet while training.
@LINESTELECOMCORDEDTELEPHONES
@LINESTELECOMCORDEDTELEPHONES 8 ай бұрын
Watching from india🇮🇳
@Jegganathsurya9619
@Jegganathsurya9619 4 ай бұрын
I'm also 🇮🇳🇮🇳
@LINESTELECOMCORDEDTELEPHONES
@LINESTELECOMCORDEDTELEPHONES 4 ай бұрын
@@Jegganathsurya9619 😌
@anne7619
@anne7619 8 ай бұрын
Thankyou. Excellent information
@lillyrocks2011
@lillyrocks2011 8 ай бұрын
I think we should het tested for more autoinmune conditions. But sometimes doctors want to put everything into the same condition. When we're having more medical conditions, and not only one. When the doctor don't have this on mind, makes it difficult for us, without the right diagnosis we suffer more and we're in confusion. Please don't forget that its so important specific medication/s to control the skin tightening, fibrosis we really really need it! 🙏🏽 Please
@kusinaniellen8858
@kusinaniellen8858 8 ай бұрын
I have also a raynods conditions. Its very hard.
@lindalu8565
@lindalu8565 8 ай бұрын
If FODMAPS are mostly processed foods , fruits and veg. How is a plant based diet supposed to heal?
@mstee3355
@mstee3355 9 ай бұрын
I have MCTD .. Polymyositis Lupus Scleroderma Raynauds .. also hypothyroidism
@travisdrive2003
@travisdrive2003 9 ай бұрын
What about the connection of the thyroid to Raynaud's? Many people with Raynaud's are also hypothyroid. Can Raynaud's be reversed by restoring proper thyroid function? These seem to be covering up the symptoms of Raynaud's, and I am hopeful for a cure for the root cause of Raynaud's.
@Crystal4RealHealing
@Crystal4RealHealing 9 ай бұрын
How come the usa doesnt take Raynaud's seriously.... I suffer from it badly . My hands , my feet , my nose , my nipples , my knee caps , and my butt cheeks suffer from this so badly i cant live a normal life , even at the beach im cold , im always cold no matter what i do
@Crystal4RealHealing
@Crystal4RealHealing 9 ай бұрын
I hate that i have Raynaud's 😢 its ruining my life and makes me hopeless
@lindafilipi8462
@lindafilipi8462 10 ай бұрын
Thank you for an informative and needed webinar!
@islandgal1187
@islandgal1187 11 ай бұрын
Thank you, this was very informative!
@islandgal1187
@islandgal1187 11 ай бұрын
Have you ever heard of any cases of limited systemic sclerosis being aggravated by physical trauma, such as a fall? I fell backward onto both hands, and fractured my left pinky. The tip of the fractured finger developed painful, thickened skin, like a callus, which I couldn't figure out. Over the next weeks, several other fingers on both hands developed swelling, Raynauds, and ulcers (right index finger severe). In 3 months I was diagnosed with limited cutaneous sclerosis, after never having these issues before the fall.
@barrymaxwell7537
@barrymaxwell7537 11 ай бұрын
Cant in scotland, as there is nowhere on forms for raynauds phenomenon, i have tried with no success
@CarolineWeharp
@CarolineWeharp 11 ай бұрын
Thank you for sharing your story, your Mother’s late diagnosis had a detrimental impact, I feel for you all. I too have this and at the moment live for the moment.
@lillyrocks2011
@lillyrocks2011 11 ай бұрын
It's terrible there's no more medications to stop this terrible disease. (Only immunopresants) but anyway this disease keeps going on, doesn't stop. It's not like Lupus that it enters in remission. Scleroderma continues attacking. 😢 This disease is extremely CRUEL. There's nothing yet to stop the collagen over production, Why? Nothing to stop the fibrosis, Why?? If this disease was cancer a lot of money for researching would be immediately there. We suffer more and everyday , and also with more health conditions ar the same time, like If we had no enough! We have to try to continue with a great lack of understanding , and extreme suffering. It's really terrible. 😢I can't understand how a rare disease like this can exist. I pray 🙏🏼 for a cure and better treatments for the fibrosis of our organs and our skin. (Collagen over production). 🙏🏼
@Cait-bw1to
@Cait-bw1to 11 ай бұрын
Just listened to Dr, sclederma mentioned but not raynauds. I have, calcianosis on both knees, Have had a lot of falls over recent years. So am assuming trauma related. I have had, raynauds, since age of 27,but has only become problematic in recent years. So basically, I want to know if people without sclederma, just raynauds can develop calcianosis?
@eugeniebreida
@eugeniebreida 11 ай бұрын
What a great doctor!